psychosocial support systems

社会心理支持系统
  • 文章类型: Journal Article
    背景:支持干预通常同时解决自我护理和应对问题。使用不同的方法来促进自我护理和应对,因此明确干预效果可以指导临床医生和研究人员提供有益的干预措施。
    目的:比较两种模型,以确定自我护理改善应对还是应对改善自我护理。
    方法:我们使用了在纳入一项随机对照试验时获得的248名护理人员的横断面数据,测试了支持干预的有效性。衡量护理人员需求的量表的因子得分,自我照顾,应对,压力评估,和心理健康来自探索性因素分析。使用因子得分作为每个构建体的估计值来分析结构方程模型。为了控制可能的虚假影响护理人员的年龄,性别,与病人的关系,收入充足性包括在内。
    结果:两种模型都与数据兼容,但是自我护理模式比应对模式强。该模型具有不显著的卡方和很好的数据拟合,χ2(4,N=248)=2.64,p=0.62。自我护理模型解释的心理健康差异百分比为54%,42%用于压力评估,10%用于回避应对,6%为积极应对。在应对模型中,压力评估的解释方差下降到33%,回避应对下降到0%,积极应对下降到3%。
    结论:自我护理模式最强,说明自我护理可以减轻压力,促进应对,改善心理健康。这些结果表明,与旨在改善应对的干预措施相比,促进自我护理在改善心理健康方面可能更有效。
    BACKGROUND: Support interventions often address both self-care and coping. Different approaches are used to promote self-care and coping so clarifying the intervention effect can guide clinicians and researchers to provide interventions that achieve benefit.
    OBJECTIVE: To compare two models to determine whether self-care improves coping or coping improves self-care.
    METHODS: We used cross-sectional data from 248 caregivers obtained at enrollment into a randomized controlled trial testing the efficacy of a support intervention. Factor scores for scales measuring caregiver demand, self-care, coping, stress appraisal, and mental health were derived from exploratory factor analysis. Structural equation models were analyzed using the factor scores as estimates of each construct. To control possible spurious effects caregiver age, gender, relationship with the patient, and income adequacy were included.
    RESULTS: Both models were compatible with the data, but the self-care model was stronger than the coping model. That model had a non-significant chi square and an excellent fit to the data, χ2(4, N = 248) = 2.64, p = .62. The percentage of variance explained by the self-care model was 54 % for mental health, 42 % for stress appraisal, 10 % for avoidance coping, and 6 % for active coping. In the coping model the explained variance of stress appraisal dropped to 33 %, avoidance coping dropped to 0 %, and active coping dropped to 3 %.
    CONCLUSIONS: The self-care model was strongest, illustrating that self-care decreases stress, promotes coping, and improves mental health. These results suggest that promoting self-care may be more effective in improving mental health than interventions aimed at improving coping.
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  • 文章类型: Journal Article
    照顾心力衰竭患者会在情感和身体上造成伤害。从事自我护理可以减轻压力并改善非正式护理人员的健康状况。我们进行了一项随机对照试验,测试虚拟健康教练干预的有效性,与健康信息相比,关于自我照顾,压力,应对,和心力衰竭护理人员的健康状况。
    我们招募了250名护理人员,每周至少提供8小时的护理,报告自理能力差,能够使用技术。所有人都收到了平板电脑设备,该设备编程有网站,提供有关心力衰竭和护理的审核信息。一半的人被随机分配,实际上在6个月内与健康教练一起接受了10次同步支持会议。关于自我护理的数据,压力,应对,在基线和3个月和6个月时收集健康状况.线性混合效应模型用于评估时间和治疗组之间的相互作用。
    样本以女性居多(85.2%),白色(62.2%),配偶(59.8%),55±13.6岁。许多人全职工作(41.8%)。他们每天照顾患者8小时,中位数为3.25年。在意向治疗分析中,在自我护理维持(5.05±1.99;P=0.01)和应激(-4.50±1.00;P<0.0001)的主要结局方面,接受健康教练干预的护理人员在6个月期间的统计学和临床改善均高于对照组.自我保健忽视显著下降(-0.65±0.32;P=0.04),但当对结果进行多重比较调整后,治疗组之间的差异消失了.心理健康状况在统计学上有所改善,但在临床上没有改善(3.35±1.61;P=0.04)。两组的积极应对均有改善,但干预组的积极应对效果不明显(P=0.10)。身体健康状况无变化(P=0.27)。
    这种虚拟健康教练干预措施有效地改善了心力衰竭护理人员的自我护理和压力。
    UNASSIGNED: Caring for someone with heart failure takes an emotional and physical toll. Engaging in self-care may decrease stress and improve the health of informal caregivers. We conducted a randomized controlled trial testing the efficacy of a virtual health coaching intervention, compared with health information alone, on the self-care, stress, coping, and health status of heart failure caregivers.
