Anthropology, Cultural

人类学,文化
  • 文章类型: Journal Article
    COVID-19大流行和当前的生活成本危机凸显了社会经济模式的健康差异,重新关注公共卫生公平。尽管政治言论援引了平等主义的文化叙事和阶级流动的机会,在澳大利亚,社会阶层仍然是健康结果的重要因素。对于社会科学家来说,类(尽管有力的批评)是一个关键的分析概念,理论上已经扩大到包括社会和文化习俗(习惯)。在公共卫生方面,然而,社会劣势的概念已经扩展到诸如健康公平和社会经济地位等框架,以掩盖“阶级”和习惯的方式。对阶级和公平概念的理解和操作化不仅影响协作和跨学科关系,以及公共卫生问题和健康促进干预措施和政策的框架。在这篇文章中,我们借鉴人类学家在澳大利亚健康促进计划中进行人种学的经验,以绘制和重新评估社会阶层和公平概念的交集。我们追踪这些程序中阶级的表现是如何出现的,以及在不同公共卫生环境中实现的阶级和公平版本。我们主张对阶级进行概念上的重新定位,以认识到其在不同政治中的形态变化和物化,学科和日常环境。在这样做的时候,我们强调\'class\'作为设计的一个显著维度,健康促进计划的实施和评估。
    The COVID-19 pandemic and current cost of living crisis have highlighted socioeconomically patterned health disparities, bringing renewed focus on equity in public health. Despite political rhetoric invoking cultural narratives of egalitarianism and opportunities for class mobility, social class remains a significant factor in health outcomes in the Australian context. For social scientists, class (despite robust critiques) is a key analytical concept that has been theoretically broadened to encompass social and cultural practices (habitus). In public health, however, concepts of social disadvantage have expanded toward frames such as health equity and socioeconomic status in ways that can obscure \'class\' and habitus. Understandings and operationalization of concepts of class and equity not only impact collaborative and interdisciplinary relationships, but also the framing of public health problems and health promotion interventions and policies. In this article, we draw on our experiences as anthropologists conducting ethnography in and of Australian health promotion programs to map and re-evaluate the intersection of concepts of social class and equity. We trace how representations of class emerged in these programs, and the versions of class and equity that materialized across different public health contexts. We argue for a conceptual repositioning of class that recognizes its shape-shifting qualities and of its materializations in different politics, disciplines and everyday contexts. In doing so, we highlight \'class\' as a salient dimension of the design, implementation and evaluation of health promotion programs.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    在提供护理方面遇到障碍的医疗保健专业人员通常不知道复杂机构中造成和延续这些问题的因素。医疗保健中的机构人种学是一种研究方法,从临床医生或接受护理经验的人的问题的角度出发,并试图确定这些负面经验如何通过机构结构进行协调。本文描述并倡导使用机构人种学作为一种强大的工具来调查个人或团体在复杂的医疗保健设计和交付系统中遇到的问题。这是一种在北美各地都采用的研究方法,尽管临床医生和研究人员有可能在其他环境中更广泛地使用它。这呼应了其他作者对其在更广泛的医疗保健学科和环境中使用的呼吁。机构人种学是一种未充分利用的研究方法,有可能解决当代医疗保健中遇到的各种挑战。它为医疗保健临床医生提供了更好地了解和解决复杂医疗保健系统中影响其实践的问题的机会。
    Healthcare professionals experiencing barriers in the delivery of care are often unaware of factors within complex institutions that create and perpetuate those problems. Institutional ethnography in healthcare is a research methodology that starts from the perspective of a problem that clinicians or people receiving care experience and seeks to identify how those negative experiences are coordinated by institutional structures. This paper describes and advocates for the use of institutional ethnography as a powerful tool to investigate problems experienced by individuals or groups in the complex systems of healthcare design and delivery. It is a research methodology that has been adopted across settings in North America, although it has the potential to be utilized more broadly across other settings by clinicians and researchers. This echoes calls from other authors for its use across a wider range of healthcare disciplines and settings. Institutional ethnography is an underutilized research methodology that has potential to address a wide range of challenges experienced in contemporary healthcare. It offers healthcare clinicians the opportunity to better understand and resolve issues affecting their practice within complex healthcare systems.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    背景:养老院中的老年人因SARS-CoV-2在全球范围内经历了一些最高的死亡率,并受到严格而漫长的非药物干预,严重影响了他们的日常生活。VIVALDIASCOT和人种学研究旨在评估呼吸道暴发对养老院居民生活质量的影响,心理健康,孤独,功能能力和使用空间。这项研究与VIVALDI-CT有关,护理院工作人员无症状检测和疾病支付支持的随机对照试验(ISRCTN13296529)。
