Anthropology, Cultural

人类学,文化
  • 文章类型: Journal Article
    背景:关于未来医疗保健的全球讨论强调,学习跨行业合作对于确保患者安全和满足不断变化的医疗保健需求至关重要。关于跨专业教育(IPE)的研究多种多样,但在课程设计以及如何在实践中制定IPE方面存在差距。
    目的:本研究项目将确定。1)IPE在临床安置中是如何出现的,进化,并由学生在嵌入当地医疗保健实践中制定,2)为四个国家/地区的临床实习学生设计IPE的关键因素。
    方法:一项涉及四个国家的研究(瑞典,挪威,澳大利亚和新西兰)将在2023年至2027年之间采用实践架构理论。这个项目被设计成一个国际性的,合作的多病例人种学研究,使用实践架构(TPA)的理论框架。它将包括四个IPE的人种学案例研究,每个国家都有一个。数据将按以下顺序收集:(1)在跨专业实习期间对学生的参与者观察,(2)与临床实习学生和利益相关者/专业人员的访谈,(3)非临床文件可用于支持分析,和收集的照片可以用作记忆辅助记录上下文。对“格言”的分析,行为和关系将解决文化话语的特点,物质经济,构成TPA三个关键维度的社会政治因素。将分别分析四个国际案例中的每一个。将进行跨案例分析,以在四所合作大学中建立共同的学习和关键的IPE设计元素。
    结论:在数据分析中使用TPA框架和方法将有可能确定四个研究地点的可比维度,使核心问题得到解决对于IPE设计至关重要。人种学领域研究将产生详细的描述,考虑到特定国家的文化和实践背景。该研究还将产生关于如何合作研究IPE的新知识。
    BACKGROUND: The global discourse on future health care emphasises that learning to collaborate across professions is crucial to assure patient safety and meet the changing demands of health care. The research on interprofessional education (IPE) is diverse but with gaps in curricula design and how IPE is enacted in practice.
    OBJECTIVE: This research project will identify. 1) how IPE in clinical placements emerges, evolves, and is enacted by students when embedded in local health care practices, 2) factors critical for the design of IPE for students at clinical placements across the four countries.
    METHODS: A study involving four countries (Sweden, Norway, Australia and New Zealand) using the theory of practice architectures will be undertaken between 2023 and 2027. The project is designed as an international, collaborative multiple-case ethnographic study, using the theoretical framework of practice architectures (TPA). It will include four ethnographic case studies of IPE, one in each country. Data will be collected in the following sequence: (1) participant observation of students during interprofessional placements, (2) interviews with students at clinical placement and stakeholders/professionals, (3) Non-clinical documents may be used to support the analysis, and collection of photos may be use as memory aids for documenting context. An analysis of \"sayings, doings and relatings\" will address features of the cultural- discursive, material-economic, social-political elements making up the three key dimensions of TPA. Each of the four international cases will be analysed separately. A cross case analysis will be undertaken to establish common learning and critical IPE design elements across the four collaborating universities.
    CONCLUSIONS: The use of TPA framework and methodology in the analysis of data will make it possible to identify comparable dimensions across the four research sites, enabling core questions to be addressed critical for the design of IPE. The ethnographic field studies will generate detailed descriptions that take account of country-specific cultural and practice contexts. The study will also generate new knowledge as to how IPE can be collaboratively researched.
