Disabled persons

残疾人
  • 文章类型: Journal Article
    Latin America is one of the most unequal regions in the world. Due to colonization and occupation of the territory, structural inequalities mark people\'s living and health conditions. In health, we can observe how different dimensions of inequalities condition access and user experience in the service. This scoping review aimed to map and analyze the expressions of inequalities in access to health services in Latin American countries from the scientific production of the last ten years, from which 272 articles were selected. The categorical analysis classified articles into five dimensions, which characterize the expressions of inequalities in access to health services: socioeconomic, geospatial, ethnic/racial, gender, and people with disabilities. The most frequent access barriers were socioeconomic or ability to pay, geographic or transportation difficulty, availability of services, cultural/ethnic, communication, and architecture. The main conditioning factors of health inequalities were income, schooling, transportation, and living conditions. Combating health inequalities requires proposing structuring and sectorial policies.
    A América Latina é uma das regiões mais desiguais do mundo. Desigualdades estruturais, fruto dos processos de colonização e ocupação do território, marcam as condições de vida e saúde das pessoas. Na saúde, é possível observar como diferentes dimensões das desigualdades condicionam o acesso e a experiência do usuário no serviço. Objetivou-se mapear e analisar as expressões das desigualdades no acesso aos serviços de saúde nos países da América Latina a partir da produção científica dos últimos dez anos. O desenho de estudo foi a revisão de escopo, por meio da qual foram selecionados 272 artigos. A análise categorial permitiu a classificação dos artigos em cinco dimensões, que caracterizam as expressões das desigualdades no acesso aos serviços de saúde: socioeconômica, geoespacial, étnica/racial, gênero e de pessoas com deficiência. As barreiras de acesso mais frequentes foram: socioeconômica ou capacidade de pagamento; geográfica ou dificuldade de transporte; disponibilidade de serviços; cultural/étnica; comunicação; e arquitetônica. Os principais fatores condicionantes das desigualdades em saúde foram renda, escolaridade, transporte e condições de moradia. O enfrentamento das desigualdades em saúde requer a proposição de políticas estruturantes e setoriais.
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  • 文章类型: Journal Article
    背景这项研究旨在调查非特异性颈痛患者的身体危险因素。疼痛强度之间的相关性,压力痛阈值,运动范围(ROM),分析了韩国一家医院50例非特异性颈部疼痛患者的残疾指数。材料和方法我们招募了50名医生诊断为非特异性颈部疼痛的患者。评估所有受试者的疼痛强度,压力阈值,残疾程度,活动范围(ROM)的颈部,上颈椎旋转ROM,深颈屈肌的肌肉耐力,颈部屈曲的代偿运动,向前的头部姿势,肩高差,和圆润的肩膀姿势。分析各变量之间的相关性。结果疼痛强度与颈椎旋转ROM有显著相关性,颈椎屈曲旋转ROM,圆肩姿势,肩高差,和前头部姿势(P<0.05)。压力痛阈值与宫颈延伸ROM有显著相关性,颈椎屈曲旋转ROM,和圆形肩高(P<.05)。残疾指数与宫颈旋转ROM有显著的相关性,颈椎屈曲旋转ROM,圆肩姿势,颈屈曲代偿运动(P<0.05)。结论非特异性颈部疼痛的身体危险因素包括颈椎旋转ROM,上颈椎旋转ROM,圆肩姿势,肩高差,和颈椎屈曲代偿运动,会影响疼痛强度和压力痛阈值。
    BACKGROUND This study was conducted to investigate physical risk factors in patients with non-specific neck pain. The correlations among pain intensity, pressure pain threshold, range of motion (ROM), and disability index were analyzed in 50 patients with non-specific neck pain at a hospital in Korea. MATERIAL AND METHODS We enrolled 50 patients diagnosed with non-specific neck pain by a doctor. All subjects were evaluated for pain intensity, pressure threshold, degree of disability, active range of motion (ROM) of the neck, upper cervical rotation ROM, muscular endurance of deep cervical flexor, compensatory movements for neck flexion, forward head posture, shoulder height difference, and rounded shoulder posture. The correlation between each variable was analyzed. RESULTS Pain intensity had a significant correlation between cervical rotation ROM, cervical flexion-rotation ROM, rounded shoulder posture, shoulder height difference, and forward head posture (P<.05). There was a significant correlation between the pressure pain threshold and the cervical extension ROM, cervical flexion-rotation ROM, and rounded shoulder height (P<.05). The disability index had a significant correlation between the cervical rotation ROM, cervical flexion-rotation ROM, rounded shoulder posture, and the compensatory movement of neck flexion (P<.05). CONCLUSIONS Physical risk factors for non-specific neck pain included cervical rotation ROM, upper cervical rotation ROM, rounded shoulder posture, shoulder height difference, and cervical flexion compensatory movements, which can affect pain intensity and pressure pain threshold.
