focus group

焦点小组
  • 文章类型: Published Erratum
    [这更正了文章DOI:10.3389/fpubh.2023.1054015。].
    [This corrects the article DOI: 10.3389/fpubh.2023.1054015.].
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  • 文章类型: Journal Article
    背景:自我管理在治疗肌肉骨骼疼痛的临床实践指南中得到认可。在一项随机临床试验中,我们测试了基于人工智能的自我管理应用程序(self-BACK)作为常规护理的辅助手段的有效性,用于治疗转介专科护理的下背部和颈部疼痛患者.
    目的:本研究是一项过程评估,旨在探讨患者在临床实践中采用数字自我管理工具的自我反馈应用程序和专业医疗保健从业人员的参与和经验。
    方法:使用前12周的应用程序使用分析来探索患者对SELFBACK应用程序的参与度。在分配给SELFBACK干预的99名患者中,11名患者的目的性样本(年龄27-75岁,根据应用程序的使用情况,选择了8名女性)进行半结构化的个人访谈。对专业保健医生进行了两次焦点小组访谈(n=9)。访谈采用主题分析法进行分析。
    结果:近三分之一的患者从未访问过应用程序,三分之一是低用户。从与患者和医疗保健从业人员的访谈中确定了三个主题:(1)对应用程序的总体印象,患者讨论应用程序的界面和内容,报告了可用性问题,并描述了他们的应用使用情况;(2)应用的感知价值,患者和医疗保健从业人员描述了该应用程序的主要价值及其补充常规护理的潜力;以及(3)未来使用的建议,患者和医疗保健从业人员解决了他们认为将决定接受度的方面。
    结论:尽管应用的使用率相对较低,患者和卫生保健从业人员对采用基于应用程序的自我管理干预作为常规护理的附加措施来治疗腰背和颈部疼痛持积极看法.两者都描述了该应用程序可以通过提供可信赖的信息来使患者放心,从而授权他们自己采取行动。影响应用接受度和参与度的因素,例如内容相关性,剪裁,信任,和可用性属性,已确定。
    背景:ClinicalTrials.govNCT04463043;https://clinicaltrials.gov/study/NCT04463043。
    BACKGROUND: Self-management is endorsed in clinical practice guidelines for the care of musculoskeletal pain. In a randomized clinical trial, we tested the effectiveness of an artificial intelligence-based self-management app (selfBACK) as an adjunct to usual care for patients with low back and neck pain referred to specialist care.
    OBJECTIVE: This study is a process evaluation aiming to explore patients\' engagement and experiences with the selfBACK app and specialist health care practitioners\' views on adopting digital self-management tools in their clinical practice.
    METHODS: App usage analytics in the first 12 weeks were used to explore patients\' engagement with the SELFBACK app. Among the 99 patients allocated to the SELFBACK interventions, a purposive sample of 11 patients (aged 27-75 years, 8 female) was selected for semistructured individual interviews based on app usage. Two focus group interviews were conducted with specialist health care practitioners (n=9). Interviews were analyzed using thematic analysis.
    RESULTS: Nearly one-third of patients never accessed the app, and one-third were low users. Three themes were identified from interviews with patients and health care practitioners: (1) overall impression of the app, where patients discussed the interface and content of the app, reported on usability issues, and described their app usage; (2) perceived value of the app, where patients and health care practitioners described the primary value of the app and its potential to supplement usual care; and (3) suggestions for future use, where patients and health care practitioners addressed aspects they believed would determine acceptance.
    CONCLUSIONS: Although the app\'s uptake was relatively low, both patients and health care practitioners had a positive opinion about adopting an app-based self-management intervention for low back and neck pain as an add-on to usual care. Both described that the app could reassure patients by providing trustworthy information, thus empowering them to take actions on their own. Factors influencing app acceptance and engagement, such as content relevance, tailoring, trust, and usability properties, were identified.
