Hospice care

临终关怀
  • 文章类型: Journal Article
    目的:本研究的目的是回顾性分析音乐疗法对终末期癌症患者临终关怀的影响。
    方法:这项回顾性队列研究包括2021年1月至2023年12月的195例终末期癌症患者。常规组包括接受常规临终关怀的患者,而组合组包括接受常规临终关怀和音乐疗法的患者.免疫指标,焦虑和抑郁评分,生活质量分数,比较两组患者管理前后的睡眠质量评分。
    结果:在管理之前,免疫指标无显著差异,焦虑和抑郁评分,生活质量分数,两组睡眠质量评分比较(P>0.05)。然而,在管理之后,联合组淋巴细胞CD3+、CD4+免疫指标明显高于常规组(P<0.05);联合组焦虑抑郁情绪和匹兹堡睡眠质量指数评分均低于常规组(P<0.05)。最后,世界卫生组织生活质量简报版得分在组合组中的所有领域均明显高于常规组;此外,身体素质下降的程度,心理,联合组社会关系领域得分小于常规组(P<0.05)。
    结论:对于终末期癌症患者,音乐疗法可以改善他们的免疫状态,生活质量,和睡眠和改善他们的焦虑和抑郁。
    OBJECTIVE: The aim of this study was to retrospectively analyze the effect of music therapy on patients with end-stage cancer in hospice care.
    METHODS: This retrospective cohort study included 195 patients with end-stage cancer from January 2021 to December 2023. The conventional group comprised patients who received routine hospice care, whereas the combination group comprised those who received routine hospice care and music therapy. The immune indicators, anxiety and depression scores, quality of life scores, and sleep quality scores of both groups were compared before and after management.
    RESULTS: Before management, no significant differences were observed in the immune indicators, anxiety and depression scores, quality of life scores, and sleep quality scores between both groups (P > 0.05). However, after management, the immune indicators lymphocytes CD3+ and CD4+ were significantly higher in the combination group than in the conventional group (P < 0.05); in contrast, anxiety and depression and the Pittsburgh Sleep Quality Index scores were lower in the combination group than in the conventional group (P < 0.05). Lastly, the World Health Organization Quality of Life Brief Version scores were significantly higher in all domains in the combination group than in those in the conventional group; furthermore, the degree of decline in the physical, psychological, and social relationship domain scores was smaller in the combination group than in the conventional group (P < 0.05).
    CONCLUSIONS: For patients with end-stage cancer, music therapy can improve their immune status, quality of life, and sleep and ameliorate their anxiety and depression.
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  • 文章类型: Journal Article
    随着中国老年人衰老进程的加快,慢性病正成为对他们身心健康的严重威胁。家庭临终关怀满足了不同的需求,并提高了接近生命终点的老年人的生活质量。为了确保患有慢性病的老年人在生命结束时的福祉,探索和评估家中绝症老年人的多维临终关怀需求至关重要。这项研究的目的是调查中国老年人在生命末期的家庭临终关怀护理需求的现状。并分析影响因素(社会人口统计学和疾病相关因素)。
    在这项横断面研究中,从锦州市4个社区卫生服务中心的社区中筛选出247名高龄成年慢性病患者,辽宁省2023年6月至10月采用随机抽样的方法。采用本课题组编制的一般资料问卷和家庭临终关怀护理需求问卷进行调查。采用独立样本t检验或单因素方差分析比较不同特征得分的差异,并选取差异显著的因素进行多元线性回归分析,确定最终的影响因素。
    垂死的老年人的家庭临终关怀需求总分为115.70±12,每个维度的平均分数降序为信息需求(3.96±0.61),社会支持需求(3.96±0.44),精神需求(3.92±0.43),物理需求(3.60±0.59),心理需求(3.37±0.65)。居住状况,病程(年),疾病的类型,生活自理能力是家庭临终关怀需求总分的影响因素。
    患有绝症的老年人对临终关怀的需求很高,医疗保健专业人员应根据需求的影响因素实施服务,以满足其多维需求并提高其生活质量。
    UNASSIGNED: Chronic diseases are becoming a serious threat to the physical and mental health of older people in China as their aging process picks up speed. Home hospice care addresses diverse needs and enhances the quality of life for older adult individuals nearing the end of life. To ensure the well-being of chronically ill older adults at the end of life, it is vital to explore and assess the multidimensional hospice needs of terminally ill older individuals in their homes. The aim of this study was to investigate the current situation of home hospice care needs of Chinese older adults with chronic diseases at the end of life, and to analyze the influencing factors (sociodemographic and disease-related factors).
