advocacy

倡导
  • 文章类型: Editorial
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  • 文章类型: Review
    社会工作专业在执照方面处于不稳定的状况。有色人种的应试者正在努力以与白人同行相当的速度通过社会工作执照考试,根据社会工作委员会协会(ASWB)发布的数据。作为一个民族,我们需要满足日益多样化的人口的需求。然而,如果在这些考试中仍然存在差异,则不太可能实现招募和保留各种社会工作者。鉴于ASWB对社会工作考试的垄断,以及许多州将继续要求进行执照考试的可能性,我们试图探索公众对发布的数据的反应,以全国社会工作协会(NASW)为出发点。作为全国最大的社会工作者协会,在每个州都有地方分会,NASW是全国社会工作者之间的联系领域。
    我们利用内容分析来探索新兴主题,并对州章节对考试通过率数据的公开回应进行审查。
    各种州章节的回应,很少有国家参与宣传工作或采取行动促进变革。
    宣传工作在零散系统的重组中发挥着关键作用。这项研究重新审视了不同考生可能面临的看似被忽视的差距,同时也是倡导参与的行动号召。最后,我们提出了一套倡导实践准则,用于促进所有考生的公平许可机会。
    UNASSIGNED: The social work profession is in a precarious situation regarding licensure. Test takers of color are struggling to pass social work licensure exams at rates comparable to their White counterparts, per data released by the Association of Social Work Boards (ASWB). As a nation, we are required to meet the needs of our increasingly diverse population. Yet the recruitment and retention of a diverse body of social workers is unlikely to be actualized if disparities persist in these exams. Given ASWB\'s monopoly on social work exams and the likelihood that many states will continue to require the exams for licensure, we sought to explore public responses to the data released, using the National Association of Social Work (NASW) as our starting point. As the nation\'s largest association of social workers, having local chapters within each state, NASW serves as an area of connection between social workers nationwide.
    UNASSIGNED: We utilized content analysis to explore emerging themes and conduct a review of the state chapter\'s public responses to exam pass rate data.
    UNASSIGNED: A variety of state chapter\'s responses, with few states engaging in advocacy efforts or taking action to facilitate change.
    UNASSIGNED: Advocacy efforts play a pivotal role in the restructuring of fragmented systems. This study revisits seemingly ignored disparities diverse test takers may face, while also serving as a call-to-action in advocacy engagement. We conclude with a set of advocacy practice guidelines for use in the promotion of equitable licensing opportunities for all test takers.
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  • 文章类型: Journal Article
    背景:急性肾损伤(AKI)在整个生命过程中与发病率和死亡率的增加独立相关,然而,对AKI的护理仍然主要是支持性的。通过教育和宣传努力提高对这种危及生命的临床综合征的认识是改善患者预后的关键。这里,我们描述了教育和宣传在照顾AKI儿童中的独特作用,讨论为个人群体和环境定制教育外展工作的重要性,并强调通过创新和伙伴关系创造的机会,以优化终身健康成果。
    方法:在第26届急性疾病质量倡议(ADQI)共识会议上,一个多学科专家组讨论了证据,并使用改进的Delphi程序就AKI研究的建议达成共识,教育,实践,和倡导儿童。
    结果:针对关于教育和倡导在小儿AKI护理中的作用的三个关键问题提出的共识声明,以及对临床护理和研究的现有证据和建议的总结。
    结论:这些共识声明强调,针对AKI患者的高质量护理始于社区,开展教育和宣传活动,以识别有AKI风险的患者。教育是所有医疗保健和非医疗保健机构加强早期诊断和制定缓解策略的关键。从而改善AKI儿童的预后。强有力的宣传工作对于实施这些计划和在所有利益相关者和环境中建立关键合作至关重要。
    BACKGROUND: Acute kidney injury (AKI) is independently associated with increased morbidity and mortality across the life course, yet care for AKI remains mostly supportive. Raising awareness of this life-threatening clinical syndrome through education and advocacy efforts is the key to improving patient outcomes. Here, we describe the unique roles education and advocacy play in the care of children with AKI, discuss the importance of customizing educational outreach efforts to individual groups and contexts, and highlight the opportunities created through innovations and partnerships to optimize lifelong health outcomes.