    方法:这是一种混合方法,英格兰东南部养老院居民(65岁以上)的纵向研究。第1组暴露者包括最近爆发COVID-19或其他呼吸道感染的养老院居民。第2组非暴露者包括来自养老院的居民,最近没有爆发。该研究有两个组成部分:(a)对100名居民进行混合方法的纵向面对面访谈(第1组n=50,第2组n=50),以评估疫情对居民生活质量的影响,心理健康,孤独,在时间1(研究基线)和时间2(首次访问后3-4周)的功能能力和空间使用;(b)在多达10个护理院的公共空间中进行人种学观察,以了解疫情以及对空间使用和社交活动的相关限制如何影响居民的福祉。该研究将仅采访具有同意心理能力的养老院居民。将对数据进行比较和整合,以更全面地了解疫情对居民生活质量和福祉的影响。
    背景:VIVALDIASCOT和人种学研究获得了卫生研究局(HRA)SocialCareREC的伦理批准(24/IEC08/0001)。只有具有同意能力的居民才会被纳入研究。研究结果将在科学期刊上发表。
    BACKGROUND: Older adults in care homes experienced some of the highest rates of mortality from SARS-CoV-2 globally and were subjected to strict and lengthy non-pharmaceutical interventions, which severely impacted their daily lives. The VIVALDI ASCOT and Ethnography Study aims to assess the impact of respiratory outbreaks on care home residents\' quality of life, psychological well-being, loneliness, functional ability and use of space. This study is linked to the VIVALDI-CT, a randomised controlled trial of staff\'s asymptomatic testing and sickness payment support in care homes (ISRCTN13296529).
    METHODS: This is a mixed-methods, longitudinal study of care home residents (65+) in Southeast England. Group 1-exposed includes residents from care homes with a recent COVID-19 or other respiratory infection outbreak. Group 2-non-exposed includes residents from care homes without a recent outbreak. The study has two components: (a) a mixed-methods longitudinal face-to-face interviews with 100 residents (n=50 from group 1 and n=50 from group 2) to assess the impact of outbreaks on residents\' quality of life, psychological well-being, loneliness, functional ability and use of space at time 1 (study baseline) and time 2 (at 3-4 weeks after the first visit); (b) ethnographic observations in communal spaces of up to 10 care homes to understand how outbreaks and related restrictions to the use of space and social activities impact residents\' well-being. The study will interview only care home residents who have the mental capacity to consent. Data will be compared and integrated to gain a more comprehensive understanding of the impact of outbreaks on residents\' quality of life and well-being.
    BACKGROUND: The VIVALDI ASCOT and Ethnography Study obtained ethical approval from the Health Research Authority (HRA) Social Care REC (24/IEC08/0001). Only residents with the capacity to consent will be included in the study. Findings will be published in scientific journals.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    要分析护理专家教授确定的基本方面,口译,并在课堂对话过程中与学生进行组织,以促进他们的学习。
    定性研究,多中心研究的一部分,特别是从微观人种学方法中使用了人种学。麦德林一所公立大学护理学院的专家教授,哥伦比亚,被选中进行研究。实地工作分三个阶段进行:1:从两个不同的角度(一个专注于教授,另一个专注于学生)记录在视频中的两个形态生理学课程面对面课程中的非参与者观察;2:对教授和五名学生(第一类三个,第二类两个)进行大声思考访谈,他们在课堂上自发地与教授开始了两次以上的交流互动;3:平行转录,组织在说教序列(视频)。该分析得到了单元学生-教授(识别-评估-答案)学生[S-P(i-e-a)S\']的支持,并通过数据的连续比较。
    确定了四个类别:1:基本方面的识别:先验知识的重要性,2:解释:基本方面与学生心理过程之间的联系,3:答案的组织:先验知识和新知识之间的联系,和:4:与学生的学习需求同步,将其分组为一个元类别:学生的先验知识:学习的基本方面。
    学生的经验先验知识构成了确定的基本方面,解释,并由专家教授组织,以实现重要的学习。
    UNASSIGNED: To analyze the essential aspects that the nursing expert professor identifies, interprets, and organizes during classroom dialogic processes with students to foster their learning.