    UNASSIGNED: In this cross-sectional study, 247 older adult people with chronic diseases at the end of life were selected from the communities of 4 community health service centers in Jinzhou City, Liaoning Province from June to October 2023 by random sampling method. A general information questionnaire and the home hospice care needs questionnaire developed by our research group were used to investigate. Independent samples t-test or one-way ANOVA was used to compare the differences in the scores of different characteristics, and the factors with significant differences were selected for multivariate linear regression analysis to determine the final influencing factors.
    UNASSIGNED: The total score of home hospice needs of the dying older adult was 115.70 ± 12, with the mean scores for each dimension in descending order being Information Needs (3.96 ± 0.61), Social Support Needs (3.96 ± 0.44), Spiritual Needs (3.92 ± 0.43), Physical Needs (3.60 ± 0.59), Psychological Needs (3.37 ± 0.65). Status of residence, duration of illness (year), the type of disease, and self-care ability were influential factors in the total score of home hospice needs.
    UNASSIGNED: The need for hospice care for the terminally ill older adult is high, and healthcare professionals should implement services according to the influencing factors of need to meet their multidimensional needs and improve their quality of life.
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  • 文章类型: Journal Article
    评估将临终关怀与心理干预相结合对患者健康的影响,并引入包含临床和社会心理变量的谵妄预测列线图模型,从而提高临终关怀环境的准确性。分析了2018年9月至2023年2月接受治疗的381例患者的数据。根据治疗方式将患者分为对照组(177例,接受标准护理)和实验组(204例,接受联合临终关怀和心理干预)。护理持续时间延长至患者出院或死亡。与对照组相比,实验组的情绪健康状况显着改善,谵妄发生率较低。具体来说,情绪健康评估显示实验组有显著改善,干预后焦虑自评量表(SAS)和抑郁自评量表(SDS)得分较低。列线图模型,使用基于临床特征的逻辑回归开发,有效预测晚期癌症患者谵妄的风险。模型中的重要预测因素包括ECOG评分≥3,姑息性预后指数评分≥6,阿片类药物的使用,多药,感染,睡眠障碍,器官衰竭,脑转移瘤,电解质失衡,活动限制,护理前SAS评分≥60分,护理前SDS评分≥63分,护理前KPS评分≥60分.对模型的预测准确性进行了验证,显示训练队列的AUC值为0.839,验证队列的AUC值为0.864,校准和决策曲线分析(DCA)证实了其临床实用性。将临终关怀与心理干预相结合,不仅可以显着提高晚期癌症患者的情绪幸福感,而且可以降低谵妄的实际发生率。这种方法,为精确的护理计划和风险管理提供有价值的列线图模型,强调一体化的重要性,高级癌症管理中的个性化护理策略。
    To assesses the impact of integrating hospice care with psychological interventions on patient well-being and to introduce a predictive nomogram model for delirium that incorporates clinical and psychosocial variables, thereby improving the accuracy in hospice care environments. Data from 381 patients treated from September 2018 to February 2023 were analyzed. The patients were divided into a control group (n=177, receiving standard care) and an experimental group (n=204, receiving combined hospice care and psychological interventions) according to the treatment modality. The duration of care extended until the patient\'s discharge from the hospital or death. The experimental group demonstrated significant improvements in emotional well-being and a lower incidence of delirium compared to the control group. Specifically, emotional well-being assessments revealed marked improvements in the experimental group, as evidenced by lower scores on the Self-Rating Anxiety Scale (SAS) and Self-Rating Depression Scale (SDS) post-intervention. The nomogram model, developed using logistic regression based on clinical characteristics, effectively predicted the risk of delirium in patients with advanced cancer. Significant predictors in the model included ECOG score ≥3, Palliative Prognostic Index score ≥6, opioid usage, polypharmacy, infections, sleep disorders, organ failure, brain metastases, electrolyte imbalances, activity limitations, pre-care SAS score ≥60, pre-care SDS score ≥63, and pre-care KPS score ≥60. The model\'s predictive accuracy was validated, showing AUC values of 0.839 for the training cohort and 0.864 for the validation cohort, with calibration and Decision Curve Analysis (DCA) confirming its clinical utility. Integrating hospice care with psychological interventions not only significantly enhanced the emotional well-being of advanced cancer patients but also reduced the actual incidence of delirium. This approach, offering a valuable Nomogram model for precise care planning and risk management, underscores the importance of integrated, personalized care strategies in advanced cancer management.
