bowel management

肠道管理
  • 文章类型: Journal Article
    背景:本评论讨论了肠道管理计划(BMP)对结直肠疾病儿童的社会影响,包括肛门直肠畸形(ARM),先天性巨结肠病(HD),功能性便秘(FC),和脊柱裂.以前的研究侧重于功能结果,但是这项研究弥合了日常生活经验的差距。
    方法:这项研究检查了儿童在BMP方面的经历,注重学校的参与,休假能力,和整体患者体验。清洁度,定义为每周少于一次粪便污染事件,70%的参与者取得了成绩。
    结果:积极的患者体验与实现粪便清洁有关,不管管理方法如何。如果保持清洁,诸如灌肠之类的侵入性方法不会对体验产生负面影响。使用经过验证的患者报告经验指标(PREM)和患者报告结局指标(PROM),尽管8.9岁的中位年龄存在局限性。
    结论:评论强调了大便清洁度在改善患者体验方面的重要性,并支持各种BMP方法的有效性。未来的研究应包括纵向随访,以评估BMP的耐久性并收集年龄较大的儿童的数据。
    BACKGROUND: This commentary discusses the social impact of bowel management programs (BMPs) on children with colorectal diseases, including anorectal malformations (ARM), Hirschsprung disease (HD), functional constipation (FC), and spina bifida. Previous studies focused on functional outcomes, but this study bridges the gap to daily life experiences.
    METHODS: The study examined children\'s experiences in BMPs, focusing on school participation, vacation ability, and overall patient experience. Cleanliness, defined as fewer than one stool soiling episode per week, was achieved by 70% of participants.
    RESULTS: Positive patient experiences were linked to achieving stool cleanliness, regardless of the management method. Invasive methods like enemas did not negatively affect experiences if cleanliness was maintained. Validated patient-reported experience measures (PREMs) and patient-reported outcomes measures (PROMs) were used, though the median age of 8.9 years posed limitations.
    CONCLUSIONS: The commentary highlights the significance of stool cleanliness in improving patient experiences and supports the effectiveness of various BMP methods. Future research should include longitudinal follow-ups to assess BMP durability and gather data from older children.
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  • 文章类型: Journal Article
    儿科手术的最新进展已经采用了远程医疗(TH)模式,从传统的面对面咨询过渡到虚拟护理。这种转变扩大了人们获得医疗保健的机会,潜在的提高负担能力,患者和护理人员满意度,和临床结果。在小儿结直肠手术中,远程医疗已被有效地用于支持患有便秘和大便失禁的儿童的肠道管理计划(BMP)。进行了系统审查,以评估虚拟BMP的有效性,分析2010年1月至2023年12月的研究,来自MEDLINE(通过PubMed),Embase,还有Cochrane图书馆,包括五项研究。远程BMP,通过视频或电话咨询实施,报告的家庭满意率超过75%,表明与传统访问相比,对虚拟交互的强烈偏好。这些研究的重要发现包括温哥华和贝勒分数的提高,减少多学科协商的时间,儿科生活质量和克利夫兰评分的提高,和减少泻药治疗的频率。TH的实施促进了患者主导的护理,能够及时调整治疗和有效分配医疗用品。研究结果表明,虚拟BMP是传统方法的可行和有效替代方法,在提高患者独立性的同时,提供较高的照顾者满意度和较好的临床结果。
    Recent advancements in pediatric surgery have embraced telehealth (TH) modalities, transitioning from traditional in-person consultations to virtual care. This shift has broadened access to healthcare, potentially enhancing affordability, patient and caregiver satisfaction, and clinical outcomes. In pediatric colorectal surgery, telehealth has been effectively utilized to support Bowel Management Programs (BMPs) for children suffering from constipation and fecal incontinence. A systematic review was conducted to assess the effectiveness of virtual BMPs, analyzing studies from January 2010 to December 2023, sourced from MEDLINE (via PubMed), Embase, and the Cochrane Library, with five studies included. Remote BMPs, implemented through video or telephone consultations, reported satisfaction rates exceeding 75% among families, indicating a strong preference for virtual interactions over traditional visits. Significant findings from the studies include improvements in Vancouver and Baylor scores, reductions in the duration of multidisciplinary consultations, enhancements in pediatric quality of life and Cleveland scores, and decreased frequency of laxative treatments. The implementation of TH has facilitated patient-led care, enabling timely adjustments in treatment and efficient distribution of medical supplies. The findings suggest that virtual BMPs are a viable and effective alternative to conventional approaches, yielding high caregiver satisfaction and superior clinical outcomes while promoting patient independence.
