advocacy

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  • 文章类型: Journal Article
    背景:2023年5月29日,第76届世界卫生大会(WHA)一致通过了题为“,“加快努力预防微量营养素缺乏及其后果,包括脊柱裂和其他神经管缺陷,通过安全有效的食品强化。出生缺陷研究和预防协会于2015年发布了他们的决议,支持用叶酸强制强化主食,并提出了旨在实现全球全面预防叶酸敏感性脊柱裂和无脑畸形的建议。设定到2024年实现的目标。WHA决议为这一事业提供了另一个全球推动力,向成员国提出到2030年实现粮食强化的建议。
    方法:这个简短的交流记录了步骤,从开始到通过,在WHA关于食品强化的第76项决议中,叙述了多个政府和非政府组织的战略宣传工作的性质。
    结果:WHA决议可能需要很多年才能由大会引入和通过;但是,这是一个案例研究,说明强大的全球伙伴关系促成了这一进程的迅速性。
    结论:此过程的文档可作为制定和处理旨在改善全球母婴健康的未来WHA决议的范例。
    BACKGROUND: On May 29, 2023, the 76th World Health Assembly (WHA) unanimously adopted the resolution entitled, \"Accelerating efforts for preventing micronutrient deficiencies and their consequences, including spina bifida and other neural tube defects, through safe and effective food fortification.\" The Society for Birth Defects Research and Prevention published their resolution in 2015 supporting mandatory fortification of staple foods with folic acid and recommendations aiming to achieve global total prevention of folate-sensitive spina bifida and anencephaly, setting a goal to achieve by the year 2024. The WHA resolution provides another global push for the cause, with recommendations to member nations for food fortification to be achieved by the year 2030.
    METHODS: This short communication documents the steps, from inception up to the passage, of the 76th WHA resolution on food fortification, with a narrative on the nature of strategic advocacy efforts by multiple governmental and nongovernmental organizations.
    RESULTS: WHA resolutions can take many years to be introduced and passed by the assembly; however, this is a case study of the swiftness of the process enabled by powerful global partnership.
    CONCLUSIONS: The documentation of this process serves as an example for developing and processing future WHA resolutions aiming to improve global maternal and child health.
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  • 文章类型: Journal Article
    背景:患有严重多发性硬化症(PwsMS)的人面临复杂的需求和日常限制,这使得获得最佳护理具有挑战性。卫生保健的实施和协调,社会服务,对于PwsMS和护理人员来说,财务方面的支持可能特别耗时和繁重。护理和病例管理(CCM)有助于确保最佳的个人护理以及更高层次的护理。当前定性研究的目标是确定PwsMS的经验,CCM的护理人员和医疗保健专家(HCS)。
    方法:在当前的定性子研究中,作为更大审判的一部分,对PwsMS进行深入的半结构化访谈,在2022年2月2日至2023年1月2日期间,对与CCM有接触的护理人员和HCS进行了治疗.数据被转录,假名,测试饱和度,并根据Kuckartz使用结构化内容分析进行分析。对社会人口统计学和访谈特征进行了描述性分析。
    结果:十三个PwsMS,12名护理人员和10名HCS完成了访谈。CCM函数的主要类别是演绎的:(1)看门人函数,(2)经纪人功能,(3)宣传功能,(4)对CCM标准护理的展望。然后从访谈材料中归纳地得出子类别。对852段进行了编码。与会者赞赏CCM作为一个持续和客观的联系人,信托人(92码),有能力的信息和建议来源(关于MS)(68个代码)和全面的交叉保险支持(128个代码),缓解和支持PwsMS,他们的护理人员和HCSs(67个代码)。
    结论:通过跨部门持续支持与健康相关的工作,社会,财务和日常官僚事务,CCM为PwsMS提供全面和压倒一切的支持和救济,护理人员和HCS。这种干预有可能被微调并应用于类似的复杂患者组。
    背景:该研究得到了科隆大学伦理委员会的批准(#20-1436),根据赫尔辛基宣言,在德国临床研究注册中心(DRKS00022771)注册。
    BACKGROUND: Persons with severe Multiple Sclerosis (PwsMS) face complex needs and daily limitations that make it challenging to receive optimal care. The implementation and coordination of health care, social services, and support in financial affairs can be particularly time consuming and burdensome for both PwsMS and caregivers. Care and case management (CCM) helps ensure optimal individual care as well as care at a higher-level. The goal of the current qualitative study was to determine the experiences of PwsMS, caregivers and health care specialists (HCSs) with the CCM.