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  • 文章类型: Journal Article
    背景:为应对COVID-19大流行而突然采取的社交距离措施导致英国人口的生活方式发生了重大变化。身体残疾的人被认为在感染COVID-19后有更大的并发症风险,并受到更严格的社会距离准则的约束。但我们对COVID-19大流行和相关限制如何影响获得支持的能力的理解仍然存在差距,身体残疾人的健康和福祉。这种理解对于确保为身体残疾者提供公平的未来大流行准备至关重要。
    方法:我们在2020年5月至2022年1月期间对居住在英国的31人进行了定性半结构化访谈。所有参与者都自我认定为身体残疾,影响了他们的活动能力,Sight,或听力。我们使用反身性主题分析来分析数据。
    结果:确定了六个主题,描述了大流行对获得支持能力的影响,健康和福祉:(i)对医疗保健提供的适应导致管理健康和福祉的困难;(ii)由于社会距离准则而加剧了进入公共空间的不平等;(iii)与健全人的敌意经历;(iv)失去社会生活和遭遇;(v)与他人保持距离的困难以及随后对感染的恐惧;(vi)将生活限制在家中时支持福祉和应对的策略。
    结论:COVID-19大流行加剧了残疾人现有的健康和社会不平等。大流行对服务提供和社会关系的不成比例的影响导致面临医疗需求未得到满足的残疾人面临严峻的环境,健康状况恶化,有时,敌对的公共空间。需要将残疾人的经验纳入未来大流行或与健康相关的应急计划,以确保平等获得服务和公共场所,以确保他们的健康和福祉得到支持和维护。
    BACKGROUND: The sudden introduction of social distancing measures in response to the COVID-19 pandemic resulted in significant lifestyle changes for the UK population. People living with physical disabilities were deemed to be at greater risk of complications following COVID-19 infection and were subjected to stricter social distancing guidelines. But gaps remain in our understanding of how the COVID-19 pandemic and associated restrictions affected the ability to access support, health and wellbeing of people with physical disabilities. Such understanding is vital to ensure equitable future pandemic preparedness for people living with physical disabilities.
    METHODS: We conducted qualitative semi-structured interviews with 31 people living in the UK between May 2020 and January 2022. All participants self-identified as having a physical disability that affected their mobility, sight, or hearing. We analysed the data using reflexive thematic analysis.
    RESULTS: Six themes were identified that described the impact of the pandemic on ability to access support, health and wellbeing: (i) adaptations to healthcare provision led to difficulties in managing health and wellbeing; (ii) exacerbations of inequalities in access to public space due to social distancing guidelines; (iii) experiences of hostility from able-bodied people; (iv) loss of social lives and encounters; (v) difficulties maintaining distance from others and subsequent fear of infection and (vi) strategies to support wellbeing and coping when confined to the home.
    CONCLUSIONS: The COVID-19 pandemic exacerbated existing health and social inequalities experienced by disabled people. The disproportionate impact of the pandemic on service provision and social connections resulted in challenging circumstances for disabled people who faced unmet medical needs, deteriorating health, and at times, hostile public spaces. Disabled people\'s experiences need to be incorporated into future pandemic or health-related emergency planning to ensure equality of access to services and public spaces to ensure their health and wellbeing is supported and maintained.