    UNASSIGNED: Qualitative study, part of a multicenter study, which used ethnography of communication specifically from a micro-ethnographic approach. An expert professor from the Faculty of Nursing at a public university in Medellín, Colombia, was selected for the study. The fieldwork was done in three stages: 1:non-participant observations in two in-person classes of the Morphophysiology course recorded on video from two different perspectives (one focusing on the professor and another on the students); 2:think-aloud interviews with the professor and five students (three from the first class and two from the second) who spontaneously started more than two communicative interactions with the professor during the classes; and 3:parallel transcriptions, organized in didactic sequences (videos). The analysis was supported by the unit Student-Professor (identification-evaluation-answer) Student [S-P(i-e-a)S\'], and by continuous comparisons of the data.
    UNASSIGNED: Four categories were identified: 1: Identification of essential aspects: importance of prior knowledge, 2: Interpretation: connection between essential aspects and students\' mental processes, 3: Organization of the answer: connection between prior knowledge and new knowledge, and: 4: Synchronization with the learning needs of the students, which were grouped in a meta-category: Prior knowledge of the students: essential aspects for learning.
    UNASSIGNED: Students\' experiential prior knowledge constitutes the essential aspects identified, interpreted, and organized by the expert professor to achieve significant learning.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    背景:公众参与可以得到决策者的支持和限制。因此,公民要么以自上而下批准的格式参与,要么不得不转向颠覆。这些不同的参与实践,被邀请和不请自来,通常被研究人员视为相互排斥的。在这篇文章中,我们介绍了患者组织参与俄罗斯各种国家控制的审议机构的案例,这不适合患者参与实践的平滑二元区分。相反,确定的患者参与实践将看门人批准的互动与互动相结合,具有颠覆性和草根性。概念上,这意味着邀请参与和非邀请参与可以更好地理解为交织在一起的生态。
    方法:本文基于定性的人种学研究,其中包括对国家控制的公众参与机构会议的参与性观察,例如公共委员会,与这些机构的成员进行了51次半结构化访谈,并对相关政策和方法文件进行了分析。获得了记录和转录所有访谈的知情同意。已使用主题分析来产生结果。
    结果:俄罗斯患者组织通常非正式地工作,独立于国家批准的实践。一些颠覆性做法发生在官方会议之外,其他人成为广泛使用的最佳实践,其他人仍然是日常平凡的互动,这有助于维持患者组织的独立性,以对抗否则占主导地位和非民主的国家行为者。
    结论:患者参与的生态化方法,将邀请和非邀请的做法解释为相互关联的,对于尽管存在与专制环境相关的所有限制,但公民仍保持独立的情况具有更好的解释力。将邀请和不请自来的做法概念化为情境,或单独的时间和空间事件,是一个有用的理论框架,可以理解多样化和看似矛盾的公众参与实践。
    研究参与者传达了对初始研究框架的修订,以纳入他们的需求。反复的访谈可以对研究参与者的初步发现进行三角测量。这篇文章是与患者组织代表合著的,直接为数据分析和演示做出了贡献。
    BACKGROUND: Public participation can be both supported and limited by decision-makers. Therefore, citizens either participate in top-down approved formats or have to turn towards subversion. These different participation practices, called invited and uninvited, are often treated by researchers as mutually exclusive. In this article, we present the case of patient organisations\' involvement in various state-controlled deliberation bodies in Russia, which does not fit into a smooth binary distinction of the patient participation practice. Instead, identified patient participation practices combine interaction approved by gatekeepers with interaction, which are subversive and grassroots-initiated. Conceptually, it means that invited and uninvited participation can be better understood as intertwined ecologies.
