Needs Assessment

需求评估
  • 文章类型: Journal Article
    本研究旨在分析韩国医学实习生和居民的教育需求,作为制定教育计划以提高其研究能力的第一步。
    混合方法设计,结合定量和定性数据收集方法,用于调查在全国韩国医学医院工作的实习生和居民对研究能力的教育需求。数据是通过在线调查和在线焦点小组讨论(FGD)收集的,并采用描述性统计分析和专题分析进行处理。研究结果是通过整合调查数据和烟气脱硫结果得出的。
    总共,209名实习生和居民参加了调查,11个人参加了两轮FGD。大多数参与者认为在研究生医学教育中缺乏系统的研究和学术写作教育,并强调由于医院和专业之间的教育环境存在巨大差异,需要在全国范围内接受教育。学习者认为学习研究和学术写作的主要障碍是缺乏知识,导致时间限制。提高学习者的研究能力,关系建设,自主性,通过支持系统的动机被认为是至关重要的。该研究还确定了不同的学习者类型和首选的教育主题,这表明了对以学习者为中心的教育和辅导的需求。
    本研究为设计和开发韩国医学实习生和居民研究能力教育计划提供了基础数据,并建议需要采取举措来加强这些能力。
    UNASSIGNED: This study aimed to analyze the educational needs of interns and residents in Korean medicine as the first step in developing an education program to improve their research competencies.
    UNASSIGNED: A mixed-method design, incorporating both quantitative and qualitative data collection methods, was used to investigate the educational needs for research competencies among interns and residents working in Korean medicine hospitals nationwide. Data were collected through online surveys and online focus group discussions (FGDs), and processed using descriptive statistical analysis and thematic analysis. The study results were derived by integrating survey data and FGD outcomes.
    UNASSIGNED: In total, 209 interns and residents participated in the survey, and 11 individuals participated in two rounds of FGDs. The majority of participants felt a lack of systematic education in research and academic writing in postgraduate medical education and highlighted the need for nationally accessible education due to significant disparities in the educational environment across hospitals and specialties. The primary barrier to learning research and academic writing identified by learners was the lack of knowledge, leading to time constraints. Improving learners\' research competencies, relationship building, autonomy, and motivation through a support system was deemed crucial. The study also identified diverse learner types and preferred educational topics, indicating a demand for learner-centered education and coaching.
    UNASSIGNED: This study provides foundational data for designing and developing a program on education on research competencies for interns and residents in Korean medicine and suggests the need for initiatives to strengthen these competencies.
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  • 文章类型: Journal Article
    背景:我们最近的研究表明,头痛疾病在贝宁和喀麦隆等撒哈拉以南的中部和西部国家非常普遍。在这里,我们报告附近马里的头痛,一个在地形上不同的饱受冲突蹂躏的国家,文化上,政治和经济。目的是估计头痛引起的负担和头痛护理的需求。
    方法:我们在马里的11个地区中的7个地区使用了整群随机抽样,以获得具有全国代表性的样本。在训练有素的面试官暗访期间,使用结构化的HARDSHIP问卷对每个家庭随机选择的一名成年成员(18-65岁)进行了访谈,去年对头痛的调查,此外,昨天头痛(HY)。≥15天/月(H15+)的头痛被诊断为可能的药物过度使用头痛(pMOH),当与≥15天/月的急性药物使用相关时,和“其他H15+”时没有。记录为发作性头痛(<15天/月),未进一步诊断。负担被评估为参与受损(有偿和家务劳动损失的天数,和休闲活动)。头痛治疗的需要由预期获益的标准来定义。
    结果:数据收集与SARS-CoV-2大流行相吻合。尽管如此,参与比例仍然非常高(99.4%)。观察到的任何头痛的1年患病率为90.9%。年龄和性别调整后的估计为86.3%的偶发性头痛,pMOH为1.4%,其他H15+为3.1%。HY报告为16.8%,平均持续时间为8.7h。总体平均头痛频率为3.5天/月。与其他H15+(3.1和2.8天/3个月)或偶发性头痛(1.2和0.9天/3个月)相比,pMOH参与者从带薪(8.8天/3个月)和家务劳动(10.3天/3个月)中损失的天数更多。在人口层面,所有时间的3.6-5.8%花在头痛上,导致所有活动减少3.6%(参与受损)。马里成年人口的近四分之一(23.4%)需要头痛治疗。
    结论:头痛在马里很常见,就像它附近的邻居一样,贝宁和喀麦隆,并与健康和生产力的重大损失有关。头痛治疗的需求很高,这对低收入国家来说是一个挑战,但生产力的损失可能会转化为国内生产总值的损失。
    BACKGROUND: Our recent studies have shown headache disorders to be very common in the central and western sub-Saharan countries of Benin and Cameroon. Here we report headache in nearby Mali, a strife-torn country that differs topographically, culturally, politically and economically. The purposes were to estimate headache-attributed burden and need for headache care.
