Abstract：
BACKGROUND: This commentary discusses the social impact of bowel management programs (BMPs) on children with colorectal diseases, including anorectal malformations (ARM), Hirschsprung disease (HD), functional constipation (FC), and spina bifida. Previous studies focused on functional outcomes, but this study bridges the gap to daily life experiences.
METHODS: The study examined children\'s experiences in BMPs, focusing on school participation, vacation ability, and overall patient experience. Cleanliness, defined as fewer than one stool soiling episode per week, was achieved by 70% of participants.
RESULTS: Positive patient experiences were linked to achieving stool cleanliness, regardless of the management method. Invasive methods like enemas did not negatively affect experiences if cleanliness was maintained. Validated patient-reported experience measures (PREMs) and patient-reported outcomes measures (PROMs) were used, though the median age of 8.9 years posed limitations.
CONCLUSIONS: The commentary highlights the significance of stool cleanliness in improving patient experiences and supports the effectiveness of various BMP methods. Future research should include longitudinal follow-ups to assess BMP durability and gather data from older children.
METHODS: The study examined children\'s experiences in BMPs, focusing on school participation, vacation ability, and overall patient experience. Cleanliness, defined as fewer than one stool soiling episode per week, was achieved by 70% of participants.
RESULTS: Positive patient experiences were linked to achieving stool cleanliness, regardless of the management method. Invasive methods like enemas did not negatively affect experiences if cleanliness was maintained. Validated patient-reported experience measures (PREMs) and patient-reported outcomes measures (PROMs) were used, though the median age of 8.9 years posed limitations.
CONCLUSIONS: The commentary highlights the significance of stool cleanliness in improving patient experiences and supports the effectiveness of various BMP methods. Future research should include longitudinal follow-ups to assess BMP durability and gather data from older children.
摘要：
背景：本评论讨论了肠道管理计划（BMP）对结直肠疾病儿童的社会影响，包括肛门直肠畸形（ARM），先天性巨结肠病（HD），功能性便秘（FC），和脊柱裂.以前的研究侧重于功能结果，但是这项研究弥合了日常生活经验的差距。
方法：这项研究检查了儿童在BMP方面的经历，注重学校的参与，休假能力,和整体患者体验。清洁度,定义为每周少于一次粪便污染事件，70%的参与者取得了成绩。
结果：积极的患者体验与实现粪便清洁有关，不管管理方法如何。如果保持清洁，诸如灌肠之类的侵入性方法不会对体验产生负面影响。使用经过验证的患者报告经验指标（PREM）和患者报告结局指标（PROM），尽管8.9岁的中位年龄存在局限性。
结论：评论强调了大便清洁度在改善患者体验方面的重要性，并支持各种BMP方法的有效性。未来的研究应包括纵向随访，以评估BMP的耐久性并收集年龄较大的儿童的数据。
方法：这项研究检查了儿童在BMP方面的经历，注重学校的参与，休假能力,和整体患者体验。清洁度,定义为每周少于一次粪便污染事件，70%的参与者取得了成绩。
结果：积极的患者体验与实现粪便清洁有关，不管管理方法如何。如果保持清洁，诸如灌肠之类的侵入性方法不会对体验产生负面影响。使用经过验证的患者报告经验指标（PREM）和患者报告结局指标（PROM），尽管8.9岁的中位年龄存在局限性。
结论：评论强调了大便清洁度在改善患者体验方面的重要性，并支持各种BMP方法的有效性。未来的研究应包括纵向随访，以评估BMP的耐久性并收集年龄较大的儿童的数据。