    METHODS: The article is based on a qualitative ethnographic study, which includes participatory observations of the meetings of state-controlled public participation bodies, such as public councils, 51 semi-structured interviews with members of these bodies and an analysis of the relevant policy and methodological documents. Informed consent to record and transcribe all interviews was obtained. Thematic analysis has been used to produce the results.
    RESULTS: Russian patient organisations often work informally and independently of state-approved practices expected from them. Some subversive practices happen outside official meetings, others become widely used best practices and others remain everyday mundane interactions, which contribute to the maintenance of the independence of patient organisations against otherwise dominating and nondemocratic state actors.
    CONCLUSIONS: The ecologising approach to patient participation, which interprets invited and uninvited practices as interconnected, has better explanatory power for cases in which citizens maintain independence despite all limitations associated with authoritarian settings. Conceptualising invited and uninvited practices as situations, or separate time- and space-bound events, is a helpful theoretical framework for understanding diverse and seemingly contradictory public participation practices.
    UNASSIGNED: Research participants communicated amendments to the initial research framework to incorporate their needs. Repeated interviews allowed triangulation of preliminary findings with research participants. The article is co-authored with the patient organisation representative, who has contributed directly to data analysis and presentation.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    尽管智障人士的寿命至少增加了一般人群的寿命,对这些老年人来说,缺乏与老龄化相关的干预措施。因此,这项研究调查了教育者在一项新的量身定制的教育干预措施中的实施策略,目的是支持轻度智力障碍患者的衰老过程。采用了人种学研究设计,包括参与者的观察,字段注释,和对教育工作者的15次特别采访,在四个城镇传播了两年。在两个主题中表达了用于促进学习老龄化的策略,这两个主题通过每个人的参与和共同学习以及通过认可和巩固相互学习来促进社会团结。这些策略被用来创造一个以良好的氛围和尊重的互动为特征的学习环境。一起学习包括通过重复进行巩固,小组讨论,使用视觉学习材料,和学习访问。这种关于老龄化的新教育干预是有希望的,但是,也应开发资源较少的干预措施,并最好将其纳入残疾服务。在总结这种教育是否支持衰老过程之前,它需要从智障人士的角度来评估。
    Despite the fact that longevity in people with intellectual disability has increased at least as much as in the general population, there is a dearth of interventions related to ageing for these older people. Therefore, this study investigated educators\' implementation strategies in a new tailor-designed educational intervention with the goal of supporting the process of ageing for people with mild intellectual disability. An ethnographic research design was employed, including participant observations, field notes, and 15 ad hoc interviews with educators, spread over two years in four towns. The strategies used for facilitating learning about ageing were expressed in the two themes promoting social togetherness through everyone\'s participation and learning together and from each other through recognition and consolidation. These strategies were applied to create a learning environment characterised by a good atmosphere and respectful interaction. Learning together involved consolidation through repetition, group discussions, the use of visual learning materials, and study visits. This new educational intervention about ageing is promising, but less resource-intensive interventions should also be developed and preferably integrated into the disability service. Before concluding whether this education supports the ageing process, it needs to be evaluated from the perspective of people with intellectual disability.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    背景:决定进行生物学修饰的变性人通常面临着高度女性化和歧视性的卫生系统。此外,医疗保健专业人员缺乏准备和知识,导致提供无法满足其特定需求的护理。
    目的:综合变性人在受孕方面的经验,怀孕,和分娩。
    方法:将10项研究纳入定性研究的综合,遵循Noblet和Hare开发的解释性人种学方法,并根据eMERGe人种学报告指南进行总结。
    结果:不同的套娃处理狭窄的现实的隐喻帮助我们理解受孕的经历,怀孕,和变性人的分娩,他们经常面临耻辱,歧视,以及社会和医疗保健的边缘化。该隐喻还突出了与这些过程相关的物理变化引起的性别不安。这个隐喻产生了四个关键主题:(1)决定成为跨性别者;(2)适应新身体现实的挑战;(3)在不代表的环境中导航的重要性;(4)主流医疗保健中明显缺乏变性。
    结论:行动应优先加强伦理敏感性,并改善对卫生专业人员的培训,以解决性别观点等问题,平等,和沟通技巧。此外,需要实施社会知名度政策。
    BACKGROUND: Transgender men who decide to gestate biologically often face a health system that is highly feminized and discriminatory. In addition, the lack of preparation and knowledge among healthcare professionals leads to the provision of care that fails to meet their specific needs.
