Disabled persons

残疾人
  • 文章类型: Systematic Review
    背景:满足24小时运动指南(即,身体活动,久坐的行为,睡眠)可以为残疾人带来健康益处。然而,没有系统评价或荟萃分析对符合这些指南的患病率以及与健康指标的相关性进行过研究.
    目的:本系统综述和荟萃分析旨在研究残疾人中符合24小时运动指南的患病率以及与健康指标的关联。
    方法:从开始到2023年5月31日,搜索了六个电子数据库以英文发表的研究。使用随机效应模型的荟萃分析来确定满足24小时运动指南的患病率。采用定性综合来描述满足指南与健康指标之间的关联。
    结果:确定了24项研究,包括来自8个国家的77510名年龄在6-65岁的残疾参与者(41.6%为女性)。总的来说,6.97%的残疾参与者符合所有24小时运动指南,16.65%不符合任何准则。在满足所有指南时,发现年龄(P=0.006)和残疾类型(P=0.001)存在显着差异。符合所有指南的残疾参与者报告的心理社会健康指标(9/9研究)比没有或只有一个指南的参与者更好。其他健康指标的证据或研究有限。
    结论:有一些证据表明,残疾人士符合所有24小时运动指南的患病率较低。同时,有初步证据表明,与不符合任何指南相比,符合所有指南与更好的社会心理健康状况相关.
    BACKGROUND: Meeting the 24-h movement guidelines (i.e., physical activity, sedentary behavior, sleep) could generate health benefits to people with disabilities. However, no systematic reviews or meta-analyses have examined the prevalence of meeting these guidelines and associations with health indicators in this group.
    OBJECTIVE: This systematic review and meta-analysis aimed to examine the prevalence of meeting the 24-h movement guidelines and associations with health indicators among people with disabilities.
    METHODS: Six electronic databases were searched for studies published in English from inception to May 31, 2023. Meta-analyses with the random-effects model were used to determine the prevalence of meeting the 24-h movement guidelines. Qualitative syntheses were employed to describe the associations between meeting the guidelines and health indicators.
    RESULTS: Twenty-four studies comprising 77510 participants (41.6% females) with disabilities aged 6-65 years from eight countries were identified. Overall, 6.97% of the participants with disabilities met all 24-h movement guidelines, and 16.65% met none of the guidelines. Significant age (P = 0.006) and disability type (P = 0.001) differences were found in meeting all guidelines. Participants with disabilities who met all guidelines reported better psychosocial health indicators (9/9 studies) than those met none or only one of the guidelines. There was limited evidence or research for other health indicators.
    CONCLUSIONS: There is some evidence showing that the prevalence of meeting all 24-h movement guidelines in people with disabilities is low. Meanwhile, there is preliminary evidence suggesting that meeting all guidelines is associated with better psychosocial health than meeting none of the guidelines.
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  • 文章类型: Journal Article
    背景:帕金森病(PD)是一种复杂的神经退行性疾病,影响日常功能和生活质量。康复在改善症状方面起着至关重要的作用,函数,生活质量和减少残疾,特别是考虑到缺乏疾病调节剂以及药物和手术疗法的局限性。然而,康复护理在PD中的认识不足和利用不足,并且通常仅在疾病后期使用,尽管研究和指导方针证明了它的积极作用。目前,就与PD康复服务有关的基本主题缺乏共识。
    目的:国际帕金森基金会康复医学工作组的目标是就将康复纳入PD护理达成共识。
    方法:特别工作组,由PD和康复方面的国际多学科专家以及直接受PD影响的人组成,几乎开会讨论康复服务等主题,PD现有的治疗指南和康复文献,差距和需求。一个系统的,互动式,和迭代过程用于制定关于PD康复和特定学科干预措施的核心组成部分的基于共识的声明。
    结果:以专家为基础的共识声明概述了康复护理的主要原则,包括多学科方法和针对职业治疗的学科指导,物理治疗,语言病理学/治疗,以及所有PD阶段的心理学/神经心理学。
    结论:康复干预措施应是PD综合治疗的重要组成部分,从诊断到晚期疾病。提高对PD患者及其护理伙伴的康复服务的益处的教育和认识,并鼓励进一步的循证和科学研究。
    Parkinson\'s disease (PD) is a complex neurodegenerative disorder impacting everyday function and quality of life. Rehabilitation plays a crucial role in improving symptoms, function, and quality of life and reducing disability, particularly given the lack of disease-modifying agents and limitations of medications and surgical therapies. However, rehabilitative care is under-recognized and under-utilized in PD and often only utilized in later disease stages, despite research and guidelines demonstrating its positive effects. Currently, there is a lack of consensus regarding fundamental topics related to rehabilitative services in PD.