    METHODS: We used cluster-random sampling in seven of Mali\'s eleven regions to obtain a nationally representative sample. During unannounced household visits by trained interviewers, one randomly selected adult member (18-65 years) from each household was interviewed using the structured HARDSHIP questionnaire, with enquiries into headache in the last year and, additionally, headache yesterday (HY). Headache on ≥ 15 days/month (H15+) was diagnosed as probable medication-overuse headache (pMOH) when associated with acute medication use on ≥ 15 days/month, and as \"other H15+\" when not. Episodic headache (on < 15 days/month) was recorded as such and not further diagnosed. Burden was assessed as impaired participation (days lost from paid and household work, and from leisure activity). Need for headache care was defined by criteria for expectation of benefit.
    RESULTS: Data collection coincided with the SARS-CoV-2 pandemic. The participating proportion was nonetheless extremely high (99.4%). The observed 1-year prevalence of any headache was 90.9%. Age- and gender-adjusted estimates were 86.3% for episodic headache, 1.4% for pMOH and 3.1% for other H15+. HY was reported by 16.8% with a mean duration of 8.7 h. Overall mean headache frequency was 3.5 days/month. Participants with pMOH lost more days from paid (8.8 days/3 months) and household work (10.3 days/3 months) than those with other H15+ (3.1 and 2.8 days/3 months) or episodic headache (1.2 and 0.9 days/3 months). At population level, 3.6-5.8% of all time was spent with headache, which led to a 3.6% decrease in all activity (impaired participation). Almost a quarter (23.4%) of Mali\'s adult population need headache care.
    CONCLUSIONS: Headache is very common in Mali, as in its near neighbours, Benin and Cameroon, and associated with substantial losses of health and productivity. Need for headache care is high - a challenge for a low-income country - but lost productivity probably translates into lost gross domestic product.
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  • 文章类型: Journal Article
    已经开发了多种mhealth(移动健康)干预措施和移动应用程序来支持糖尿病的自我管理。然而,大多数应用程序都是在不需要该领域的专家进行评估和评估的情况下开发的。本研究旨在使用系统方法设计和开发支持2型糖尿病(T2D)患者糖尿病自我管理的移动应用程序(应用程序)。
    在这项研究中,混合方法设计用于开发移动应用程序。mhealth干预措施的设计和开发分为五个步骤:i)广泛的文献检索,ii)在医疗保健提供者和患者的帮助下对T2D患者进行需求评估(采访了15个医疗保健提供者,如临床医生,营养师,和糖尿病教育者,and2focusgroupdiscussionswithpatients)iii)Ideationandcontentdevelopmentofappbasedonresultsofneedsassessment;iv)contentvalidation(by10healthcareproviders)andv)Appdevelopmentonahybridplatform.用户对应用程序的评估,即2型糖尿病患者使用用户的移动应用程序评定量表(uMARS)进行。该应用程序由40名患者进行了评估,并在uMARS问卷上进行了评分。
    开发了以患者为中心的移动应用程序,用于糖尿病的营养管理,具有三个模块:患者模块,评估模块,和医疗保健提供者模块。患者模块是提供给患者的应用程序,具有饮食等功能,身体活动,血糖日志,教育,等。,此外,症状检查程序,应力计博客,和FAQ。当用户输入任何日志时,评估模块与应用程序集成在一起,它根据屏幕上的标准截止和闪烁提示来评估条目。医疗保健提供者模块与服务器交互,为他们提供患者数据,注释,和反馈。
    用户发现该应用程序令人满意。结合其他功能来增强用户界面和简化导航可能会增强用户参与度,从而帮助管理T2D。
    UNASSIGNED: Multiple mhealth (mobile health) interventions and mobile applications have been developed to support diabetes self-management. However, most of the apps are developed without the need for assessment and evaluation by experts in the field. This study aimed to design and develop a mobile application (app) supporting diabetes self-management for people with Type 2 Diabetes Mellitus (T2D) using a systematic approach.