    UNASSIGNED: We enrolled 250 caregivers providing care at least 8 hours/week, reporting poor self-care, and able to use technology. All received a tablet device programmed with websites providing vetted information on heart failure and caregiving. Half were randomized to also receive 10 synchronous support sessions virtually with a health coach over 6 months. Data on self-care, stress, coping, and health status were collected at baseline and 3 and 6 months. Linear mixed-effects models were used to assess the interaction between time and treatment group.
    UNASSIGNED: The sample was majority female (85.2%), White (62.2%), spouses (59.8%), and aged 55±13.6 years. Many were employed full time (41.8%). They had been caring for the patient 8 hours/day for a median of 3.25 years. In the intention-to-treat analysis, caregivers who received the health coach intervention had statistically and clinically greater improvement across 6 months compared with the control group in the primary outcome of self-care maintenance (5.05±1.99; P=0.01) and stress (-4.50±1.00; P<0.0001). Self-care neglect declined significantly (-0.65±0.32; P=0.04), but the difference between the treatment arms disappeared when the results were adjusted for multiple comparisons. Mental health status improved statistically but not clinically (3.35±1.61; P=0.04). Active coping improved in both groups but not significantly more in the intervention group (P=0.10). Physical health status was unchanged (P=0.27).
    UNASSIGNED: This virtual health coaching intervention was effective in improving self-care and stress in heart failure caregivers.
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  • 文章类型: Journal Article
    目的:当孕妇被诊断患有癌症时,她面临着复杂和独特的挑战,同时导航产科和肿瘤护理。尽管通常是怀孕期间被诊断患有癌症(CDP)的妇女的主要支持,对他们伴侣的经历知之甚少。我们对澳大利亚诊断为CDP的女性伴侣的经验进行了深入的探索。
    方法:对在澳大利亚接受CDP治疗的女性伴侣进行半结构化访谈。访谈探讨了合作伙伴参与决策和与卫生专业人员的沟通以及他们自己的应对经验。数据进行了主题分析。
    结果:分析了来自12名被诊断为CDP的女性伴侣(N=12)的访谈数据。确定了与合作伙伴相关的两个独特主题:“合作伙伴需要支持以适应不断变化的角色和额外负担”和“将夫妻视为团队促进代理和应对,但是合作伙伴的需求排在第二位。
    结论:被诊断为CDP的女性的伴侣通常会经历独特的压力源,并且在包括医疗宣传在内的多个领域中先前确立的角色发生了重大转变。家庭协调和育儿。合作伙伴的应对方式与被诊断为CDP的女性的应对方式息息相关。将合作伙伴纳入治疗决定和沟通,考虑到伴侣的幸福以及CDP女人的幸福,可能会支持合作伙伴。反过来,这可能会提高被诊断为CDP的女性从伴侣那里获得支持的质量.
    OBJECTIVE: When a pregnant woman is diagnosed with cancer, she faces complex and unique challenges while navigating both obstetric and oncological care. Despite often being the primary support for women diagnosed with cancer during pregnancy (CDP), little is known about the experiences of their partners. We undertook an in-depth exploration of the experiences of partners of women diagnosed with CDP in Australia.