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  • 文章类型: Journal Article
    目的:通过测量直肠横径(TRD)和经腹部直肠超声(TRU)评估粪便负荷,评估结直肠病理患儿的肠道管理。
    方法:对2023年4月至2024年4月接受肠道管理(BM)的儿童进行了前瞻性病例对照研究。纳入了先天性巨结肠(HD)患者,肛门直肠畸形(ARM)和功能性便秘(FC)。排除患有其他先天性或神经系统疾病的患者。对照组由无腹部不适的住院患者和门诊患者组成。根据ROM-IV标准诊断FC。对于HD和ARM,我们追踪了一系列症状.为了评估粪便负荷,我们使用Klijn可视化了TRD(Klijn等人。JUrol172:1986-1988,2004)方法。膀胱中度充满。从直肠逆行评估粪便负荷。随访时间为1/3/6个月。从医疗记录中收集次要数据。样本量通过新收集的数据计算先验和随访组。
    结果:所有组的TRD的p值具有统计学意义,p<0.05和分组随访。
    结论:超声是评估粪便负荷的有用工具,有助于诊断便秘和监测BM。不管结直肠病理学,3厘米的截断线似乎可以区分没有便秘/超负荷症状的儿童和无症状的患者。我们提出了一种无辐射的方法来监测肠道管理。
    OBJECTIVE: To evaluate bowel management for children with colorectal pathology by measuring transverse rectal diameter (TRD) and assessing fecal load with transabdominal rectal ultrasound (TRU).
    METHODS: Prospective case-control study of children receiving bowel management (BM) between 04/2023 and 04/2024 was done. There was inclusion of patients with Hirschsprung disease (HD), anorectal malformation (ARM) and functional constipation (FC). Patients with other congenital or neurological conditions were excluded. Control group consisted of inpatients and outpatients without abdominal complaints. FC was diagnosed according to ROM-IV-criteria. For HD and ARM, we followed a list of symptoms. To assess fecal load, we visualized the TRD using the Klijn (Klijn et al. in J Urol 172:1986-1988, 2004) method. The bladder was moderately full. The fecal load was assessed retrograde from the rectum. Follow-up was at 1/3/6 months. Secondary data were collected from medical records. Sample size calculated a priori and follow-up group with new gathered data.
    RESULTS: p value for TRD in all groups significant with p < 0.05 and in grouped follow-up.
    CONCLUSIONS: Ultrasound is a useful tool for assessing fecal load and helps diagnose constipation and monitor BM. Irrespective of colorectal pathology, a cut-off of 3 cm seems to discriminate between children without constipation/overload symptoms and asymptomatic patients. We present a radiation-free method for monitoring bowel management.
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  • 文章类型: Journal Article
    (1)背景:肠道管理有助于整个Hirschsprung患儿的护理途径。术前肠道管理为儿童和家庭进行牵拉手术做好准备。围手术期肠道管理支持早期恢复,随访中量身定制的肠道管理支持社会节制的实现。(2)方法:我们对我们的机构肠道管理计划进行了横断面评估,以说明前,围手术期及术后肠道管理策略。(3)结果:共有31名儿童接受了初级拉拔,23个没有造口,8个有造口,平均年龄为9个月。所有没有造口的儿童都通过直肠冲洗准备手术。有造口的儿童准备进行手术,并转移造口流出物。经肛门灌溉支持早期恢复。(4)结论:肠道管理是先天性巨结肠患儿管理的重要支柱。将肠道管理纳入护理途径可促进初级牵拉并支持围手术期恢复。
    (1) Background: Bowel management contributes throughout the pathway of care for children with Hirschsprung. Preoperative bowel management prepares the child and family for the pull-through surgery. Perioperative bowel management supports early recovery and tailored bowel management in the follow-up supports the achievement of social continence. (2) Methods: We conducted a cross-sectional assessment of our institutional bowel management program to illustrate the pre-, peri- and postoperative bowel management strategies. (3) Results: A total of 31 children underwent primary pull-through, 23 without a stoma and 8 with a stoma, at a median age of 9 months. All children without a stoma were prepared for surgery by using rectal irrigations. Children with a stoma were prepared for surgery with a transfer of stoma effluent. Transanal irrigation supported early recovery. (4) Conclusions: Bowel management is a key pillar of the management of children with Hirschsprung disease. Incorporating bowel management in the pathway of care facilitates primary pull-through and supports perioperative recovery.