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  • 文章类型: Journal Article
    背景:多学科团队(MDT)在癌症治疗中的效率取决于促进临床医生的认知过程,因为他们在治疗计划过程中进行复杂和不确定的判断。当系统和工作流程的设计不能充分支持人类的判断和决策时,由于认知偏见,即使是专家也容易出现错误的推理。信息的不完整整合或对患者数据的偏颇解释可能导致临床错误和治疗建议实施的延迟。尽管它们的影响被直观地认识到,目前缺乏关于MDT决策中认知偏差的实证研究。我们的研究旨在阐明这种偏见对治疗计划的影响,并为有针对性的调查和干预措施奠定基础,以减轻其负面影响。
    方法:这是一个定性的,观察性研究。我们使用认知人种学,由分布式认知团队合作框架提供信息,以评估和评估MDT决策过程。该研究涉及肝胰胆管和上消化道MDT的亲自和虚拟现场观察,并在几个月内对其成员进行访谈。生成的数据将以混合归纳/演绎的方式进行分析,以开发MDT决策过程中潜在认知偏见的综合图,确定次优治疗计划过程的前因和风险因素。Further,我们将确定MDT环境的组件,这些组件可以通过开发MDT工作区评估工具来重新设计以支持决策。
    背景:该项目已获得NHSLothianResearchandDevelopment(2023/0245)和爱丁堡大学医学院伦理审查委员会(23-EMREC-049)的管理和伦理批准。研究结果将与参与MDT共享,并通过博士论文传播,国际会议演讲和相关科学期刊。
    BACKGROUND: The efficiency of multidisciplinary teams (MDTs) in cancer care hinges on facilitating clinicians\' cognitive processes as they navigate complex and uncertain judgements during treatment planning. When systems and workflows are not designed to adequately support human judgement and decision-making, even experts are prone to fallible reasoning due to cognitive biases. Incomplete integration of information or biased interpretations of patient data can lead to clinical errors and delays in the implementation of treatment recommendations. Though their impact is intuitively recognised, there is currently a paucity of empirical work on cognitive biases in MDT decision-making. Our study aims to explicate the impact of such biases on treatment planning and establish a foundation for targeted investigations and interventions to mitigate their negative effects.
    METHODS: This is a qualitative, observational study. We employ cognitive ethnography, informed by the Distributed Cognition for Teamwork framework to assess and evaluate MDT decision-making processes. The study involves in-person and virtual field observations of hepatopancreaticobiliary and upper gastrointestinal MDTs and interviews with their members over several months. The data generated will be analysed in a hybrid inductive/deductive fashion to develop a comprehensive map of potential cognitive biases in MDT decision processes identifying antecedents and risk factors of suboptimal treatment planning processes. Further, we will identify components of the MDT environment that can be redesigned to support decision-making via development of an MDT workspace evaluation tool.
    BACKGROUND: This project has received management and ethical approvals from NHS Lothian Research and Development (2023/0245) and the University of Edinburgh Medical School ethical review committee (23-EMREC-049). Findings will be shared with participating MDTs and disseminated via a PhD thesis, international conference presentations and relevant scientific journals.
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  • 文章类型: Journal Article
    背景:养老院中的老年人因SARS-CoV-2在全球范围内经历了一些最高的死亡率,并受到严格而漫长的非药物干预,严重影响了他们的日常生活。VIVALDIASCOT和人种学研究旨在评估呼吸道暴发对养老院居民生活质量的影响,心理健康,孤独,功能能力和使用空间。这项研究与VIVALDI-CT有关,护理院工作人员无症状检测和疾病支付支持的随机对照试验(ISRCTN13296529)。
    方法:这是一种混合方法,英格兰东南部养老院居民(65岁以上)的纵向研究。第1组暴露者包括最近爆发COVID-19或其他呼吸道感染的养老院居民。第2组非暴露者包括来自养老院的居民,最近没有爆发。该研究有两个组成部分:(a)对100名居民进行混合方法的纵向面对面访谈(第1组n=50,第2组n=50),以评估疫情对居民生活质量的影响,心理健康,孤独,在时间1(研究基线)和时间2(首次访问后3-4周)的功能能力和空间使用;(b)在多达10个护理院的公共空间中进行人种学观察,以了解疫情以及对空间使用和社交活动的相关限制如何影响居民的福祉。该研究将仅采访具有同意心理能力的养老院居民。将对数据进行比较和整合,以更全面地了解疫情对居民生活质量和福祉的影响。
    背景:VIVALDIASCOT和人种学研究获得了卫生研究局(HRA)SocialCareREC的伦理批准(24/IEC08/0001)。只有具有同意能力的居民才会被纳入研究。研究结果将在科学期刊上发表。
    BACKGROUND: Older adults in care homes experienced some of the highest rates of mortality from SARS-CoV-2 globally and were subjected to strict and lengthy non-pharmaceutical interventions, which severely impacted their daily lives. The VIVALDI ASCOT and Ethnography Study aims to assess the impact of respiratory outbreaks on care home residents\' quality of life, psychological well-being, loneliness, functional ability and use of space. This study is linked to the VIVALDI-CT, a randomised controlled trial of staff\'s asymptomatic testing and sickness payment support in care homes (ISRCTN13296529).