    METHODS: Semi-structured interviews were conducted with partners of women diagnosed with CDP treated in Australia. Interviews explored partners\' inclusion in decision making and communication with health professionals and their own coping experiences. Data were analysed thematically.
    RESULTS: Data from interviews with 12 male partners (N = 12) of women diagnosed with CDP were analysed. Two unique themes relevant to partners were identified: \'Partners require support to adjust to changing roles and additional burdens\' and \'Treating the couple as a team facilitates agency and coping, but partners\' needs are placed second by all\'.
    CONCLUSIONS: Partners of women diagnosed with CDP commonly experience unique stressors and a substantial shift in previously established roles across multiple domains including medical advocacy, household coordination and parenting. Partners\' coping is interlinked with how the woman diagnosed with CDP is coping. Inclusion of partners in treatment decisions and communications, and considering partners\' wellbeing alongside that of the woman with CDP, is likely to be supportive for partners. In turn, this is likely to enhance the quality of support that women diagnosed with CDP receive from their partners.
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  • 文章类型: Journal Article
    关于难民和移民社区内的心理健康和社会心理支持(MHPSS)干预措施的研究越来越侧重于评估实施情况,包括确定促进服务保留的策略。本研究考察了参与者特征之间的关系,研究设置,使用EntreNosotras可行性试验的数据,以及干预未完成的原因,针对难民的基于社区的MHPSS干预,移民,并在厄瓜多尔和巴拿马接待旨在促进社会心理健康的社区妇女。在225名注册妇女中,大约一半完成了干预,不同研究地点的完成率和缺勤原因各不相同。年龄较大的参与者,因为家庭原因移民,花了更多的时间在学习社区,并住在巴拿马(vs.厄瓜多尔)更有可能完成干预。研究结果表明,有必要调整MHPSS干预措施,以考虑与目标人群接触的持续时间,并探索不同的交付方式,包括技术和蜂窝设备作为与参与者互动的可靠或不可靠来源的作用。更年轻,新来的妇女至关重要,因为他们的完成率较低。策略,如咨询调度偏好,提供现场儿童保育,将MHPSS干预措施与其他计划相结合可以提高干预出勤率。
    Research on mental health and psychosocial support (MHPSS) interventions within refugee and migrant communities has increasingly focused on evaluating implementation, including identifying strategies to promote retention in services. This study examines the relationship between participant characteristics, study setting, and reasons for intervention noncompletion using data from the Entre Nosotras feasibility trial, a community-based MHPSS intervention targeting refugee, migrant, and host community women in Ecuador and Panama that aimed to promote psychosocial wellbeing. Among 225 enrolled women, approximately half completed the intervention, with varying completion rates and reasons for nonattendance across study sites. Participants who were older, had migrated for family reasons, had spent more time in the study community, and were living in Panamá (vs. Ecuador) were more likely to complete the intervention. The findings suggest the need to adapt MHPSS interventions to consider the duration of access to the target population and explore different delivery modalities including the role of technology and cellular devices as reliable or unreliable source for engaging with participants. Engaging younger, newly arrived women is crucial, as they showed lower completion rates. Strategies such as consulting scheduling preferences, providing on-site childcare, and integrating MHPSS interventions with other programs could enhance intervention attendance.
