关键词: Death Hospice care Medical staff Neoplasms Patient outcome assessment

来  源:   DOI:10.1016/j.ijnss.2024.03.010   PDF(Pubmed)

Abstract:
UNASSIGNED: To evaluate the quality of dying and death among deceased patients with cancer in Shanghai from the perspective of healthcare providers.
UNASSIGNED: This cross-sectional study was conducted in Shanghai from April to July 2023. A convenience sample of 261 healthcare providers working at eight healthcare institutions participated. Each participant was asked to evaluate the quality of dying and death of one deceased patient who had been cared for recently using the Good Death Scale for patients in China (GDS-PCN). The scale included family companionship (eight items), dying with peace (six items), professional care (six items), preparation & no regrets (five items), maintaining dignity (four items), keeping autonomy (four items), and physical wellbeing (three items) seven dimensions, 36 items.
UNASSIGNED: The total GDS-PCN score was 144.11 ± 17.86. The professional care dimension scored the highest (4.21 ± 0.58), whereas the preparation and no regret dimension scored the lowest (3.75 ± 0.70). Significant differences in the GDS-PCN scores were based on the healthcare institution grade, ward type, hospitalization duration, communication about the condition, treatment, and death-related topics with the healthcare provider, and decision-making style (P < 0.05). The quality of dying and death of the deceased patients was higher among those who received care in community health service centers and hospice wards, those who had been hospitalized for more than 15 days, those who had discussed their personal conditions, treatment, and death-related topics with healthcare providers to a greater extent; and those who were involved in decision-making (P < 0.05).
UNASSIGNED: The overall quality of dying and death among cancer patients in Shanghai is moderate to high, but the quality of dying and death in the preparation and no regret dimension and the keeping autonomy dimension still have room for improvement. Increased utilization of hospice care and better communication between patients and healthcare providers may enhance decedents\' quality of dying and death. Future research on this topic is required from different perspectives and on a broader scale in the mainland of China.
摘要:
从医疗保健提供者的角度评估上海癌症死亡患者的死亡和死亡质量。
这项横断面研究于2023年4月至7月在上海进行。在八家医疗机构工作的261名医疗保健提供者的便利样本参加了。要求每位参与者使用中国患者良好死亡量表(GDS-PCN)评估一名最近接受护理的已故患者的死亡和死亡质量。量表包括家庭陪伴(八个项目),死与和平(六项),专业护理(六项),准备和不后悔(五个项目),维护尊严(四项),保持自主权(四项),和身体健康(三项)七个维度,36项。
GDS-PCN总分为144.11±17.86。专业护理维度得分最高(4.21±0.58),而准备和无后悔维度得分最低(3.75±0.70)。GDS-PCN分数的显著差异是基于医疗机构的等级,病房类型,住院时间,关于病情的沟通,治疗,以及与医疗保健提供者的死亡相关主题,决策风格(P<0.05)。在社区卫生服务中心和临终关怀病房接受护理的患者中,死亡患者的死亡和死亡质量较高,那些住院超过15天的人,那些讨论过他们个人情况的人,治疗,和死亡相关的话题与医疗保健提供者在更大程度上;和那些参与决策的人(P<0.05)。
上海癌症患者死亡和死亡的总体质量是中高的,但在准备、无悔维度和保持自主性维度上的死亡和死亡质量仍有提升空间。提高临终关怀服务的利用率以及患者与医疗保健提供者之间更好的沟通可能会提高死者的死亡和死亡质量。在中国大陆,需要从不同的角度和更广泛的范围对这一主题进行未来的研究。
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