    METHODS: This is a mixed-methods, longitudinal study of care home residents (65+) in Southeast England. Group 1-exposed includes residents from care homes with a recent COVID-19 or other respiratory infection outbreak. Group 2-non-exposed includes residents from care homes without a recent outbreak. The study has two components: (a) a mixed-methods longitudinal face-to-face interviews with 100 residents (n=50 from group 1 and n=50 from group 2) to assess the impact of outbreaks on residents\' quality of life, psychological well-being, loneliness, functional ability and use of space at time 1 (study baseline) and time 2 (at 3-4 weeks after the first visit); (b) ethnographic observations in communal spaces of up to 10 care homes to understand how outbreaks and related restrictions to the use of space and social activities impact residents\' well-being. The study will interview only care home residents who have the mental capacity to consent. Data will be compared and integrated to gain a more comprehensive understanding of the impact of outbreaks on residents\' quality of life and well-being.
    BACKGROUND: The VIVALDI ASCOT and Ethnography Study obtained ethical approval from the Health Research Authority (HRA) Social Care REC (24/IEC08/0001). Only residents with the capacity to consent will be included in the study. Findings will be published in scientific journals.
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  • 文章类型: Journal Article
    尽管智障人士的寿命至少增加了一般人群的寿命,对这些老年人来说,缺乏与老龄化相关的干预措施。因此,这项研究调查了教育者在一项新的量身定制的教育干预措施中的实施策略,目的是支持轻度智力障碍患者的衰老过程。采用了人种学研究设计,包括参与者的观察,字段注释,和对教育工作者的15次特别采访,在四个城镇传播了两年。在两个主题中表达了用于促进学习老龄化的策略,这两个主题通过每个人的参与和共同学习以及通过认可和巩固相互学习来促进社会团结。这些策略被用来创造一个以良好的氛围和尊重的互动为特征的学习环境。一起学习包括通过重复进行巩固,小组讨论,使用视觉学习材料,和学习访问。这种关于老龄化的新教育干预是有希望的,但是,也应开发资源较少的干预措施,并最好将其纳入残疾服务。在总结这种教育是否支持衰老过程之前,它需要从智障人士的角度来评估。
    Despite the fact that longevity in people with intellectual disability has increased at least as much as in the general population, there is a dearth of interventions related to ageing for these older people. Therefore, this study investigated educators\' implementation strategies in a new tailor-designed educational intervention with the goal of supporting the process of ageing for people with mild intellectual disability. An ethnographic research design was employed, including participant observations, field notes, and 15 ad hoc interviews with educators, spread over two years in four towns. The strategies used for facilitating learning about ageing were expressed in the two themes promoting social togetherness through everyone\'s participation and learning together and from each other through recognition and consolidation. These strategies were applied to create a learning environment characterised by a good atmosphere and respectful interaction. Learning together involved consolidation through repetition, group discussions, the use of visual learning materials, and study visits. This new educational intervention about ageing is promising, but less resource-intensive interventions should also be developed and preferably integrated into the disability service. Before concluding whether this education supports the ageing process, it needs to be evaluated from the perspective of people with intellectual disability.
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  • 文章类型: Journal Article
    目的:探讨影响普通内科和外科病房注册普通护士护理健康评估实践的假设和价值。
    方法:该研究被设计为重点人种志。
    方法:使用半结构化访谈指南来探索13名注册普通护士的现行护理健康评估实践,试图探索影响研究环境中健康评估实践的假设和价值。使用解释性定性内容分析方法对数据进行归纳分析。
    结果:护理健康评估实践,基础假设和价值以低期望文化为中心主题,与护理健康评估相关.低期望文化在五个主题中得到强调:(1)非系统的健康状况评估,(2)护理健康评估的目的,(3)护理教育和监管机构的作用,(4)病房精神和(5)组织和病房领导的作用。
    结论:采用具有明确定义的辅助护理诊断目的的整体护理健康评估框架可以指导以患者为中心的护理服务,并有助于早期识别生理恶化。
    采访了13名注册普通护士,并将最初的发现返回给他们进行验证。
    结论:如果护理健康评估不在具有明确护理实践目的的整体健康评估模型中,则可能无法完全实现护理健康评估对护理实践和患者预后的潜在贡献。
    OBJECTIVE: To explore the assumptions and values that influence nursing health assessment practices among registered general nurses in general medical and surgical wards.
    METHODS: The study was designed as a focused ethnography.
    METHODS: A semi-structured interview guide was used to explore prevailing nursing health assessment practices of 13 registered general nurses in an attempt to explore the assumptions and values influencing health assessment practices in the study setting. Data were analysed inductively using an interpretive qualitative content analysis method.
