underserved

服务不足
  • 文章类型: Journal Article
    Pathways计划对于促进来自移民背景的学生的医疗保健职业的获取和成功至关重要。提出了三个案例,证明了Pathways计划的成功要素。儿科的卓越需要吸收移民社区的人才。社区能力建设和系统水平的变化可以通过相互作用的交流实践来实现,投资,和利益。导航,导师,以及对教育的结构性支持,社会,和货币资本是Pathways计划的关键组成部分。
    Pathways programs are critical to promoting access and success for careers in healthcare for students from immigrant backgrounds. Three cases are presented that demonstrate the successful elements of pathways programs. Excellence in pediatrics requires the inclusion of talent from immigrant communities. Community capacity building and systems level change can be achieved through coliberatory practice of mutual action, investment, and benefit. Navigation, mentorship, and structural support for educational, social, and monetary capital are key components of pathways programs.
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  • 文章类型: Journal Article
    背景:尽管服务不足的人群——包括来自少数民族社区和生活贫困的人群——健康状况较差,医疗保健经验较差,大多数初级保健研究不能公平地反映这些群体。患者和公众参与(PPI)通常嵌入在英国(UK)的研究中。但往往不能代表服务不足的人群。这项研究与患者和公共贡献者以及当地社区领导人合作,位于社会经济贫困和种族多样化的城市地区,探索初级卫生保健研究中代表性不足的问题。
    方法:我们进行了一个焦点小组,其中包括6名患者和公众参与小组(PPIG)的成员,采访了4位社区领袖(代表布莱克,南亚,罗姆人和社会经济贫困社区)。使用基于模板分析的迭代分析过程。焦点组1进行了快速分析,和创建的模板。研究结果在焦点小组2中提出,模板进一步发展。文化创伤概念被应用于模板,以提供更广泛的理论视角。然后根据模板对焦点小组和访谈进行深入分析。
    结果:更广泛的社会和历史影响降低了服务不足人群对学术和医疗机构的信任。随着更实际的考虑,信任是参与研究的个人动机的基础。研究人员需要投入时间和资源,与对他们的研究具有重要意义的社区进行互利接触,包括分享对研究重点的权力和影响力。研究人员对差异权力和文化能力的反思至关重要。利用包括联合制作在内的参与式方法表明了对包容性研究设计的承诺。
    结论:迫切需要重新构建循证医学,使其对健康负担最高的服务不足人群更有用和更相关。初级医疗保健研究中缺乏代表性反映了更广泛的社会不平等,文化创伤提供了一个有用的镜头。然而,研究人员可以采取一些行动来扩大代表性。这最终将有助于通过加强科学严谨性和研究的普遍性来实现增加健康公平性的目标。
    目标:生活在贫困中的人们,来自少数民族社区的人可能被称为“服务不足”。服务不足的社区从卫生服务中受益较少,以及其他因素,这导致健康不平等。初级保健研究没有包括来自这些社区的足够多的人。这使得健康不平等更加严重。
    这项研究着眼于为什么服务不足社区的人不包括在研究中。它还研究了可能有帮助的东西。我们与患者和公众参与小组(PPIG)的成员进行了焦点小组讨论。这些人没有研究专长,而是利用他们作为病人的生活经历来影响研究过程。这个群体成立于2017年,来自更多的人生活在社会劣势的地区。我们还采访了当地社区领导人。访谈和焦点小组提出开放性问题,所以是探索人们对问题的看法的好方法。我们发现了一个关于文化史如何影响人们可以做什么的有用理论。我们利用这一点来帮助我们了解我们的发现如何改善和扩大服务不足社区的研究参与。
    我们发现信任非常重要。人与组织之间需要信任。还有一些实际原因,来自服务不足社区的人们可能无法参与研究。研究人员需要意识到这些事情,并在研究的所有阶段与这些社区的人合作。长期关系需要在机构和从事研究的人之间发展。了解彼此的文化和历史使我们更容易合作。
    BACKGROUND: Although underserved populations- including those from ethnic minority communities and those living in poverty-have worse health and poorer healthcare experiences, most primary care research does not fairly reflect these groups. Patient and public involvement (PPI) is usually embedded within research studies in the United Kingdom (UK), but often fails to represent underserved populations. This study worked with patient and public contributors and local community leaders, situated in a socio-economically deprived and ethnically diverse urban area, to explore under-representation in primary healthcare research.