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  • 文章类型: Journal Article
    背景:由于感觉和行为问题,自闭症谱系障碍(ASD)儿童功能性便秘(FC)的治疗具有挑战性。我们旨在了解顺行性尿失禁灌肠(ACE)是否可成功治疗ASD患儿的FC。
    方法:对2007年至2019年接受阑尾造口术或盲肠造口术的诊断为ASD和FC的儿童进行了单机构回顾性审查。计算了有关污染和并发症的描述性统计数据。
    结果:包括33例患者,开始ACE时的中位年龄为9.7岁。平均智商为63.6(SD=18.0,n=12),平均行为适应性得分为59.9(SD=11.1,n=13),儿童行为检查表平均总分为72.5分(SD=7.1,n=10)。ACE启动后脏污率显着降低(42.3%vs.14.8%,p=0.04)。行为问题仅阻止1名患者(3.0%)正确使用ACE。11名患者(36.6%)能够过渡到泻药。患者报告的预后指标和生活质量均有显着改善。
    结论:在患有严重ASD的儿童中,采用阑尾造口术或盲肠造口术治疗FC可成功治疗便秘并改善生活质量。
    BACKGROUND: Treatment of functional constipation (FC) in children with autism spectrum disorder (ASD) is challenging due to sensory and behavioral issues. We aimed to understand whether antegrade continence enemas (ACEs) are successful in the treatment of FC in children with ASD.
    METHODS: A single-institution retrospective review was performed in children diagnosed with ASD and FC who underwent appendicostomy or cecostomy placement from 2007 to 2019. Descriptive statistics regarding soiling and complications were calculated.
    RESULTS: There were 33 patients included, with a median age of 9.7 years at the time of ACE initiation. The average intelligence quotient was 63.6 (SD = 18.0, n = 12), the average behavioral adaptive score was 59.9 (SD = 11.1, n = 13), and the average total Child Behavioral Checklist score was 72.5 (SD = 7.1, n = 10). Soiling rates were significantly lower following ACE initiation (42.3% vs. 14.8%, p = 0.04). Behavioral issues only prevented 1 patient (3.0%) from proper ACE use. Eleven patients (36.6%) were able to transition to laxatives. There were significant improvements in patient-reported outcomes measures and quality of life.
    CONCLUSIONS: Placement of an appendicostomy or cecostomy for management of FC in children with severe ASD was successful in treating constipation and improving quality of life.
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  • 文章类型: Journal Article
    背景:脊柱异常的患者经常因粪便和/或尿失禁而挣扎(高达87%和92%,分别),并需要采用协作方法进行肠道管理。
    方法:为了定义现有方法并提出最先进的肠道管理,使用Medline/PubMed进行文献检索,谷歌学者,科克伦,和EMBASE数据库,重点关注2013年7月和2023年7月出版的手稿。
    结果:脊柱畸形患者直肠和肛管神经支配受损,降低泻药和直肠灌肠的成功率。因此,经肛门冲洗和顺行冲洗在这组患者中被广泛使用。根据脊柱MRI,这些儿童的肠道控制潜力取决于年龄,type,和病变水平。关于肠道管理的转诊,进行对比研究以评估结肠运动和排便,随后进行一系列腹部X线检查以确定结肠排空并调整治疗方案。管理的选择包括泻药,直肠灌肠,经肛门灌溉,顺行冲水,和造口的创造。大约22-71%的患者根据病变的类型和水平实现社交节制。
    结论:脊柱异常患者在开始肠道管理之前需要彻底评估其可能的失禁和大便负担。根据患者的年龄确定最佳治疗方案,解剖学,和流动性。应与患者及其护理人员讨论独立肠道方案给药的可能性。
    BACKGROUND: Patients with spinal abnormalities often struggle with fecal and/or urinary incontinence (up to 87 and 92%, respectively) and require a collaborative approach to bowel management in conjunction.
    METHODS: To define existing approaches and propose state-of-the-art bowel management, a literature search was performed using Medline/PubMed, Google Scholar, Cochrane, and EMBASE databases and focusing on the manuscripts published July 2013 and July 2023.
    RESULTS: Patients with spinal anomalies have impaired innervation of the rectum and anal canal, decreasing the success rate from laxatives and rectal enemas. Thus, transanal irrigations and antegrade flushes are widely utilized in this group of patients. Based on spinal MRI, the potential for bowel control in these children depends on age, type, and lesion level. On referral for bowel management, a contrast study is performed to assess colonic motility and evacuation of stool, followed by a series of abdominal X-rays to define colonic emptying and adjust the regimen. The options for management include laxatives, rectal enemas, transanal irrigations, antegrade flushes, and the creation of a stoma. Approximately 22-71% of patients achieve social continence dependent on the type and level of the lesion.
    CONCLUSIONS: Patients with spinal anomalies require a thorough assessment for continence potential and stool burden prior to initiation of bowel management. The optimal treatment option is defined according to the patient\'s age, anatomy, and mobility. The likelihood of independent bowel regimen administration should be discussed with the patients and their caregivers.