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  • 文章类型: Journal Article
    背景:该协议描述了myTBI研究,旨在:(1)为创伤性脑损伤(TBI)患者开发在线心理教育平台,他们的家庭成员/照顾者,和医护人员在不同损伤阶段改善对TBI的心理社会适应(急性,急性后,和慢性),(2)进行疗效评估,可接受性,和可行性。
    方法:将使用三阶段混合方法研究设计。该研究将在西澳大利亚州的四个急性后社区神经康复和残疾支持服务中进行。阶段1(访谈和调查)将使用消费者驱动的定性方法:(1)了解患有TBI的人在关键阶段的恢复经验和心理社会挑战(急性,急性后,和慢性),(2)确定所需的社会心理支持领域,以告知心理教育平台的发展。阶段2(开发)将使用德尔菲专家共识方法:(1)确定最终的心理教育模块,(2)对myTBI平台进行验收测试。最后,阶段3(评估)将是一项随机的阶梯式楔形试验,以评估疗效,可接受性,和可行性。结果将在基线测量,干预后,后续行动,在服务最后出院时。将使用多层次混合效应建模来分析结果的变化。将进行后续调查以评估可接受性和可行性。
    背景:道德批准由北大都会卫生服务心理健康研究道德与治理办公室(RGS0000005877)授予。研究结果将与临床医生相关,研究人员,以及正在寻求具有成本效益的解决方案的组织,在整个恢复过程中为患有TBI的个人提供持续的心理教育和支持。
    背景:ACTRN12623000990628。
    BACKGROUND: This protocol describes the myTBI study which aims to: (1) develop an online psychoeducation platform for people with traumatic brain injury (TBI), their family members/caregivers, and healthcare staff to improve psychosocial adjustment to TBI across different phases of injury (acute, postacute, and chronic), and (2) undertake an evaluation of efficacy, acceptability, and feasibility.
    METHODS: A three-stage mixed-methods research design will be used. The study will be undertaken across four postacute community-based neurorehabilitation and disability support services in Western Australia. Stage 1 (interviews and surveys) will use consumer-driven qualitative methodology to: (1) understand the recovery experiences and psychosocial challenges of people with TBI over key stages (acute, postacute, and chronic), and (2) identify required areas of psychosocial support to inform the psychoeducation platform development. Stage 2 (development) will use a Delphi expert consensus method to: (1) determine the final psychoeducation modules, and (2) perform acceptance testing of the myTBI platform. Finally, stage 3 (evaluation) will be a randomised stepped-wedge trial to evaluate efficacy, acceptability, and feasibility. Outcomes will be measured at baseline, postintervention, follow-up, and at final discharge from services. Change in outcomes will be analysed using multilevel mixed-effects modelling. Follow-up surveys will be conducted to evaluate acceptability and feasibility.
    BACKGROUND: Ethics approval was granted by North Metropolitan Health Service Mental Health Research Ethics and Governance Office (RGS0000005877). Study findings will be relevant to clinicians, researchers, and organisations who are seeking a cost-effective solution to deliver ongoing psychoeducation and support to individuals with TBI across the recovery journey.
    BACKGROUND: ACTRN12623000990628.
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  • 文章类型: Journal Article
    背景:需要对法国的非法语移民进行可行性研究,以告知适当的社会心理干预程序的适应。目标:测试针对巴黎大都市地区讲阿拉伯语的移民的WHO问题管理加(PM)干预方案。方法:在2019年至2021年之间,我们从三个住宿中心招募了参与者,这些中心接收了经历社会和经济困难的寻求庇护者或移民。经历心理困扰的参与者与训练有素的助手进行了五次PM+会议。通过与8名参与者的15次访谈评估了可行性,4帮助者,和3名学习主管。面试主题涵盖了PM+的一般实施和每个组件。我们还试图了解交付问题,并收集改进建议。使用演绎方法对数据进行主题分析。结果:我们发现PM+的实施是可行的,参与者主要有积极的反应,助手和研究人员。所有干预成分都被认为是有益的,呼吸练习被认为易于实施且经常持续。选择问题和解决问题的策略被描述为具有挑战性的执行。该计划的主要优势是来自助手的心理社会支持和与助手的融洽以及使用母语。然而,我们观察到在某些情况下需要补充或更高强度的心理支持。调查结果还强调了解决提供PM+的非专业助手中的困扰的重要性。最后,建议在协议中增加对社会资源的地方指导。结论:PM+是受欢迎且可行的,随着文化调整和增加移民获得社区资源的机会。
    世界卫生组织的问题管理加(PM+)干预被认为是一个可行的和可接受的干预措施,在巴黎大都市地区讲阿拉伯语的移民,参与者报告改善了心理健康结果和对该计划的满意度。该计划的主要优势是来自非专业助手的心理社会支持和融洽关系以及使用母语。这项研究记录了在范围和长度上扩大PM+的感知好处,建议需要为非专业助手提供额外的心理健康服务,并强调在向面临社会和经济困难的寻求庇护者或移民提供心理健康服务时考虑文化和语言因素的重要性。