    METHODS: In the current qualitative sub study, as part of a larger trial, in-depth semi-structured interviews with PwsMS, caregivers and HCSs who had been in contact with the CCM were conducted between 02/2022 and 01/2023. Data was transcribed, pseudonymized, tested for saturation and analyzed using structuring content analysis according to Kuckartz. Sociodemographic and interview characteristics were analyzed descriptively.
    RESULTS: Thirteen PwsMS, 12 caregivers and 10 HCSs completed interviews. Main categories of CCM functions were derived deductively: (1) gatekeeper function, (2) broker function, (3) advocacy function, (4) outlook on CCM in standard care. Subcategories were then derived inductively from the interview material. 852 segments were coded. Participants appreciated the CCM as a continuous and objective contact person, a person of trust (92 codes), a competent source of information and advice (on MS) (68 codes) and comprehensive cross-insurance support (128 codes), relieving and supporting PwsMS, their caregivers and HCSs (67 codes).
    CONCLUSIONS: Through the cross-sectoral continuous support in health-related, social, financial and everyday bureaucratic matters, the CCM provides comprehensive and overriding support and relief for PwsMS, caregivers and HCSs. This intervention bears the potential to be fine-tuned and applied to similar complex patient groups.
    BACKGROUND: The study was approved by the Ethics Committee of the University of Cologne (#20-1436), registered at the German Register for Clinical Studies (DRKS00022771) and in accordance with the Declaration of Helsinki.
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  • 文章类型: Journal Article
    发育障碍儿童的照顾者,包括自闭症,经常很难获得服务,阿根廷的信息和资源。在阿根廷的环境中,如何赋予看护者以支持他们的孩子的能力鲜为人知。我们在网上与32人进行了交谈,以了解现有和潜在的支持护理人员的做法。我们采访的人包括看护者,卫生服务提供者,提供服务或技术支持的非政府组织代表,特殊教育教师和政策代表。与会者说,贫困,以及获得支持方面的不平等,影响照顾者如何支持他们的孩子。他们提到了帮助护理人员感到被授权的例子,例如同伴支持小组和护理人员培训。许多照顾者谈到了他们如何成为子女的倡导者,以及他们如何开展宣传运动和福祉支持小组等举措。阿根廷的看护者可以通过各种方式获得授权,加强专业人员和护理人员之间的合作;注重护理人员的心理健康;解决贫困对家庭生活质量的深远影响。
    UNASSIGNED: Caregivers of children with developmental disabilities, including autism, often struggle to access services, information and resources in Argentina. Little is known about how caregivers can be empowered to support their children as they wish to in the Argentinian setting. We spoke with 32 people online to understand existing and potential practices of supporting caregivers. The people we spoke with included caregivers, health service providers, non-governmental organisations\' representatives providing services or technical support, special education teachers and policy representatives. Participants said that poverty, and inequalities in accessing support, impact how caregivers can support their children. They mentioned examples that help caregivers feel empowered, such as peer support groups and caregiver training. Many caregivers spoke about how they became advocates for their children and how they developed initiatives such as advocacy campaigns and well-being support groups. Caregivers in Argentina may be empowered in various ways, and the following strategies can improve empowerment: strengthening collaboration between professionals and caregivers; focusing on caregiver mental health; and addressing the profound impact of poverty on the quality of life of families.
