背景:尽管已知不等式,人们对遭受烧伤的土著和托雷斯海峡岛民儿童及其家人的负担和医疗保健经历知之甚少。
方法:Coolamon研究招募了父母和照顾者,他们的孩子(年龄<16岁)是土著和/或托雷斯海峡岛民儿童,并在澳大利亚四个州进行了烧伤。新南威尔士州(悉尼),北领地(达尔文),昆士兰(布里斯班,汤斯维尔)和南澳大利亚(阿德莱德),2015年至2018年。获得同意,护理人员在3、6、12和24个月时完成基线和随后的访谈。收集了有关伤害事件的数据,患者护理和安全,社会人口因素,健康相关生活质量(PedsQual),和心理困扰(凯斯勒K-5)。
结果:在208名参与者中,64%为男性;26%的年龄小于2岁,37%的年龄为2-4岁。最常见的烧伤机制是烫伤(37%),接触(33%)和火焰烧伤(21%),更严重的烧伤和火焰烧伤发生在农村和偏远地区。大多数照顾者认为他们的孩子的照顾是优秀或非常好(82%)。家庭痛苦,以K-5衡量,在24个月内有所减少,然而,这些变化并无统计学意义.虽然77%的护理人员报告说他们收到了足够的信息,18%的人报告说他们会想要更多,3%报告治疗前没有提供任何信息。父母描述了对有关他们可用的支持类型的信息的混合访问,比如住宿,饭菜,旅游或文化支持。
结论:来自该队列的数据提供了丰富的新信息,涉及从受伤到康复的原住民和托雷斯海峡岛民烧伤儿童的危险因素和护理。提供对适当需要的独特见解,文化安全护理。
BACKGROUND: Despite known inequalities, little is understood about the burden and healthcare experiences of Aboriginal and Torres Strait Islander children who sustain a burn injury and their families.
METHODS: The Coolamon Study recruited parents and carers whose children (aged <16 years) were Aboriginal and / or Torres Strait Islander children and had presented to burn units across four Australian states, New South Wales (Sydney), Northern Territory (Darwin), Queensland (Brisbane, Townsville) and South Australia (Adelaide), between 2015 and 2018. Consent was obtained and carers completed baseline and subsequent interviews at 3, 6, 12 and 24 months. Data were collected on the injury event, patient care and safety, sociodemographic factors, health related quality of life (PedsQual), and psychological distress (Kessler K-5).
RESULTS: Of the 208 participants, 64 % were male; 26 % were aged less than 2 years and 37 % aged 2-4 years. The most common burn mechanisms were scalds (37 %), contact (33 %) and flame burns (21 %), with more severe burns and flame burns occurring in rural and remote settings. Most carers rated their child\'s care as either excellent or very good (82 %). Family distress, measured by the K-5, lessened over the 24 months, however the changes were not statistically significant. While 77 % of carers reported that they received enough information, 18 % reported they would have liked more, and 3 % reported no information was provided before treatment. Parents described mixed access to information about the types of support available to them, such as accommodation, meals, travel or cultural support.
CONCLUSIONS: Data from this cohort provide rich new information about risk factors and care received from point of injury through to rehabilitation for Aboriginal and Torres Strait Islander children with burns, providing unique insights into what is needed for appropriate, culturally safe care.