Disabled persons

残疾人
  • 文章类型: Journal Article
    背景:脊髓损伤(SCI)是全球重大残疾和健康问题的后果,长的COVID代表神经肌肉骨骼的症状,心血管和呼吸系统并发症。
    目的:本研究旨在确定脊髓损伤患者长期COVID的症状反应和疾病负担。
    方法:这项病例对照研究是针对居住在孟加拉国专业康复中心的SCI患者进行的。根据WHO标准,有和没有长期COVID症状(LCS)的SCI患者以1:1的比例纳入本研究。
    结果:在SCI患者中观察到12个LCS,包括疲劳,肌肉骨骼疼痛,记忆丧失,头痛,呼吸问题,焦虑,抑郁症,失眠,ADL中的问题工作中的问题,心悸,和弱点。发展为长COVID的预测因素包括年龄增加(p<0.002),BMI增加(p<0.03),脊髓损伤持续时间较长(p<0.004)。与长COVID(LC)病例1.22±2.09相比,非长期COVID病例因残疾而失去的健康寿命(YLD)的总年数差异(p<0.01)为2.04±0.596。
    结论:孟加拉国SCI患者表现出12种长COVID症状,与非长COVID病例相比,疾病负担显著。
    BACKGROUND: Spinal cord injury (SCI) is a consequence of significant disability and health issues globally, and long COVID represents the symptoms of neuro-musculoskeletal, cardiovascular and respiratory complications.
    OBJECTIVE: This study aimed to identify the symptom responses and disease burden of long COVID in individuals with spinal cord injury.
    METHODS: This case-control study was conducted on patients with SCI residing at a specialised rehabilitation centre in Bangladesh. Forty patients with SCI with and without long COVID symptoms (LCS) were enrolled in this study at a 1:1 ratio according to WHO criteria.
    RESULTS: Twelve LCS were observed in patients with SCI, including fatigue, musculoskeletal pain, memory loss, headache, respiratory problems, anxiety, depression, insomnia, problem in ADL problem in work, palpitation, and weakness. The predictors of developing long COVID include increasing age (p<0.002), increasing BMI (p<0.03), and longer duration of spinal cord injury (p<0.004). A significant difference (p<0.01) in overall years of healthy life lost due to disability (YLD) for non-long COVID cases was 2.04±0.596 compared to long COVID (LC) cases 1.22±2.09 was observed.
    CONCLUSIONS: Bangladeshi patients of SCI presented 12 long COVID symptoms and have a significant disease burden compared to non long COVID cases.
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  • 文章类型: Journal Article
    汉森的病不仅给工作场所的病人带来问题,但也增加了传播给其他工人的可能性。此病例报告讨论了汉森残疾患者的工作适应性评估。一个19岁的女性,他是一家网上商店仓库的工作人员,在我们医院,她的左手有一个伤口,伴有麻木。患者的活动表明轻度限制,SALSA评分为25分。进行了评估工作适应性的七步过程。这些步骤包括评估病人的病情,残疾,工作要求,风险,和公差来确定合适的工作状态。该患者被宣布适合作为网上商店仓库工作人员的笔记。她必须通过保持良好的个人卫生和定期咨询医生来照顾自己,除了教育其他工人关于她的病情和避免耻辱。常规检查也是在工作场所治疗麻风病的重要组成部分。
    Hansen\'s disease not only causes problems for patients in the workplace, but also increases the possibility of transmission to other workers. This case report discusses the fitness-to-work assessment for a Hansen\'s disease patient with a disability. A 19-year-old female, who worked as an online shop warehouse staff, presented at our hospital with a wound on her left hand accompanied by numbness. The patient\'s activity indicated mild limitations with a SALSA score of 25. A seven-step process for evaluating fitness to work was conducted. These steps involved assessing the patient\'s medical condition, disability, job demands, risks, and tolerance to determine the appropriate work status. This patient was declared fit to work with a note as online shop warehouse staff. She must take care of herself by maintaining good personal hygiene and consulting a doctor regularly, in addition to educating other workers about her condition and avoiding stigma. Routine examinations are also an important part of treating leprosy in the workplace.