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  • 文章类型: Journal Article
    媒体不仅可以在向公众宣传和教育健康问题方面发挥关键作用,但它可以为倡导公共卫生事务做出有力贡献。在肯尼亚,提前计划生育(AFP)倡议使用这种方法来促进该国在实现计划生育目标方面的进展。本案例研究记录了法新社在支持媒体方面的经验,使领导者和决策者参与解决限制计划生育服务成功的官僚瓶颈的必要性。法新社的媒体努力为推动增加政治承诺和计划生育投资的倡导者的工作增加了分量。媒体宣传工作有助于促进肯尼亚各地决策者的行动,重点是加强避孕方法的可及性和可获得性,并快速执行解决青少年怀孕问题的政策行动。媒体宣传工作有助于推进该国的计划生育举措。媒体宣传应该是计划生育方案和其他部门的关键支柱。
    Media can not only play a critical role in informing and educating the public on health issues, but it can make a powerful contribution to advocacy of public health matters. In Kenya, Advance Family Planning (AFP) initiative used this approach to further the country\'s progress in achieving family planning goals. This case study documents AFP experience in supporting media to engage leaders and decision-makers on the need to unlock bureaucratic bottlenecks that limit success of family planning services. AFP\'s media efforts added weight to the work of advocates who push for increased political commitments and investments in family planning. Media advocacy efforts helped catalyze actions by decision-makers across Kenya-focusing on strengthening accessibility and availability of contraceptive methods and fast-tracking implementation of policy actions to address adolescent pregnancy. Media advocacy efforts contributed to advancing family planning initiatives in the country. Media advocacy should be a key pillar of family planning programs and of other sectors.
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  • 文章类型: Journal Article
    STRIDE是一个雄心勃勃的四年项目,在七个国家开展,旨在围绕产生和利用研究来支持制定政策以改善痴呆症患者及其护理人员的生活质量进行能力建设。该项目的创新方法结合了严谨的学术研究和动手民间社会的倡导。本文探讨了该项目的独特的政策变更策略,并汇编了来自几个STRIED国家的案例研究。最后,我们分享经验教训和下一步措施,以保持这些国家及其他国家政策变革的势头。
    STRiDE was an ambitious four-year project in seven countries aiming to build capacity around generating and using research to support the development of policies to improve quality of life of people with dementia and their carers. The project\'s innovative approach combined rigorous academic research and hands-on civil society advocacy. This paper explores the project\'s unique strategy for policy change and compiles case-studies from several of the STRiDE countries. Finally, we share lessons learned and next steps to keep momentum for policy change going in each of these countries - and beyond.
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  • 文章类型: Journal Article
    青少年电子烟或电子烟产品使用相关肺损伤(EVALI)的患病率增加,虽然已经报道了描述各种肺部表现的病例,关于青少年患者的介绍和结果的报告很少。
    我们回顾性描述了8例不同表现的EVALI患者,实验室和影像学发现,治疗,和伴随的诊断。我们回顾了文献,并描述了我们的分析是如何增加文献的。
    八位男性,15-18岁的人出现各种症状。四名患者是白种人,而四名是西班牙裔。所有患者均出现呼吸道症状;六个也有胃肠道症状;五个是低氧血症;除一名患者外,所有患者都承认使用含有四氢大麻酚(THC)的产品。所有患者均有毛玻璃混浊的影像学改变。一名患者接受了肺活检和支气管镜检查,显示嗜酸性粒细胞肺炎。所有患者均接受抗菌治疗,直到全身性类固醇给药为止,均无改善。6例患者接受了肺功能检查,以及新诊断的持续性哮喘所需的五种药物。一名患者出现肺动脉高压,治疗后解决了。一名患者需要无创通气。无患者SARS-CoV2阳性。两个人与其他微生物共感染。5例患者在肺科随访时需要升级哮喘治疗。
    这项对因EVALI住院的8名青少年男性的分析强调了不可预测的疾病表现和管理谱。这些患者可能在没有适当筛查的情况下被误诊,并且可能有残留的呼吸道并发症,需要肺科医师进行门诊治疗。
    Adolescent e-cigarette or vaping product use-associated lung injury (EVALI) has increased in prevalence, and while cases describing various pulmonary manifestations have been reported, reports on the presentations and outcomes in teenage patients are sparse.
    We retrospectively describe eight EVALI patients with different presentations, laboratory and imaging findings, treatment, and concomitant diagnoses. We review the literature and describe how our analysis adds to the literature.
    Eight males, aged 15-18 years of age presented with various symptoms. Four patients were Caucasian while four were of Hispanic origin. All patients presented with respiratory symptoms; six also had GI symptoms; five were hypoxemic; all but one patient admitted to using products containing tetrahydrocannabinol (THC). All patients had changes on imaging with ground-glass opacities. One patient underwent lung biopsy and bronchoscopy showing eosinophilic pneumonia. All patients received antimicrobial therapies without improvement until systemic steroids were administered. Six patients underwent pulmonary function testing, and five required medications for newly diagnosed persistent asthma. One patient developed pulmonary hypertension, which resolved after treatment. One patient required noninvasive ventilation. No patients were positive for SARS-CoV2. Two had coinfections with other microbes. Five patients required escalation of asthma therapies at follow-up with pulmonology.