    METHODS: We undertook a focus group with a purposive sample of 6 members of a Patient and Public Involvement Group (PPIG), and interviews with 4 community leaders (representing Black, South Asian, Roma and socio-economically deprived communities). An iterative analysis process based on template analysis was used. Focus group 1 was rapidly analysed, and a template created. Findings were presented in focus group 2, and the template further developed. The Cultural Trauma concept was than applied to the template to give a wider theoretical lens. In-depth analysis of focus groups and interviews was then performed based on the template.
    RESULTS: Wider societal and historical influences have degraded trust in academic and healthcare institutions within underserved populations. Along with more practical considerations, trust underpins personal motivations to engage with research. Researchers need to invest time and resources in prolonged, mutually beneficial engagement with communities of importance to their research, including sharing power and influence over research priorities. Researcher reflexivity regarding differential power and cultural competencies are crucial. Utilising participatory methodologies including co-production demonstrates a commitment to inclusive study design.
    CONCLUSIONS: Re-framing evidence-based medicine to be more useful and relevant to underserved populations with the highest burden of ill health is urgently needed. Lack of representation in primary healthcare research reflects wider societal inequalities, to which Cultural Trauma provides a useful lens. However, there are actions that researchers can take to widen representation. This will ultimately help achieve the goal of increased health equity by enhancing scientific rigour and research generalizability.
    OBJECTIVE: People living in poverty, and people from ethnic minority communities may be referred to as ‘underserved’. Underserved communities benefit less from health services, and along with other factors, this leads to health inequalities. Primary care research does not include enough people from these communities. This makes the health inequalities  worse.
    UNASSIGNED: This study looks at why people from underserved communities are not included in research. It also looks at what might help. We had focus group discussions with members of a Patient and Public Involvement Group (PPIG). These are individuals who do not have research expertise, but use their lived experience as patients to influence the research process. This group was formed in 2017, from areas where more people live with social disadvantage. We also interviewed local community leaders. Interviews and focus groups ask open questions, so are a good way to explore what people think about an issue. We found a useful theory about how cultural history affects what people can do. We used this to help us to understand how our findings could improve and widen participation in research within underserved communities.
    UNASSIGNED: We found that trust is very important. There needs to be trust between people and organisations. There are also practical reasons people from underserved communities might not be able to get involved in research. Researchers need to be aware of these things, and work with people from these communities throughout all stages of research. Long term relationships need to develop between institutions and people doing research. Understanding each other’s culture and history makes it easier to work together.
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  • 文章类型: Journal Article
    介绍乳腺癌筛查的差异导致了LindaFenner3D移动乳房X线摄影中心(LFMMC)的创建,成功地增加了对迈阿密戴德没有保险的女性的筛查。然而,发现不确定的乳房X线照片(乳腺成像报告和数据系统(BI-RADS)0)的发生率高于预期,这可能会导致不必要的程序,压力,成本,和辐射。方法在这项回顾性横断面研究中,我们分析了来自Miami-Dade的3,044名年龄超过40岁(如果乳腺癌家族史阳性,则年龄较小)的无乳腺症状或乳腺癌病史的未参保女性的数据.妇女的人口特征,主要语言,体重指数(BMI),使用激素替代疗法和节育,良性活检史,乳房手术,家族乳腺癌,和绝经状态被评估为不确定的(BI-RADS0)筛查乳房X线照片结果的潜在危险因素.使用多变量逻辑回归分析来评估相关性。结果女性平均年龄为51岁(SD=9);59%为白人,30%是非洲裔美国人。BI-RADS0的总频率为35%。对于年轻的女性,BI-RADS0的几率更高,单身,绝经前,有良性活检史.相反,肥胖和乳房种植史降低了BI-RADS的几率为0.结论我们在LFMMC样品中发现了较高的BI-RADS0频率。潜在的原因包括患乳腺癌的风险较高或筛查的女性样本较年轻。未来的研究应该探索放射科医生为年轻女性分配BI-RADS0结果和测试替代筛查策略的推理。
    Introduction Disparities in access to breast cancer screening led to the creation of the Linda Fenner 3D Mobile Mammography Center (LFMMC), successfully increasing screening for uninsured women in Miami-Dade. However, a higher-than-expected rate of inconclusive mammograms (Breast Imaging-Reporting and Data System (BI-RADS) 0) was found, which could lead to unnecessary procedures, stress, costs, and radiation. Methods In this retrospective cross-sectional study, we analyzed data from 3,044 uninsured women aged over 40 (younger if positive family history of breast cancer) from Miami-Dade without breast symptoms or breast cancer history. Women\'s demographic characteristics, primary language spoken, body mass index (BMI), use of hormone replacement therapy and birth control, history of benign biopsy, breast surgery, family breast cancer, and menopausal status were assessed as potential risk factors for an inconclusive (BI-RADS 0) screening mammogram result. Multivariable logistic regression analyses were used to evaluate associations. Results The average age of women was 51 years (SD = 9); 59% were White, and 30% were African American. The overall frequency of BI-RADS 0 was 35%. Higher odds of BI-RADS 0 were found for women who were younger, single, premenopausal, and with benign biopsy history. Conversely, obesity and breast implant history decreased the odds of BI-RADS 0. Conclusion We found a high frequency of BI-RADS 0 in the LFMMC sample. Potential reasons include a higher risk for breast cancer or a younger sample of women screened. Future research should explore radiologists\' reasoning for assigning BI-RADS 0 results and testing alternative screening strategies for younger women.