    OBJECTIVE: To synthesise the experiences of transgender men with regard to conception, pregnancy, and childbirth.
    METHODS: Ten studies were included in a synthesis of qualitative studies, following the interpretive meta-ethnography method developed by Noblit and Hare and summarized in accordance with the eMERGe meta-ethnography reporting guidelines.
    RESULTS: The metaphor of a divergent matryoshka dealing with a constricted reality helps us to understand the experiences of conception, pregnancy, and childbirth of transgender men, who often face stigma, discrimination, and marginalization in society and healthcare. The metaphor also highlights the gender dysphoria that arises from the physical changes associated with these processes. Four key themes emerge from this metaphor: (1) The decision to conceive being a trans man; (2) The challenge of adjusting to a new body reality; (3) The significance of navigating in an environment of non-representation; and (4) The marked absence of transsexuality in mainstream healthcare.
    CONCLUSIONS: Actions should prioritize strengthening ethical sensitivities and improve the training of health professionals to address issues such as gender perspectives, equality, and communication skills. Additionally, social visibility policies need to be implemented.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    儿童慢性疼痛是一个广泛的公共卫生问题。我们需要了解患有慢性疼痛的儿童及其家庭如何经历慢性疼痛及其管理。
    对患有慢性疼痛的儿童及其家庭的慢性疼痛的经历和看法进行元民族志研究,治疗和服务。我们调查了儿童及其家庭如何概念化和生活在慢性疼痛中;他们对健康和社会护理服务的看法和需求;以及他们将“好”疼痛管理概念化。
    与利益相关者,患者和公众参与设计的元人种学,搜索和抽样策略,分析和传播。审查策略:2022年9月对12个书目数据库进行全面搜索和补充搜索,以确定3个月至18岁患有慢性非癌性疼痛的儿童及其家人的定性研究。我们纳入了具有丰富解释性数据的研究;使用关键评估技能计划工具评估方法上的局限性;并提取,分析和综合研究结果。我们使用了建议评级评估,开发和评估-对来自定性研究审查的证据的信心,以评估对审查结果的信心。我们将发现与14项Cochrane治疗儿童慢性非癌性疼痛的有效性综述相结合。
    我们从182篇出版物中报道的170项符合条件的研究中综合了43项研究。研究有轻微(n=24)或中等(n=19)的方法学限制。建议评估的分级,开发和评估-对来自对审查结果的定性研究评估的证据的信心很高(n=22),中等(n=13)或非常低的置信度(n=1)。中度和重度慢性疼痛对家庭成员的健康有深远的不利影响,自主性和自我认同;家庭动态;育儿方式;友谊和社交;儿童教育和父母有偿就业。大多数儿童和家庭都在寻求治疗疼痛的生物医学方法。他们在寻求和接受卫生服务机构的支持以管理疼痛及其影响方面遇到了困难。因此,一些家庭反复访问卫生服务。Cochrane对干预效果和试验的评价没有衡量对儿童和家庭重要的一些结果。例如疼痛对家庭的影响和疼痛的解决。在考虑干预措施的工作方式时,评论主要忽略了生物心理社会方法。
    关于偏头痛/头痛等常见疼痛状况的数据有限,腹痛;一些罕见的情况;学习障碍和五岁以下儿童;兄弟姐妹;父亲和治疗/服务经验。我们排除了癌症研究,临终痛苦和医疗保健专业人员的经验。
    我们发展了以家庭为中心的儿童慢性疼痛管理理论,将健康和社会护理与社区支持相结合。
    未来的研究应该探索家庭的服务和治疗经验,包括阿片类药物,和社会护理服务;自闭症和学习障碍儿童的经历,5岁以下,有一些常见的疼痛情况。我们需要发展和测试以家庭为中心的干预措施和服务。
    这项研究注册为PROSPERO(CRD42019161455)和CochranePain,姑息治疗和支持治疗(623)。
    该奖项由国家健康与护理研究所(NIHR)健康与社会护理提供研究计划(NIHR奖参考:NIHR128671)资助,并在健康和社会护理提供研究中全文发表。12号17.有关更多奖项信息,请参阅NIHR资助和奖励网站。
    持续3个月或更长时间的慢性疼痛影响英国至少8%的儿童。它给儿童生活的许多方面造成了困难,包括人际关系,学校出勤率和国家卫生服务的使用。在英国,治疗儿童慢性疼痛的专业服务很少,缺乏高质量的研究。我们的研究旨在找到并汇集有关慢性疼痛儿童及其家庭的经历和观点的现有研究。我们想知道他们是如何看待和忍受慢性疼痛的,以及他们对服务和治疗的看法和经验,以及他们想从他们那里获得什么。我们与患有慢性疼痛的儿童及其家人一起进行了这项研究,慈善机构,医疗保健专业人员和学术专家。他们帮助我们进行研究,并确保我们的发现与儿童相关,家庭和国家卫生服务。我们汇集了43项研究的数据,这些数据最好地回答了我们的问题。我们发现,中度和重度儿童的慢性疼痛没有得到很好的管理,影响到整个家庭,包括他们的关系和社交生活。家庭发现很难从卫生服务机构获得帮助和诊断。大多数家庭都想要治疗疼痛的药物。家庭等待答案和治疗很长时间,但逐渐意识到可能无法治愈,所以他们专注于痛苦地生活或放弃希望。来自少数民族群体或有学习障碍的儿童和家庭经历了歧视。很少有针对5岁以下儿童的研究,有学习障碍或有服务经历的儿童。家庭需要一种适合整个家庭需求的疼痛管理方法,涉及学校,社会护理和卫生服务。我们的发现可以改善治疗指南,培训健康和社会护理专业人员以及服务设计和治疗。