    This analysis of eight adolescent males hospitalized for EVALI highlights the unpredictable spectrum of disease presentation and management. These patients can be misdiagnosed without proper screening and may have residual respiratory complications necessitating outpatient management by a pulmonologist.
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  • 文章类型: Journal Article
    背景:含糖饮料(SSB)税是改善营养和公共卫生的有效公共卫生政策干预措施。尽管在全球50多个司法管辖区实施,这种干预仍然没有得到充分利用,在澳大利亚,这种税收的政治承诺很低。这项研究的目的是了解澳大利亚SSB税收的政治,哪些因素制约了税收的政治承诺,以及未来什么可能促成这种承诺。
    方法:我们采用了案例研究设计,以营养文学的政治经济学发展而来的理论框架为指导。数据来自对来自多个部门的线人的16次访谈,在媒体文章的支持下,期刊文章,灰色文学通过专题分析对数据进行编码和组织,并合成最终结果。
    结果:营养行为者通过提供相关证据,在产生对SSB税的承诺方面取得了重大进展,提高认识,倡导行动,使用共振框架,与民间社会组织合作,形成联盟,增加他们的整体凝聚力。然而,对SSB税的政治承诺很低,并且被发现受到食品强大影响的阻碍,饮料,和制糖业,来自澳大利亚两个主要政党的反对,意识形态上对监管的抵制,食品和营养的低质量监测和监测系统,和有限的公共宣传。与关键政策制定者的联系薄弱,错过了与支持SSB的税收组织的合作机会,也阻碍了营养参与者的影响。
    结论:对几个障碍的识别解释了为什么澳大利亚对SSB税的政治承诺很低,并揭示了未来如何产生SSB税的几个机会。政治承诺可能会通过,例如,限制行业在政策决策中的影响力的行动,并通过加强现有的支持SSB的税收联盟。
    Sugar-sweetened beverage (SSB) taxes are an effective public health policy intervention for improving nutrition and public health. Although implemented in over 50 jurisdictions worldwide, this intervention remains vastly underutilised, and in Australia political commitment for such a tax is low. The aim of this study is to understand the politics of SSB taxation in Australia, what factors have constrained political commitment for a tax, and what might enable such commitment in future.
    We adopted a case study design, guided by a theoretical framework developed from the political economy of nutrition literature. Data were collected from 16 interviews with informants from multiple sectors, supported by media articles, journal articles, and grey literature. Data were coded and organized by thematic analysis, and synthesised into the final results.
    Nutrition actors have made significant progress in generating commitment for a SSB tax by producing relevant evidence, raising awareness, advocating for action, employing resonating frames, collaborating with civil society organisations, and forming coalitions increasing their overall cohesion. Nevertheless, political commitment for a SSB tax is low and was found to be impeded by the powerful influence of the food, beverage, and sugar industries, opposition from both major Australian political parties, ideological resistance to regulation, a low quality monitoring and surveillance system for food and nutrition, and limited public advocacy. The influence of nutrition actors was also impeded by weak connections to key policy-makers and missed collaborative opportunities with pro-SSB tax organisations.
    The identification of several impediments provides an explanation for why political commitment for a SSB tax is low in Australia and reveals several opportunities for how it might be generated in the future. Political commitment may come about through, for example, actions to limit the influence of industry in policy decision-making, and by strengthening the existing pro-SSB tax coalition.
