Abstract：
After often gruelling journeys, some refugees arrive at secure locations with severe injury or illness. Others find themselves shortly thereafter facing a life-limiting health condition. Palliative care has been the focus of recent research, and of academic and aid sector dialogue. In this study, we ask: What are experiences and needs of patients and care providers? What opportunities and obstacles exist to enhance or introduce means of reducing suffering for patients facing serious illness and injury in crisis settings? We present findings of a qualitative sub-study within a larger programme of research exploring moral and practical dimensions of palliative care in humanitarian crisis contexts. This paper presents vignettes about palliative care from refugees and care providers in two refugee camps in Rwanda, and is among the first to provide empirical evidence on first-hand experiences of individuals who have fled protracted conflict and face dying far from home. Along with narratives of their experiences, participants provided a range of recommendations from small (micro) interventions that are low cost, but high impact, through to larger (macro) changes at the systems and societal levels of benefit to policy developers and decision-makers.
摘要：
在经常艰苦的旅程之后，一些难民身受重伤或生病抵达安全地点。其他人发现自己不久之后面临着限制生命的健康状况。姑息治疗一直是最近研究的焦点，以及学术和援助部门的对话。在这项研究中,我们提出了在人道主义危机背景下探索姑息治疗的道德和实践层面的更大研究计划中的定性子研究结果。本文介绍了卢旺达两个难民营中难民和护理提供者的姑息治疗，并且是最早为逃离旷日持久的冲突并面临远离家乡而死的个人的第一手经验提供经验证据的国家之一。随着他们经历的叙述，参与者提供了一系列低成本的小型(微型)干预措施的建议，但是影响力很大，通过对政策制定者和决策者的系统和社会水平的更大（宏观）变化。