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  • 文章类型: Journal Article
    这项研究全面检查了入伍后在军队中发生事故后残疾的个人的残疾接受经历。
    对两名残疾士兵进行了深入访谈和参与性观察。数据来源包括这些采访的成绩单,相关新闻视频,和参与者的文章。定性案例研究方法适用于“案例内”和“跨案例”分析。
    尽管这两名参与者在一次严重的事故中幸存下来,他们的军事单位没有积极尝试解决事故。他们在绝望中挣扎,发现接受他们作为残疾人的新身份具有挑战性。随着时间的推移,他们注意到个人关系的变化,并开始考虑照顾者的负担。然而,尽管遇到了心理挑战,其特点是反复的挫折和失望,士兵们始终坚定地努力实现他们的目标。此外,尽管遭受残疾造成的逆境,他们仍努力过有目的的生活。
    这项研究是对残疾士兵的残疾接受经历的首次深入检查。从我们的深入访谈中收集到的见解将有助于为这些人制定心理和身体支持系统。
    UNASSIGNED: This study comprehensively examines the disability acceptance experience of individuals who become disabled following accidents in the military after enlistment.
    UNASSIGNED: In-depth interviews and participative observation of two soldiers with disabilities are conducted. Data sources encompass the transcripts from these interviews, relevant news videos, and articles on the participants. A qualitative case study approach is applied to conduct both \"within-case\" and \"cross-case\" analyses.
    UNASSIGNED: Although the two participants survived a crippling accidents, their military units did not actively attempt to resolve the accident. They grappled with despair and found it challenging to accept their new status as individuals with disability. Over time, they noticed changes in their personal relationships and started considering themselves burdens on their caregivers. However, despite encountering psychological challenges, which were marked by repeated setbacks and disappointments, the soldiers consistently made determined efforts to realize their objectives. Moreover, they strove to lead purposeful lives despite suffering the adversities caused by their disabilities.
    UNASSIGNED: This study is the first in-depth examination of the disability acceptance experiences of soldiers with disability. The insights gleaned from our in-depth interviews will help formulate psychological and physical support systems for such individuals.
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  • 文章类型: Journal Article
    调查了有或没有残疾投掷肩/肘的棒球运动员脚部功能受损的患病率。这项研究包括138名男性球员。以前在投掷运动中抱怨过肩膀/肘部疼痛的球员被定义为有病史的球员,而那些在检查过程中出现肩/肘疼痛的人被定义为受伤。通过脚“石头纸剪刀”运动和浮动脚趾评估脚功能。评估了他们的患病率,并对有和没有受伤的球员之间的关系进行了统计分析。有历史和受伤的球员的患病率分别为27%和7%,分别。受伤的球员在非投掷侧的足部功能受损的患病率明显高于没有受伤的球员(60%vs.28%,P<0.001),投掷侧的趋势高于没有投掷侧的趋势(60%vs.32%)。关于浮动脚趾,有相关病史的球员在投掷方面的患病率明显高于没有的球员(49%对28%,P<0.001),非投掷侧的趋势高于无投掷侧(49%vs32%)。残疾投掷肩膀/肘部的运动员的脚功能受损和脚趾漂浮的患病率明显高于没有它的运动员。
    Prevalence of impaired foot function among baseball players with and without a disabled throwing shoulder/elbow was investigated. The study included 138 male players. Players who had previously complained of shoulder/elbow pain during throwing motion were defined as the players with a history, and those who experienced shoulder/elbow pain during the examination were defined as having the injury. Foot function was evaluated by foot \"rock paper scissors\" movements and floating toes. Their prevalence was assessed and the relationships between players with and without the injuries were statistically analyzed. The prevalence of players with a history and injury was 27% and 7%, respectively. The prevalence of impaired foot function on the non-throwing side among players with injury was significantly higher than those without (60% vs. 28%, P < 0.001) and higher tendency on the throwing side than those without (60% vs. 32%). Regarding floating toes, players with a relevant history showed a significantly higher prevalence on the throwing side than those without (49% vs 28%, P < 0.001) and higher tendency on the non-throwing side than those without (49% vs 32%). Players with disabled throwing shoulder/elbow have a significantly higher prevalence of impaired foot function and floating toes than players without it.