    ABSTRACTBackground: Feasibility studies with non-French speaking migrants in France are needed to inform appropriate adaptation of psychosocial intervention procedures.Objective: To test the WHO Problem Management Plus (PM+) intervention protocol for Arabic-speaking migrants in the Paris metropolitan region.Methods: Between 2019 and 2021 we recruited participants from three accommodation centres receiving asylum seekers or migrants experiencing social and economic difficulties. Participants experiencing psychological distress underwent five PM + sessions with trained helpers. Feasibility was evaluated through 15 interviews with 8 participants, 4 helpers, and 3 study supervisors. Interview topics covered PM + implementation in general and for each component. We also sought to understand problems with delivery and gathered suggestions for improvement. Data were analysed thematically using a deductive approach.Results: We found implementation of PM + to be feasible, with predominantly positive reactions from participants, helpers and study staff. All intervention components were considered beneficial, with breathing exercises considered easy to implement and often sustained. Selection of problems and strategies to address them were described as challenging to execute. Psychosocial support from and rapport with helpers and the use of the native language were considered key strengths of the programme. However, we observed the need for complementary or higher intensity psychological support in some cases. Findings also highlighted the importance of addressing distress among non-specialist helpers delivering PM + . Finally, local guidance to social resources were suggested to be added in the protocol.Conclusion: PM + was well-liked and feasible, with cultural adjustments and increased access to community resources for migrants needed.
    The World Health Organization Problem Management Plus (PM+) intervention was found to be a feasible and acceptable intervention for Arabic-speaking migrants in the Paris metropolitan region, with participants reporting improved mental health outcomes and satisfaction with the programme.The features of psychosocial support from and rapport with non-specialist helpers delivering PM + and the use of the native language were considered key strengths of the programme.The study documented perceived benefits of expanding PM + in scope and length, suggests the need for additional mental health services for non-specialist helpers, and highlights the importance of considering cultural and linguistic factors when providing mental health services to asylum seekers or migrants experiencing social and economic difficulties.
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  • 文章类型: Randomized Controlled Trial
    心理教育干预(PEIs),提供信息、情感和社会心理支持,可以解决青少年和年轻成年癌症患者的护理人员未满足的需求。
    为了探索即时消息传递的PEI对焦虑的影响,抑郁症,生活质量(QOL),并应对并确定干预措施是否减少了护理人员未满足的需求。
    这项使用意向治疗方案的随机临床试验于2022年4月1日至9月14日在中国一家三级癌症医院进行,包括使用便利抽样招募的15至39岁被诊断患有癌症的患者的护理人员。
    使用随机区组方案将照顾者1:1分配给干预组或对照组。干预组接受为期5周的PEI和常规护理,而对照组仅接受常规护理。PEI是通过即时消息应用程序通过文章和调用传递的。
    主要结果是护理人员焦虑和抑郁水平的变化,分别使用7项广义焦虑症量表和患者健康问卷9进行测量。次要结果是护理人员生活水平的变化,应对,和未满足的需求。
    在160名参与者中,92(57.5%)为男性;平均(SD)年龄为40.27(8.33)岁。与对照组相比,干预组的焦虑严重程度(B=-3.231;95%CI,-4.746至-1.716;P<.001)和抑郁严重程度(B=-3.253;95%CI,-5.052至-1.454;P<.001)显着降低,生活质量下降幅度较小(B=13.574;95%CI,0.488-26.661;P=.04),干预后,未满足的需求减少幅度更大(B=-12.136;95%CI,-18.307至-5.965;P<.001)。基线后12周,干预组仅在焦虑严重程度方面表现出显著更大的降低(B=-1.890;95%CI,-3.382~-0.397;P=0.01).