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  • 文章类型: Journal Article
    背景:世界卫生组织指出,环境是影响临终关怀发展的重要因素。除了个体因素外,环境是影响行为的因素的总和。目前,目前尚缺乏全面评估护士临终关怀环境的量表。本研究旨在开发一种工具来调查影响护士临终关怀的环境因素。
    方法:进行文献综述和半结构化访谈,以形成临终关怀环境量表的项目库。由16位专家进行两轮Delphi专家咨询,对量表维度和条目进行修订,形成《临终关怀环境量表》。然后对湖北省某大型三级肿瘤医院的530名肿瘤科护士进行了心理测量评估。将500份有效问卷按1:1的比例随机分为两组,样品1(n1=250)用于项目筛选,样品2(n2=250)用于所得量表的质量评价。项目分析,可靠性分析,进行有效性分析和可接受性分析。
    结果:临终关怀环境量表由两个维度和13个条目组成。临终关怀环境量表的Cronbach'sα系数为0.970,两个维度的Cronbach'sα系数分别为0.952和0.969,量表的项目内容效度指数和平均量表内容效度指数均为1.000。验证因子分析结果表明,各项目的标准化路径系数基本在0.5以上,因子结构模型稳定、适用。该量表的平均完成时间约为3分钟,具有很好的可行性。
    结论:评估临终关怀服务环境的临终关怀环境量表,具有较好的内容和结构效度和信度。该量表可以为评估临终关怀环境提供指导。
    BACKGROUND: WHO stated the environment is an important factor affecting the development of hospice care. The environment is the sum of factors affecting behavior besides the individual factors. Currently, a scale to comprehensively assess the hospice environment of nurse is still lacking. This study aimed to develop an instrument to investigate the environmental factors affecting hospice care of nurses.
    METHODS: Literature review and a semi-structured interview were conducted to form the items pool of the Hospice Care Environment Scale. Two rounds of Delphi expert consultation were conducted by 16 experts to revise the scale dimensions and entries to form the Hospice Care Environment Scale. A psychometric evaluation was then performed among 530 oncology nurses in a large tertiary oncology hospital in Hubei Province. The 500 valid questionnaires were randomly divided into two groups in a 1:1 ratio, sample 1 (n1 = 250) for item screening and sample 2 (n2 = 250) for quality evaluation of the resulting scale. Item analysis, reliability analysis, validity analysis and acceptability analysis were performed.
    RESULTS: The Hospice Care Environment Scale consists of two dimensions and 13 entries. The Cronbach\'s α coefficient of the Hospice Care Environment Scale was 0.970, and the Cronbach\'s α coefficient of the two dimensions were 0.952 and 0.969, respectively, with the Item-content validity index and average Scale- content validity index of the scale was both 1.000. The validation factor analysis showed the standardized path coefficients of each item were basically above 0.5, and the factor structure model was stable and suitable. The average completion time of the scale was about 3 min, which had good feasibility.
    CONCLUSIONS: The Hospice Care Environment Scale to assess the environment of hospice care services, has good content and construct validity and reliability. This scale can provide guidance to evaluate the hospice care environment.