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  • 文章类型: Journal Article
    目的:本研究旨在评估有关儿童肠道管理的YouTube视频的质量和可靠性。
    方法:4月6日,2023年,YouTube上“儿童肠道管理”的搜索结果由两位作者独立评估。JAMA基准标准(评分0-4)和用于质量和可靠性评估的改良DISCERN工具(评分16-80)。通过卡方检验和单因素方差分析(ANOVA)分析数据。
    结果:包括48个视频,15个(31.2%)视频面向专业人士,33个(68.8%)面向公众。平均观看次数为144.806,持续时间为22±28.4分钟。专业人员的视频平均持续时间为57.7±21.4分钟,观看次数中位数为404.5(17-8.840),公众视频的平均持续时间为5.7±10.7分钟和8400(8-5.175.975)(两者,p<0.005)。公众视频的平均DISCERN和JAMA得分分别为45.30±13.18和2.93±1.07,专业人士为75.73±6.52和3.8±1.06(两者,p<0.05)。
    结论:尽管为专业人员上传的有关儿科肠道管理的视频的可靠性高于公众,视频的持续时间较长,观看率较低。简短但全面且易于理解的公众指导视频可能会有所帮助。
    方法:描述性研究。
    方法:IV.
    OBJECTIVE: This study aims to evaluate the quality and reliability of YouTube videos about bowel management in children.
    METHODS: On April 6th, 2023, the search results for \"bowel management in children\" on YouTube were rated independently by two authors. JAMA Benchmark Criteria (score 0-4) and a modified DISCERN tool (score 16-80) used for quality and reliability assessment. Data was analyzed by Chi-square test and one-way analysis of variance (ANOVA).
    RESULTS: Out of 48 videos included, 15 (31.2%) videos were intended for professionals and 33 (68.8%) for the public. The mean number of views was 144.806 and duration was 22 ± 28.4 min. The respective mean duration of videos for professionals 57.7 ± 21.4 min and median number of views was 404.5 (17-8.840) and those for public was 5.7 ± 10.7 min and 8400 (8-5.175.975) (both, p < 0.005). The respective mean DISCERN and JAMA scores of the videos for the public was 45.30 ± 13.18 and 2.93 ± 1.07, and for professionals 75.73 ± 6.52 and 3.8 ± 1.06 (both, p < 0.05).
    CONCLUSIONS: Although the reliability of the videos uploaded for the professionals about pediatric bowel management was higher than for public, duration of the videos was longer and the viewing rates were lower. Shorter but comprehensive and easy-to-understand guidance videos for the public may be of help.
    METHODS: Descriptive study.
    METHODS: IV.
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  • 文章类型: Journal Article
    经过最初的尝试,患有先天性巨结肠病(HD)的患者可出现阻塞性症状,赫氏弹簧相关小肠结肠炎(HAEC),未能茁壮成长,或粪便污染。当前的评论着重于HD儿童的评估和治疗算法,这是有关肠道管理更新的手稿系列的一部分。在便秘患者中,应排除梗阻的解剖原因。一旦解剖结构被证实是正常的,泻药,纤维,渗透性泻药,或机械管理可以利用。在5岁之前对所有HD患者进行肉毒杆菌毒素注射,因为随着年龄的增长,他们学会克服不松弛的括约肌。由于肛门括约肌的医源性损伤而患有肛门括约肌的儿童被提供括约肌重建。运动性高通过止泻药和小量灌肠来管理。家庭教育对于早期发现HAEC和进行家庭直肠冲洗至关重要。
    After an initial pull-though, patients with Hirschsprung disease (HD) can present with obstructive symptoms, Hirschsprung-associated enterocolitis (HAEC), failure to thrive, or fecal soiling. This current review focuses on algorithms for evaluation and treatment in children with HD as a part of a manuscript series on updates in bowel management. In constipated patients, anatomic causes of obstruction should be excluded. Once anatomy is confirmed to be normal, laxatives, fiber, osmotic laxatives, or mechanical management can be utilized. Botulinum toxin injections are performed in all patients with HD before age five because of the nonrelaxing sphincters that they learn to overcome with increased age. Children with a patulous anus due to iatrogenic damage of the anal sphincters are offered sphincter reconstruction. Hypermotility is managed with antidiarrheals and small-volume enemas. Family education is crucial for the early detection of HAEC and for performing at-home rectal irrigations.