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  • 文章类型: Editorial
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  • 文章类型: Journal Article
    背景:老年LGBTQIA+患者在医疗保健方面面临歧视,因此有时不愿与医疗保健提供者互动。本报告探讨了是否可以使用大型医疗互联网平台来吸引这些患者,并描述了这样做的首选方法。
    方法:这项研究使用了MayoClinicConnect,持续监控,基于互联网的100,000多名用户的社交媒体平台。参与者完成了简短的在线调查,以确保他们的研究资格。没有询问患者识别数据。然后,参与者将在指定的白天时间通过电话进行45分钟的定性采访。或者,作为第二个后续选项,他们将完成对有关其健康和医疗保健的4个问题的在线打字回答。电话采访选项的可用性与键入的响应选项之间没有时间重叠。
    结果:对于电话采访,64人中有17人被视为合格,但没有人打电话来面试。相比之下,对于键入的响应选项,37人中有20人符合资格并提供了评论。
    结论:大型医疗互联网平台可用于吸引老年LGBTQIA+患者,但是使用键入的注释似乎更成功,大概是因为更大的匿名性和便利性。
    BACKGROUND: Older LGBTQIA+ patients face discrimination in healthcare and therefore are sometimes reluctant to engage and interact with healthcare providers. This report explores whether a large medically-based internet platform can be used to engage these patients and describes preferable methods for doing so.
    METHODS: This study used Mayo Clinic Connect, a continuously monitored, internet-based social media platform of 100,000-plus users. Participants completed a brief on-line survey to ensure their study eligibility. No patient-identifying data was asked. Participants then were to call in by phone during specified day time hours for a 45-minute qualitative interview. Alternatively, as a second subsequent option, they were to complete an on-line typed response to 4 questions about their health and healthcare. No temporal overlap occurred between the availability of the phone interview option and the typed-in response option.
    RESULTS: For the phone interviews, 17 of 64 individuals were deemed eligible, but no individual called in to be interviewed. In contrast, for the typed-in response option, 20 of 37 individuals were eligible and provided comments.
    CONCLUSIONS: A large medically-based internet platform can be used to engage older LGBTQIA+ patients, but the use of typed-in comments appears more successful, presumably because of greater anonymity and convenience.
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  • 文章类型: Journal Article
    本评论考虑了美国目前可用的避孕药具是否满足了所有当前或潜在的用户需求,并提出了为研究提供资金以增强避孕选择的理由。人们避孕失败的发生率很高,意外怀孕,和一个重要的比例经历了对现有避孕方法的高度不满。鉴于越来越多的堕胎限制,更好地满足非用户或不满意用户需求的其他选项变得越来越重要。改进的重点包括减少副作用,负担能力,和易用性,所有这些都具有很高的效率。虽然可用的产品对大多数用户来说是安全的,那些有风险的人可以通过筛查来识别,无需筛查并解决不满意和禁忌症的其他安全方法将是可取的。通过典型的市场机制解决这些差距并没有发生。对避孕研究和开发(R&D)的兴趣和投资水平非常低,部分原因是广泛使用和避孕选择的明显多样性可能会导致人们错误地认为避孕是一个“解决的问题”。“即使在全球避孕药具市场每年250亿美元的激励下,2021年美国避孕药具研发支出总额仅为1.49亿美元,而制药研发支出总额为2500亿美元。需要增加避孕药具研发的优先事项和资金。每年需要约5亿至10亿美元的支出,以应对阻碍该领域发展的关键挑战。
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  • 文章类型: Journal Article
    背景:个人越来越多地采用移动健康(mHealth)可穿戴设备来帮助管理和监视生理信号。然而,可穿戴设备的当前状态没有考虑种族化的低社会经济地位(SES)社区在可用性方面的需求,可访问性,和价格。这是一个需要立即关注和解决的关键问题。
    目的:本研究的目的是3倍,(1)了解少数族裔低SES社区的成员如何看待当前的mHealth可穿戴设备,(2)确定采用的障碍和促进者,(3)阐明未来可穿戴设备的设计要求,以实现这些社区的公平访问。
    方法:我们对来自美国中西部和西海岸2个大都市的西班牙裔或拉丁裔成年人(N=19)进行了半结构化访谈。参与者被问及如何看待可穿戴设备,当前使用的好处和障碍是什么,以及他们希望在未来的可穿戴设备中看到什么功能。通过探索性定性方法确定和分析了共同主题。
    结果:通过定性分析,我们确定了四个主要主题。参与者对可穿戴设备的看法受到他们COVID-19经历的强烈影响。因此,第一个主题与COVID-19对社区的影响有关,以及这如何导致对可穿戴设备的兴趣显著增加。第二个主题强调了在获得足够的卫生资源方面面临的挑战,以及这如何进一步激发参与者对健康可穿戴设备的兴趣。第三个主题侧重于对医疗保健基础设施和系统的普遍不信任,以及这些挑战如何激发对可穿戴设备的需求。最后,与会者强调迫切需要社区驱动的可穿戴技术设计。
    结论:这项研究的结果表明,由于COVID-19大流行和医疗保健获取问题,来自服务不足社区的参与者对使用健康可穿戴设备表现出了新的兴趣。然而,这些人的需求被排除在当前设备的设计和开发之外。
    BACKGROUND: Mobile health (mHealth) wearable devices are increasingly being adopted by individuals to help manage and monitor physiological signals. However, the current state of wearables does not consider the needs of racially minoritized low-socioeconomic status (SES) communities regarding usability, accessibility, and price. This is a critical issue that necessitates immediate attention and resolution.