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  • 文章类型: Journal Article
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  • 文章类型: Journal Article
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  • DOI:
    文章类型: Journal Article
    背景:患有智力和发育障碍(IDD)的人面临无法满足的医疗保健需求的高风险,并面临公平护理的障碍,然而,很少有卫生专业学生接受足够的培训来满足这些需求。
    目标:计划并实施了与宾夕法尼亚州特殊奥林匹克运动会(SOPA)运动员和工作人员的互动小组讨论,以便卫生专业的学生/受训者获得IDD知识,健康障碍,SOPA资源,志愿者的机会。
    方法:小组成员包括两名SOPA运动员及其导师;有关个人医疗保健经验的问题征求了回应(2019年秋季)。与会者完成了一项混合方法的事件后调查,以获取事件满意度,反思,以及对了解更多有关IDD患者的兴趣。
    结果:有60人参加,43人(72%)完成了事件后评估。与会者报告满意度高(88%),对未来培训的渴望(100%),和学习交流的兴趣(88%),提供护理(88%),并解决IDD健康障碍(91%)。
    结论:协作社区小组可以有效地让医疗保健学生参与有关护理IDD患者的讨论。
    BACKGROUND: People with intellectual and developmental disabilities (IDD) are at high risk for unmet health care needs and face barriers to equitable care, yet few health professions students receive adequate training to meet these needs.
    OBJECTIVE: An interactive panel discussion with Special Olympics Pennsylvania (SOPA) athletes and staff was planned and implemented so that health professions students/trainees would gain knowledge of IDD, health barriers, SOPA resources, and volunteer opportunities.
    METHODS: Panelists included two SOPA athletes and their mentors; questions solicited responses about personal health care experiences (Fall 2019). Attendees completed a mixed-methods post-event survey capturing event satisfaction, reflections, and interest in learning more about patients with IDD.
    RESULTS: Sixty individuals attended, and 43 (72%) completed post-event evaluation. Attendees reported high satisfaction (88%), desire for future trainings (100%), and interest in learning about communicating (88%), providing care (88%), and addressing IDD health barriers (91%).
    CONCLUSIONS: Collaborative community panels could be effective in engaging health care students in discussion about caring for patients with IDD.
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  • 文章类型: Journal Article
    使用技术辅助手段对老年人或残疾人的自主性和生活质量有积极影响,也有利于护理人员和支持他们的专业人员。然而,它们的使用仍然存在重大障碍,特别是普遍缺乏关于技术辅助的信息。这一观察使我们产生了一套信息工具,以帮助人们更好地理解这些艾滋病以及如何使用它们。
    The use of technical aids has a positive impact on the autonomy and quality of life of elderly or disabled people, and is also beneficial for the caregivers and professionals who support them. Nevertheless, there are still major obstacles to their use, notably a general lack of information on technical aids. This observation led us to produce a set of information tools to help people better understand these aids and how to use them.
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  • 文章类型: Journal Article
    已经确定,癫痫的生活质量与诊断患者的感知残疾密切相关。然而,在医疗保健过程中很少考虑这一措施。本研究的目的是在拉丁美洲背景下被诊断为癫痫的个体中建立感知残疾问卷的心理测量特性。横截面,分析研究涉及325名参与者,12岁及以上(M40.42岁),在哥伦比亚被诊断为癫痫的个体。探索了该工具的主要心理测量特性,以说明其因子效度和可靠性。感知残疾问卷具有很高的可靠性(α=0.878)和包含问卷最终版本的三个子量表(不满意,悲观主义,和自我蔑视)解释了与癫痫诊断相关的残疾信念的总方差的45.393%;问卷与癫痫量表(QOLIE-10)中的生活质量显着相关。找到了仪器的足够的心理测量特性,这允许其提议作为哥伦比亚背景下癫痫护理过程中的工具。
    It has been determined that quality of life in epilepsy is closely related to the perceived disability experienced by individuals with the diagnosis. However, this measure is seldom considered in healthcare processes. The objective of the present study is to establish the psychometric properties of the Perceived Disability Questionnaire in individuals diagnosed with epilepsy within a Latin American context. A cross-sectional, analytical study was conducted involving 325 participants, aged 12 years and older (M 40.42 years), individuals diagnosed with epilepsy in Colombia. The main psychometric properties of the instrument were explored to account for its factorial validity and reliability. The Perceived Disability Questionnaire exhibits high reliability (α = 0.878) and the three subscales comprising the final version of the questionnaire (Dissatisfaction, Pessimism, and Self-Disdain) explain 45.393 % of the total variance in relation to beliefs of disability associated with the diagnosis of epilepsy; the questionnaire significantly correlates with the Quality of Life in Epilepsy Inventory (QOLIE-10). Adequate psychometric properties of the instrument are found, which allows for its proposal as a tool in epilepsy care processes within the Colombian context.
