关键词: Interdisciplinary multidisciplinary neuropsychology occupational therapy physical therapy rehabilitation speech language pathology

Mesh : Humans Parkinson Disease Quality of Life Occupational Therapy Speech Therapy Disabled Persons

来  源:   DOI:10.3233/JPD-230117   PDF(Pubmed)

Abstract:
Parkinson\'s disease (PD) is a complex neurodegenerative disorder impacting everyday function and quality of life. Rehabilitation plays a crucial role in improving symptoms, function, and quality of life and reducing disability, particularly given the lack of disease-modifying agents and limitations of medications and surgical therapies. However, rehabilitative care is under-recognized and under-utilized in PD and often only utilized in later disease stages, despite research and guidelines demonstrating its positive effects. Currently, there is a lack of consensus regarding fundamental topics related to rehabilitative services in PD.
The goal of the international Parkinson\'s Foundation Rehabilitation Medicine Task Force was to develop a consensus statement regarding the incorporation of rehabilitation in PD care.
The Task Force, comprised of international multidisciplinary experts in PD and rehabilitation and people directly affected by PD, met virtually to discuss topics such as rehabilitative services, existing therapy guidelines and rehabilitation literature in PD, and gaps and needs. A systematic, interactive, and iterative process was used to develop consensus-based statements on core components of PD rehabilitation and discipline-specific interventions.
The expert-based consensus statement outlines key tenets of rehabilitative care including its multidisciplinary approach and discipline-specific guidance for occupational therapy, physical therapy, speech language pathology/therapy, and psychology/neuropsychology across all PD stages.
Rehabilitative interventions should be an essential component in the comprehensive treatment of PD, from diagnosis to advanced disease. Greater education and awareness of the benefits of rehabilitative services for people with PD and their care partners, and further evidence-based and scientific study are encouraged.
摘要:
背景:帕金森病(PD)是一种复杂的神经退行性疾病,影响日常功能和生活质量。康复在改善症状方面起着至关重要的作用,函数,生活质量和减少残疾,特别是考虑到缺乏疾病调节剂以及药物和手术疗法的局限性。然而,康复护理在PD中的认识不足和利用不足,并且通常仅在疾病后期使用,尽管研究和指导方针证明了它的积极作用。目前,就与PD康复服务有关的基本主题缺乏共识。
目的:国际帕金森基金会康复医学工作组的目标是就将康复纳入PD护理达成共识。
方法:特别工作组,由PD和康复方面的国际多学科专家以及直接受PD影响的人组成,几乎开会讨论康复服务等主题,PD现有的治疗指南和康复文献,差距和需求。一个系统的,互动式,和迭代过程用于制定关于PD康复和特定学科干预措施的核心组成部分的基于共识的声明。
结果:以专家为基础的共识声明概述了康复护理的主要原则,包括多学科方法和针对职业治疗的学科指导,物理治疗,语言病理学/治疗,以及所有PD阶段的心理学/神经心理学。
结论:康复干预措施应是PD综合治疗的重要组成部分,从诊断到晚期疾病。提高对PD患者及其护理伙伴的康复服务的益处的教育和认识,并鼓励进一步的循证和科学研究。
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