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  • 文章类型: Journal Article
    背景:尽管对环境热暴露的有害影响有广泛的发现,对残疾人的影响知之甚少。这项研究旨在评估环境热暴露与残疾人与非残疾人相比急诊科入院之间的关联。
    方法:在全国范围内,案例交叉研究,我们将韩国国家健康保险服务(NHIS)-国家样本队列数据库(具有全国代表性的100万涵盖所有年龄段的系统样本受益人的全国代表性数据库)中有关韩国温暖季节任何原因的急诊科入院(病例)的数据从2002年1月1日至2019年12月31日,以及短期每日平均温度暴露(通过GoogleEarthEngine在9km的空间网格上测量,汇总到地区)。我们将残疾受益人定义为在NHIS中注册为残疾的受益人;我们研究中包括的残疾是身体残疾,脑部病变疾病,失明或视力丧失,耳聋或听力损失。出于保密原因,不包括其他类型的残疾。时间分层的案例交叉设计,参与者作为自己的控制,与条件逻辑回归一起使用,以估计有和无残疾的人的热量和急诊科入院之间的关系。
    结果:23792例急诊入院记录为59527名残疾人。在这23792名招生中,10234例(43·0%)为女性,13558例(57·0%)为男性。与热量相关的急诊科入院的比值比(OR)(第99个温度百分位数vs第75个百分位数)在残疾人中为1·15(95%CI1·07-1·24),在非残疾人中为1·06(1·04-1·09)。每10万人年因热量引起的急诊科住院的年度超额人数为27·81(95%CI9·20-45·69),残疾人的超额医疗费用为638739·47美元(95%CI201900·12-1059641·87);这些值是非残疾人的四倍以上。患有脑部病变疾病的人,有严重身体残疾的人,女性个体,65岁或以上的人表现出更高的热风险。由于精神障碍(1·89,95%CI1·18-3·00)和呼吸系统疾病(1·34,1·06-1·70)引起的急诊科入院的风险也比其他两个分析的入院原因(心血管和泌尿生殖系统疾病)高。
    结论:对于有残疾和无残疾的人来说,高温与急诊科入院的风险增加有关。但残疾人士的风险似乎更高。这些结果可以为决策者制定残疾人行动计划提供信息。
    背景:韩国国家研究基金会,韩国环境部,和韩国教育部。
    Despite extensive findings on the hazardous impacts of environmental heat exposure, little is known about the effect on people with disabilities. This study aimed to estimate the association between environmental heat exposure and emergency department admissions for people with disabilities compared with people without disabilities.
    In this nationwide, case-crossover study, we linked data on emergency department admissions (cases) for any cause in the warm season in South Korea from the Korean National Health Insurance Service (NHIS)-National Sample Cohort database (a nationally representative database of 1 million systematically sampled beneficiaries covering all ages) from Jan 1, 2002, to Dec 31, 2019, and short-term daily mean temperature exposure (measured via Google Earth Engine at a 9 km spatial grid, aggregated to district). We defined beneficiaries with disabilities as those who were registered as disabled in the NHIS; disabilities included in our study were physical disability, brain lesion disorders, blindness or vision loss, and deafness or hearing loss. Other types of disability were not included for confidentiality reasons. A time-stratified case-crossover design, in which participants served as their own control, was used with conditional logistic regression to estimate the association between heat and emergency department admissions in people with and without disabilities.
    23 792 emergency department admissions were recorded for 59 527 people with disabilities. Of these 23 792 admissions, 10 234 (43·0%) individuals were female and 13 558 (57·0%) were male. The odds ratio (OR) of emergency department admissions associated with heat (99th temperature percentile vs 75th percentile) was 1·15 (95% CI 1·07-1·24) in people with disabilities and 1·06 (1·04-1·09) in people without disabilities. The annual excess number of emergency department admissions attributable to heat per 100 000 persons-years was 27·81 admissions (95% CI 9·20-45·69) and excess medical costs were US$638 739·47 (95% CI 201 900·12-1 059 641·87) in people with disabilities; these values were more than four times that of the non-disabled population. People with brain lesion disorders, people with severe physical disabilities, female individuals, and those aged 65 years or older showed higher heat risks. The risks of emergency department admissions due to mental disorder (1·89, 95% CI 1·18-3·00) and respiratory diseases (1·34, 1·06-1·70) also showed higher heat risks than for the other two analysed causes of admission (cardiovascular and genitourinary diseases).