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  • 文章类型: Journal Article
    随着中国人口预期寿命的增加,加上慢性病,人们在生命末期的护理需求备受关注。家庭临终关怀护理可以帮助垂死的老年人在家中获得舒适并保持尊严。然而,死在家里对家庭照顾者来说意味着巨大的责任和挑战,还有许多未满足的需求。本研究旨在调查中国老年慢性病患者的家庭护理人员在临终前的家庭临终关怀护理需求。对护理人员家庭临终关怀需求的影响因素进行分析。
    在这项横断面研究中,2023年5月至9月,在锦州市7个行政区分层抽样抽取4个社区卫生服务中心,辽宁省,在那里试行了家庭临终关怀护理。然后采用简单随机抽样的方法从7个社区服务中心的社区中抽取224名家庭照顾者。采用本课题组编制的一般资料问卷和家庭临终关怀护理需求问卷进行调查。采用单因素分析比较不同特征得分的差异,并选取差异显著的因素进行多元线性回归分析,确定最终的影响因素。
    家庭照顾者的临终关怀护理需求总分为121.61±15.24,其中临终知识需求维度得分为24.04±2.71,得分指数最高为80.13%,症状控制需要评分为15.58±3.39,最低评分指数为62.32%。此外,有护理经验的护理人员,垂死的老年人,疾病持续时间较长,以及受教育程度较高的垂死老年人是影响家庭护理人员对家庭临终关怀护理总需求的因素,方差解释为22.7%。
    身患绝症的老年人的家庭照顾者的需求很高,医疗保健专业人员应根据影响其需求的因素,实施服务以满足其多维需求并提高护理质量。
    UNASSIGNED: With increased life expectancy in the Chinese population coupled with chronic disease the care needs of people at the end of life are attracting much attention. Home hospice care can help the dying older adult achieve comfort and maintain their dignity at home. However, dying at home means great responsibility and challenge for family caregivers, and there are many unmet needs. The study aimed to investigate the home hospice care needs of family caregivers of older adult people with chronic diseases at the end of life in China, and to analyze the influencing factors of home hospice care needs of caregivers.
    UNASSIGNED: In this cross-sectional study, from May to September 2023, 4 community health service centers were selected by stratified sampling from seven administrative districts in Jinzhou City, Liaoning Province, where home hospice care was piloted. Then 224 family caregivers were selected from the communities of seven community service centers by simple random sampling method. A general information questionnaire and the home hospice care needs questionnaire developed by our research group were used to investigate. Univariate analysis was used to compare the differences in the scores of different characteristics, and the factors with significant differences were selected for multivariate linear regression analysis to determine the final influencing factors.
    UNASSIGNED: The total score of hospice care needs of family caregivers was 121.61 ± 15.24, among which the end-of-life knowledge need dimension score was 24.04 ± 2.71, the highest score index was 80.13%, while the symptom control need score was 15.58 ± 3.39, the lowest score index was 62.32%. In addition, Caregivers with caregiving experience, dying older adult with longer disease duration, and dying older adult with higher levels of education were the factors influencing the total need for home hospice care among family caregivers, with a variance explained of 22.7%.
    UNASSIGNED: The needs of family caregivers of the terminally ill older adult are high, and healthcare professionals should implement services to meet their multidimensional needs and improve the quality of care according to the factors affecting their needs.
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  • 文章类型: Journal Article
    在人口老龄化的背景下,作为个人基本福祉的重要组成部分,和平临终关怀的概念越来越重要。这强调了研究和开发致力于提供宁静休息环境的临终关怀设施和服务系统的重要性。这项研究的重点是选定的临终关怀护理建筑,检查他们的服务模式演变和建筑设计。通过案例分析,它探索了当代的临终关怀建筑,识别各种类型和空间设计特征,以满足个人的最终需求。研究结果指导了中国临终关怀建筑的设计,强调病人的生活区,医疗保健区,和辅助功能空间。这种全面的方法旨在提高绝症患者的舒适度,宁静,和尊严。此外,它旨在为绝症患者的家庭提供情感和葬礼后的支持。
    In the context of an aging population, the concept of peaceful end-of-life care has gained increasing significance as an essential component of individuals\' fundamental well-being. This underscores the importance of researching and developing hospice care facilities and service systems dedicated to providing a tranquil resting environment. This study focuses on selected hospice care buildings, examining their service model evolution and architectural design. Through case analyses, it explores contemporary hospice care architecture, identifying various types and spatial design features that cater to the end-of-life needs of individuals. The findings guide the design of hospice care buildings in China, emphasizing patient-living areas, medical care zones, and auxiliary functional spaces. This comprehensive approach aims to enhance terminally ill patients\' comfort, serenity, and dignity. Moreover, it aims to provide emotional and post-funeral support to terminally ill patients\' families.