    The goal of the international Parkinson\'s Foundation Rehabilitation Medicine Task Force was to develop a consensus statement regarding the incorporation of rehabilitation in PD care.
    The Task Force, comprised of international multidisciplinary experts in PD and rehabilitation and people directly affected by PD, met virtually to discuss topics such as rehabilitative services, existing therapy guidelines and rehabilitation literature in PD, and gaps and needs. A systematic, interactive, and iterative process was used to develop consensus-based statements on core components of PD rehabilitation and discipline-specific interventions.
    The expert-based consensus statement outlines key tenets of rehabilitative care including its multidisciplinary approach and discipline-specific guidance for occupational therapy, physical therapy, speech language pathology/therapy, and psychology/neuropsychology across all PD stages.
    Rehabilitative interventions should be an essential component in the comprehensive treatment of PD, from diagnosis to advanced disease. Greater education and awareness of the benefits of rehabilitative services for people with PD and their care partners, and further evidence-based and scientific study are encouraged.
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  • 文章类型: Journal Article
    背景:残疾青年焦虑或抑郁的可能性是没有残疾的同龄人的五倍。参与足够的日常体力活动(PA),充足的夜间睡眠,有限的每日屏幕时间(统称为24小时运动指南)与无残疾同龄人的焦虑和抑郁几率较低相关。有必要将这些可修改行为的调查扩展到残疾青年。
    目的:在全国有代表性的残疾青年样本中,评估符合24小时运动指南与焦虑和抑郁之间的关联。
    方法:对2019-2020年NSCH进行了横断面二次分析,包括目前正在接受特殊教育服务的6-17岁青年。加权患病率估计和逻辑回归用于估计会议指南(单独和组合)与当前焦虑或抑郁状态之间的关联。
    结果:与符合指南的残疾青年相比,那些不符合睡眠或屏幕时间指南的人,独立,患抑郁症的几率明显更高,或焦虑(AOR范围分别为1.53,2.31)。在符合PA指南的人之间观察到了可比的几率,单独或组合,和那些不符合24小时运动指南的人。
    结论:每晚充足的睡眠,和有限的屏幕时间,与残疾青年的焦虑和抑郁显著相关,一种与无残疾同龄人一致的模式。然而,满足一个以上的指导方针并没有进一步降低心理健康不良的可能性,有必要进一步调查该人群中24小时指南的复合益处。
    BACKGROUND: Youth with disabilities are five times more likely to experience anxiety or depression than peers without disabilities. Engagement in sufficient daily physical activity (PA), adequate nightly sleep, and limited daily screen time (collectively known as 24-h movement guidelines) is associated with lower odds of anxiety and depression for peers without disabilities. Extending the investigation of these modifiable behaviors to youth with disabilities is warranted.
    OBJECTIVE: To estimate the association between meeting 24-h movement guidelines and anxiety and depression among a nationally representative sample of youth with disabilities.
    METHODS: A cross-sectional secondary analysis of the 2019-2020 NSCH was conducted and included youth 6-17 years old who were currently receiving special education services. Weighted prevalence estimates and logistic regressions were employed to estimate the association between meeting guidelines (separately and combined) and current anxiety or depression status.
