Hospice care

临终关怀
  • 文章类型: Journal Article
    近年来,加利福尼亚州的收容所经历了重大而复杂的所有权变化。关于这些所有权变更对临终关怀的影响知之甚少。我们纵向的目的,回顾性描述性研究旨在描述影响加利福尼亚州2018年至2021年临终关怀医院的所有权变化。使用描述性统计数据,我们利用加州家庭健康机构和临终关怀年度利用报告的公开数据,测量了有或没有所有权变更的临终关怀医院的特征.所有权变化特征是通过公开的临终关怀提供者和设施数据进行测量的。还通过公开的纬度和经度数据测量了空间特征。我们的研究结果表明,所有权的变化是显著和复杂的。营利性组织涌入加州市场是这些变化的主要原因。此外,缺乏公司财务公开披露和自愿临终关怀认证,认证,报告导致缺乏自由,公开可用,关于营利性临终关怀所有权的明确综合数据。这阻碍了有关收容所的信息收集和提供者/家庭选择。我们的研究提供了对所有权变更的影响和缺乏确定性的关键见解,免费,关于加州成人收容所照顾儿童的公开信息,具有重要的临床意义,研究,和政策影响。
    Hospices in California have undergone significant and complicated ownership changes in recent years. Little is known about the impact of these ownership changes on hospices. The purpose of our longitudinal, retrospective descriptive study was to describe the ownership changes impacting hospices 2018 to 2021 in California. Using descriptive statistics, we measured characteristics of hospices with and without ownership changes employing public data from the California Home Health Agencies and Hospice Annual Utilization Report. Ownership change characteristics were measured via publicly available hospice provider and facility data. Spatial characteristics were additionally measured via latitude and longitude publicly available data. Our findings showed that ownership changes were significant and complicated. An influx of for-profit organizations into the California market was primarily responsible for these changes. Additionally, lack of corporate financial public disclosure and voluntary hospice accreditation, certification, and reporting result in a lack of free, publicly available, definitive comprehensive data on for-profit hospice ownership. This hinders information gathering on and provider/familial choice-making regarding hospices. Our study provides critical insight into the impact of ownership changes and lack of definitive, free, publicly available information on adult hospices in California caring for children and has important clinical, research, and policy implications.
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  • 文章类型: Case Reports
    该病例报告探讨了与阿片类药物治疗癌症疼痛相关的挑战和复杂性。强调早期参与临终关怀咨询小组和采用多学科方法进行护理的重要性。一名患有晚期胰腺癌的56岁男性经历了不断升级的疼痛和不适当的阿片类药物处方,强调传统疼痛管理方法的缺点。尽管主治医师进行了程序干预,并增加了阿片类药物剂量,病人的病情恶化。随后,一个临终关怀咨询小组的参与,与合作精神护理相结合,导致整体改善。此案强调了早期参与临终关怀的必要性,社会心理评估,以及优化以患者为中心的姑息治疗的协作方法。
    This case report explores the challenges and complexities associated with opioid management of cancer pain, emphasizing the importance of early involvement of a hospice consultation team and the adoption of a multidisciplinary approach to care. A 56-year-old man with advanced pancreatic cancer experienced escalating pain and inappropriate opioid prescriptions, highlighting the shortcomings of traditional pain management approaches. Despite procedural intervention by the attending physician and increased opioid dosages, the patient\'s condition deteriorated. Subsequently, the involvement of a hospice consultation team, in conjunction with collaborative psychiatric care, led to an overall improvement. The case underscores the necessity of early hospice engagement, psychosocial assessments, and collaborative approaches in the optimization of patient-centered palliative care.
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  • 文章类型: Journal Article
    尽管人类免疫缺陷病毒(HIV)和获得性免疫缺陷综合症(AIDS)在菲律宾日益流行,并带来了心理社会挑战,关于艾滋病毒和临终关怀的交叉研究仍然缺乏。污名和歧视进一步加剧了向该国艾滋病毒患者提供包容性临终关怀的挑战。借鉴最近发表的一篇文章的结果,该文章以一名退伍军人出生时被分配的男性为中心,他表示希望在接受临终关怀的同时重新分配性别,本文强调了敏感性的重要性,理解,以及在菲律宾HIV患者的临终关怀环境中的肯定。
    Despite the growing prevalence of human immunodeficiency virus (HIV) and acquired immunodefiency syndrome (AIDS) in the Philippines and the psychosocial challenges it engenders, there remains a dearth of research on the intersection of HIV and hospice care. Stigma and discrimination further compound the challenges of providing inclusive hospice care to HIV patients in the country. Drawing upon the results of a recently published article centered on a Veteran assigned male at birth who expressed a desire for gender reassignment while receiving end-of-life care, this paper highlights the importance of sensitivity, understanding, and affirmation in hospice settings for HIV patients in the Philippines.