    RESULTS: Nursing health assessment practices, and underlying assumptions and values were underpinned by a central theme of a culture of low expectation relating to nursing health assessment. The culture of low expectation was highlighted in five themes: (1) Unsystematic Assessment of Health Status, (2) Purpose of Nursing Health Assessment, (3) The Role of Nursing Educational and Regulatory Institutions, (4) Ward Ethos and (5) The Role of Organizational and Ward Leadership.
    CONCLUSIONS: The adoption of a holistic nursing health assessment framework with a clearly defined purpose of aiding nursing diagnoses can guide patient-centred care delivery and facilitate early recognition of physiological deterioration.
    UNASSIGNED: Thirteen registered general nurses were interviewed, and the initial findings returned to them for validation.
    CONCLUSIONS: The potential contribution of nursing health assessment to nursing practice and patient outcomes may not be fully realized if nursing health assessment is not situated within a holistic health assessment model with a clearly defined purpose for nursing practice.
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  • 文章类型: Journal Article
    有学习障碍的人寿命更长。尽管政府有政策鼓励人们在社区中过受支持的生活,由于对服务的不满,家庭照顾者经常保持支持。这可能导致人们在危机中离开家庭。
    (1)了解有关学习障碍老年人(年龄≥40岁)的健康需求和资源的知识;(2)确定为学习障碍老年人提供良好服务的范例;(3)通过人种学案例研究探索服务范例;(4)通过共同制作和测试未来的计划工具来评估对学习障碍老年人及其家庭的支持;(5)共同制作建议和资源。
    工作包1快速范围审查-三项审查侧重于学习障碍老年人的健康和社会护理需求以及“挑战他人的行为”,和家庭照顾者,以及协调对这个群体的支持。工作包2范围界定和映射良好实践的范例-分析已发布的服务标准以评估卓越标准,通过映射服务,访谈(n=30),调查(n=9)和与委员的非正式讨论。工作包3示例性提供案例研究的人种学;独立支持生活(n=4);住宅/疗养院(n=2);日间活动(n=1),共享生命(n=2)。实地考察(每个模型20天),采访(n=77)有学习障碍的老年人,家庭照顾者,支持人员和专员。工作包4-为有学习障碍的老年人及其家人提供联合制作和测试资源,涉及对36名有学习障碍的人进行访谈和焦点小组。父母,和兄弟姐妹,并与11名参与者进行基于经验的共同设计。八个家庭评估了资源。工作包5-三个利益相关者研讨会共同提供服务建议。
    评论证实,关于家庭照顾者和有学习障碍的老年人的经历和支持以及“挑战他人的行为”的证据基础不足。制定了卓越标准,并确定了15项服务的短名单,供工作包3考虑。人种学工作发现环境,组织和社会因素很重要,包括支持独立和选择与谁生活在一起,将员工与人相匹配,一致的关系和适应衰老。观察到制度化的做法。在工作包4中,我们发现家庭担心未来,不支持探索选择。制作了“提前计划”卡片和记录讨论的小册子,评价为正面评价。最后,形成性讨论知情建议。输出包括培训包,照顾者论坛,一部电影,播客和学术论文。
    很少关注有学习障碍的老年人和家庭照顾者。服务在规划老年人支持方面的方法各不相同。家庭不支持计划,让人们没有选择。“挑战他人的行为”被认为是无益的术语。建议:为有学习障碍的老年人和家庭照顾者建议一项新的战略,包括委托实践,专业投入和同伴学习,积极支持老化井和优秀的服务设计。
    COVID-19大流行给招聘带来了挑战。对招聘提供者的依赖导致工作包3缺乏多样性。家庭计划,因此改变,可能因服务资源不足而受挫。
    鉴于这方面缺乏重点,有一系列未来的工作需要考虑:来自不同种族背景的学习障碍老年人的经验;支持人们老化和死亡\'到位\';关于设计/调试服务的最佳实践,包括住房;社会工作者的作用;接触自然;获得主流支持;以及评估“提前规划”卡。
    本试验注册为ISRCTN74264887。
    该奖项由国家健康与护理研究所(NIHR)健康与社会护理提供研究计划(NIHR奖参考:NIHR129491)资助,并在《健康与社会护理提供研究》中全文发表。12号16.有关更多奖项信息,请参阅NIHR资助和奖励网站。
    有学习障碍的人寿命更长,但大多数人和家人住在一起,他们也在变老。这是因为没有足够的适合学习障碍人士居住的地方,家庭照顾者担心这个人不会得到正确的支持和过上美好的生活。我们的研究旨在改善对学习障碍者及其家庭照顾者的支持,以提前计划过上美好的生活。我们专注于那些被贴上“挑战他人的行为”标签的人。我们读了关于这个领域的文章。我们寻找并找到了为有学习障碍的老年人提供出色支持的例子。研究人员、有学习障碍的人和家庭照顾者花时间和他们居住的人在一起,或者花时间看看他们得到了什么支持。然后我们与所有参与者举行了三次会议,并与有学习障碍的人讨论了我们的研究结果,家庭照顾者,和专业人士。我们发现,随着年龄的增长,人们可以过上美好的生活。这可以是独自生活,也可以和他们选择的人一起生活,这意味着拥有他们喜欢和喜欢他们的员工,并被支持活跃起来。然而,我们发现,学习障碍者的老龄化往往被忽视,有些人过着不好的生活。我们还发现,“挑战他人的行为”的标签是无益的。我们与有学习障碍的人和家庭照顾者合作,制作了一套带有图片和问题的卡片,帮助人们提前规划好生活。我们提供资源并提出建议,为有学习障碍的老年人制定新计划,以支持人们过上美好的生活。这一点非常重要,因为随着年龄的增长,对学习障碍者缺乏关注和支持。
    UNASSIGNED: People with learning disabilities are living longer. Despite government policy to encourage people to lead supported lives in their community, family carers often maintain support due to dissatisfaction with services. This can lead to people moving from the family home in a crisis.
    UNASSIGNED: (1) Find out what is known about health needs and resources for older people with learning disabilities (aged ≥ 40 years); (2) identify exemplars of good services for older people with learning disabilities; (3) explore service exemplars through ethnographic case studies; (4) evaluate support for older people with learning disabilities and their families through co-producing and testing future planning tools and (5) co-produce recommendations and resources.