    METHODS: During the 26th Acute Disease Quality Initiative (ADQI) consensus conference, a multidisciplinary group of experts discussed the evidence and used a modified Delphi process to achieve consensus on recommendations on AKI research, education, practice, and advocacy in children.
    RESULTS: The consensus statements developed in response to three critical questions about the role of education and advocacy in pediatric AKI care are presented here along with a summary of available evidence and recommendations for both clinical care and research.
    CONCLUSIONS: These consensus statements emphasize that high-quality care for patients with AKI begins in the community with education and awareness campaigns to identify those at risk for AKI. Education is the key across all healthcare and non-healthcare settings to enhance early diagnosis and develop mitigation strategies, thereby improving outcomes for children with AKI. Strong advocacy efforts are essential for implementing these programs and building critical collaborations across all stakeholders and settings.
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  • 文章类型: Editorial
    近视已经是导致永久性视力障碍的主要原因之一,包括失明,COVID-19大流行加剧了全球儿童因家庭监禁而造成的近视负担,增加屏幕时间(电子学习),外部活动减少。扭转近视及近视眼相关性盲上升趋势,需要合作努力。有关近视流行病学和有效干预措施的循证医学(EBM)数据丰富,但很少发表关于临床医生的角色和责任。然而,这方面至关重要,因为预防近视的发生和发展需要决策者广泛的健康促进和宣传工作。只有广泛的医学专家合作才能给儿童的生活方式和教育带来必要的改变。本文讨论了临床医生在预防近视发作和进展中的关键作用。
    Myopia is already one of the leading causes of permanent vision impairment, including blindness, and the COVID-19 pandemic has exacerbated the global myopia-related burden among children owing to home confinement, increased screen time (e-learning), and decreased outside activities. To reverse the rising trend of myopia and myopia-related blindness, collaborative efforts are required. There is a wealth of evidence-based medicine (EBM) data on the epidemiology of myopia and effective interventions, but very little has been published on the clinicians\' roles and responsibilities. However, this aspect is critical because preventing the onset and progression of myopia necessitates extensive health promotion and advocacy efforts among decision-makers. Only broad medical expert collaboration can bring about the necessary changes in children\'s lifestyle and education. This article discusses clinicians\' critical roles in preventing the onset and progression of myopia.
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  • 文章类型: Journal Article
    背景:在美国(U.S.),已经进行了一些不成功的尝试,以就饮食失调领域的基本问题达成跨学科共识。2020年1月,25位杰出的临床医生,院士,研究人员,有生活经验的人,和思想领袖在美国饮食失调社区聚集在希望的遗产峰会再试一次。本文阐述了他们达成共识的观点。它还:(1)概述了执行这些建议的战略;(2)确定执行这些建议的可能障碍;(3)规划成功导航和克服这些挑战的路线。
    方法:在整个峰会和本手稿的开发过程中都采用了迭代和共识过程。
    结果:首脑会议的结论最终达成了几个共识,包括:(1)通过实施专注于社会观念的创造性健康教育计划,可以改善饮食失调的结果和预防工作,早期发现,及时,有效干预;(2)此类举措应面向父母/监护人,家庭,其他看护人,和一线医疗保健提供者,以最大限度地发挥影响;(3)那些患有饮食失调的人,他们所爱的人,整个饮食失调社区将受益于更容易获得负担得起的食物,优质护理,以及医院内部更大的透明度和问责制,住宅,和门诊保健提供者的资格,方法论,和标准化的结果;(4)那些有饮食失调经历的人,他们所爱的人,卫生保健提供者,以及整个饮食失调社区,还将受益于治疗计划认证的建立和维护,专业认证,以及治疗类型和水平的护理指南;(5)建立和实施有效的,基于经验/证据的护理标准需要在不同范围的人群中进行研究,充足的私人和政府资金,以及所有致力于理解的人之间自由交流思想和信息,治疗,and,最终,显著减少饮食失调的负面影响。
    结论:广泛采纳和实施这些建议有可能统一和推进饮食失调领域,并最终改善受影响者的生活。一个跨学科的饮食失调专家小组,思想领袖,和有生活经验的人聚集在一起,就与威胁生命和改变生命的疾病作斗争的根本问题达成共识,这些疾病是饮食谱系障碍。这些问题包括:(1)需要早期检测,干预,预防,和循证护理标准;(2)迫切需要使所有有需要的人更容易获得和负担得起专门护理;(3)基于证据的护理标准;(4)需要资金和进行饮食谱系障碍研究;(5)倡导不可或缺,教育,以及与这些疾病有关的立法。在协商一致的过程中,作者还提出了实施他们建议的策略,确定了实施这些措施的可能障碍,并为成功导航和克服这些挑战制定了路线。最重要的是,作者证明,在饮食谱系障碍领域达成共识是可能的和可实现的,在这样做的时候,点燃了希望的火炬,这肯定会照亮未来几年的前进道路。
    BACKGROUND: Several unsuccessful attempts have been made to reach a cross-disciplinary consensus on issues fundamental to the field of eating disorders in the United States (U.S.). In January 2020, 25 prominent clinicians, academicians, researchers, persons with lived experience, and thought leaders in the U.S. eating disorders community gathered at the Legacy of Hope Summit to try again. This paper articulates the points on which they reached a consensus. It also: (1) outlines strategies for implementing those recommendations; (2) identifies likely obstacles to their implementation; and (3) charts a course for successfully navigating and overcoming those challenges.
