关键词: Argentina advocacy autism spectrum disorder developmental disabilities empowerment

来  源:   DOI:10.1177/13623613241238254

Abstract:
UNASSIGNED: Caregivers of children with developmental disabilities, including autism, often struggle to access services, information and resources in Argentina. Little is known about how caregivers can be empowered to support their children as they wish to in the Argentinian setting. We spoke with 32 people online to understand existing and potential practices of supporting caregivers. The people we spoke with included caregivers, health service providers, non-governmental organisations\' representatives providing services or technical support, special education teachers and policy representatives. Participants said that poverty, and inequalities in accessing support, impact how caregivers can support their children. They mentioned examples that help caregivers feel empowered, such as peer support groups and caregiver training. Many caregivers spoke about how they became advocates for their children and how they developed initiatives such as advocacy campaigns and well-being support groups. Caregivers in Argentina may be empowered in various ways, and the following strategies can improve empowerment: strengthening collaboration between professionals and caregivers; focusing on caregiver mental health; and addressing the profound impact of poverty on the quality of life of families.
摘要:
发育障碍儿童的照顾者,包括自闭症,经常很难获得服务,阿根廷的信息和资源。在阿根廷的环境中,如何赋予看护者以支持他们的孩子的能力鲜为人知。我们在网上与32人进行了交谈,以了解现有和潜在的支持护理人员的做法。我们采访的人包括看护者,卫生服务提供者,提供服务或技术支持的非政府组织代表,特殊教育教师和政策代表。与会者说,贫困,以及获得支持方面的不平等,影响照顾者如何支持他们的孩子。他们提到了帮助护理人员感到被授权的例子,例如同伴支持小组和护理人员培训。许多照顾者谈到了他们如何成为子女的倡导者,以及他们如何开展宣传运动和福祉支持小组等举措。阿根廷的看护者可以通过各种方式获得授权,加强专业人员和护理人员之间的合作;注重护理人员的心理健康;解决贫困对家庭生活质量的深远影响。
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