    UNASSIGNED: Work package 1 rapid scoping reviews - three reviews focused on the health and social care needs of older people with learning disabilities and \'behaviours that challenge others\', and family carers, and the co-ordination of support for this group. Work package 2 scoping and mapping exemplars of good practice - analysis of published service standards to assess excellence criteria, by mapping services, interviews (n = 30), survey (n = 9) and informal discussion with commissioners. Work package 3 ethnography of case studies of exemplar provision; independent supported living (n = 4); residential/nursing home (n = 2); day activities (n = 1), Shared Lives (n = 2). Fieldwork (20 days per model), interviews (n = 77) with older people with learning disabilities, family carers, support staff and commissioners. Work package 4 - co-producing and testing resources for older people with learning disabilities and their families involved interviews and focus groups with 36 people with learning disabilities, parents, and siblings, and experience-based co-design with 11 participants. Eight families evaluated the resources. Work package 5 - three stakeholder workshops co-produced service recommendations.
    UNASSIGNED: The reviews confirmed an inadequate evidence base concerning the experiences and support of family carers and older people with learning disabilities and \'behaviours that challenge others\'. Criteria of excellence were produced, and a shortlist of 15 services was identified for consideration in work package 3. The ethnographic work found that environmental, organisational and social factors were important, including supporting independence and choice about who people live with, matching staff to people, consistent relationships and adapting to ageing. Practices of institutionalisation were observed. In work package 4, we found that families were worried about the future and unsupported to explore options. \'Planning Ahead\' cards and a booklet to record discussions were produced, and the evaluation was positively rated. Finally, formative discussion informed recommendations. Outputs include training packages, a carers\' forum, a film, a podcast and academic papers.
    UNASSIGNED: There is little focus on older people with learning disabilities and family carers. Services vary in their approach to planning for older-age support. Families are unsupported to plan, leaving people without choice. \'Behaviours that challenge others\' was found to be unhelpful terminology. Recommendations: A new strategy is recommended for older people with learning disabilities and family carers that encompasses commissioning practices, professional input and peer learning, proactive support in ageing well and excellent service design.
    UNASSIGNED: The COVID-19 pandemic created recruitment challenges. Reliance on providers for recruitment resulted in a lack of diversity in work package 3. Families\' plans, and therefore change, may be frustrated by insufficient service resources.
    UNASSIGNED: Given the lack of focus in this area, there is a range of future work to consider: experiences of older people with learning disabilities from diverse ethnic backgrounds; supporting people to age and die \'in place\'; best practice regarding designing/commissioning services, including housing; the role of social workers; access to nature; accessing mainstream support; and evaluation of the \'Planning Ahead\' cards.