    UNASSIGNED: In this study mixed method design was used to develop the mobile application. The mhealth intervention was designed and developed in five steps: i) Extensive literature search, ii) Needs assessment of patients with T2D with the help of healthcare providers and patients (Interviews with 15 healthcare providers like clinicians, dietitians, and diabetes educators, and 2 focus group discussions with patients) iii) Ideation and content development of app based on outcomes of needs assessment; iv) content validation (by 10 healthcare providers) and v) App development on a hybrid platform. Evaluation of the app by users i.e., type 2 diabetes patients was done using the users\' Mobile App rating scale (uMARS). The app was evaluated by 40 patients and rated on the uMARS questionnaire.
    UNASSIGNED: A patient-centric mobile app was developed for the nutritional management of diabetes with three modules: The patient module, the Evaluation module, and the Healthcare provider module. The patient module was the app that was provided to the patients with features like diet, physical activity, blood glucose log, education, etc., in addition to, a symptom checker, Stress meter blog, and FAQ. The evaluation module was integrated with the app it works when a user enters any log, it evaluates the entry against the standard cutoffs and flash prompts on the screen. The Healthcare provider module interacts with the server to provide them with patient data, comments, and feedback.
    UNASSIGNED: The users found the app to be satisfactory. Incorporating additional features to enhance the user interface and streamline navigation could potentially enhance user engagement, thereby aiding in the management of T2D.
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  • 文章类型: Journal Article
    背景:满足非正式护理人员的需求对于确保高质量的医疗保健和促进以公民为中心的护理至关重要。这项系统审查评估了有关旨在满足依赖他人进行日常生活活动的成年人非正式照顾者需求的计划的最新知识。
    方法:遵循PRISMA指南,电子数据库EBSCOhost研究平台,MEDLINE,CINAHL,Scopus,搜索了2012年至2022年之间发表的随机实验研究,这些研究实施了解决非正式护理人员需求的计划,以改善他们的经验。健康,和幸福。使用JoannaBriggs研究所的标准化关键评估工具评估质量。两名独立的研究者进行了资格评估和数据提取。收集了有关干预措施有效性的定量数据,每个干预措施的内容都被综合和汇总成几类,通过叙事综合。
    结果:大多数纳入的研究(n=16)是在欧洲国家进行的,与提供常规护理相比,实施了结构化的干预计划。这些研究的方法学质量相当高,与盲法相关的偏倚风险较高。结果支持非正式照顾者取得良好的健康成果,即心理健康(n=3)和生活质量(n=3)的改善以及心理症状学(n=5)和负担(n=3)的减少。所有干预措施均未报告不良结果;然而,5项研究未描述方案实施后评估结果的显著差异.以培训和教育护理人员(n=14)和认知行为策略(n=7)为重点的干预措施是最常见的,虽然专注于情感和心理支持作为改善护理人员心理结果的资源的项目很少。
    结论:本系统综述增加了越来越多的证据和见解,表明通过促进照顾者的教育支持和实施认知行为策略,解决非正式照顾者需求的计划似乎有助于改善身心健康结果。未来的研究应实施方法上强有力的跨国方案,专门针对非正式的身体护理人员,情感,社会心理,社会,和整个护理轨迹的教育需求。
    BACKGROUND: Addressing informal caregivers\' needs is essential for ensuring quality healthcare and promoting citizen-centred care. This systematic review assessed current knowledge about programmes aimed at meeting the needs of informal caregivers of adults who are dependent on others for daily life activities.