    OBJECTIVE: This study\'s aims were 3-fold, to (1) understand how members of minoritized low-SES communities perceive current mHealth wearable devices, (2) identify the barriers and facilitators toward adoption, and (3) articulate design requirements for future wearable devices to enable equitable access for these communities.
    METHODS: We performed semistructured interviews with low-SES Hispanic or Latine adults (N=19) from 2 metropolitan cities in the Midwest and West Coast of the United States. Participants were asked questions about how they perceive wearables, what are the current benefits and barriers toward use, and what features they would like to see in future wearable devices. Common themes were identified and analyzed through an exploratory qualitative approach.
    RESULTS: Through qualitative analysis, we identified 4 main themes. Participants\' perceptions of wearable devices were strongly influenced by their COVID-19 experiences. Hence, the first theme was related to the impact of COVID-19 on the community, and how this resulted in a significant increase in interest in wearables. The second theme highlights the challenges faced in obtaining adequate health resources and how this further motivated participants\' interest in health wearables. The third theme focuses on a general distrust in health care infrastructure and systems and how these challenges are motivating a need for wearables. Lastly, participants emphasized the pressing need for community-driven design of wearable technologies.
    CONCLUSIONS: The findings from this study reveal that participants from underserved communities are showing emerging interest in using health wearables due to the COVID-19 pandemic and health care access issues. Yet, the needs of these individuals have been excluded from the design and development of current devices.
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  • 文章类型: Journal Article
    在经常艰苦的旅程之后,一些难民身受重伤或生病抵达安全地点。其他人发现自己不久之后面临着限制生命的健康状况。姑息治疗一直是最近研究的焦点,以及学术和援助部门的对话。在这项研究中,我们提出了在人道主义危机背景下探索姑息治疗的道德和实践层面的更大研究计划中的定性子研究结果。本文介绍了卢旺达两个难民营中难民和护理提供者的姑息治疗,并且是最早为逃离旷日持久的冲突并面临远离家乡而死的个人的第一手经验提供经验证据的国家之一。随着他们经历的叙述,参与者提供了一系列低成本的小型(微型)干预措施的建议,但是影响力很大,通过对政策制定者和决策者的系统和社会水平的更大(宏观)变化。
    After often gruelling journeys, some refugees arrive at secure locations with severe injury or illness. Others find themselves shortly thereafter facing a life-limiting health condition. Palliative care has been the focus of recent research, and of academic and aid sector dialogue. In this study, we ask: What are experiences and needs of patients and care providers? What opportunities and obstacles exist to enhance or introduce means of reducing suffering for patients facing serious illness and injury in crisis settings? We present findings of a qualitative sub-study within a larger programme of research exploring moral and practical dimensions of palliative care in humanitarian crisis contexts. This paper presents vignettes about palliative care from refugees and care providers in two refugee camps in Rwanda, and is among the first to provide empirical evidence on first-hand experiences of individuals who have fled protracted conflict and face dying far from home. Along with narratives of their experiences, participants provided a range of recommendations from small (micro) interventions that are low cost, but high impact, through to larger (macro) changes at the systems and societal levels of benefit to policy developers and decision-makers.