    UNASSIGNED: This trial is registered as ISRCTN74264887.
    UNASSIGNED: This award was funded by the National Institute for Health and Care Research (NIHR) Health and Social Care Delivery Research programme (NIHR award ref: NIHR129491) and is published in full in Health and Social Care Delivery Research; Vol. 12, No. 16. See the NIHR Funding and Awards website for further award information.
    People with learning disabilities are living longer, but most live with their families, who are also getting older. This is because there are not enough suitable places for people with learning disabilities to live, and family carers worry that the person will not get the right support and have a good life. Our research aimed to improve support for people with learning disabilities and their family carers to plan ahead for a good life. We focused on people who are labelled with ‘behaviours that challenge others’. We read what has been written about this area. We looked for and found examples of excellent support for older people with learning disabilities. Researchers and people with learning disabilities and family carers spent time hanging out with people where they live or spend their days to see what support they get. Then we had three meetings with everyone involved and discussed our research findings with people with learning disabilities, family carers, and professionals. We found that people can be supported to live good lives as they grow older. This can be living alone or with people they choose, and it means having staff they like and who like them and being supported to be active. However, we found that ageing of people with learning disabilities is often ignored, and some people were not living good lives. We also found that the label of ‘behaviours that challenge others’ is unhelpful. We worked with people with learning disabilities and family carers to make a set of cards with pictures and questions to help people plan ahead for a good life. We produced resources and made recommendations to create a new plan for older people with learning disabilities to support people to lead good lives. This is very important because there is a lack of attention to and support for people with learning disabilities as they age.
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  • 文章类型: English Abstract
    Although evidence of the benefits of breastfeeding is widespread, there are several challenges to initiate and sustain it. Infant formula companies use marketing strategies that violate existing regulations, contributing to its early abandonment. We explore the digital marketing exposure of infant formulas in Argentina by analyzing people\'s interactions with brands and the traces of these interactions in conversations engaged in Facebook groups during 2022, from a qualitative approach based on digital ethnography. Results show that companies deploy regulatory avoidance tactics and seek contact with mothers. Users do not interact with the accounts but are exposed to their strategies given the correlation between product attributes present in advertising with their motivations and aspirations. The mediators between marketing and mothers are medical professionals, used as marketing resources. We conclude that authorities should promote new agreements on the practices of medical professionals and develop regulations taking into account digital environments.
    Si bien es extendida la evidencia de los beneficios de la lactancia materna, diversos son los desafíos para iniciarla y sostenerla. Las empresas productoras de fórmulas infantiles utilizan estrategias de marketing violatorias de las regulaciones existentes, contribuyendo a su temprano abandono. Exploramos la exposición al marketing digital de las fórmulas infantiles en Argentina mediante el análisis de las interacciones de la población con las marcas y las huellas de dichas interacciones en conversaciones entabladas en grupos de Facebook durante 2022, desde un enfoque cualitativo basado en la etnografía digital. Los resultados muestran que las empresas despliegan tácticas elusivas de las regulaciones y buscan el contacto con las madres. Las usuarias no interactúan con las cuentas, pero están expuestas a sus estrategias dado el correlato entre los atributos del producto presentes en la publicidad con sus motivaciones y aspiraciones. Los mediadores entre el marketing y las madres son los profesionales médicos, utilizados como recursos del marketing. Concluimos que las autoridades deben promover nuevos acuerdos sobre las prácticas de los profesionales médicos y desarrollar regulaciones teniendo en cuenta los entornos digitales.