    METHODS: Following the PRISMA guidelines, the electronic databases EBSCOhost Research Platform, MEDLINE, CINAHL, Scopus, Web of Science and The Virtual Health Library were searched for randomized experimental studies published between 2012 and 2022 that implemented programmes addressing informal caregivers\' needs to improve their experiences, health, and well-being. Quality was assessed using the standardized critical evaluation tools from the Joanna Briggs Institute. Two independent investigators performed the eligibility assessment and data extraction. Quantitative data on the effectiveness of interventions were collected, and the content of each intervention was synthesized and aggregated into categories, through narrative synthesis.
    RESULTS: The majority of the included studies (n = 16) were conducted in European countries and implemented a structured intervention programme compared to the provision of usual care. The studies were of fair to high methodological quality, with a higher risk of bias related to blinding. The results supported the achievement of favourable health outcomes among informal caregivers, namely improvements in mental health (n = 3) and quality of life (n = 3) and a decrease in psychological symptomatology (n = 5) and burden (n = 3). None of the interventions reported adverse outcomes; however, five studies did not describe significant differences in the outcomes assessed after the implementation of the programmes. Interventions focusing on training and educating caregivers (n = 14) and cognitive-behavioural strategies (n = 7) were the most common, while programmes focusing on emotional and psychological support as a resource to improve caregivers\' psychological outcomes were scarce.
    CONCLUSIONS: This systematic review adds to the growing body of evidence and insight showing that programmes that address informal caregivers\' needs seem to contribute to better physical and psychological health outcomes through the promotion of caregivers\' educational support and the implementation of cognitive-behavioural strategies. Future research should implement methodologically robust cross-country programmes tailored to informal caregivers\' physical, emotional, psychosocial, societal, and educational needs throughout the care trajectory.
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  • 文章类型: Journal Article
    目的:确定肿瘤学护理人员在开发虚拟现实体验方面未满足的教育需求。
    方法:采用定性描述性方法;数据通过在线调查收集。
    结果:18名参与者表示,他们的教育经历令人不知所措,情绪疲惫。他们建议需要通过不同的方式提供教育信息,并提供更多基于临床医生的资源和支持。
    结论:这项研究发现了为照顾者的需求和经验而量身定制的补充传统预处理教育的机会,例如作为照顾者的具体程序信息和情绪管理。专门为肿瘤学护理人员创建虚拟现实体验是一种新颖的护士主导的方法,目前尚不存在。
    OBJECTIVE: To identify oncology caregivers\' unmet educational needs for the development of a virtual reality experience.
    METHODS: A qualitative descriptive methodology was used; data were collected via online surveys.
    RESULTS: Eighteen participants said their educational experiences were overwhelming and emotionally exhausting. They suggested a need to deliver educational information through different modalities and provide more clinician-based resources and support.
    CONCLUSIONS: This study identified opportunities to complement traditional pretreatment education tailored to the caregivers\' needs and experiences, such as specific procedural information and emotional management while being a caregiver. Creating virtual reality experiences exclusively for oncology caregivers is a novel nurse-led approach that is currently not in existence.
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  • 文章类型: Journal Article
    为癌症患者提供支持性护理并提高他们的舒适度可以促进他们对疾病的调整,治疗的依从性和提高他们的生活质量。
    这个横截面的目标,描述性研究旨在确定癌症患者的支持性治疗需求对其舒适度的影响.
    该研究在大学医院的肿瘤科进行。总共153名接受化疗的癌症患者组成了样品。数据收集程序包括支持性护理需求调查(SCNS)和一般舒适度问卷(GCQ)。
    患者的SCNS评分较低(平均值±SD:75.13±27.93)。GCQ的社会文化层面是受到最不利影响的舒适领域。需求和舒适度之间存在负相关关系(rs=-0.69,p<0.01)。较低的舒适度评分与较高的SCNS评分相关(分别为β=-0.487;β=-0.316;β=-0.958)。
    接受化疗的癌症患者在住院期间得到支持,以满足他们的生理和心理需求,并进行日常生活和护理活动。支持需求较高的患者舒适度较低。
    UNASSIGNED: Providing supportive care to patients with cancer and improving their comfort levels can promote their adjustment to the disease, compliance with treatment and improve their quality of life.