    RESULTS: Compared to youth with disabilities who met the guideline, those not meeting the sleep or screen time guidelines, independently, had significantly higher odds of depression, or anxiety (aOR range 1.53, 2.31 respectively). Comparable odds were observed between those meeting the PA guidelines, alone or in combination, and those meeting none of the 24-h movement guidelines.
    CONCLUSIONS: Adequate nightly sleep, and limited screen time, were significantly associated with anxiety and depression among youth with disabilities, a pattern consistent to peers without disabilities. Yet, meeting more than one guideline did not further reduce odds of poor mental health, warranting further investigation of compounding benefits of the 24-h guidelines within this population.
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  • 文章类型: Journal Article
    诊断,预后,长期意识障碍(pDoC)患者的治疗程序在国家和临床环境中差异很大,可能是由于组织因素(例如,研究与非学术性医院),专业知识和资源的可用性(例如,财务和人力)。两个国际准则,一位来自欧洲神经病学会(EAN),一位来自美国神经病学会(AAN),与美国康复医学大会(ACRM)和国家残疾研究所合作,独立生活,和康复研究(NIDILRR),是为了促进与这个具有挑战性的患者群体合作的专业人员之间的一致实践而开发的。虽然两项准则的建议原则上一致,如何在pDoC患者的护理路径中将其实施到临床实践中仍然是一个悬而未决的问题。我们进行了一项在线调查,以探索与pDoC患者管理相关的健康专业临床实践,并将上述做法与两个指南中的选定建议进行比较。调查显示,虽然一些建议正在被遵循,其他则不需要和/或可能需要更多的珩磨/特异性来增强其临床实用性。应特别注意实施剩余意识的多式联运评估,疼痛的检测和治疗,以及COVID-19大流行对患者家属/代表参与的限制的影响。
    Diagnostic, prognostic, and therapeutic procedures for patients with prolonged disorders of consciousness (pDoCs) vary significantly across countries and clinical settings, likely due to organizational factors (e.g., research vs. non-academic hospitals), expertise and availability of resources (e.g., financial and human). Two international guidelines, one from the European Academy of Neurology (EAN) and one from the American Academy of Neurology (AAN) in collaboration with the American Congress of Rehabilitation Medicine (ACRM) and the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), were developed to facilitate consistent practice among professionals working with this challenging patient population. While the recommendations of both guidelines agree in principle, it remains an open issue how to implement them into clinical practice in the care pathway for patients with pDoCs. We conducted an online survey to explore health professional clinical practices related to the management of patients with pDoCs, and compare said practices with selected recommendations from both the guidelines. The survey revealed that while some recommendations are being followed, others are not and/or may require more honing/specificity to enhance their clinical utility. Particular attention should be given to the implementation of a multimodal assessment of residual consciousness, to the detection and treatment of pain, and to the impact of restrictions imposed by COVID-19 pandemics on the involvement of patients\' families/representatives.
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  • 文章类型: Journal Article
    背景:低风险饮酒指南(LRDG)旨在减少酒精造成的危害。然而,不同国家采用的“低风险”门槛存在相当大的差异。
    根据加拿大的LRDG更新过程,本论文提供了以下关于在国家指南中建立“低风险”阈值的辩论主张:(1)作为健康损失的指标,年的生命损失(YLL)有几个优点,可以使其更适合制定指南比死亡,过早死亡或残疾调整后的寿命(DALYs)损失。(2)提供特定年龄的指南可能不是提供LRDG的最合适方式。(3)鉴于过去过分强调酒精对健康的所谓保护作用,与从包含与饮酒有因果关系的状况的加权复合风险函数得出的“整体健康”效应相比,提出特定原因指南可能不合适。(4)帮助人们减少饮酒,呈现与饮酒相关的不同风险区而不是单个低风险阈值可能是有利的。
    结论:国家LRDGs应基于寿命损失的年数,并且不应针对年龄或原因。我们建议使用风险区而不是单一的饮酒阈值来帮助人们评估自己的风险,并鼓励在整个酒精使用范围内采用具有积极健康影响的行为。
    Low-Risk Alcohol Drinking Guidelines (LRDGs) aim to reduce the harms caused by alcohol. However, considerable discrepancies exist in the \'low-risk\' thresholds employed by different countries.