    UNASSIGNED: Childhood chronic pain is a widespread public health issue. We need to understand how children with chronic pain and their families experience chronic pain and its management.
    UNASSIGNED: To conduct a meta-ethnography on the experiences and perceptions of children with chronic pain and their families of chronic pain, treatments and services. We investigated how children and their families conceptualise and live with chronic pain; what they think of and want from health and social care services; and what they conceptualise as \'good\' pain management.
    UNASSIGNED: Meta-ethnography with stakeholder and patient and public involvement in the design, search and sampling strategies, analysis and dissemination. Review strategy: comprehensive searches of 12 bibliographic databases and supplementary searches in September 2022, to identify qualitative studies with children aged 3 months to 18 years with chronic non-cancer pain and their families. We included studies with rich explanatory data; appraised methodological limitations using the Critical Appraisal Skills Programme tool; and extracted, analysed and synthesised studies\' findings. We used Grading of Recommendations Assessment, Development and Evaluation-confidence in the evidence from reviews of qualitative research to assess confidence in review findings. We integrated findings with 14 Cochrane treatment effectiveness reviews on children\'s chronic non-cancer pain.
    UNASSIGNED: We synthesised 43 studies sampled from 170 eligible studies reported in 182 publications. Studies had minor (n = 24) or moderate (n = 19) methodological limitations. Grading of Recommendations Assessment, Development and Evaluation-confidence in the evidence from reviews of qualitative research assessments of review findings were high (n = 22), moderate (n = 13) or very low confidence (n = 1). Moderate and severe chronic pain had profound adverse impacts on family members\' well-being, autonomy and self-identity; family dynamics; parenting approaches; friendships and socialising; children\'s education and parental paid employment. Most children and families sought a biomedical cure for pain. They experienced difficulties seeking and receiving support from health services to manage pain and its impacts. Consequently, some families repeatedly visited health services. Cochrane reviews of intervention effects and trials did not measure some outcomes important to children and families, for example effects of pain on the family and resolution of pain. Reviews have mainly neglected a biopsychosocial approach when considering how interventions work.
    UNASSIGNED: There were limited data on common pain conditions like migraine/headache, abdominal pain; some rarer conditions; children with learning disabilities and under-fives; siblings; fathers and experiences of treatments/services. We excluded studies on cancer, end-of-life pain and experiences of healthcare professionals.