    UNASSIGNED: The aim of this cross-sectional, descriptive study was to identify the effects of the supportive care needs of cancer patients on their comfort levels.
    UNASSIGNED: The study was performed in the oncology department of a university hospital. A total of 153 cancer patients undergoing chemotherapy constituted the sample. The data collection procedure included the Supportive Care Needs Survey (SCNS) and the General Comfort Questionnaire (GCQ).
    UNASSIGNED: The SCNS scores of the patients were low (Mean±SD: 75.13±27.93). The socio-cultural dimension of the GCQ was the most adversely influenced area of comfort. There was a negative relationship between needs and comfort levels (rs=-0.69, p<0.01). Lower scores of comfort were associated with higher scores of SCNS (ß=-0.487; ß=-0.316; ß=-0.958, respectively).
    UNASSIGNED: Cancer patients undergoing chemotherapy were supported in meeting their physical and psychological needs and performing their activities of daily living and care during their hospital stay. Patients with higher support needs had lower comfort levels.
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  • 文章类型: Journal Article
    尽管许多青少年或年轻成人(AYA)癌症诊断的存活率很高,社会心理,学术,对幸存者的职业影响是深远而持久的。医院系统能够满足许多AYA需求,但是缺乏提供推动长期学校和职业规划的人际关系和知识的能力。这项研究评估了一组患有或患有癌症的AYAs(n=108,54%为女性,71%白色,平均年龄20.6±4.4)以确定学校,职业,medical,情感,以及目前医院工作人员和支持网络无法满足的社会心理需求。我们确定了AYAs最常见的未满足需求,AYAs在积极治疗和生存方面的需求差异,以及由非营利组织“连接冠军”(CC)开发的以职业为重点的指导计划的作用,以解决尚未满足的AYA需求。我们发现,最常见的需求都与职业和学校有关,并且在整个癌症旅程中,最高需求没有显着差异。这些发现表明,职业和学校需求是AYAs的高度优先事项,然而,社会孤立会使必要的人或资源无法获得。据报道,CC指导计划可有效满足未满足的需求(平均得分为95.1/100),并且可以成为医院系统的宝贵资源。非营利组织,和健康保险公司提供个性化,在癌症治疗和生存期间,以职业为重点的支持。
    Despite high survival rates for many adolescent or young adult (AYA) cancer diagnoses, the psychosocial, academic, and vocational repercussions for survivors are profound and enduring. Hospital systems are able to address many AYA needs, but the ability to provide the human connectedness and knowledge that drive long-term school and career planning is lacking. This study assessed a group of AYAs who have or had cancer (n = 108, 54% female, 71% white, mean age 20.6 ± 4.4) to determine the school, career, medical, emotional, and psychosocial needs that are not currently being met by hospital staff and support networks. We identified the most common unmet needs of AYAs, differences between needs of AYAs in active treatment and survivorship, and the role of a career-focused mentoring program developed by the nonprofit organization Connecting Champions (CC) to address the array of unmet AYA needs. We found that the most commonly reported needs were all related to career and school, and that the top needs did not differ significantly throughout the cancer journey. These findings suggest that career and school-based needs are a high priority for AYAs, yet social isolation can make the necessary people or resources inaccessible. The CC mentoring program was reported as effective in attending to unmet needs (with an average score of 95.1/100) and can be a valuable resource for hospital systems, nonprofit organizations, and health insurers to provide personalized, career-focused support to AYAs during cancer treatment and survivorship.