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  • 文章类型: Editorial
    暂无摘要。
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  • 文章类型: Journal Article
    幸福是灵性的核心,但在姑息治疗中却很少被探索。这项研究的目的是探索荷兰临终关怀中的幸福感。使用了由参与式观察和半结构化访谈组成的案例研究设计。幸福与健康的各个方面有关。患者谈到与自己和他人的接受度越来越高,联系也越来越深。临终关怀人员将他们的幸福与感受到真正的联系联系联系起来,他们的工作支持他们以新的方式欣赏自己的生活。这项研究表明,幸福可以在经常与痛苦相关的环境中找到。
    Happiness is central in spirituality but has hardly been explored in palliative care. The objective of this study is to explore happiness in hospice care in the Netherlands. A case study design consisting of participatory observations and semi-structured interviews was used. Happiness was associated with all dimensions of health. Patients spoke about a growing receptivity and a deepening of connections with themselves and others. Hospice staff related their happiness to feeling a true connection and their work supported them in appreciating their own lives in new ways. This study suggests that happiness can be found in settings that are frequently associated with suffering.
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  • 文章类型: Case Reports
    姑息治疗的目标是保持患有严重疾病的患者的生活质量或患者的“舒适度”。姑息治疗提供者为广泛的患者提供服务:从寻求治愈性治疗的患者到积极死亡的患者。鉴于这个范围,姑息治疗必须反映患者在生命和治疗的不同阶段的动态目标。在这些阶段,姑息治疗提供者的目标是避免加速死亡;然而,这通常会导致临床决策直接影响患者的舒适度和患者的寿命。这在临床决定撤回甚至以舒适为代价延长寿命的治疗中最为突出。当提供者使用肠内营养来治疗头颈部癌症患者时,可以看到这种二分法的一个例子。
    我们描述了一名患有IV期胰腺癌的患者,其头颈部转移。患者的发病率与经皮内镜胃造瘘术(PEG)管喂养有关。这些并发症包括管相关的问题,如感染,泄漏,和腹泻,但也减少了预期的好处,因为她失去了体重和功能,同时保持肠内喂养。尽管患者经历了一个常见的和预期的疾病过程,她仍然不确定,担心考虑停止肠内喂养。然而,了解风险的护理团队,好处,与戒断有关的危害提供了讨论的基础并减轻了患者的恐惧,允许成功取出她的PEG管,并在生命结束时提高生活质量。
    全面照顾患者也是在疾病的所有阶段照顾他们。护理不仅限于那些可能治愈疾病的人,但也应该考虑那些继续生活在疾病中的人以及用于支持他们的医疗干预措施的下游影响。停止对患者的危害大于益处的治疗是提供者的道德要求;然而,提供者如何停止延长寿命的治疗被视为道德上的痛苦。我们的患者并不认为讨论在道德上令人痛苦,即使在生命的尽头,也继续从积极的讨论中受益。
    UNASSIGNED: The goal of palliative care is to preserve the quality of life or patient \"comfort\" in patients with serious diseases. Palliative care providers serve a wide range of patients: from those who seek curative treatment to those who are actively dying. Given this range, palliative care must mirror the dynamic goals of the patient at different stages of life and treatment. Throughout these stages, a goal of the palliative care provider would be to avoid hastening death; however, this often leads to clinical decisions that directly pit the patient\'s comfort against the patient\'s life span. This is most salient with clinical decisions of withdrawing treatments that prolong life even at the expense of comfort. An example of this dichotomy can be seen when providers use enteral nutrition to treat head and neck cancer patients.
    UNASSIGNED: We describe a patient with stage IV pancreatic cancer with metastases to her head and neck. The patient was experiencing increased morbidity related to her percutaneous endoscopic gastrostomy (PEG) tube feeding. These complications included tube-related concerns such as infection, leakage, and diarrhea but also decreased intended benefits as she lost weight and functionality while maintaining enteral feeding. Despite the patient experiencing a common and expected disease course, she remained unsure and was fearful about considering discontinuation of her enteral feeding. However, the care team who understood the risks, benefits, and harms related to withdrawal provided a foundation of discussion and mitigated patient fears, allowing for the successful removal of her PEG tube and increased quality of life at the end of life.
