关键词: Disabled persons Epilepsy Quality of life Self concept Validation study

来  源:   DOI:10.1016/j.yebeh.2024.109915

Abstract:
It has been determined that quality of life in epilepsy is closely related to the perceived disability experienced by individuals with the diagnosis. However, this measure is seldom considered in healthcare processes. The objective of the present study is to establish the psychometric properties of the Perceived Disability Questionnaire in individuals diagnosed with epilepsy within a Latin American context. A cross-sectional, analytical study was conducted involving 325 participants, aged 12 years and older (M 40.42 years), individuals diagnosed with epilepsy in Colombia. The main psychometric properties of the instrument were explored to account for its factorial validity and reliability. The Perceived Disability Questionnaire exhibits high reliability (α = 0.878) and the three subscales comprising the final version of the questionnaire (Dissatisfaction, Pessimism, and Self-Disdain) explain 45.393 % of the total variance in relation to beliefs of disability associated with the diagnosis of epilepsy; the questionnaire significantly correlates with the Quality of Life in Epilepsy Inventory (QOLIE-10). Adequate psychometric properties of the instrument are found, which allows for its proposal as a tool in epilepsy care processes within the Colombian context.
摘要:
已经确定,癫痫的生活质量与诊断患者的感知残疾密切相关。然而,在医疗保健过程中很少考虑这一措施。本研究的目的是在拉丁美洲背景下被诊断为癫痫的个体中建立感知残疾问卷的心理测量特性。横截面,分析研究涉及325名参与者,12岁及以上(M40.42岁),在哥伦比亚被诊断为癫痫的个体。探索了该工具的主要心理测量特性,以说明其因子效度和可靠性。感知残疾问卷具有很高的可靠性(α=0.878)和包含问卷最终版本的三个子量表(不满意,悲观主义,和自我蔑视)解释了与癫痫诊断相关的残疾信念的总方差的45.393%;问卷与癫痫量表(QOLIE-10)中的生活质量显着相关。找到了仪器的足够的心理测量特性,这允许其提议作为哥伦比亚背景下癫痫护理过程中的工具。
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