关键词: chronic diseases cross-sectional studies end of life family caregivers hospice care older adults

Mesh : Humans Cross-Sectional Studies Caregivers / psychology statistics & numerical data China Male Female Hospice Care / statistics & numerical data Chronic Disease Aged Middle Aged Home Care Services / statistics & numerical data Surveys and Questionnaires Terminal Care Adult Aged, 80 and over

来  源:   DOI:10.3389/fpubh.2024.1348285   PDF(Pubmed)

Abstract:
UNASSIGNED: With increased life expectancy in the Chinese population coupled with chronic disease the care needs of people at the end of life are attracting much attention. Home hospice care can help the dying older adult achieve comfort and maintain their dignity at home. However, dying at home means great responsibility and challenge for family caregivers, and there are many unmet needs. The study aimed to investigate the home hospice care needs of family caregivers of older adult people with chronic diseases at the end of life in China, and to analyze the influencing factors of home hospice care needs of caregivers.
UNASSIGNED: In this cross-sectional study, from May to September 2023, 4 community health service centers were selected by stratified sampling from seven administrative districts in Jinzhou City, Liaoning Province, where home hospice care was piloted. Then 224 family caregivers were selected from the communities of seven community service centers by simple random sampling method. A general information questionnaire and the home hospice care needs questionnaire developed by our research group were used to investigate. Univariate analysis was used to compare the differences in the scores of different characteristics, and the factors with significant differences were selected for multivariate linear regression analysis to determine the final influencing factors.
UNASSIGNED: The total score of hospice care needs of family caregivers was 121.61 ± 15.24, among which the end-of-life knowledge need dimension score was 24.04 ± 2.71, the highest score index was 80.13%, while the symptom control need score was 15.58 ± 3.39, the lowest score index was 62.32%. In addition, Caregivers with caregiving experience, dying older adult with longer disease duration, and dying older adult with higher levels of education were the factors influencing the total need for home hospice care among family caregivers, with a variance explained of 22.7%.
UNASSIGNED: The needs of family caregivers of the terminally ill older adult are high, and healthcare professionals should implement services to meet their multidimensional needs and improve the quality of care according to the factors affecting their needs.
摘要:
随着中国人口预期寿命的增加,加上慢性病,人们在生命末期的护理需求备受关注。家庭临终关怀护理可以帮助垂死的老年人在家中获得舒适并保持尊严。然而,死在家里对家庭照顾者来说意味着巨大的责任和挑战,还有许多未满足的需求。本研究旨在调查中国老年慢性病患者的家庭护理人员在临终前的家庭临终关怀护理需求。对护理人员家庭临终关怀需求的影响因素进行分析。
在这项横断面研究中,2023年5月至9月,在锦州市7个行政区分层抽样抽取4个社区卫生服务中心,辽宁省,在那里试行了家庭临终关怀护理。然后采用简单随机抽样的方法从7个社区服务中心的社区中抽取224名家庭照顾者。采用本课题组编制的一般资料问卷和家庭临终关怀护理需求问卷进行调查。采用单因素分析比较不同特征得分的差异,并选取差异显著的因素进行多元线性回归分析,确定最终的影响因素。
家庭照顾者的临终关怀护理需求总分为121.61±15.24,其中临终知识需求维度得分为24.04±2.71,得分指数最高为80.13%,症状控制需要评分为15.58±3.39,最低评分指数为62.32%。此外,有护理经验的护理人员,垂死的老年人,疾病持续时间较长,以及受教育程度较高的垂死老年人是影响家庭护理人员对家庭临终关怀护理总需求的因素,方差解释为22.7%。
身患绝症的老年人的家庭照顾者的需求很高,医疗保健专业人员应根据影响其需求的因素,实施服务以满足其多维需求并提高护理质量。
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