    BACKGROUND: ClinicalTrials.gov NCT04463043; https://clinicaltrials.gov/study/NCT04463043.
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  • 文章类型: Journal Article
    电子烟营销暴露可能会影响年轻人中与电子烟相关的结果,但鲜为人知的是,哪些特定的广告功能会影响青少年的注意力,感知,和上诉。这项研究定性地检查了对电子烟幼稚的年轻人对不同电子烟广告特征的反应。
    我们在2021年进行了四个在线焦点小组,其中包括从未使用过电子烟的美国13-17岁(n=25)的全国样本。参与者查看并讨论了他们对不同的电子烟广告的反应,这些广告在包含广告功能方面有所不同,包括颜色,图像中的模型,针对吸烟者的文本声明,还有尼古丁警告标签.
    参与者被色彩鲜艳的广告所吸引,特别是在对比黑暗背景时。以模型为特色的广告引起了人们的注意,并减少了对产品有害的看法。评论表明对针对吸烟者的文本声明的反应不一。一方面,参与者认为带有指定“吸烟者”的文本的广告是针对老年人的。另一方面,从香烟到电子烟的“转换”文本导致一些人认为该产品是健康的,和某些隐含提到吸烟的文本(例如,\“没有气味\”)有可能吸引想要谨慎使用电子烟的年轻人。对警告的关注程度取决于警告大小以及警告与广告其余部分之间的颜色对比。
    研究结果表明,特定的电子烟广告功能在吸引年轻人的注意力和影响感知方面发挥着重要作用。需要更多的研究来研究潜在的公共卫生益处与以吸烟者为目标的文本声明的意外后果。
    UNASSIGNED: E-cigarette marketing exposure may influence vaping-related outcomes among youth, but less is known on which specific advertising features impact youth attention, perceptions, and appeal. This study qualitatively examines responses to different e-cigarette advertising features among e-cigarette-naïve youth.
    UNASSIGNED: We conducted four online focus groups in 2021 with a national U.S. sample of 13-17 year olds (n = 25) who had never used e-cigarettes. Participants viewed and discussed their reactions to different e-cigarette advertisements varying in the inclusion of ad features, including color, models in imagery, text claims targeting smokers, and the nicotine warning label.
    UNASSIGNED: Participants were attracted to ads with bright colors, particularly when contrasted against a dark background. Ads featuring models attracted attention and reduced perceptions that the product is harmful. Comments indicated mixed reactions to smoker-targeted text claims. On one hand, participants perceived ads with text that specified \"for smokers\" as targeting older adults. On the other hand, text referring to \"switching\" from cigarettes to e-cigarettes led to some perceptions that the product is healthy, and certain text that implicitly referred to smoking (e.g., \"no odor\") had the potential to appeal to youth who wanted to use e-cigarettes discreetly. The level of attention paid to warnings depended on warning size and the color contrast between the warning and the rest of the ad.
    UNASSIGNED: Findings suggest specific e-cigarette ad features play an important role in attracting youth attention and influencing perceptions. More research is needed on the potential public health benefits versus unintended consequences of smoker-targeted text claims.