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  • 文章类型: Journal Article
    背景:在肠道管理周期间,“腹部X光片用于监测粪便的数量和位置。熟悉治疗计划的放射科医师可以提供改进的解释。本文的目的是在肠道管理周期间标准化放射学报告。
    方法:我们在2016年5月至2023年3月的肠道管理周期间观察了744名患者。诊断包括:肛门直肠畸形(397),特发性便秘(180),先天性巨结肠病(89),和脊柱裂(78)。51%的患者接受了泻药治疗,49%接受了灌肠剂。为每个治疗组选择特征X射线照片以进行建议的阅读标准化。
    结果:当粪便可视化时,报告其位置至关重要。对比灌肠有助于正确解释结肠解剖结构。还必须始终将粪便量与前一天的X射线照片进行比较,以确定粪便是否增加或减少。示出了射线照片的示例以指导优选的建议术语的使用。
    结论:提供有关患者正在接受何种治疗方式的信息,并说明患者正在接受肠道管理周治疗,这对于放射科医生提供充分的解释至关重要。放射科医生必须熟悉每日X光片的治疗目标和目的。
    BACKGROUND: During \"bowel management week,\" abdominal radiographs are used to monitor the amount and location of stool. A radiologist familiar with the treatment plan can provide an improved interpretation. The goal of this paper is to standardize the radiological reports during a bowel management week.
    METHODS: We saw 744 patients during bowel management week from May 2016 until March 2023. Diagnosis included: anorectal malformation (397), idiopathic constipation (180), Hirschsprung disease (89), and spina bifida (78). Laxatives were the treatment for 51% of patients, and 49% received enemas. Characteristic radiographs were selected for each treatment group for a proposed reading standardization.
    RESULTS: When the stool is visualized, it is crucial to report its location. Having a contrast enema helps with the correct interpretation of the colonic anatomy. It is also essential to always compare the amount of stool with the radiograph from the previous day to determine if there is an increase or decrease in stool. Examples of radiographs are shown to guide the use of the preferred proposed terminology.
    CONCLUSIONS: Providing information regarding which treatment modality the patient is receiving and stating that a patient is on a bowel management week treatment is crucial for the radiologist to provide adequate interpretation. The radiologist must be familiar with the treatment goals and purpose of the daily radiograph.
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  • 文章类型: Journal Article
    目的:本研究旨在分析慢性特发性便秘(CIC)患者的放射学监督肠管理计划(RS-BMP)结果。
    方法:进行回顾性研究。我们纳入了2016年7月至2022年10月在科罗拉多州儿童医院参加RS-BMP的所有CIC患者。
    结果:纳入80例患者。便秘的平均时间为5.6年。在我们的RS-BMP之前,95%的人接受了非放射学监督治疗,71%曾尝试过两种或两种以上的治疗.总的来说,90%的人尝试过聚乙二醇和43%的塞纳。9名患者有肉毒杆菌素注射史。五人接受了顺行失禁手术,还有一个是乙状结肠切除术.23%的人发现了行为障碍(BD)。在RS-BMP结束时,96%的患者有成功的结果,73%的人在塞纳,27%在灌肠。在93%的患者中检测到大直肠,结果成功,100%的患者结果不成功(p=0.210)。BD患者中,89%有成功的结果,11%的人没有成功。
    结论:我们的RS-BMP已被证明可有效治疗CIC。在96%的患者中,在放射学监督下使用塞纳和灌肠剂是适当的治疗方法。BD和大直肠与不成功的结果相关。
    OBJECTIVE: This study aimed to analyze our radiologically supervised bowel management program (RS-BMP) outcomes in patients with chronic idiopathic constipation (CIC).
    METHODS: A retrospective study was conducted. We included all patients with CIC who participated in our RS-BMP at Children´s Hospital Colorado from July 2016 to October 2022.
    RESULTS: Eighty patients were included. The average time with constipation was 5.6 years. Before our RS-BMP, 95% had received non-radiologically supervised treatments, and 71% had attempted two or more treatments. Overall, 90% had tried Polyethylene Glycol and 43% Senna. Nine patients had a history of Botox injections. Five underwent anterograde continence procedure, and one a sigmoidectomy. Behavioral disorders (BD) were found in 23%. At the end of the RS-BMP, 96% of patients had successful outcomes, 73% were on Senna, and 27% were on enemas. Megarectum was detected in 93% of patients with successful outcomes and 100% with unsuccessful outcomes (p = 0.210). Of the patients with BD, 89% had successful outcomes, and 11% had unsuccessful.
    CONCLUSIONS: Our RS-BMP has been proven to be effective in treating CIC. The radiologically supervised use of Senna and enemas was the appropriate treatment in 96% of the patients. BD and megarectum were associated with unsuccessful outcomes.
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