    UNASSIGNED: We developed the family-centred theory of children\'s chronic pain management, integrating health and social care with community support.
    UNASSIGNED: Future research should explore families\' experiences of services and treatments, including opioids, and social care services; experiences of children with autism and learning disabilities, under 5 years old and with certain common pain conditions. We need development and testing of family-centred interventions and services.
    UNASSIGNED: This study is registered as PROSPERO (CRD42019161455) and Cochrane Pain, Palliative and Supportive Care (623).
    UNASSIGNED: This award was funded by the National Institute for Health and Care Research (NIHR) Health and Social Care Delivery Research programme (NIHR award ref: NIHR128671) and is published in full in Health and Social Care Delivery Research; Vol. 12, No. 17. See the NIHR Funding and Awards website for further award information.
    Chronic pain lasting 3 months or more affects at least 8% of children in the UK. It causes difficulties with many aspects of children’s lives including relationships, school attendance and use of National Health Services. In the UK, there are few specialist services and a lack of high-quality research for managing children’s chronic pain. Our study aimed to locate and pull together existing research on the experiences and views of children with chronic pain and their families. We wanted to find out how they think about and live with chronic pain, and their views and experiences of services and treatments, and what they want to achieve from them. We conducted this study alongside children with chronic pain and their families, charities, healthcare professionals and academic experts. They helped us to conduct the study and to ensure our findings are relevant to children, families and the National Health Service. We pulled together data from 43 studies that best answered our questions. We found that moderate and severe children’s chronic pain that was not well managed affected the whole family, including their relationships and social lives. Families found it difficult to get help and a diagnosis from health services. Most families wanted a medical cure for pain. Families had long waits for answers and treatment but gradually realised there may be no cure, so they focused on living well with pain or gave up hope. Children and families from ethnic minority groups or with a learning disability experienced discrimination. Few studies focused on children under 5 years old, children with learning disabilities or experiences of services. Families need a pain management approach tailored to the whole family’s needs involving schools, social care and health services. Our findings could improve treatment guidelines, training of health and social care professionals and service design and treatments.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    童工是剥夺儿童许多基本权利的重要社会问题之一,让他们面临许多问题和后果,包括健康问题。因此,这项研究的目的是检查德黑兰劳动儿童的健康状况。这是一项使用Carspecken方法进行的人种学研究,并于2022年完成。这项研究的主要参与者包括居住在德黑兰的10-18岁的工作儿童。为了收集信息,研究人员出现在工作场所,学校,和工作儿童居住超过两年的地方,观察他们的生活和活动。还对童工和知情人士进行了正式和非正式的采访。总的来说,在这项研究中,对数百名工作儿童进行了评估和观察。研究人员和50多个孩子进行了友好的交谈,并对六名在职儿童进行了官方采访。此外,对知情人士和在职儿童的父母进行了10多次正式采访。除了观察和访谈,还检查和解释了诸如医疗记录和工作儿童图纸之类的文件。从观察中获得的信息,采访,文件被输入到MAXQDA软件中,并提取其原始代码。高级代码以及子类别和主要类别是由低级代码的聚合形成的。健康受损是由折磨身体的三个亚类(工作和环境创伤,性虐待,营养不良,疲劳,睡眠障碍和卫生条件不足),不安的头脑(焦虑的孩子,抑郁和孤立,自尊心降低和注意力不集中)和社交能力中断(消极的社会角色建模,侵略和暴力,固执和报复,骚扰和滋扰,应受谴责的社会行为,忽视他人的所有权,扰乱的关系和群体外的自我审查)。本研究的结果表明,工作儿童的健康受到各种身体损害,心理,和社交方式。因此,应该在国家和国际层面采取一些措施来改善他们的健康,例如修订有关儿童的现行法律,并告知儿童其权利。