    UNASSIGNED: To care for a patient in their entirety is also to care for them at all stages of disease. Care is not limited to those who might be cured of disease, but should also consider those who continue to live with disease and the downstream effects of medical interventions used to support them. Discontinuing treatments whose harms outweigh the benefits to patients is a moral imperative to providers; yet, how providers approach discontinuing life-prolonging treatment is seen as morally distressing. Our patient did not see the discussion as morally distressing and continued to benefit from active discussions even at the end of her life.
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  • 文章类型: Journal Article
    背景:在中国人口老龄化和癌症负担不断增加的背景下,临终关怀的作用日益突出。政府更加重视临终关怀的发展,并建立了试点医院来推广临终关怀。此外,医疗保健提供者在临终关怀服务中起着主导作用。为了提高临终关怀的质量,中华人民共和国国家卫生健康委员会建议在具有临终关怀护理或相关工作基础的市级或以上医院建立临终关怀护理培训基地,并对医疗服务提供者进行临终关怀培训。本研究旨在调查医护人员对临终关怀的认知和态度现状,为医院培训提供理论依据。
    方法:我们使用了定量设计。从2022年8月至2022年11月,对1591名医疗保健提供者进行了问卷调查。采用SPSS22.0软件进行数据分析。
    结果:作为医疗保健提供者继续教育的重要方式,医院培训在临终关怀教育中没有得到有效利用。参与者的临终关怀知识平均得分为(7.74±2.242),参与者的临终关怀态度平均得分为(4.55±1.503)。根据多元线性回归分析,性别(p<0.001),教育水平(p<0.001),与职称(p=0.018)比较,临终关怀知识得分差异有统计学意义;文化程度(p=0.009)与职称(p=0.016)比较,与临终关怀态度得分差异有统计学意义。
    结论:医疗服务提供者对临终关怀存在一些误解,他们对临终关怀的态度不积极。建议医院开展专业系统的教育课程,帮助医护人员正确认识临终关怀,并积极参与临终关怀服务。
    BACKGROUND: Under the background of the increasing aging population and cancer burden in China, the role of hospice care has become increasingly prominent. The government has paid more attention to the development of hospice care and set up pilot hospitals to promote hospice care. Moreover, healthcare providers play a leading role in hospice care services. To improve the quality of hospice care, the National Health Commission of the People\'s Republic of China proposed to set up hospice care training bases in municipal or above-level hospitals with hospice care or relevant work foundations, and train healthcare providers on hospice care. This study aimed to investigate the current situation of cognition and attitudes about hospice care among healthcare providers and provide a theoretical basis for hospital training.
    METHODS: We used a quantitative design. A questionnaire survey was conducted among 1591 healthcare providers from August 2022 to November 2022. SPSS 22.0 software was used to analyze the data.
    RESULTS: As a significant way of continuing education for healthcare providers, hospital training hasn\'t been effectively exploited in hospice care education. The average score of hospice care knowledge among participants was (7.74 ± 2.242) and the average score of hospice care attitudes among participants was (4.55 ± 1.503). According to multivariate linear regression analysis, sex (p < 0.001), education levels (p < 0.001), and professional titles (p = 0.018) of participants had significant difference on the score of hospice care knowledge; education levels (p = 0.009) and professional titles (p = 0.016) of participants had significant difference on the score of hospice care attitudes.
    CONCLUSIONS: There were some misunderstandings about hospice care among healthcare providers and their attitudes towards hospice care were inactive. It\'s suggested that hospitals should carry out professional and systematic education courses to help healthcare providers understand hospice care correctly, and participate in hospice care services actively.
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  • 文章类型: Journal Article
    UNASSIGNED: The study explored the meaning of experiences within a family art therapy process among terminal cancer patients and their families.
    UNASSIGNED: Ten participants, including four terminal cancer patients currently admitted to the hospice ward at an inpatient hospice facility in S City and four caregiving family members, engaged in four cycles of family art therapy sessions. The sessions were conducted weekly or bi-weekly, and each lasted approximately 50 minutes.