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  • 文章类型: Journal Article
    背景:众所周知,痴呆症护理人员的行为和行为对于他们所关心的人的福祉至关重要。他们不仅满足基本的医疗保健需求,但他们也发挥了重要的心理社会功能,通过他们的定期存在为居民提供潜在的连续性。这已被证明可以改善福祉,特别是对于那些处于痴呆症晚期的人。也有人提出,这种接触还有其他的心理社会益处,可以直接影响抗精神病药物的需求。然而,与大多数其他医疗保健和医疗环境不同,痴呆症护理工作者每天处理的专业且通常困难的互动尚未成为详细微观分析的主题。这一点尤其重要,因为护理人员的大部分影响都与他们与所关心的人互动的方式有关。没有清楚地了解它们在微观层面的相互作用是如何“工作”的,特别是特定于痴呆症护理环境的相互作用,而且护理人员报告说很困难或具有挑战性-这意味着开发的任何培训干预措施都可能不会与他们的现实经验产生共鸣,最终冒着失败的风险。这项基于视频的观察研究旨在对护理人员和痴呆症患者的问题和挑战性互动进行详细的微观探索。
    方法:该研究基于英国,将涉及多达20名痴呆症护理人员和60名痴呆症患者。野外工作将在5痴呆症护理家庭和基于社区的痴呆症日托设置使用自然观察方法(主要是视频人种学)进行。数据将使用对话分析(CA)进行分析。
    BACKGROUND: It is well established that the actions and behaviour of dementia care workers are fundamental to the wellbeing of the people they care for. Not only do they deal with basic healthcare needs, but they also perform a vital psycho-social function by providing-through their regular presence-an underlying continuity for residents. This has been shown to improve well-being, particularly for those in the advanced stages of dementia. It has also been suggested that there are additional psycho-social benefits of such contact which can directly influence the need for anti-psychotic medication. However, unlike most other healthcare and medical settings, the specialised and often difficult interactions that dementia care workers handle every day have not yet been the subject of detailed micro-level analysis. This is particularly significant because much of the impact that care-workers have relates to the way in which they interact with the people they care for. Not having a clear understanding of how their interactions \'work\' at the micro-level-particularly ones that are specific to dementia care settings, and that care workers report to be difficult or challenging-means that any training interventions that are developed may not resonate with their real-world experience, and ultimately run the risk of failing. This video-based observational study aims to provide a detailed micro-exploration of problematic and challenging interactions involving care-workers and people living with dementia.
    METHODS: The study is based in the UK and will involve up to 20 dementia care staff and 60 people living with dementia. Fieldwork will be conducted in 5 dementia care home and community-based dementia day care settings using naturalistic observational methods (primarily video-ethnography). Data will be analysed using Conversation Analysis (CA).
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  • 文章类型: Journal Article
    父母的死亡会对孩子产生深远的负面影响,缺乏足够的支持会加剧负面的生活经历。
    为了在瑞典背景下探索各种演员对丧亲计划的内容和执行的影响,考虑关系和上下文的观点。
    一项涉及六个孩子的人种学领域研究,他们的父母,8名志愿者进行了理论启发的主题分析,受到Braun和Clarke有条不紊的启发,理论上受到布迪厄立场概念的启发,电源,和资本。
    保密义务是该计划的基本要素,然而,前提根据演员的立场而有所不同。志愿者和研究人员有不同的渠道来表达他们在该计划中的经历。该计划为孩子们提供了一个讨论和分享经验和感受的独特空间。同时,该方案限制了儿童,不允许他们在物理空间之外分享他们的经历和感受。物理环境塑造了演员之间互动的不同条件。会议采用了面向损失的方法,志愿者和儿童之间的沟通由志愿者指导。然而,孩子们创造了额外的策略,与同龄人或自己的无声交流。在休息和混合期间,与父母丧亲的共同经历相比,共同的利益或空间将儿童(和成人)联系在一起。
    该计划的参与者受到计划结构框架的重大影响,他们在方案中的立场为他们提供了不同的(相互)行动可能性条件。儿童的日常活动和兴趣都是应对父母丧亲和将他们与其他人联系起来的方式。
    UNASSIGNED: The death of a parent can have profound negative impacts on children, and a lack of adequate support can exacerbate negative life experiences.
    UNASSIGNED: To explore the influences of various actors on the content and execution of a bereavement programme within a Swedish context, considering relational and contextual perspectives.
    UNASSIGNED: An ethnographic field study involving six children, their parents, and eight volunteers. A theory-inspired thematic analysis was conducted, methodically inspired by Braun and Clarke, theoretically inspired by Bourdieu\'s concepts of position, power, and capital.
    UNASSIGNED: Confidentiality obligation was an essential element in the programme, however, the premisses varied depending on actors\' positions. Volunteers and researchers had different outlets to express their experiences in the program. The programme offered the children an exclusive space for talking about and sharing experiences and feelings. Simultaneously, the programme restricted the children by not allowing them to share their experiences and feelings outside the physical space. The physical settings shaped the different conditions for interactions among the actors. The sessions adopted loss-oriented approaches, where communication between volunteers and children was guided by the volunteers. However, children created strategies for additional, voiceless communication with their peers or themselves. During breaks and mingles, shared interests or spaces connected children (and adults) more than their common experience of parental bereavement.