    METHODS: Iterative and consensual processes were employed throughout the Summit and the development of this manuscript.
    RESULTS: The conclusion of the Summit culminated in several consensus points, including: (1) Eating disorder outcomes and prevention efforts can be improved by implementing creative health education initiatives that focus on societal perceptions, early detection, and timely, effective intervention; (2) Such initiatives should be geared toward parents/guardians, families, other caretakers, and frontline healthcare providers in order to maximize impact; (3) Those afflicted with eating disorders, their loved ones, and the eating disorders community as a whole would benefit from greater accessibility to affordable, quality care, as well as greater transparency and accountability on the part of in-hospital, residential, and outpatient health care providers with respect to their qualifications, methodologies, and standardized outcomes; (4) Those with lived experience with eating disorders, their loved ones, health care providers, and the eating disorders community as a whole, also would benefit from the establishment and maintenance of treatment program accreditation, professional credentialing, and treatment type and levels of care guidelines; and (5) The establishment and implementation of effective, empirically/evidence-based standards of care requires research across a diverse range of populations, adequate private and government funding, and the free exchange of ideas and information among all who share a commitment to understanding, treating, and, ultimately, markedly diminishing the negative impact of eating disorders.
    CONCLUSIONS: Widespread uptake and implementation of these recommendations has the potential to unify and advance the eating disorders field and ultimately improve the lives of those affected. A cross-disciplinary group of eating disorder professionals, thought leaders, and persons with lived experience have come together and reached a consensus on issues that are fundamental to the battle against the life-threatening and life-altering illnesses that are eating spectrum disorders. Those issues include: (1) the need for early detection, intervention, prevention, and evidenced-based standards of care; (2) the critical need to make specialized care more accessible and affordable to all those in need; (3) the importance of developing uniform, evidenced-based standards of care; (4) the need for funding and conducting eating spectrum disorder research; and (5) the indispensability of advocacy, education, and legislation where these illnesses are concerned. During the consensus process, the authors also arrived at strategies for implementing their recommendations, identified likely obstacles to their implementation, and charted a course for successfully navigating and overcoming those challenges. Above all else, the authors demonstrated that consensus in the field of eating spectrum disorders is possible and achievable and, in doing so, lit a torch of hope that is certain to light the path forward for years to come.
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  • 文章类型: Journal Article
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  • 文章类型: Journal Article
    An international survey led by the International Society of Nephrology in 2016 assessed the current capacity of kidney care worldwide. To better understand how governance and leadership guide kidney care, items pertinent to government priority, advocacy, and guidelines, among others, were examined. Of the 116 responding countries, 36% (n = 42) reported CKD as a government health care priority, which was associated with having an advocacy group (χ2 = 11.57; P = 0.001). Nearly one-half (42%; 49 of 116) of countries reported an advocacy group for CKD, compared with only 19% (21 of 112) for AKI. Over one-half (59%; 68 of 116) of countries had a noncommunicable disease strategy. Similarly, 44% (48 of 109), 55% (57 of 104), and 47% (47 of 101) of countries had a strategy for nondialysis CKD, chronic dialysis, and kidney transplantation, respectively. Nearly one-half (49%; 57 of 116) reported a strategy for AKI. Most countries (79%; 92 of 116) had access to CKD guidelines and just over one-half (53%; 61 of 116) reported guidelines for AKI. Awareness and adoption of guidelines were low among nonnephrologist physicians. Identified barriers to kidney care were factors related to patients, such as knowledge and attitude (91%; 100 of 110), physicians (84%; 92 of 110), and geography (74%; 81 of 110). Specific to renal replacement therapy, patients and geography were similarly identified as a barrier in 78% (90 of 116) and 71% (82 of 116) of countries, respectively, with the addition of nephrologists (72%; 83 of 116) and the health care system (73%; 85 of 116). These findings inform how kidney care is currently governed globally. Ensuring that guidelines are feasible and distributed appropriately is important to enhancing their adoption, particularly in primary care. Furthermore, increasing advocacy and government priority, especially for AKI, may increase awareness and strategies to better guide kidney care.