    Drawing upon Canada\'s LRDGs update process, the current paper offers the following propositions for debate regarding the establishment of \'low-risk\' thresholds in national guidelines: (1) as an indicator of health loss, years of life lost (YLL) has several advantages that could make it more suitable for setting guidelines than deaths, premature deaths or disability adjusted years of life (DALYs) lost. (2) Presenting age-specific guidelines may not be the most appropriate way of providing LRDGs. (3) Given past overemphasis on the so-called protective effects of alcohol on health, presenting cause-specific guidelines may not be appropriate compared with a \'whole health\' effect derived from a weighted composite risk function comprising conditions that are causally related to alcohol consumption. (4) To help people reduce their alcohol use, presenting different risk zones associated with alcohol consumption instead of a single low risk threshold may be advantageous.
    National LRDGs should be based on years of life lost and should be neither age-specific nor cause-specific. We recommend using risk zones rather than a single drinking threshold to help people assess their own risk and encourage the adoption of behaviours with positive health impacts across the alcohol use spectrum.
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  • 文章类型: Journal Article
    为中风后的运动康复提出基于共识的定义和框架。
    欧洲专家工作组审查了文献,在外部反馈后达成内部共识。
    运动康复被定义为使中风患者参与运动功能的过程,日常生活中的活动能力和表现。这是必要的人与残余运动残疾的目标是提高他们的功能,独立和参与。运动康复通过学习和使用依赖机制进行。运动恢复的轨迹因患者和恢复阶段而异。运动功能的早期行为恢复取决于自发的生物学机制。日常生活活动的进一步改善是通过补偿实现的。运动康复是通过使用基于共识的措施定期评估运动功能和活动来指导的,包括患者报告的结果。与患者及其护理人员讨论结果以设定个人目标。在运动康复期间,患者学会优化和适应他们的运动,通过适当的重复剂量的感觉和认知功能,以目标为导向,进步,任务和上下文特定的培训。运动康复支持中风患者,以最大限度地提高健康,幸福和生活质量。该框架描述了国际功能分类,中风背景下的残疾和健康,描述了行为恢复和补偿的神经生物学机制,并总结了临床评估的建议,预测工具,和运动干预,并从临床实践指南(2016-2022)的强烈推荐。
    这个定义和框架可以指导临床教育工作者,告知临床医生当前的建议和指南,并找出证据基础中的漏洞。
    UNASSIGNED: To propose a consensus-based definition and framework for motor rehabilitation after stroke.
    UNASSIGNED: An expert European working group reviewed the literature, attaining internal consensus after external feedback.
    UNASSIGNED: Motor rehabilitation is defined as a process that engages people with stroke to benefit their motor function, activity capacity and performance in daily life. It is necessary for people with residual motor disability whose goal is to enhance their functioning, independence and participation. Motor rehabilitation operates through learning- and use-dependent mechanisms. The trajectory of motor recovery varies across patients and stages of recovery. Early behavioral restitution of motor function depends on spontaneous biological mechanisms. Further improvements in activities of daily living are achieved by compensations. Motor rehabilitation is guided by regular assessment of motor function and activity using consensus-based measures, including patient-reported outcomes. Results are discussed with the patient and their carers to set personal goals. During motor rehabilitation patients learn to optimize and adapt their motor, sensory and cognitive functioning through appropriately dosed repetitive, goal-oriented, progressive, task- and context-specific training. Motor rehabilitation supports people with stroke to maximize health, well-being and quality of life. The framework describes the International Classification of Functioning, Disability and Health in the context of stroke, describes neurobiological mechanisms of behavioral restitution and compensation, and summarizes recommendations for clinical assessment, prediction tools, and motor interventions with strong recommendations from clinical practice guidelines (2016-2022).