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  • 文章类型: Journal Article
    从医疗保健提供者的角度评估上海癌症死亡患者的死亡和死亡质量。
    这项横断面研究于2023年4月至7月在上海进行。在八家医疗机构工作的261名医疗保健提供者的便利样本参加了。要求每位参与者使用中国患者良好死亡量表(GDS-PCN)评估一名最近接受护理的已故患者的死亡和死亡质量。量表包括家庭陪伴(八个项目),死与和平(六项),专业护理(六项),准备和不后悔(五个项目),维护尊严(四项),保持自主权(四项),和身体健康(三项)七个维度,36项。
    GDS-PCN总分为144.11±17.86。专业护理维度得分最高(4.21±0.58),而准备和无后悔维度得分最低(3.75±0.70)。GDS-PCN分数的显著差异是基于医疗机构的等级,病房类型,住院时间,关于病情的沟通,治疗,以及与医疗保健提供者的死亡相关主题,决策风格(P<0.05)。在社区卫生服务中心和临终关怀病房接受护理的患者中,死亡患者的死亡和死亡质量较高,那些住院超过15天的人,那些讨论过他们个人情况的人,治疗,和死亡相关的话题与医疗保健提供者在更大程度上;和那些参与决策的人(P<0.05)。
    上海癌症患者死亡和死亡的总体质量是中高的,但在准备、无悔维度和保持自主性维度上的死亡和死亡质量仍有提升空间。提高临终关怀服务的利用率以及患者与医疗保健提供者之间更好的沟通可能会提高死者的死亡和死亡质量。在中国大陆,需要从不同的角度和更广泛的范围对这一主题进行未来的研究。
    UNASSIGNED: To evaluate the quality of dying and death among deceased patients with cancer in Shanghai from the perspective of healthcare providers.
    UNASSIGNED: This cross-sectional study was conducted in Shanghai from April to July 2023. A convenience sample of 261 healthcare providers working at eight healthcare institutions participated. Each participant was asked to evaluate the quality of dying and death of one deceased patient who had been cared for recently using the Good Death Scale for patients in China (GDS-PCN). The scale included family companionship (eight items), dying with peace (six items), professional care (six items), preparation & no regrets (five items), maintaining dignity (four items), keeping autonomy (four items), and physical wellbeing (three items) seven dimensions, 36 items.
    UNASSIGNED: The total GDS-PCN score was 144.11 ± 17.86. The professional care dimension scored the highest (4.21 ± 0.58), whereas the preparation and no regret dimension scored the lowest (3.75 ± 0.70). Significant differences in the GDS-PCN scores were based on the healthcare institution grade, ward type, hospitalization duration, communication about the condition, treatment, and death-related topics with the healthcare provider, and decision-making style (P < 0.05). The quality of dying and death of the deceased patients was higher among those who received care in community health service centers and hospice wards, those who had been hospitalized for more than 15 days, those who had discussed their personal conditions, treatment, and death-related topics with healthcare providers to a greater extent; and those who were involved in decision-making (P < 0.05).
    UNASSIGNED: The overall quality of dying and death among cancer patients in Shanghai is moderate to high, but the quality of dying and death in the preparation and no regret dimension and the keeping autonomy dimension still have room for improvement. Increased utilization of hospice care and better communication between patients and healthcare providers may enhance decedents\' quality of dying and death. Future research on this topic is required from different perspectives and on a broader scale in the mainland of China.