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  • 文章类型: Journal Article
    Although many resources are available to rehabilitation counselors to utilizing community resources for minority clients with disabilities, guidelines specific to service allocation are not easily available. The purpose of this article is to provide rehabilitation counselors with a simple, modifiable service allocation template for this purpose. A 10-step referral making process with real-world examples is presented. Special attention is given to ways in which counselors can appropriately allocate and monitor services when working with minority clients, followed by a case study demonstrating how the model may be applied.
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  • 文章类型: Journal Article
    This article addresses the educational issues associated with rare diseases (RD) and in particular the Neuronal Ceroid Lipofuscinoses (NCLs, or CLN diseases) in the curricula of Health Sciences and Professional\'s Training Programs. Our aim is to develop guidelines for improving scientific knowledge and practice in higher education and continuous learning programs. Rare diseases (RD) are collectively common in the general population with 1 in 17 people affected by a RD in their lifetime. Inherited defects in genes involved in metabolism are the commonest group of RD with over 8000 known inborn errors of metabolism. The majority of these diseases are neurodegenerative including the NCLs. Any professional training program on NCL must take into account the medical, social and economic burdens related to RDs. To address these challenges and find solutions to them it is necessary that individuals in the government and administrative authorities, academia, teaching hospitals and medical schools, the pharmaceutical industry, investment community and patient advocacy groups all work together to achieve these goals. The logistical issues of including RD lectures in university curricula and in continuing medical education should reflect its complex nature. To evaluate the state of education in the RD field, a summary should be periodically up dated in order to assess the progress achieved in each country that signed up to the international conventions addressing RD issues in society. It is anticipated that auditing current practice will lead to higher standards and provide a framework for those educators involved in establishing RD teaching programs world-wide.
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  • 文章类型: Journal Article
    目标:为“倡导药学专业”制定共识定义,并为药学博士(PharmD)毕业生提供核心能力,以成为该专业的有效倡导者。
    方法:使用9名专家组成的小组进行了3轮改进的Delphi过程。参与者修改了“倡导职业”的定义,并最终使用5分李克特量表对他们的协议进行了评级。制定了能力声明,随后对其作为倡导者的重要性和在PharmD课程中解决的重要性进行了评级。
    结果:建立了共识衍生的定义。两项能力声明就两项重要指标达成了共识。四个能力声明仅就一项措施达成共识,另外四个未就任何一项措施达成共识。
    结论:制定了共识衍生的定义,描述了对药学专业的倡导,并开始为成为药学专业有效倡导者所必需的知识和技能奠定基础。
    OBJECTIVE: To develop a consensus definition for \"advocacy for the profession of pharmacy\" and core competencies for doctor of pharmacy (PharmD) graduates to be effective advocates for the profession.
    METHODS: A 3-round modified Delphi process was conducted using a panel of 9 experts. Participants revised a definition for \"advocacy for the profession\" and ultimately rated their agreement using a 5-point Likert scale. Competency statements were developed and subsequently rated for importance for being an advocate and importance to address in PharmD curricula.
    RESULTS: A consensus-derived definition was developed. Two competency statements achieved consensus for both measures of importance. Four competency statements achieved consensus for only 1 measure and another 4 did not reach consensus for either measure.
    CONCLUSIONS: A consensus-derived definition was developed describing advocacy for the profession of pharmacy and began laying the groundwork for the knowledge and skills necessary to be an effective advocate for the profession of pharmacy.
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