背景:患者参与和综合知识翻译(iKT)过程通过建立共识计划和研究中的有意义的伙伴关系来改善健康结果和护理体验。建立共识对于让不同的经验丰富的知识用户参与共同开发和支持一个解决方案至关重要,该解决方案不容易存在或不太理想。患者和护理人员为围绕医疗保健的决策建立共识提供了宝贵的见解,政策和研究。然而,尽管有新的证据,在建立共识的倡议中,患者的参与仍然很少.具体来说,我们的研究发现,患有慢性健康状况的青年及其照顾者缺乏机会参与就向成人护理过渡的指标/基准达成共识.为了弥合这一差距,并为我们与青年/护理人员建立共识的方法提供信息,本范围审查将综合有关患者和其他知识用户参与建立共识的医疗保健计划的文献范围.
方法:遵循乔安娜·布里格斯研究所的范围审查方法,发表的文献将在MEDLINE中搜索,EMBASE,CINAHL和PsycINFO数据库从成立到2023年7月。灰色文献将进行手工搜索。两名独立审稿人将分两个阶段确定文章的资格,第三审稿人解决了分歧。纳入的研究必须是在医疗保健背景下建立共识的研究,涉及患者参与策略。来自符合条件的研究的数据将被提取并以标准化形式绘制。将对抽象数据进行定量和描述性分析,根据具体的共识方法,以及患者参与模型和/或策略。
背景:本范围审查方案不需要伦理批准。审查过程和结果将与相关知识用户共享并由其提供信息。调查结果的传播还将包括同行评审的出版物和会议介绍。结果将为支持患者参与建立共识的医疗保健计划提供新的见解。
背景:https://osf.io/beqjr.
BACKGROUND: Patient engagement and integrated knowledge translation (iKT) processes improve health outcomes and care experiences through meaningful partnerships in consensus-building initiatives and research.
Consensus-building is essential for engaging a diverse group of experienced knowledge users in co-developing and supporting a solution where none readily exists or is less optimal. Patients and caregivers provide invaluable insights for building
consensus in decision-making around healthcare, policy and research. However, despite emerging evidence, patient engagement remains sparse within consensus-building initiatives. Specifically, our research has identified a lack of opportunity for youth living with chronic health conditions and their caregivers to participate in developing consensus on indicators/benchmarks for transition into adult care. To bridge this gap and inform our consensus-building approach with youth/caregivers, this scoping review will synthesise the extent of the
literature on patient and other knowledge user engagement in
consensus-building healthcare initiatives.
METHODS: Following the scoping review methodology from Joanna Briggs Institute, published
literature will be searched in MEDLINE, EMBASE, CINAHL and PsycINFO databases from inception to July 2023. Grey
literature will be hand-searched. Two independent reviewers will determine the eligibility of articles in a two-stage process, with disagreements resolved by a third reviewer. Included studies must be consensus-building studies within the healthcare context that involve patient engagement strategies. Data from eligible studies will be extracted and charted on a standardised form. Abstracted data will be analysed quantitatively and descriptively, according to specific consensus methodologies, and patient engagement models and/or strategies.
BACKGROUND: Ethics approval is not required for this scoping review protocol. The review process and findings will be shared with and informed by relevant knowledge users. Dissemination of findings will also include peer-reviewed publications and conference presentations. The results will offer new insights for supporting patient engagement in consensus-building healthcare initiatives.
BACKGROUND: https://osf.io/beqjr.