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  • 文章类型: Journal Article
    调查头颈部外科专业人员对老年头颈部癌症患者手术前实施预先护理计划的看法。
    Q方法用于通过结合定量和定性方法来探索和分析参与者的观点。参与者被要求对通过半结构化访谈和文献综述产生的35个Q陈述进行排名,并在随后的访谈中解释其排名的原因。然后对数据进行分析,并用于制定一个因素系列来说明参与者的观点。
    这项研究调查了15名医疗保健专业人员,包括八名医生和七名护士。卫生保健专业人员对术前实施预先护理计划讨论的看法各不相同,可以分为三种类型:捍卫患者的自主权,患者的知识和中国传统文化背景阻碍了术前提前护理计划的实施,对执行术前预先护理计划缺乏信心。
    尽管本研究中头颈外科的卫生保健专业人员认识到术前讨论有关提前护理计划的益处,患者知识水平,中国传统价值观,卫生保健专业人员能力不足,不健全的法律政策导致这些专业人员对术前咨询和与患者讨论预先护理计划有疑虑。应该进行进一步的研究,应制定克服术前提前护理计划讨论障碍的策略.
    UNASSIGNED: To investigate the views of health care professionals in a head and neck surgical department toward the implementation of advance care planning prior to surgery for older patients with head and neck cancer.
    UNASSIGNED: Q methodology was used to explore and analyze participants\' views by combining quantitative and qualitative methods. Participants were asked to rank 35 Q statements generated via semi-structured interviews and a literature review and to explain the reasons for their ranking in subsequent interviews. The data was then analyzed and used to develop a factor series to illustrate participants\' views.
    UNASSIGNED: This study surveyed 15 health care professionals, including eight doctors and seven nurses. The views of health care professionals toward preoperative implementation of advance care planning discussions were varied and could be categorized into three types: defending the autonomy of patients, patients\' knowledge and the Chinese traditional cultural context hinder the implementation of preoperative advance care planning, and lack of confidence in performing preoperative advance care planning.
    UNASSIGNED: Although the health care professionals in the head and neck surgical department in this study recognized the benefits of preoperative discussions regarding advance care planning, patients\' knowledge level, traditional Chinese values, inadequate capacity among health care professionals, and unsound legal policies have caused these professionals to have misgivings about preoperative counseling and discussing advance care planning with patients. Further studies should be conducted, and strategies to overcome barriers to discussions of preoperative advance care planning should be developed.
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  • 文章类型: Journal Article
    Objective To construct a scientific and practical management model of the hospice and palliative care outpatient clinic and provide a reference for the operation and development of the outpatient clinic. Methods The basic framework of the whole process management model of hospice and palliative care outpatient clinic was determined preliminarily by literature analysis,qualitative interviews and experts group meetings.Two rounds of consultation were conducted among 18 experts in hospice and palliative care and medical-nursing combined outpatient service by the Delphi method. Results The questionnaire response rates of the two rounds of expert consultation were both 100% and the authority coefficients of the two rounds of expert consultation were 0.88 and 0.91,respectively.Finally,the whole process management model of hospice and palliative care outpatient clinic was constructed,which was composed of three first-level indicators including staff composition,work structure and effect evaluation,5 second-level indicators and 62 third-level indicators. Conclusion The constructed whole process management model is scientific,innovative and continuous,which can provide a reference for the operation and development of the hospice and palliative care outpatient clinic.
    目的 构建科学、实用的安宁缓和医疗门诊医护一体化全程管理模式,为安宁缓和医疗门诊的运行及发展提供借鉴。方法 基于文献分析、访谈、专家小组会议,初步确定安宁缓和医疗门诊医护一体化全程管理模式的基本框架,采用德尔菲专家函询法对18名从事安宁缓和医疗及医护联合门诊相关领域专家进行2轮专家函询。结果 2轮专家函询问卷有效回收率均为100%,第1轮函询专家的权威系数为0.88,第2轮函询专家的权威系数为0.91。最终构建安宁缓和医疗门诊医护一体化全程管理模式,形成人员构成、工作结构、效果评价共3项一级指标,5项二级指标,62项三级指标。结论 构建的安宁缓和医疗门诊医护一体化全程管理模式具有较强的科学性、创新性、延续性,可为安宁缓和医护联合门诊的运行及发展提供借鉴。.