    UNASSIGNED: The participants in the programme were significantly influenced by the structural framework of the programme, and their positions within the programme provided them with different conditions of possibility for (inter)acting. Children\'s daily activities and interests were both ways to cope with parental bereavement and connect them to other people.
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  • 文章类型: Journal Article
    背景:支持就地老化,生活质量和活动参与是痴呆症患者的公共卫生优先事项,但是对社区居民的需求和经验知之甚少,这些人患有罕见的痴呆症,症状较少。后皮质萎缩(PCA)是一种罕见的痴呆形式,通常由阿尔茨海默病引起,但其特征是视觉处理减少(而不是主要的记忆问题)。这对保持独立性和获得适当支持构成了挑战。
    方法:本研究采用了比较定性设计和集中的人种学方法,以探索10位最常见,以记忆为主导的阿尔茨海默病和10名患者在日常家庭环境中患有后皮质萎缩。
    结果:虽然数据收集显示了个体和背景因素的丰富差异,可以消除日常活动经验中的一些初步高层差异,似乎归因于不同的诊断\'不同的主要症状。这些包括后皮质萎缩的人不太可能使用环境线索来启动活动,并且更有可能拒绝寻求支持,因为保留了对护理者影响的洞察力。这种缺乏活动的启动可能会被误解为冷漠。患有后皮质萎缩的人也被劝阻在家中因定向障碍而从事活动,和本地化的困难,识别和操纵对象。人们与更常见的,以记忆为主导的阿尔茨海默病表现出更多基于记忆的困难,参与活动,如忘记计划的活动,在哪里找到活动所需的项目和所涉及的步骤。尽管这些明显的症状导致的挑战,所有参与者及其家庭成员在进行创造性适应以支持持续参与日常活动方面表现出机智和韧性,更广泛地支持广泛报道的阿尔茨海默型痴呆症患者的管理策略。
    结论:这些发现为痴呆相关的视觉和记忆障碍对日常活动参与的一些不同影响提供了有益的见解。这将有助于其他人应对这些挑战,以及与受这些条件影响的人一起工作的健康和社会护理从业者。研究结果还强调了日常活动参与中涉及的众多个人和环境因素的巨大个体差异,并建议未来工作的重要领域,这些方法在生态有效性和可及性方面与此处使用的以家庭为重点的人种学方法相似。
    BACKGROUND: Supporting ageing in place, quality of life and activity engagement are public health priorities for people living with dementia, but little is known about the needs and experiences of community-dwelling people with rarer forms of dementia with lesser known symptoms. Posterior cortical atrophy (PCA) is a rare form of dementia usually caused by Alzheimer\'s disease but which is characterised by diminished visual processing (rather than a dominant memory problem), which poses challenges for maintaining independence and accessing appropriate support.
    METHODS: This study used a comparative qualitative design and focussed ethnographic methods to explore experiential differences in activity engagement for 10 people with the most common, memory-led presentation of Alzheimer\'s disease and 10 people with posterior cortical atrophy within their everyday home environments.
    RESULTS: While the data collection revealed much rich variation in individual and contextual factors, some tentative high-level differences in the experiences of everyday activities could be drawn out, seemingly attributable to the different diagnoses\' differing dominant symptoms. These included people with posterior cortical atrophy being less likely to use environmental cues to initiate activities, and more likely to withhold from asking for support because of preserved insight into the impact of this on carers. This lack of initiation of activities could be misinterpreted as apathy. People with posterior cortical atrophy also were discouraged from engaging in activities by disorientation within the home, and difficulties localising, identifying and manipulating objects. People with the more common, memory-led presentation of Alzheimer\'s disease exhibited more memory-based difficulties with engaging with activities such as forgetting planned activities, where to locate the items required for an activity and the steps involved. Despite these distinct symptom-led challenges, all participants and their family members demonstrated resourcefulness and resilience in making creative adaptations to support continued engagement in everyday activities, supporting the widely reported management strategies of people with dementia of the Alzheimer\'s type more generally.
    CONCLUSIONS: These findings offer helpful insights into some the differing impacts dementia related visual and memory impairments can have on everyday activity engagement, which will be helpful for others navigating these challenges and the health and social care practitioners working with people affected by these conditions. The findings also highlight the vast individual variation in the multitude of individual and contextual factors involved in everyday activity engagement, and suggest important areas for future work utilising methods which are similarly high in ecological validity and accessibility as the home-based focussed ethnographic methods utilised here.
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