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  • 文章类型: Journal Article
    背景:尽管有基于学校的人乳头瘤病毒(HPV)疫苗接种计划,疫苗覆盖率的差异仍然存在。HPV疫苗接受和吸收的障碍包括父母的态度,知识,信仰,以及系统层面的障碍。总共开发了3种干预措施来解决这些障碍:学校护士的面对面介绍,带有基于Web的信息和决策辅助工具的电子邮件提醒,和使用动机面试(MI)技术的电话提醒。
    目的:在这里,我们报告了旨在提高魁北克四年级学生父母对HPV疫苗的接受度和吸收的干预措施的发展和形成性评估,加拿大。
    方法:在2019年夏天,我们对干预措施进行了形成性评估,以评估干预措施的相关性,内容,和格式,并确定任何未满足的需求。我们与三年级学生和护士的家长进行了3次焦点小组讨论。采访被记录下来,转录,并使用NVivo软件(Lumivero)分析主题内容。护士接受了MI技术培训,我们使用事前问卷评估了对护士知识和技能的影响。对与培训有关的问卷数据进行了描述性定量分析。使用结果的比例进行比较。最后,我们使用迭代开发了一个病人决策辅助工具,以用户为中心的设计过程。迭代细化过程涉及来自父母的反馈,护士,和专家,以确保工具的相关性和有效性。评估方案和数据收集工具由魁北克研究伦理委员会(MP-20-2019-4655,2019年5月16日)批准。
    结果:数据收集于2019年4月至2021年3月进行。根据2019年6月3次焦点小组讨论的反馈(n=28),对面对面演示干预进行了一些更改。该项目招募的专家(n=27)和学校护士(n=29)赞赏其中有关疫苗接种的视觉和简化信息。2019年8月对学校护士进行MI培训的结果表明,护士的技能和知识有所增加(n=29)。参加网络课程的学校护士(n=24)填写了前测和后测问卷来评估他们的学习情况。在前测和后测问卷之间,评分提高了19%。经过专家咨询(n=3),基于网络的决策辅助工具的初稿和2019年夏季的最终版本之间进行了一些更改。焦点小组参与者(n=28),和父母在迭代过程中(n=5)。添加了有关HPV和疫苗的更多信息,和用户可以点击,如果需要更多的细节。
    结论:我们使用迭代过程开发并初步测试了3种干预措施。这些干预措施被认为可能有效地增加父母对HPV疫苗接种的知识和积极态度。最终,疫苗验收。未来的研究将在更大范围内评估这些干预措施的有效性。
    BACKGROUND: Despite the availability of school-based human papillomavirus (HPV) vaccination programs, disparities in vaccine coverage persist. Barriers to HPV vaccine acceptance and uptake include parental attitudes, knowledge, beliefs, and system-level barriers. A total of 3 interventions were developed to address these barriers: an in-person presentation by school nurses, an email reminder with a web-based information and decision aid tool, and a telephone reminder using motivational interviewing (MI) techniques.
    OBJECTIVE: Here we report on the development and formative evaluation of interventions to improve HPV vaccine acceptance and uptake among grade 4 students\' parents in Quebec, Canada.
    METHODS: In the summer of 2019, we conducted a formative evaluation of the interventions to assess the interventions\' relevance, content, and format and to identify any unmet needs. We conducted 3 focus group discussions with parents of grade 3 students and nurses. Interviews were recorded, transcribed, and analyzed for thematic content using NVivo software (Lumivero). Nurses received training on MI techniques and we evaluated the effect on nurses\' knowledge and skills using a pre-post questionnaire. Descriptive quantitative analyses were carried out on data from questionnaires relating to the training. Comparisons were made using the proportions of the results. Finally, we developed a patient decision aid using an iterative, user-centered design process. The iterative refinement process involved feedback from parents, nurses, and experts to ensure the tool\'s relevance and effectiveness. The evaluation protocol and data collection tools were approved by the CHU (Centre Hospitalier Universitaire) de Québec Research Ethics Committee (MP-20-2019-4655, May 16, 2019).
    RESULTS: The data collection was conducted from April 2019 to March 2021. Following feedback (n=28) from the 3 focus group discussions in June 2019, several changes were made to the in-person presentation intervention. Experts (n=27) and school nurses (n=29) recruited for the project appreciated the visual and simplified information on vaccination in it. The results of the MI training for school nurses conducted in August 2019 demonstrated an increase in the skills and knowledge of nurses (n=29). School nurses who took the web-based course (n=24) filled out a pretest and posttest questionnaire to evaluate their learning. The rating increased by 19% between the pretest and posttest questionnaires. Several changes were made between the first draft of the web-based decision-aid tool and the final version during the summer of 2019 after an expert consultation of experts (n=3), focus group participants (n=28), and parents in the iterative process (n=5). More information about HPV and vaccines was added, and users could click if more detail is desired.