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  • 文章类型: Journal Article
    背景:临终关怀专业人员通常会在短时间内经历外伤患者死亡和多名患者死亡(比其他护士更多)。这种反复暴露于死亡过程和患者死亡导致临终关怀专业人员承受更大的心理压力。但目前,人们更关注临终患者家属的感受和护理负担,但对医务人员的关注较少。因此,本研究旨在制定一个关于临终关怀护理提供者护理负担的量表,并评估临终关怀专业人员的应对能力。提高对临终关怀专业人员心理负担的认识。
    方法:通过文献综述,研究小组讨论,德尔菲法和护士专业应对技能的预调查,选择了200名从从事或提供临终关怀护理的试点机构接受过临终关怀培训的临终关怀专业人员进行调查。Cronbach的α系数和分裂半信度用于测试量表的内部一致性,采用内容效度和探索因子分析(EFA)检验量表的结构效度。
    结果:进行了两轮德尔菲法,有效回收率为100%。两轮专家权威系数分别为0.838和0.833。第一轮专家的肯德尔W系数为0.121~0.200(P<0.05),第二轮肯德尔的W系数为0.115-0.136(P<0.05),表明了良好的专家协调水平。最终的临终关怀专业人员护理负担调查量表包括四个维度-工作环境(9项),专业角色(8项),临床护理(9项)和心理负担(7项)-共33项。量表的总克朗巴赫α系数为0.963,工作环境的克朗巴赫α系数为0.963,专业角色,临床护理和心理负担维度分别为0.920、0.889、0.936和0.910。量表的总分裂半信度为0.927,每个维度的分裂半信度分别为0.846、0.817、0.891和0.832。量表项目的内容效度范围为0.90至1.00。探索性因素分析揭示了5个共同因素,总累计贡献率为68.878%。量表中各项目的共同程度>0.4,各项目的因子负荷也>0.4。
    结论:量表是开放获取的,短,易于管理的规模。在这项研究中开发的用于评估临终关怀专业人员的临终关怀负担的方法具有很强的信度和效度。该工具可以作为一种可靠的工具,用于评估临终关怀机构中专业人员对临终关怀患者的临终关怀负担。
    BACKGROUND: Hospice care professionals often experience trauma patient deaths and multiple patient deaths in a short period of time (more so than other nurses). This repeated exposure to the death process and the death of patients leads to greater psychological pressure on hospice care professionals. But at present, people pay more attention to the feelings and care burden of the family members of dying patients but pay less attention to medical staff. Thus, this study aimed to develop a scale on the burden of care for hospice care providers and assess the coping capacity of hospice professionals. Raising awareness of the psychological burden of hospice professionals.
    METHODS: Through a literature review, research group discussion, Delphi method and a pre-survey of professional coping skills among nurses, 200 hospice professionals who had received training in hospice care from pilot institutions engaged in or providing hospice care were selected for investigation. Cronbach\'s α coefficient and split-half reliability were used to test the internal consistency of the scale, and content validity and explore factor analysis (EFA) were used to test the construct validity of the scale.
    RESULTS: Two rounds of Delphi methods were carried out, and the effective recovery rate was 100%. The expert authority coefficients of the two rounds were 0.838 and 0.833, respectively. The Kendall\'s W coefficient of experts in the first round was 0.121 ~ 0.200 (P < 0.05), and the Kendall\'s W coefficient of the second round was 0.115-0.136 (P < 0.05), indicating a good level of expert coordination. The final survey scale for the care burden of hospice professionals included four dimensions-working environment (9 items), professional roles (8 items), clinical nursing (9 items) and psychological burden (7 items)-with a total of 33 items. The total Cronbach\'s α coefficient of the scale was 0.963, and the Cronbach\'s α coefficients of the working environment, professional roles, clinical nursing and psychological burden dimensions were 0.920, 0.889, 0.936 and 0.910, respectively. The total split-half reliability of the scale was 0.927, and the split-half reliability of each dimension was 0.846, 0.817, 0.891, and 0.832. The content validity of the scale items ranged from 0.90 to 1.00. Exploratory factor analysis revealed 5 common factors, with a total cumulative contribution rate of 68.878%. The common degree of each item in the scale was > 0.4, and the factor loading of each item was also > 0.4.
    CONCLUSIONS: The scale is an open-access, short, easy-to-administer scale. And which for assessing hospice care burden among hospice professionals developed in this study demonstrated strong reliability and validity. This tool can serve as a dependable instrument for evaluating the burden of hospice care for terminally ill patients by professionals in the hospice setting.
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