PDF(Pubmed)
Abstract：
BACKGROUND: The number of cancer survivors has increased in recent decades, and the majority of them suffer from sequelae of their disease and treatment. This study, which is part of the larger research project OPTILATER, aims to explore different aspects of care services for long-term survivors (≥ 5 years after initial cancer diagnosis) in Germany. The study places an emphasis on the situation of people from different age groups, with different socio-demographic and cultural backgrounds, and sexually and gender diverse individuals.
METHODS: To investigate experiences related to follow-up care, focus groups (n = 2) will be conducted with members of patient advisory councils and advocacy groups, representatives of communities, healthcare workers and networks, as well as members of Associations of Statutory Health Insurance Physicians. Guided interviews will be carried out with patients and relatives (n = 40) to investigate needs, barriers and obstacles in terms of follow-up care. On this basis, additional focus groups (n = 2) will be carried out to derive possible scenarios for improving the consideration of needs. Focus groups and interviews will follow a semi-structured format and will be analysed content-analytically. Focus groups and interviews will be conducted online, recorded, transcribed, and analysed independently by two persons.
CONCLUSIONS: The qualitative approach is considered suitable because of the exploratory research aims. The identification of experiences and barriers can reveal disparities and optimization potential in the care of long-term cancer survivors.
METHODS: To investigate experiences related to follow-up care, focus groups (n = 2) will be conducted with members of patient advisory councils and advocacy groups, representatives of communities, healthcare workers and networks, as well as members of Associations of Statutory Health Insurance Physicians. Guided interviews will be carried out with patients and relatives (n = 40) to investigate needs, barriers and obstacles in terms of follow-up care. On this basis, additional focus groups (n = 2) will be carried out to derive possible scenarios for improving the consideration of needs. Focus groups and interviews will follow a semi-structured format and will be analysed content-analytically. Focus groups and interviews will be conducted online, recorded, transcribed, and analysed independently by two persons.
CONCLUSIONS: The qualitative approach is considered suitable because of the exploratory research aims. The identification of experiences and barriers can reveal disparities and optimization potential in the care of long-term cancer survivors.
摘要：
背景：近几十年来，癌症幸存者的数量有所增加，他们中的大多数患有疾病和治疗的后遗症。这项研究,这是OPTILATER大型研究项目的一部分，旨在探讨德国长期幸存者(初次癌症诊断后≥5年)的护理服务的不同方面.这项研究强调了不同年龄段人群的状况，具有不同的社会人口和文化背景，以及性和性别不同的个体。
方法：为了调查与后续护理相关的经验，焦点小组（n=2）将与患者咨询委员会和倡导小组的成员一起进行，社区代表,医护人员和网络，以及法定健康保险医师协会的成员。将与患者和亲属（n=40）进行指导访谈，以调查需求，后续护理方面的障碍和障碍。在此基础上,将开展额外的焦点小组(n=2)，以得出改进需求考虑的可能方案。焦点小组和访谈将遵循半结构化格式，并将进行内容分析。焦点小组和访谈将在网上进行,记录,转录，并由两个人独立分析。
结论：由于探索性研究目的，定性方法被认为是合适的。经验和障碍的识别可以揭示长期癌症幸存者护理中的差异和优化潜力。
方法：为了调查与后续护理相关的经验，焦点小组（n=2）将与患者咨询委员会和倡导小组的成员一起进行，社区代表,医护人员和网络，以及法定健康保险医师协会的成员。将与患者和亲属（n=40）进行指导访谈，以调查需求，后续护理方面的障碍和障碍。在此基础上,将开展额外的焦点小组(n=2)，以得出改进需求考虑的可能方案。焦点小组和访谈将遵循半结构化格式，并将进行内容分析。焦点小组和访谈将在网上进行,记录,转录，并由两个人独立分析。
结论：由于探索性研究目的，定性方法被认为是合适的。经验和障碍的识别可以揭示长期癌症幸存者护理中的差异和优化潜力。