    CONCLUSIONS: We developed and pilot-tested 3 interventions using an iterative process. The interventions were perceived as potentially effective to increase parents\' knowledge and positive attitudes toward HPV vaccination, and ultimately, vaccine acceptance. Future research will assess the effectiveness of these interventions on a larger scale.
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  • 文章类型: Journal Article
    许多国家都面临着医护人员短缺的问题。此外,医护人员正在经历许多压力源,导致心理问题,健康受损,并增加了离开工作场所的意愿。近年来,实施了不同的技术来减轻医护人员的工作量,如电子病人档案。机器人解决方案仍然相当罕见。为了帮助接受和实际使用机器人,其功能应符合用户的需求。
    在初步研究Care4All-Initial中,我们开发并现场测试了移动服务机器人在心理社会中的应用,痴呆症患者的多模式团体治疗。指导过程并评估可能的促进者和障碍,我们进行了一个反复发作的焦点小组,包括痴呆症患者,治疗师,专业护理人员以及来自不同学科的研究人员,以用户为中心的设计方法。焦点小组建议并审查了应用程序,并讨论了道德含义。我们以书面形式记录焦点小组讨论,并使用内容分析。
    焦点小组讨论了15个关于道德问题的不同主题,我们将其用作研究项目的框架:道德促进者尊重痴呆症患者的自主权及其在参与和数据共享方面的代理人。此外,机器人必须对治疗师和参与者有用。道德障碍是痴呆症患者或治疗师的欺骗和可能的伤害。焦点小组建议了32种不同的应用。我们实施了13个应用程序,这些应用程序集中在机器人与痴呆症患者的互动上,减轻了治疗师的工作量。通过利用现有的硬件和软件以及基于应用程序的构建来促进实现的应用程序。实施的障碍是由于硬件,软件,或不适合项目范围的应用程序。
    为了防止在痴呆症患者的集体治疗中使用机器人的障碍,机器人的应用程序必须开发足够的完美和安全的使用,机器人的使用不应引起刺激或激动,而是对其用户有意义和有用。为了促进发展足够的时间,钱,专业知识和规划至关重要。
    UNASSIGNED: Many countries are facing a shortage of healthcare workers. Furthermore, healthcare workers are experiencing many stressors, resulting in psychological issues, impaired health, and increased intentions to leave the workplace. In recent years, different technologies have been implemented to lighten workload on healthcare workers, such as electronic patient files. Robotic solutions are still rather uncommon. To help with acceptance and actual use of robots their functionalities should correspond to the users\' needs.
    UNASSIGNED: In the pilot study Care4All-Initial, we developed and field-tested applications for a mobile service robot in a psychosocial, multimodal group therapy for people with dementia. To guide the process and assess possible facilitators and barriers, we conducted a reoccurring focus group including people with dementia, therapists, professional caregivers as well as researchers from different disciplines with a user-centered design approach. The focus group suggested and reviewed applications and discussed ethical implications. We recorded the focus group discussions in writing and used content analysis.
    UNASSIGNED: The focus group discussed 15 different topics regarding ethical concerns that we used as a framework for the research project: Ethical facilitators were respect for the autonomy of the people with dementia and their proxies regarding participating and data sharing. Furthermore, the robot had to be useful for the therapists and attendees. Ethical barriers were the deception and possible harm of the people with dementia or therapists. The focus group suggested 32 different applications. We implemented 13 applications that centered on the robot interacting with the people with dementia and lightening the workload off the therapists. The implemented applications were facilitated through utilizing existing hard- and software and building on applications. Barriers to implementation were due to hardware, software, or applications not fitting the scope of the project.