    Heat was associated with increased risk of emergency department admissions for people with and without disabilities, but the risk appeared to be higher for those with disabilities. These results can inform policy makers when establishing action plans for people with disabilities.
    National Research Foundation of Korea, the South Korean Ministry of Environment, and the South Korean Ministry of Education.
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  • 文章类型: Case Reports
    张某,男,57岁,某年7月2日因交通事故受伤,伤后即感视物不清,并住院治疗。现距离伤后已1年余,张某仍觉视物不清,故诉讼至当地法院,申请对其视觉功能的残疾等级进行评定。.
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  • 文章类型: Journal Article
    背景:使用数字技术远程提供服务和支持可能会提高医疗保健的效率和可访问性,支持残疾人独立生活。这项研究旨在探索在新冠肺炎大流行期间使用数字技术获取和提供残疾服务和支持的经验,从残疾人的角度来看,家庭和服务提供商。
    方法:使用多案例研究设计,我们根据服务用户特征和服务的地理覆盖范围,有目的地抽样了三个案例。我们对40个服务用户和服务提供商进行了半结构化访谈。实施研究综合框架(CFIR)为主题指南和分析提供了信息。分析主要遵循演绎的方法,使用CFIR构造作为编码框架。为每个案例制定了摘要备忘录。对每个构造的影响和强度进行了评级,以识别影响数字技术实施的构造。对各服务的评级进行了比较,以确定促进者和实施障碍。
    结果:服务用户和提供者对使用数字技术远程访问和提供残疾服务和支持持积极态度。与当面交付相比,优势包括减少旅行时间,增加同伴支持和同伴学习的机会,更多的选择和参与活动的机会,和增强的自我意识,同时从他们家的安全环境访问服务。在新冠肺炎期间,迫切需要确定新的服务交付模式来满足服务用户的需求,这是一个强有力的推动者,但并不一定导致成功实施。其他强有力的促进因素是使用改编使服务用户能够访问在线服务,服务用户愿意尝试在线服务,服务用户遇到挑战时的持久性,以及服务提供商为支持服务用户参与在线服务所花费的大量时间和精力。实施的障碍包括访问在线平台的复杂性,在线平台的设计质量差,组织将亲自交付优先于在线服务。
    结论:这些发现可能允许服务提供商利用促进者来支持实施在线残疾服务和支持。
    BACKGROUND: Using digital technologies to provide services and supports remotely may improve efficiency and accessibility of healthcare, and support people with disabilities to live independently. This study aimed to explore the experience of using digital technologies to access and provide disability services and supports during the Covid-19 pandemic, from the perspective of people with disabilities, families and service providers.
    METHODS: Using a multiple case study design, we purposively sampled three cases based on service user characteristics and geographical reach of the service. We conducted semi-structured interviews with 40 service users and service providers. Topic guides and analysis were informed by the Consolidated Framework for Implementation Research (CFIR). Analysis followed a largely deductive approach, using the CFIR constructs as a coding framework. A summary memo was developed for each case. Influence and strength of each construct was rated to identify constructs that influenced implementation of digital technologies. Ratings were compared across services to identify facilitators and barriers to implementation.
    RESULTS: Service users and providers were positive about using digital technologies to access and provide disability services and supports remotely. Advantages over in-person delivery included reduced travel time, increased opportunity for peer support and peer learning, more choice and opportunity to participate in activities, and an enhanced sense of self while accessing services from the secure environment of their home. The urgency to identify new modes of service delivery to meet the needs of service users during Covid-19 was a strong facilitator but did not necessarily result in successful implementation. Other factors that were strong facilitators were the use of adaptations to enable service users to access the online service, service users\' willingness to try the online service, service users\' persistence when they encountered challenges, and the significant time and effort that service providers made to support service users to participate in the online service. Barriers to implementation included the complexity of accessing online platforms, poor design quality of online platforms, and organisations prioritising in-person delivery over online services.