    在这项由移动即时消息传递的PEI的随机临床试验中,护理人员未满足的需求,焦虑,与对照组相比,干预组干预后立即抑郁显著下降,生活质量下降速度显著减慢。基线后12周观察到对焦虑的持续影响。
    中国临床试验注册中心标识符:ChiCTR2200055951。
    UNASSIGNED: Psychoeducational interventions (PEIs), which provide both information and emotional and psychosocial support, may address the unmet needs of the caregivers of adolescent and young adult patients with cancer.
    UNASSIGNED: To explore the effects of an instant messaging-delivered PEI on anxiety, depression, quality of life (QOL), and coping and determine whether the intervention reduces caregivers\' unmet needs.
    UNASSIGNED: This randomized clinical trial using an intention-to-treat protocol was conducted from April 1 to September 14, 2022, in a tertiary cancer hospital in China and included caregivers of patients diagnosed with cancer at age 15 to 39 years recruited using convenience sampling.
    UNASSIGNED: Caregivers were allocated 1:1 using a randomized block scheme to the intervention or control group. The intervention group received a 5-week PEI and usual care, whereas the control group received only usual care. The PEI was delivered through articles and calls through an instant messaging application.
    UNASSIGNED: The primary outcomes were changes in the levels of caregivers\' anxiety and depression, measured using the 7-Item Generalized Anxiety Disorder Scale and the Patient Health Questionnaire 9, respectively. The secondary outcomes were changes in the levels of caregivers\' QOL, coping, and unmet needs.
    UNASSIGNED: Of the 160 participants, 92 (57.5%) were male; mean (SD) age was 40.27 (8.33) years. Compared with the control group, the intervention group had significantly greater reduction in severity of anxiety (B = -3.231; 95% CI, -4.746 to -1.716; P < .001) and depression (B = -3.253; 95% CI, -5.052 to -1.454; P < .001), smaller reduction in QOL (B = 13.574; 95% CI, 0.488-26.661; P = .04), and greater reduction in unmet needs (B = -12.136; 95% CI, -18.307 to -5.965; P < .001) after the intervention. Twelve weeks after baseline, the intervention group demonstrated a significantly greater reduction only in severity of anxiety (B = -1.890; 95% CI, -3.382 to -0.397; P = .01).
    UNASSIGNED: In this randomized clinical trial of a mobile instant messaging-delivered PEI, caregivers\' unmet needs, anxiety, and depression decreased significantly and QOL declined at a significantly slower rate immediately after the intervention in the intervention group compared with the control group. A sustained effect on anxiety was observed 12 weeks after baseline.
    UNASSIGNED: Chinese Clinical Trial Registry identifier: ChiCTR2200055951.