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  • 文章类型: Journal Article
    目的:公共卫生营养队伍的核心职能是宣传。从政策过程理论的角度来看,营养学家在决策中的作用鲜为人知。当前的研究分析了营养学家在倡导魁北克预防肥胖的六年政府计划中的作用,加拿大。
    方法:我们以魁北克省的肥胖政策为案例进行了定性研究,以了解营养学家在倡导肥胖预防政策中的作用。建立了将倡导联盟框架与基于战略行动者理论的政治分析模型相结合的概念框架,以分析信念,包括营养学家在内的政策参与者的利益和战略。数据源包括与关键政策参与者的半结构化开放式访谈(n25),包括八名营养学家(32%)和政策相关文件(n267)。数据分析涉及使用NVivo11Pro进行主题编码和分析。
    方法:魁北克,加拿大。
    方法:包括营养学家在内的主要政策参与者。
    结果:营养学家构成了占主导地位的公共卫生联盟的核心。他们主张制定部门间政府计划,通过有利的环境预防肥胖。他们的倡导,通过迭代过程开发,包括建立智囊团和加强与关键政策参与者的伙伴关系,进行研究和开发证据,传达政策立场和宣传材料,参与审议论坛,并与政策子系统中的其他联盟谈判协议。
    结论:营养学家的倡导影响了议程设置和政策制定。这项研究可能有助于增强公共卫生营养劳动力的能力并加强其宣传实践。它为关注肥胖政策和劳动力发展的从业者和研究人员提供信息。
    OBJECTIVE: A core function of the public health nutrition workforce is advocacy. Little is known of the nutritionists\' role in policymaking from a policy process theory perspective. The current study analyses the nutritionists\' role in advocating for a six-year governmental plan on obesity prevention in Quebec, Canada.
    METHODS: We conducted qualitative research using Quebec\'s obesity policy as a case study to understand the role of nutritionists in advocating for obesity prevention policies. A conceptual framework combining the Advocacy Coalition Framework with a political analysis model based on the Theory of the Strategic Actor was developed to analyse the beliefs, interests and strategies of policy actors including nutritionists. Data sources comprised semi-structured open-ended interviews with key policy actors (n 25), including eight nutritionists (32 %) and policy-related documents (n 267). Data analysis involved thematic coding and analysis using NVivo 11 Pro.
    METHODS: Quebec, Canada.
    METHODS: Key policy actors including nutritionists.
    RESULTS: Nutritionists formed the core of the dominant public health coalition. They advocated for an inter-sectoral governmental plan to prevent obesity through enabling environments. Their advocacy, developed through an iterative process, comprised creating a think tank and reinforcing partnerships with key policy actors, conducting research and developing evidence, communicating policy positions and advocacy materials, participating in deliberative forums and negotiating an agreement with other coalitions in the policy subsystem.
    CONCLUSIONS: Nutritionists\' advocacy influenced agenda setting and policy formulation. This research may contribute to empowering the public health nutrition workforce and strengthening its advocacy practices. It informs practitioners and researchers concerned with obesity policy and workforce development.
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  • 文章类型: Journal Article
    OBJECTIVE: Skin cancer is highly prevalent but preventable, yet little research has been done on the challenges in generating political priority for skin cancer prevention. This qualitative study aimed to identify the political challenges to, facilitators of, and strategies to strengthen skin cancer prevention. The focus was on the case of Aotearoa New Zealand (NZ): a country with high skin cancer rates, but limited investment in primary prevention.
    METHODS: Data sources included 18 national key informant interviews and documentary analysis. Data were analysed inductively for emerging themes and framed using a conceptual framework of political priority.
    RESULTS: Challenges to advocates for skin cancer primary prevention include limited resources and competing priorities. Political-level challenges include a lack of quick results compared with other initiatives vying for political attention, lack of negative externalities and, in NZ, misalignment with health system priorities. Challenges in the evidence base include the perceived conflict of sun protection with Vitamin D and physical activity, the lack of data on the financial burden of skin cancer and relatively low temperatures in NZ. Facilitators include strong policy community cohesion and issue framing, and weak opposition. Promising strategies to strengthen skin cancer prevention in NZ could include network building, using framing that resonates with policy makers and addressing key knowledge gaps in NZ, such as the financial burden of skin cancer.
    CONCLUSIONS: Advocacy for skin cancer prevention faces challenges due to advocates\' limited resources, political challenges such as lack of quick results and gaps in evidence. Nonetheless, the initiative encounters little opposition and can be framed in ways that resonate with policy makers. SO WHAT?: Skin cancer is highly preventable, but advocates for prevention initiatives have struggled to gain political traction. This study identifies several strategies that could help raise the political profile for skin cancer prevention.
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  • 文章类型: Letter
    暂无摘要。
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