    UNASSIGNED: To prevent barriers of robot employment in a group therapy for people with dementia, the robot\'s applications have to be developed sufficiently for a flawless and safe use, the use of the robot should not cause irritation or agitation, but rather be meaningful and useful to its users. To facilitate the development sufficient time, money, expertise and planning is essential.
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  • 文章类型: Journal Article
    目的:视力障碍对日常生活构成重大挑战,尤其是在导航不熟悉的环境时,导致不平等和生活质量下降。本研究旨在通过调查和焦点小组,深入了解视障人士在体育相关背景下的需求和观点,并了解当前的技术解决方案是否满足了他们的需求。
    材料和方法:要做到这一点,从焦点小组和访谈中收集的意见与文献中发现的技术解决方案进行了比较。由于发现了许多未满足的需求,协会和组织的参与者被要求确定开发机器人指南的关键特征.结果强调了提供准确和个性化帮助的易于使用的指南的重要性。与会者对复杂环境中的物体识别和导航等高级功能表达了强烈的愿望,以及适应用户的速度,同时提供必要的安全功能,以确保高水平的自主性。
    结果:这项研究是技术进步与视障人士需求之间的桥梁,为一个更容易接近和包容的社会做出贡献。通过解决视障人士面临的独特挑战和定制技术来满足他们的需求,这项研究为缩小差距、提高社区的独立性和生活质量迈出了重要一步。
    结论:随着技术的不断进步,它有可能成为打破障碍和培育一个每个人的世界的强大工具,不管他们的视觉能力,可以自信和轻松地驾驭世界。
    包容性设计:认识到纳入视障人士的独特要求和观点的重要性,可以指导康复技术和服务的发展,确保他们有效支持日常活动,积极参与体育和体育活动。量身定制的辅助技术:了解视障人士在辅助技术方面的特定需求,如可靠的机器人指南和基本特征,可以告知康复辅助设备的设计和定制,以增强机动性和独立性。有前途的技术:探索像Aira这样有前途的技术,做我的眼睛,RoboCart,Wayband可以激发将这些创新整合到康复计划中,促进更好的方向,移动性,以及视觉障碍人士的可及性。继续研究和开发:强调持续研究和开发努力的必要性,强调推进康复解决方案的重要性,有效满足视障人士的独特需求,特别是在不熟悉的环境中导航。
    Purpose: Visual impairment poses significant challenges in daily life, especially when navigating unfamiliar environments, resulting in inequalities and reduced quality of life. This study aimed to gain an in-depth understanding of the needs and perspectives of visually impaired people in sports-related contexts through surveys and focus groups, and to understand whether their needs are being met by current technological solutions.
    Materials and methods: To accomplish this, opinions gathered from focus groups and interviews were compared to the technological solutions found in the literature. Since many unmet needs were identified, participants from associations and organizations were asked to identify key characteristics for the development of a robot guide. The results underscored the paramount importance of an easy-to-use guide that offers accurate and personalized assistance. Participants expressed a strong desire for advanced features such as object recognition and navigation in complex environments, as well as adaptability to the user\'s speed while providing the necessary safety features to ensure a high level of autonomy.
    Results: This research serves as a bridge between technological advances and the needs of the visually impaired, contributing to a more accessible and inclusive society. By addressing the unique challenges faced by the visually impaired individuals and tailoring technology to meet their needs, this study takes a significant step toward reducing disparities and improving the independence and quality of life for this community.
    Conclusions: As technology continues to advance, it has the potential to be a powerful tool in breaking down barriers and fostering a world where everyone, regardless of their visual ability, can navigate the world with confidence and ease.