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  • 文章类型: Journal Article
    使用任务转移方法的基于社区的社会心理支持小组(CB-PSS)干预措施非常适合在低收入和中等收入国家提供文化上适当的服务。然而,必须考虑背景障碍和促进者,以有效地调整干预措施,特别是考虑到COVID-19大流行带来的挑战。我们探索障碍,主持人,以及与实施CB-PSS团体干预相关的心理社会变化,由当地非专业提供者向Quibdó受冲突影响的成年人提供干预,哥伦比亚,使用面对面和远程模式。对来自参与者的25次个人访谈和涉及工作人员的焦点小组讨论的数据进行了分析,包括7名社区心理社会代理人促进者和2名心理健康专业监督员。分析使用基于描述性现象学的主题方法来探索参与者和工作人员在实施过程中的生活经验。参加面对面方式的参与者受到工作和家庭责任竞争以及COVID-19大流行造成的干扰等因素的影响。远程模式的参与者面临着互联网连接不稳定的挑战,暴雨造成的经常性停电,分心,中断,以及家人和同事对保密的威胁。尽管面临这些挑战,数据揭示了关键的上下文促进者,包括促进者的社区知识和传统做法的整合,例如comadreo(非正式会谈和聚会)。受访者表示,CB-PSS小组促进了更牢固的社区关系,并为参与者提供了交流同伴支持的机会,练习领导技能,根据同龄人的经验培养解决问题的能力,增强情绪调节技能。讨论了面对面和远程模式之间的差异和相似之处,从业者和决策者的关键考虑因素也是如此。
    Community-based psychosocial support group (CB-PSS) interventions using task-shifting approaches are well suited to provide culturally appropriate services in low- and middle-income countries. However, contextual barriers and facilitators must be considered to tailor interventions effectively, particularly considering the challenges introduced by the COVID-19 pandemic. We explore the barriers, facilitators, and psychosocial changes associated with implementing a CB-PSS group intervention delivered by local lay providers to conflict-affected adults in Quibdó, Colombia, using both in-person and remote modalities. Data were analyzed from 25 individual interviews with participants and a focus group discussion involving staff members, including 7 community psychosocial agent facilitators and 2 mental health professional supervisors. The analysis used a thematic approach grounded in a descriptive phenomenology to explore the lived experiences of participants and staff members during implementation. Participant attendance in the in-person modality was compromised by factors such as competing work and family responsibilities and disruption caused by the COVID-19 pandemic. Participants in the remote modality faced challenges concerning unstable Internet connectivity, recurrent power outages caused by heavy rain, distractions, interruptions, and threats to confidentiality by family and coworkers. Despite these challenges, data revealed key contextual facilitators, including the community-based knowledge of facilitators and integration of traditional practices, such as the comadreo (informal talks and gatherings). Respondents shared that the CB-PSS groups promoted stronger community relationships and created opportunities for participants to exchange peer support, practice leadership skills, develop problem-solving skills based on peers\' experiences, and enhance emotional regulation skills. Differences and similarities across in-person and remote modalities are discussed, as are key considerations for practitioners and policymakers.
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  • 文章类型: Randomized Controlled Trial
    目的:本研究旨在评估社区提供的社会心理支持视频对10至18岁儿童肿瘤患者对其疾病和治疗相关症状的态度的影响。
    方法:这项前瞻性随机对照研究对52名年龄在10至18岁之间的儿科肿瘤患者进行。数据是使用信息表格收集的,儿童对疾病的态度量表(CATIS),和纪念症状评估量表(MSAS)。当对照组接受标准护理时,干预组接受社区在一周开始时提供的心理社会支持视频,持续1个月.
    结论:这项研究表明,实施的干预措施对儿科患者的症状管理有积极的影响,心理健康,以及对他们疾病的态度。考虑到今天的青少年在技术时代长大,对技术和媒体的使用表现出极大的兴趣,很明显,社会心理支持视频可能会吸引这个年龄组的注意力。为其他有类似健康问题的儿童制作和分享类似内容可能会对儿科患者的心理社会健康结果产生积极影响。
    结论:已经发现,将社区支持的社会心理支持纳入儿科肿瘤患者的护理中是有益的。出于这个原因,建议护士积极参与制定心理社会支持策略,并带头创建和提供内容。
    OBJECTIVE: This study aimed to evaluate the impact of psychosocial support videos provided by the community on the attitudes of pediatric oncology patients aged between 10 and 18 years toward their illness and treatment-related symptoms.
    METHODS: This prospective randomized controlled study was conducted with 52 pediatric oncology patients aged between 10 and 18. The data were collected using the Information Form, Child Attitude Towards Illness Scale (CATIS), and Memorial Symptom Assessment Scale (MSAS). When the control group received standard care, the intervention group received psychosocial support videos provided by the community at the beginning of the week for 1 month.