    Child labor is one of the important social issues that deprive children of many fundamental rights, and make them face many problems and consequences, including health problems. Thus, this study was conducted with the aim of examining the health of working children in Tehran. This is an ethnographic study that was conducted using Carspecken\'s approach and was completed in 2022. The main participants of this study included working children aged 10-18 years living in Tehran. In order to collect information, the researcher was present at the workplace, school, and living places of working children for more than two years, observing their lives and activities. Formal and informal interviews were also conducted with the working children and informed people. In total, hundreds of working children were assessed and observed in this research. A friendly conversation was formed between the researcher and more than 50 children, and official interviews were conducted with six of the working children. Also, more than 10 official interviews were conducted with informed people and parents of working children. In addition to observations and interviews, documents such as medical records and drawings of working children were also examined and interpreted. The information obtained from observations, interviews, and documents was entered into MAXQDA software, and its raw codes were extracted. The high-level codes as well as sub and main categories were formed from the aggregation of low-level codes. Impaired health was formed from three subcategories of tormented body (work and environmental trauma, sexual abuse, malnutrition, fatigue, sleep disorder and inadequate hygiene), disquieted mind (anxious children, depression and isolation, reduced self-esteem and unfocused mind) and disrupted sociability (negative social role modeling, aggression and violence, stubbornness and vindictiveness, harassment and nuisance, reprehensible social behaviors, neglecting others\' ownership, disturbed relationships and out-group self-censorship). The results of the present study showed that the health of working children is compromised in various physical, psychological, and social ways. Therefore, some measures should be taken at the national and international levels to improve their health, such as revising the existing laws regarding children and informing children of their rights.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    背景:埃博拉病毒病(EVD)是由埃博拉病毒(EBOV)引起的一种罕见但具有传染性的疾病。在刚果民主共和国(DRC)报告了第一次埃博拉疫情,随后在西非和东非国家报告了病例,包括乌干达,与坦桑尼亚接壤。与埃博拉病毒病感染国家的距离增加了跨境传播的前景,在坦桑尼亚发出警报。这项研究旨在探索在该国爆发EVD时可能预防或加剧EVD传播的文化习俗。
    方法:这种快速人种学评估采用观察,采访,和焦点小组讨论,从坦桑尼亚大陆五个地区具有不同特征的人那里收集数据,Kagera,Kigoma,姆万扎和松威地区以及桑给巴尔岛。然后对定性数据进行专题分析。
    结果:文化习俗可能会加剧EVD的传播并阻碍其预防和控制。这些文化习俗包括在家照顾病人,死亡的确认,哀悼,和尸体准备埋葬。公共生活,仪式,和社交聚会是其他方面,观察到有可能加剧EVD传播并在爆发时阻碍其遏制。
    结论:文化实践可能会加剧研究环境中确定的EVD传播。因此,风险沟通和社区参与(RCCE)活动应成为干预主义者,以改变文化习俗,作为准备工作的一部分,这些文化习俗可能会加剧EVD的传播。预防,以及在爆发时的控制措施。
    BACKGROUND: Ebola Virus Disease (EVD) is a rare but contagious disease caused by Ebola Virus (EBOV). The first Ebola outbreaks were reported in the Democratic Republic of Congo (DRC) before subsequent reported cases in Western and East African countries, including Uganda, which borders Tanzania. Proximity to EVD-infected countries raises the prospect of cross-border transmission, raising alarm in Tanzania. This study aimed to explore the cultural practices likely to prevent or escalate EVD transmission in the event of its outbreak in the country.
    METHODS: This rapid ethnographic assessment employed observation, interviews, and focus group discussions to collect data from people with diverse characteristics in five regions of Tanzania Mainland namely, Kagera, Kigoma, Mwanza and Songwe regions and Zanzibar Island. The qualitative data was then subjected to thematic analysis.
    RESULTS: Cultural practices may escalate the transmission of EVD and hinder its prevention and control. These cultural practices include caring sick people at home, confirmation of death, mourning, and body preparation for burial. Communal life, ceremonies, and social gatherings were other aspects observed to have the potential for compounding EVD transmission and hindering its containment in case of an outbreak.
    CONCLUSIONS: Cultural practices may escalate EVD transmission as identified in the study settings. As such, Risk Communication and Community Engagement (RCCE) activities should be interventionist in transforming cultural practices that may escalate the spread of EVD as part of preparedness, prevention, and control efforts in the event of an outbreak.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

公众号