    UNASSIGNED: Nine cross-case themes emerged \"feeling unfamiliar and intimidated by the idea of expressing my thoughts through art,\" \"trying to accept the present and positively overcome sadness,\" \"expressing hope through emotional bonds during the process of parting,\" \"conveying and preserving personal and family beliefs,\" \"feeling upset about family imbalances caused by deteriorating health,\" \"valuing togetherness and striving for stability amidst the current challenges,\" \"art as a medium of empowerment for patients and facilitator of family conversations, even amidst difficulties,\" \"sharing a range of emotions-not just joy, but concerns and sorrow-through art,\" and \"gratitude for art\'s role in improving family communication and connection through artwork.
    UNASSIGNED: The findings of this study lead to several conclusions. First, patients and their families faced psychological challenges when confronted with impending death, yet they strove to remain optimistic by seeking meaning in their struggles. Second, families practiced open and expressive communication, sharing a spectrum of complex emotions with one another. Third, even as the patient\'s condition worsened, resulting in family fatigue, their support and cohesion strengthened.
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  • 文章类型: Case Reports
    简介:姑息治疗(PC)药剂师是PC团队不可或缺的成员。已经定义了基本角色,最近为临终关怀和PC药剂师开发了委托专业活动(EPA)。病例描述:我们回顾了四个不同的复杂患者病例,其中专业PC药剂师与跨学科团队合作解决整个患者的痛苦。通过案例系列,我们强调了HAPC药剂师EPA在整个连续护理过程中的各个组成部分。案例管理,结果,结论:通过案例系列讨论,我们带来了PC药剂师在药物治疗咨询中的EPA,评估和优化药物治疗,症状管理,开药,参与护理目标讨论,与跨学科团队合作,根据患者和家庭价值观管理药物治疗,预后,和护理计划。我们还强调了PC药剂师对科学进步的重要性。
    Introduction: Palliative care (PC) pharmacists are an integral member of the PC team. Essential roles have been defined and entrustable professional activities (EPAs) have been recently developed for hospice and PC pharmacists. Case Description: We review four different complex patient cases where the specialist PC pharmacist worked with the interdisciplinary team to address whole patient suffering. Through the case series, we highlight the various components of HAPC pharmacist EPAs across the continuum of care. Case Management, Outcome, and Conclusion: Through the case series discussion, we brought to light PC pharmacists\' EPAs in pharmacotherapy consultation, assessing and optimizing medication therapy, symptom management, deprescribing, participating in goals-of-care discussions, managing medication therapy in the withdrawal of life-sustaining therapy in collaboration with interdisciplinary team in alignment with patient and family values, prognosis, and plan of care. We also emphasized the importance of PC pharmacists contributing to the advancement of science.
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  • 文章类型: Case Reports
    背景:生命末期患者的重度抑郁症的发展往往得不到诊断,因为在这一独特的患者群体中,很难与准备性悲伤和/或活动性谵妄区分开来。如果克服了适当诊断的初步障碍,正确选择和调整药物治疗可能相当困难。许多公认的抗抑郁药需要四到五周才能获得最大疗效(对于生命末期的患者来说,这可能是一个很长的滴定期)。有各种禁忌症\'合并慢性病患者(特别是心血管疾病患者),或者可能只是无效。案例:我们提供了一个在临终关怀中招募的终末期心力衰竭患者中严重治疗抵抗抑郁症的案例报告。讨论:我们讨论了单剂量外消旋氯胺酮静脉输注的潜在用途,以减少与抑郁症相关的临终痛苦。尽管在这些患者中使用氯胺酮的理论禁忌症,在某种程度上,由于其拟交感神经的次要作用。
    Background: The development of major depressive disorder in patients at end of life often goes undiagnosed, as it is difficult to distinguish from preparatory grief and/or hypoactive delirium in this unique patient population. If this preliminary barrier of appropriate diagnosis is overcome, it can be quite difficult to properly select and adjust pharmacological therapy. Many well-established antidepressants take four to five weeks for maximal effectiveness (which may be far too long of a titration period for patients at end of life), have various contraindications to patients\' comorbid chronic conditions (particularly patients with cardiovascular disease), or may simply be ineffective. Case: We present a case report of severe treatment-resistant depression in an end-stage heart failure patient enrolled in hospice care. Discussion: We discuss the potential use of a single low-dose intravenous racemic ketamine infusion to reduce end-of-life suffering related to depression, despite the theoretical contraindication of ketamine use in such patients, in part, due to its sympathomimetic secondary effect.
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