METHODS: The study examined children\'s experiences in BMPs, focusing on school participation, vacation ability, and overall patient experience. Cleanliness, defined as fewer than one stool soiling episode per week, was achieved by 70% of participants.
RESULTS: Positive patient experiences were linked to achieving stool cleanliness, regardless of the management method. Invasive methods like enemas did not negatively affect experiences if cleanliness was maintained. Validated patient-reported experience measures (PREMs) and patient-reported outcomes measures (PROMs) were used, though the median age of 8.9 years posed limitations.
CONCLUSIONS: The commentary highlights the significance of stool cleanliness in improving patient experiences and supports the effectiveness of various BMP methods. Future research should include longitudinal follow-ups to assess BMP durability and gather data from older children.
方法:这项研究检查了儿童在BMP方面的经历,注重学校的参与,休假能力,和整体患者体验。清洁度,定义为每周少于一次粪便污染事件,70%的参与者取得了成绩。
结果:积极的患者体验与实现粪便清洁有关,不管管理方法如何。如果保持清洁,诸如灌肠之类的侵入性方法不会对体验产生负面影响。使用经过验证的患者报告经验指标(PREM)和患者报告结局指标(PROM),尽管8.9岁的中位年龄存在局限性。
结论:评论强调了大便清洁度在改善患者体验方面的重要性,并支持各种BMP方法的有效性。未来的研究应包括纵向随访,以评估BMP的耐久性并收集年龄较大的儿童的数据。