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  • 文章类型: Journal Article
    背景:美国有超过2000万儿童无法获得初级卫生保健。
    研究表明,经常获得身心健康服务的学生缺勤较少,更社交,不太可能参与危险行为,有改善的重点和更高的考试成绩。
    以学校为基础的健康中心(SBHC)可以是一个重要的,有价值和可行的医疗保健提供选择,以满足学生的全方位初级医疗保健需求,他们在那里度过了大部分的唤醒时间,ie,在学校。农村和其他服务不足社区的儿童,以及那些保险不足的人,无保险,经济挑战,服务不足,我们当中最脆弱的人尤其处于危险之中。
    结论:本文讨论了历史,值,从无数的角度来看,SBHCs的重要性,包括身体和情感健康,学术和社会成功,并促进向成年的积极过渡。此外,作者们分享了在纽约州哈德逊河谷中部地区建造第一座SBHC的经验。这些经验为有兴趣将SBHC带到学校和地区的个人和学校领导者创建重要路线图奠定了基础。
    BACKGROUND: More than 20 million children in the United States lack access to primary health care.
    UNASSIGNED: Research shows that students with regular access to physical and mental health services have fewer absences, are more social, less likely to participate in risky behaviors, have improved focus and higher test scores.
    UNASSIGNED: School-based health centers (SBHCs) can be an important, valuable and viable health care delivery option to meet the full-range of primary health care needs of students where they spend the majority of their wake hours, ie, in school. Children in rural and other underserved communities, as well as those underinsured, non-insured, economically challenged, underserved, and the most vulnerable among us are especially at risk.
    CONCLUSIONS: This paper discusses the history, value, and importance of SBHCs from myriad perspectives, including physical and emotional wellbeing, academic and social success, and the promotion of a positive transition to adulthood. In addition, the authors\' experiences that resulted in building the first SBHC in the Mid-Hudson Valley Region of New York State are shared. These experiences form the foundation for creating an important roadmap for individuals and school leaders that are interested in bringing a SBHC to their school and district.
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  • 文章类型: Journal Article
    背景:阿尔茨海默病(AD)在加勒比海地区正在增加,特别是非洲血统的人(PAA)和妇女。然而,研究大多利用没有AD生物标志物的调查。
    方法:在Tobago健康研究中(n=309;109名妇女,平均年龄70.3±6.6),我们评估了血清磷酸化tau-181(p-tau181)水平的性别差异和危险因素,淀粉样β(Aβ)42/40比例,胶质纤维酸性蛋白(GFAP),和神经丝轻链(NfL)。男性的血液样本为2010年至2013年,女性的血液样本为2019年至2023年。
    结果:女性更肥胖,高血压,久坐不动,但报告吸烟和饮酒少于男性(年龄调整后p<0.04)。和男人相比,女性的AD生物标志物水平更差,p-tau181较高,Aβ42/40较低,与协变量无关(p<0.001)。在性别分层分析中,较高的p-tau181与女性年龄和男性高血压相关.GFAP和NfL没有性别差异。
    结论:女性的AD生物标志物比男性差,无法解释的年龄,心脏代谢疾病,或生活方式。有必要研究PAA中AD的危险因素,尤其是对生命早期的女性来说。
    BACKGROUND: Alzheimer\'s disease (AD) is increasing in the Caribbean, especially for persons of African ancestry (PAA) and women. However, studies have mostly utilized surveys without AD biomarkers.
    METHODS: In the Tobago Health Study (n = 309; 109 women, mean age 70.3 ± 6.6), we assessed sex differences and risk factors for serum levels of phosphorylated tau-181 (p-tau181), amyloid-beta (Aβ)42/40 ratio, glial fibrillary acidic protein (GFAP), and neurofilament light chain (NfL). Blood samples were from 2010 to 2013 for men and from 2019 to 2023 for women.
    RESULTS: Women were more obese, hypertensive, and sedentary but reported less smoking and alcohol use than men (age-adjusted p < 0.04). Compared to men, women had worse levels of AD biomarkers, with higher p-tau181 and lower Aβ42/40, independent of covariates (p < 0.001). In sex-stratified analyses, higher p-tau181 was associated with older age in women and with hypertension in men. GFAP and NfL did not differ by sex.
    CONCLUSIONS: Women had worse AD biomarkers than men, unexplained by age, cardiometabolic diseases, or lifestyle. Studying risk factors for AD in PAA is warranted, especially for women earlier in life.
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