    Inclusive design: Recognizing the importance of incorporating the unique requirements and perspectives of visually impaired individuals can guide the development of rehabilitation technology and services, ensuring they effectively support daily activities and active participation in sports and physical pursuits.Tailored-assistive technology: Understanding the specific needs of visually impaired individuals with regards to assistive technology, such as dependable robotic guides and essential features, can inform the design and customization of rehabilitation aids to enhance mobility and independence.Promising technologies: Exploring promising technologies like Aira, Be My Eyes, RoboCart, and Wayband can inspire the integration of these innovations into rehabilitation programs, facilitating better orientation, mobility, and accessibility for individuals with visual impairments.Continued research and development: Emphasizing the necessity for ongoing research and development efforts underscores the importance of advancing rehabilitation solutions that effectively address the distinct needs of visually impaired individuals, particularly in navigating unfamiliar environments.
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  • 文章类型: Journal Article
    背景:救护车服务背景下的团队合作表现出独特的特征,因为这种环境涉及一个小的核心团队,必须适应一个动态的团队结构,包括医疗保健专业人员和紧急服务。必须更深入地了解救护车团队的运作方式。因此,这项研究旨在探讨救护车专业人员团队合作的经验,以及团队培训计划的实施对他们的影响。
    方法:进行了一项定性的描述性研究,其中包括参加焦点小组访谈的救护车专业人员,他们在挪威一家医院信托基金的7个救护车站实施团队培训计划之前和之后进行。使用基于演绎归纳法的反身主题分析对数据进行了分析。
    结果:我们的分析揭示了15个子主题,这些主题是救护车专业人员在团队合作和团队培训计划方面的经验,根据团队结构的五个主要主题组织,通信,领导力,形势监测,和相互支持。救护车专业人员的经验范围从团队组成,人际关系和专业关系的重要性到他们对不同沟通方式的偏好以及救护车服务中团队领导的必要性。团队培训计划提高了团队合作意识,而团队合作工具的采用受到个人和环境因素的影响。简介/身份,Situation,背景,评估和建议(ISBAR)通信工具由于其易用性而被认为是该计划最有益的方面,这导致协商和信息移交的结构和质量得到改善。
    结论:这项研究记录了救护车专业人员团队合作的不同特征和偏好,强调在这方面熟练的伙伴关系的特别重要性。参加团队培训计划被认为是对团队合作重要性的宝贵提醒,从而为提高沟通技能提供了基础。
    背景:ClinicalTrials.gov-ID:NCT05244928。
    BACKGROUND: Teamwork in the context of ambulance services exhibits unique characteristics, as this environment involves a small core team that must adapt to a dynamic team structure that involves health care professionals and emergency services. It is essential to acquire a deeper understanding of how ambulance teams operate. Therefore, this study aimed to explore the experiences of ambulance professionals with teamwork and how they were influenced by the implementation of a team training programme.
    METHODS: A qualitative descriptive study was conducted involving ambulance professionals who took part in focus group interviews carried out both before and after the implementation of a team training program across seven ambulance stations within a Norwegian hospital trust. The data were analysed using reflexive thematic analysis based on a deductive-inductive approach.
    RESULTS: Our analysis revealed 15 subthemes that characterised ambulance professionals\' experiences with teamwork and a team training programme, which were organised according to the five main themes of team structure, communication, leadership, situation monitoring, and mutual support. Ambulance professionals\' experiences ranged from the significance of team composition and interpersonal and professional relationships to their preferences regarding different communication styles and the necessity of team leaders within the ambulance service. The team training programme raised awareness of teamwork, while the adoption of teamwork tools was influenced by both individual and contextual factors. The Introduction/Identity, Situation, Background, Assessment and Recommendation (ISBAR) communication tool was identified as the most beneficial aspect of the programme due to its ease of use, which led to improvements in the structure and quality of consultations and information handover.
    CONCLUSIONS: This study documented the diverse characteristics and preferences associated with teamwork among ambulance professionals, emphasising the particular importance of proficient partnerships in this context. Participation in a team training programme was perceived as a valuable reminder of the significance of teamwork, thus providing a foundation for the enhancement of communication skills.
    BACKGROUND: ClinicalTrials.gov-ID: NCT05244928.