    CONCLUSIONS: These findings may allow service providers to leverage facilitators that support implementation of online disability services and supports.
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  • 文章类型: Journal Article
    有认知障碍的人在个人导航和寻路方面面临挑战,尤其是乘坐公共交通工具时。本案例研究的目的是描述残疾人个人导航(PNID)教育和培训计划的结构和实施,它基于固定路线公共公交系统中认知障碍个人的社会技术架构。案例研究方法被用来描述技能的初步发现,属性,以及三个有认知障碍的人的经验,因为它与中型城市环境中固定路线公交系统的交通有关。这三个人完成了五项培训活动:安全,公共巴士,智能手机,WayFinder应用程序,和固定路线公交系统。该案例研究提供了一个初步的混合方法概述,即培训有认知障碍的旅行者在访问固定路线公共巴士系统时使用WayFinder系统。通过案例研究确定的见解和策略证明了潜在的发展机会,实施,以及PNID计划在其他中型城市环境中的可持续性。PNID程序(即AT服务交付过程),结合WayFinder系统(即辅助技术),有可能满足个人的独特需求与认知障碍时,访问公共交通。
    Individuals with cognitive disabilities have challenges with personal navigation and wayfinding, especially when traveling on public transportation. The purpose of this case study is to describe the structure and implementation of the Personal Navigation for Individuals with Disabilities (PNID) education and training program, which is based on a socio-technical architecture for individuals with cognitive disabilities within a fixed-route public bus system. A case study methodology was used to describe preliminary findings of the skills, attributes, and experiences of three individuals with cognitive disabilities as it relates to transportation on fixed-route bus systems in a midsized urban setting. The three individuals completed five training activities: safety, public bus, smartphone, WayFinder App, and fixed-route bus system. The case study provided a preliminary mixed-methods overview of training travelers with cognitive disabilities to use the WayFinder system while accessing fixed-route public bus system. The insights and strategies identified through the case study demonstrate the potential opportunities for development, implementation, and sustainability of the PNID program in other midsized urban settings. The PNID program (i.e. AT service delivery process), in combination with the WayFinder system (i.e. assistive technology), has the potential to meet the unique needs of individuals with cognitive disabilities when accessing public transportation.
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  • 文章类型: Case Reports
    在过去的几年里,英国的一些家长和临床医生对危重病儿童的命运做出了争论,这些案件以旷日持久的、令人感情用事的法律纠纷告终。长期存在的法律冲突已经在公众的视野中上演,引发矛盾的意见。争议的核心是父母或临床医生是否应确定适当的行动方案。如果发生分歧,国内法院以“最佳利益”原则为指导进行干预。奖学金的语料库,站在辩论的两边,抓住了矛盾。直到最近,讨论的重点是国内法院和欧洲人权法院的共同追索权。然而,在最近12岁的阿奇·巴特斯比丧失工作能力的案例中,他的父母通过残疾人权利委员会向国际人权系统寻求补救,以停止终止其生命支持。法院禁止委员会参与,理由是英国没有纳入成立委员会的条约。该案使国际法与国内法之间的关系成为焦点。首先,本文声称,国内法院对国际法的重视(不)与其在其他案件中对国际义务的处理不一致。其次,未合并的条约在国内程序中不具有法律效力的立场是模糊的。最后,面对当地司法的不耐烦要求,该条约机构似乎不适合处理重症儿童的案件。
    Over the past few years, some parents and clinicians in the UK have argued about decisions on the fate of critically-ill children, with the cases ending in protracted and emotionally-sapping legal disputes. The long-running legal conflicts have played out in the public eye, eliciting conflicting opinions. At the core of the disputes is whether parents or clinicians should determine the appropriate course of action. In the event of the disagreements, the domestic court intervenes guided by the \'best interests\' principle. A corpus of scholarship, falling on either side of the debate, has captured the contradictions. Until recently, the discourse had focused on the common recourses to domestic courts and the European Court of Human Rights. However, in the recent case of incapacitated 12-year-old Archie Battersbee, his parents sought redress from the international human rights system through the Committee on the Rights of People with Disabilities to stop termination of his life support. The courts barred the involvement of the Committee on the basis that the UK had not incorporated the treaty which birthed the Committee. The case brought into sharp focus the relationship between international law and domestic law. First, this paper asserts that the weight (not) given to international law by the domestic courts was inconsistent with its treatment of international obligations in other cases. Secondly, the position that unincorporated treaties do not have legal effect in domestic proceedings is ambiguous. Finally, the treaty body appeared ill-suited to handle a case of a critically-ill child in the face of the impatient demands of local justice.