    UNASSIGNED: This definition and framework may guide clinical educators, inform clinicians on current recommendations and guidelines, and identify gaps in the evidence base.
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  • 文章类型: Letter
    NA.
    暂无摘要。
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  • 文章类型: Journal Article
    对于孩子们来说,有意义的参与社区生活包括能够进入游戏场所。这样的社区游戏空间对所有孩子都很重要,包括残疾人。然而,孩子们很少被问及他们对游戏空间设计的看法,这可能进一步助长排他性做法,并损害儿童就影响他们的问题分享他们的观点的权利。在这次范围审查中,我们的目标是分析指导方针,并确定在规划公共游戏空间时支持儿童参与权的策略。指南是当地决策者在创建社区游戏空间时使用的实用工具,这是儿童户外游戏的重要场所。总的来说,确定了42条涉及儿童参与权的准则,以及社区的参与。使用了“最佳拟合”框架方法的定性证据综合,以伦迪的儿童参与模式为依据。调查结果揭示了最初社区参与作为关键先决条件的重要性。儿童参与的策略主要涉及“空间和声音”(针对不同能力的儿童),很少注意给予他们的观点应有的重视。这些证据表明,在支持成人和儿童在设计游戏空间方面平等合作的政策制定和实施方面,知识存在很大差距。儿童参与研究的未来方向需要关注公共游戏空间设计中的社区-儿童参与方法的结合。这种工作可以加强和促进成年人作为履行儿童权利义务的承担者的作用。这项审查在规划公共场所时产生了包容性策略,这可以在这个复杂的多层过程中为当地决策者提供支持。
    For children, meaningful participation in community life includes being able to access places for play. Such community playspaces are potentially important for all children, including those with disabilities. Yet, children are rarely asked for their views on the design of playspaces, which can further contribute to exclusionary practices and undermine children\'s rights to share their views on matters that affect them. In this scoping review, we aim to analyze guidelines and identify strategies for supporting children\'s participation rights when planning public playspaces. Guidelines are practical tools used by local policymakers when creating community playspaces, which are important sites for children\'s outdoor play. In total, forty-two guidelines were identified that addressed children\'s participation rights, along with community involvement. Qualitative evidence synthesis with a \"best fit\" framework approach was used, informed by Lundy\'s model of children\'s participation. The findings revealed the importance of initial community involvement as a critical prerequisite. Strategies for children\'s participation mostly concerned \"space and voice\" (for children of diverse abilities), with little attention paid to giving their views due weight. This evidence shows that there is a significant gap in knowledge surrounding policy development and implementation to support adults and children to cooperate equally in designing playspaces. Future directions for research in children\'s participation require a focus on combined community-children participation approaches in public playspace design. Such work could strengthen and facilitate the role of adults as bearers of the duty to implement the rights of children. This review generated inclusive strategies in planning public playspaces, which could support local policymakers in this complex multi-layered process.
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  • 文章类型: Journal Article
    背景:最近的工作表明,患有慢性健康状况和残疾(CCD)的人符合24小时运动指南的比率低于人口规范;但是,在生命的不同阶段,证据基础仍然有限,很少有研究对与心理健康结局的关联进行研究.