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  • 文章类型: Journal Article
    背景关于在医学中使用人工智能的伦理和效用的评论和讨论激增,其在医学教育中的实际应用仍在争论中。通过定性研究方法,本研究旨在强调在医学生教育临床推理案例开发中使用ChatGPT的优势和陷阱。方法为五名经验丰富的医学教育教师提供指导,以使用ChatGPT3.0为三个不同的主要问题创建独特的临床推理案例。然后要求教师反思和审查创建的案例。最后,进行了一个焦点小组,以进一步分析和描述他们对新技术的经验。总体结果,教师发现在临床推理案例的开发中使用ChatGPT易于使用,但很难达到某些目标,并且在很大程度上没有足够的创造力来为学生使用创造复杂性,而无需进行大量编辑。创建的案例确实提供了一个有用的起点,并且非常有效;然而,教师确实经历了一些医学错误和事实捏造。结论使用ChatGPT开发课程内容有价值,尤其是临床推理案例,但需要全面审查和核实。为了高效有效地利用该工具,教育工作者将需要开发一个框架,可以很容易地翻译成简单的提示,ChatGPT可以理解。未来的工作将需要强烈考虑再循环偏见和错误信息的风险。
    Background There has been an explosion of commentary and discussion about the ethics and utility of using artificial intelligence in medicine, and its practical use in medical education is still being debated. Through qualitative research methods, this study aims to highlight the advantages and pitfalls of using ChatGPT in the development of clinical reasoning cases for medical student education. Methods Five highly experienced faculty in medical education were provided instructions to create unique clinical reasoning cases for three different chief concerns using ChatGPT 3.0. Faculty were then asked to reflect on and review the created cases. Finally, a focus group was conducted to further analyze and describe their experiences with the new technology. Results Overall, faculty found the use of ChatGPT in the development of clinical reasoning cases easy to use but difficult to get to certain objectives and largely incapable of being creative enough to create complexity for student use without heavy editing. The created cases did provide a helpful starting point and were extremely efficient; however, faculty did experience some medical inaccuracies and fact fabrication. Conclusion There is value to using ChatGPT to develop curricular content, especially for clinical reasoning cases, but it needs to be comprehensively reviewed and verified. To efficiently and effectively utilize the tool, educators will need to develop a framework that can be easily translatable into simple prompts that ChatGPT can understand. Future work will need to strongly consider the risks of recirculating biases and misinformation.
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  • 文章类型: Journal Article
    背景:近几十年来,癌症幸存者的数量有所增加,他们中的大多数患有疾病和治疗的后遗症。这项研究,这是OPTILATER大型研究项目的一部分,旨在探讨德国长期幸存者(初次癌症诊断后≥5年)的护理服务的不同方面.这项研究强调了不同年龄段人群的状况,具有不同的社会人口和文化背景,以及性和性别不同的个体。
    方法:为了调查与后续护理相关的经验,焦点小组(n=2)将与患者咨询委员会和倡导小组的成员一起进行,社区代表,医护人员和网络,以及法定健康保险医师协会的成员。将与患者和亲属(n=40)进行指导访谈,以调查需求,后续护理方面的障碍和障碍。在此基础上,将开展额外的焦点小组(n=2),以得出改进需求考虑的可能方案。焦点小组和访谈将遵循半结构化格式,并将进行内容分析。焦点小组和访谈将在网上进行,记录,转录,并由两个人独立分析。
    结论:由于探索性研究目的,定性方法被认为是合适的。经验和障碍的识别可以揭示长期癌症幸存者护理中的差异和优化潜力。
    BACKGROUND: The number of cancer survivors has increased in recent decades, and the majority of them suffer from sequelae of their disease and treatment. This study, which is part of the larger research project OPTILATER, aims to explore different aspects of care services for long-term survivors (≥ 5 years after initial cancer diagnosis) in Germany. The study places an emphasis on the situation of people from different age groups, with different socio-demographic and cultural backgrounds, and sexually and gender diverse individuals.