    CONCLUSIONS: This study suggests that the implemented intervention positively affected pediatric patients\' symptom management, psychological well-being, and attitudes toward their illness. Considering that today\'s adolescents have grown up in the age of technology and show great interest in technology and media use, it is clear that psychosocial support videos may attract the attention of this age group. Producing and sharing similar content for other children with similar health problems may positively affect the psychosocial health outcomes of pediatric patients.
    CONCLUSIONS: It has been found that it is beneficial to include community-supported psychosocial support in the nursing care of pediatric oncology patients. For this reason, it is recommended that nurses actively participate in developing psychosocial support strategies and take the lead in creating and making the content accessible.
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  • 文章类型: Journal Article
    背景:积极的健康行为(例如,锻炼,健康的饮食习惯,良好的睡眠卫生,治疗依从性)对于确保帕金森病(PD)患者的最佳症状管理和健康结局至关重要。虽然多种因素可能会影响对健康行为的参与,对社会控制的发生知之甚少,或关系伙伴试图影响和规范他人的行为,以及它在PD患者采用健康行为方面的潜在作用。
    方法:为了更好地了解所采用的社会控制尝试的类型,并开始探索社会控制尝试与行为反应之间的关联(例如,从事有针对性的健康行为,隐藏行为)对这些尝试,调查数据来自横截面,已婚/伴侣退伍军人诊断为特发性PD的初步研究(n=25)。参与者完成了自我报告的社会人口统计学指标,身心健康,关系运作,以及对积极和消极社会控制尝试的频率和行为反应。
    结果:尽管大多数人报告说他们的伴侣参与了积极的社会控制尝试,一半的人也报告了负面的尝试。双变量分析显示,一个人的伴侣更频繁的积极社会控制尝试与积极和消极的行为反应有关。消极的社会控制尝试与消极的行为反应有关。然而,当调整协变量时,积极的社会控制尝试与积极的行为反应有关,而与伴侣的负面社交交流(例如,一般冲突),而不是暴露于消极的社会控制尝试,与负面行为反应有关。
    结论:研究结果为社会控制和交流与健康行为之间的关系提供了初步证据,这可能会影响未来,充分有力的观察和干预研究,针对患有PD的个体及其关系伙伴的人际过程和健康行为。
    BACKGROUND: Positive health behaviors (e.g., exercise, healthy eating habits, good sleep hygiene, treatment adherence) are important in ensuring optimal symptom management and health outcomes among individuals living with Parkinson\'s disease (PD). While multiple factors may influence engagement in health behaviors, little is known about the occurrence of social control, or relationship partners\' attempts to influence and regulate another\'s behavior, and its potential role in the adoption of health behaviors among individuals with PD.
    METHODS: To better understand the types of social control attempts employed and begin to explore the association between social control attempts and behavioral responses (e.g., engage in the targeted health behavior, hide the behavior) to those attempts, survey data were drawn from a cross-sectional, pilot study of married/partnered Veterans diagnosed with idiopathic PD (n = 25). Participants completed self-reported measures of sociodemographics, physical and mental well-being, relationship functioning, and both the frequency of and behavioral responses to positive and negative social control attempts.
    RESULTS: Although the majority of individuals reported their partners engaged in positive social control attempts, half also reported negative attempts. Bivariate analyses revealed more frequent positive social control attempts from one\'s partner were related to both positive and negative behavioral responses, and negative social control attempts were related to negative behavioral responses. However, when adjusting for covariates, positive social control attempts were related to positive behavioral responses, while negative social exchanges with one\'s partner (e.g., general conflict), rather than exposure to negative social control attempts, were related to negative behavioral responses.
    CONCLUSIONS: Findings lend preliminary evidence of the relationship between social control and exchanges and health behavior that may inform future, adequately powered observational and intervention studies that target interpersonal processes and health behaviors among individuals living with PD and their relationship partners.
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