    目的:本研究调查了患有CCD的新兴成年人与没有CCD的成年人之间的24小时运动指南依从性以及指南依从性与心理健康指标之间的关联。
    方法:这项横断面研究使用了加拿大校园健康调查2020年周期的数据。共有17,874名新兴成年人在20所大专院校注册(平均年龄=21.6±2.94岁;65.2%为女性),包括3336名被识别为CCD的人,自我报告他们的运动行为(身体活动,久坐的行为,睡眠)和完成的心理困扰和心理健康措施。计算逻辑回归模型以检查指南依从性的差异。计算倾向得分加权线性回归模型以检查指南依从性与心理健康指标之间的关联。
    结果:患有CCD的新兴成年人达到24小时运动指南的几率明显低于同龄人,指南依从性的差异在多症患者中最为明显,发展,和身体残疾。在有和没有CCD的人群中,指南依从性与心理困扰和心理健康得分明显更有利相关。
    结论:研究结果表明,患有CCD的新兴成年人的运动行为模式不如同龄人,然而,当他们符合24小时运动指南时,他们似乎会体验到类似的心理健康益处。
    Recent work has shown that individuals with chronic health conditions and disabilities (CCD) meet the 24-h movement guidelines at lower rates than population norms; however, the evidence base remains limited across different stages of the lifespan and very few studies have examined associations with mental health outcomes.
    This study examined 24-h movement guideline adherence among emerging adults with CCD compared to those without and associations between guideline adherence and indicators of mental health.
    This cross-sectional study used data from the 2020 cycle of the Canadian Campus Wellbeing Survey. A total of 17,874 emerging adults enrolled at 20 post-secondary institutions (mean age = 21.6 ± 2.94 years; 65.2% female), including 3336 who identified with a CCD, self-reported their movement behaviors (physical activity, sedentary behaviors, sleep) and completed measures of psychological distress and mental well-being. Logistic regressions models were computed to examine differences in guideline adherence. Propensity score weighted linear regression models were computed to examine associations between guideline adherence and indicators of mental health.
    Emerging adults with CCD had significantly lower odds of meeting the 24-h movement guidelines than their peers, and disparities in guideline adherence were most pronounced among those with multimorbidity, developmental, and physical disabilities. Guideline adherence was associated with significantly more favorable scores for psychological distress and mental well-being among those with and without CCD.
    Findings suggest emerging adults with CCD engage in less healthy movement behavior patterns than their peers, yet they appear to experience similar mental health benefits when they do meet the 24-h movement guidelines.
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  • 文章类型: English Abstract
    实施预防高危老年人行动不便的战略,重点放在锻炼上,是公共卫生的当务之急。这些策略必须遵循务实,结构化和个性化的方法。为了获得短,中长期效益,必须考虑协调适应的体育锻炼计划并协调良好做法。为支持防止丧失自主权的国家政策,重要的是要制定明确的指导方针来实施有效的计划。这些计划应高度重视循证文献,并应得到多专业专家的共识。这一共识的目的是概述实施这些计划的步骤,介绍其构成要素及其实际应用。这些计划的构思和阐述应包括频率,强度,持续时间,工作类型,体积和个人进步。计划还应侧重于个性化的方法来发展参与者的健康教育,身体活动的自我效能和赋权,以确保长期的健康相关行为。此外,训练有素的专业人员必须监督这些计划,以确保参与者的安全和计划的有效性。这些准则将支持防止丧失自主性和机动性的政策,在整个国家领土上的发展。
    The implementation of strategies to prevent mobility disability in seniors at-risk with a strong focus on exercise is a public health imperative. These strategies must follow a pragmatic, structured and personalized approach. In order to obtain short, medium and long-term benefits, it is essential to consider the coordination of adapted physical exercise programs and to harmonize good practices. In support of national policies for the prevention of loss of autonomy, it is important to define clear guidelines to conduct effective programs. These programs should have a strong emphasis on evidence-based literature and should be validated by a consensus of multi-professional experts. The aim of this consensus is to outline the steps implementing these programs, to present their constituent elements and their practical application. Conception and elaboration of these programs should include frequency, intensity, duration, type of work, volume and individual progressiveness. Programs should also be focused on a personalised approach to develop participant health education, self-efficacy and empowerment for physical activity to ensure long-term health related behaviours. Moreover, trained professionals must supervise these programs in order to assure participants safety and program effectiveness. These guidelines will support policies for the prevention of loss of autonomy and mobility, throughout their development over the national territory.
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