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  • 文章类型: Journal Article
    背景:脊髓损伤(SCI)是全球重大残疾和健康问题的后果,长的COVID代表神经肌肉骨骼的症状,心血管和呼吸系统并发症。
    目的:本研究旨在确定脊髓损伤患者长期COVID的症状反应和疾病负担。
    方法:这项病例对照研究是针对居住在孟加拉国专业康复中心的SCI患者进行的。根据WHO标准,有和没有长期COVID症状(LCS)的SCI患者以1:1的比例纳入本研究。
    结果:在SCI患者中观察到12个LCS,包括疲劳,肌肉骨骼疼痛,记忆丧失,头痛,呼吸问题,焦虑,抑郁症,失眠,ADL中的问题工作中的问题,心悸,和弱点。发展为长COVID的预测因素包括年龄增加(p<0.002),BMI增加(p<0.03),脊髓损伤持续时间较长(p<0.004)。与长COVID(LC)病例1.22±2.09相比,非长期COVID病例因残疾而失去的健康寿命(YLD)的总年数差异(p<0.01)为2.04±0.596。
    结论:孟加拉国SCI患者表现出12种长COVID症状,与非长COVID病例相比,疾病负担显著。
    BACKGROUND: Spinal cord injury (SCI) is a consequence of significant disability and health issues globally, and long COVID represents the symptoms of neuro-musculoskeletal, cardiovascular and respiratory complications.
    OBJECTIVE: This study aimed to identify the symptom responses and disease burden of long COVID in individuals with spinal cord injury.
    METHODS: This case-control study was conducted on patients with SCI residing at a specialised rehabilitation centre in Bangladesh. Forty patients with SCI with and without long COVID symptoms (LCS) were enrolled in this study at a 1:1 ratio according to WHO criteria.
    RESULTS: Twelve LCS were observed in patients with SCI, including fatigue, musculoskeletal pain, memory loss, headache, respiratory problems, anxiety, depression, insomnia, problem in ADL problem in work, palpitation, and weakness. The predictors of developing long COVID include increasing age (p<0.002), increasing BMI (p<0.03), and longer duration of spinal cord injury (p<0.004). A significant difference (p<0.01) in overall years of healthy life lost due to disability (YLD) for non-long COVID cases was 2.04±0.596 compared to long COVID (LC) cases 1.22±2.09 was observed.
    CONCLUSIONS: Bangladeshi patients of SCI presented 12 long COVID symptoms and have a significant disease burden compared to non long COVID cases.
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  • 文章类型: Journal Article
    在全球健康和社会包容性的框架内,解决残疾人的性行为很重要。尽管占世界人口的16%,这个人口面临性自主权不平等。认识到这一交集对于实现包容性医疗保健和履行1994年国际人口与发展会议和2006年《联合国残疾人权利公约》的承诺至关重要。消除陈规定型观念和促进对话是增强残疾人权能和确保公平获得性健康资源的关键。将性健康和权利纳入更广泛的医疗保健系统对于创建一个没有人掉队的包容性社会至关重要。本文主张必须解决残疾人的特定性健康需求和权利,实施包容性政策,并营造一个尊重和支持他们的自主权和尊严的医疗环境。
    Addressing the sexuality of individuals with disabilities is important within the framework of global health and societal inclusivity. Despite comprising 16% of the world\'s population, this demographic faces sexual autonomy inequality. Acknowledging this intersection is pertinent for achieving inclusive healthcare and upholding the commitments of the 1994 International Conference on Population and Development and the 2006 United Nations Convention on the Rights of Persons with Disabilities. Dispelling stereotypes and promoting dialogue are key to empowering individuals with disabilities and ensuring equitable access to sexual health resources. Integrating sexual health and rights into broader healthcare systems is vital for creating an inclusive society where no one is left behind. This article advocates for the need to address the specific sexual health needs and rights of individuals with disabilities, to implement inclusive policies, and to foster a healthcare environment that respects and supports their autonomy and dignity.
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