    METHODS: To investigate experiences related to follow-up care, focus groups (n = 2) will be conducted with members of patient advisory councils and advocacy groups, representatives of communities, healthcare workers and networks, as well as members of Associations of Statutory Health Insurance Physicians. Guided interviews will be carried out with patients and relatives (n = 40) to investigate needs, barriers and obstacles in terms of follow-up care. On this basis, additional focus groups (n = 2) will be carried out to derive possible scenarios for improving the consideration of needs. Focus groups and interviews will follow a semi-structured format and will be analysed content-analytically. Focus groups and interviews will be conducted online, recorded, transcribed, and analysed independently by two persons.
    CONCLUSIONS: The qualitative approach is considered suitable because of the exploratory research aims. The identification of experiences and barriers can reveal disparities and optimization potential in the care of long-term cancer survivors.
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  • 文章类型: Journal Article
    背景:患有痴呆症的人和非正式照顾者营养不良的风险更高。大多数护理人员不是识别痴呆症营养并发症的专家。因此,我们旨在确定与喂养和照顾痴呆症患者相关的营养知识和挑战,以制定有意义的干预措施。
    方法:采用混合方法。八个焦点小组与痴呆症患者(n=28)和医疗保健专业人员(n=23)的护理人员进行了研究。使用NVivo软件分析数据。进行问卷调查以确定营养挑战。改良的食物频率问卷评估了护理人员和痴呆症患者的食物模式。将结果与地中海-DASH干预神经退行性延迟(MIND)饮食指南进行比较。数据采用SPSS软件进行分析。
    结果:出现了四个主要主题:忘记吃饭,发展厌恶食物,对甜食和体重变化的强烈偏好。研究结果表明,用于改善营养摄入的常见策略包括暗示,补充和安静的饮食环境。护理人员受到压力的影响,导致食物选择和精疲力竭。参与者对护理人员计划的建议包括教育,资源和支持。食物频率问卷调查的结果显示,与MIND饮食指南相比,大多数参与者的饮食多样性较低。
    结论:两组患者更容易营养不良,这项研究表明,参与者获得大脑健康所需的足够营养的可能性较小。此外,照顾者自己和他们的痴呆症患者正在处理营养问题。研究结果支持注册营养师需要为这些家庭提供量身定制的营养干预措施。
    BACKGROUND: Persons living with dementia and informal caregivers are at a higher risk for malnutrition. Most caregivers are not experts at identifying nutritional complications of dementia. Therefore, we aimed to identify nutrition knowledge and challenges related to feeding and caring for persons with dementia to develop a meaningful intervention.
    METHODS: A mixed-methods approach was used. Eight focus groups were conducted with caregivers of persons living with dementia (n = 28) and healthcare professionals (n = 23). Data was analysed using NVivo software. A questionnaire was administered to identify nutritional challenges. A modified food frequency questionnaire assessed food patterns of caregivers and persons with dementia. Results were compared to Mediterranean-DASH Intervention for Neurodegenerative Delay (MIND) dietary guidelines. Data were analysed using SPSS software.
    RESULTS: Four major themes emerged: forgetting to eat, developing food aversions, strong preferences for sweets and weight changes. Findings revealed common strategies used to improve nutrition intake included cueing, supplements and quiet eating environment. Caregivers were impacted by stress leading to poorer food choices and exhaustion. Recommendations for a caregiver program made by participants included education, resources and support. Findings from the food frequencies questionnaire survey showed most participants had a lower dietary diversity compared to the MIND diet guidelines.
    CONCLUSIONS: With both groups being more prone to malnutrition, this research shows that participants were less likely to obtain adequate nutrition for brain health. Additionally, caregivers are dealing with nutrition issues themselves and their person living with dementia. The findings support the need for registered dietitians to provide tailored nutrition interventions for these families.
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