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  • 文章类型: Clinical Trial
    背景:锁定综合征(LIS),由于脑桥的损伤,妨碍沟通。这种情况也可以在一些严重的脑损伤或晚期肌萎缩性侧索硬化症(ALS)中遇到。在最严重的情况下,由于完全动眼麻痹(完全LIS或CLIS),患者根本无法交流。这甚至阻止了意识的检测。一些研究表明,听觉脑机接口(BCI)可以通过“是-否”代码恢复通信。
    方法:我们开发了一种基于听觉EEG的接口,该接口利用了注意力的自愿调节,在无响应的人中恢复是-否通信代码。该二进制BCI使用对应于频繁(短)或罕见(长)刺激的重复语音(右耳上的“是”和左耳上的“否”交替)。指示用户仅注意相关刺激。我们用18名健康受试者测试了这个BCI,和7名严重运动障碍患者(3名“经典”型锁定综合征患者和4名ALS患者)。
    结果:我们报告在线BCI性能和离线事件相关的潜在分析。平均而言,在健康受试者中,基于50个问题,在线BCI准确率达到86%。18名受试者中只有一名不能表现出高于机会水平。十个受试者的准确率超过90%。然而,大多数患者无法产生高于机会水平的在线表现,除了两个ALS患者获得了100%的准确性。我们报告了单个事件相关的电位及其通过注意力的调节。除了经典的P3b,我们观察到对频繁声音的反应持续关注的标志,但仅在健康受试者和BCI控制良好的患者中。
    结论:健康受试者可以很好地控制听觉BCI,但这并不能保证LIS或CLIS中的目标人群可以很容易地使用它。该结论得到了BCI先前的一些发现的支持,现在应该引发研究以评估这种差距的原因,以便提出新的有效解决方案。
    背景:No.NCT02567201(2015)和NCT03233282(2013)。
    The locked-in syndrome (LIS), due to a lesion in the pons, impedes communication. This situation can also be met after some severe brain injury or in advanced Amyotrophic Lateral Sclerosis (ALS). In the most severe condition, the persons cannot communicate at all because of a complete oculomotor paralysis (Complete LIS or CLIS). This even prevents the detection of consciousness. Some studies suggest that auditory brain-computer interface (BCI) could restore a communication through a « yes-no» code.
    We developed an auditory EEG-based interface which makes use of voluntary modulations of attention, to restore a yes-no communication code in non-responding persons. This binary BCI uses repeated speech sounds (alternating \"yes\" on the right ear and \"no\" on the left ear) corresponding to either frequent (short) or rare (long) stimuli. Users are instructed to pay attention to the relevant stimuli only. We tested this BCI with 18 healthy subjects, and 7 people with severe motor disability (3 \"classical\" persons with locked-in syndrome and 4 persons with ALS).
    We report online BCI performance and offline event-related potential analysis. On average in healthy subjects, online BCI accuracy reached 86% based on 50 questions. Only one out of 18 subjects could not perform above chance level. Ten subjects had an accuracy above 90%. However, most patients could not produce online performance above chance level, except for two people with ALS who obtained 100% accuracy. We report individual event-related potentials and their modulation by attention. In addition to the classical P3b, we observed a signature of sustained attention on responses to frequent sounds, but in healthy subjects and patients with good BCI control only.
    Auditory BCI can be very well controlled by healthy subjects, but it is not a guarantee that it can be readily used by the target population of persons in LIS or CLIS. A conclusion that is supported by a few previous findings in BCI and should now trigger research to assess the reasons of such a gap in order to propose new and efficient solutions.
    No. NCT02567201 (2015) and NCT03233282 (2013).
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