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  • 文章类型: Journal Article
    背景:癌症是一种超越纯粹医学的疾病,深刻影响患者和家庭成员的日常生活。以前的研究表明,癌症的后果在患者生命结束时大大加重,在他们还必须努力满足许多未满足的需求的时候。这项研究的主要目的是更深入地了解这些需求,主要是在接近死亡的终末期癌症患者中。
    方法:在西班牙对生命末期的癌症患者(n=3)及其家庭成员(n=12)进行了半结构化访谈。使用定性主题分析和扎根理论方法对访谈结果进行了分析。
    结果:从探讨癌症患者在生命末期的需求和关注的访谈中出现了四个主要主题:(1)身体健康(2)情感健康(3)社会健康和(4),与信息和自主决策相关的需求。访谈还揭示了在此期间家庭成员的具体需求,即难以管理增加的照顾者负担和保持健康的工作与生活平衡。
    结论:缺乏支持,在巨大的脆弱性时期,信息和透明度使癌症患者的临终经历更加困难。我们的发现强调了对这一人群的需求进行更深入了解的重要性,以便在知情的情况下努力改善姑息医疗保健,并在生命结束时实施更全面的护理和支持。
    BACKGROUND: Cancer is a disease that transcends what is purely medical, profoundly affecting the day-to-day life of both patients and family members. Previous research has shown that the consequences of cancer are greatly aggravated in patients at the end of life, at a time when they must also grapple with numerous unmet needs. The main objective of this study was to obtain more in-depth insight into these needs, primarily in patients with end-stage cancer nearing death.
    METHODS: Semi-structured interviews were conducted in Spain with cancer patients at the end of life (n = 3) and their family members (n = 12). The findings from the interviews were analyzed using qualitative thematic analysis and a grounded theory approach.
    RESULTS: Four major themes emerged from the interviews that explored the needs and concerns of patients with cancer at the end of life: (1) physical well-being (2) emotional well-being (3) social well-being and (4), needs relating to information and autonomous decision-making. The interviews also shed light on the specific needs of family members during this period, namely the difficulties of managing increased caregiver burden and maintaining a healthy work-life balance.
    CONCLUSIONS: A lack of support, information and transparency during a period of immense vulnerability makes the end-of-life experience even more difficult for patients with cancer. Our findings highlight the importance of developing a more in-depth understanding of the needs of this population, so that informed efforts can be made to improve palliative healthcare and implement more comprehensive care and support at the end of life.
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  • 文章类型: Journal Article
    背景:数字辅助医疗服务和技术越来越受欢迎。他们帮助病人管理他们的病情,从而减轻医护人员的负担。数字医疗保健使个人能够获得更适合其需求和偏好的护理。如果实施得当,它可以通过在医疗保健需求的背景下考虑每个人的机会和局限性来促进公平,preferences,值,和能力。
    目的:本研究旨在了解需求,值,以及获得24/7数字医疗服务的慢性阻塞性肺疾病(COPD)患者的偏好。此外,我们的目标是了解他们所属社区的动态,以及这些社区如何相交。这将为我们提供必要的知识,以建立提供教育的新方法,包括为卫生专业人员开展教育活动,火车,并赋予COPD患者权力。
    方法:该研究包括7名被诊断为COPD的线人,他们接受了来自新西兰地区一个区域项目的24/7数字医疗服务支持,丹麦。在两个月的时间里,线人被访问了4次,包括“你好”访问,半结构化面试的一天,和2天的实地观察。线人参加了半结构化的采访,遵循参与者观察和人种学方法。使用归纳方法对访谈内容进行了分析,以对经验数据进行分类。
    结果:使用归纳法,我们确定了与线人需求相关的3个主要类别,值,和偏好:(1)健康,(2)价值创造,(3)资源。这三个主要类别基于9个子类别:(1)健康和障碍,(2)自我监控,(3)药物治疗,(4)行为,(5)动机,(6)爱好,(7)社交网络,(8)卫生专业人员,(9)技术。这些发现表明,线人重视在COPD发作之前保持日常活动和保持认同感。此外,他们表达了不被COPD定义的愿望,因为关于COPD的讨论经常偏离话题。
    结论:数字健康解决方案和为其提供服务的医疗保健专业人员应优先考虑他们所服务的个人,考虑到他们的需要,值,和偏好,而不是仅仅关注医疗状况。这种方法确保了生活在长期健康状况下的人的最高水平的日常生活和赋权。围绕个人的社区必须进行持续的互动和协作。他们应该共同努力,融入人们的需求,值,以及对未来数字医疗服务的偏好,从而促进赋权和自我管理。旨在发展注册护士数字医疗服务能力的新教育计划应促进两个社区之间的合作。这种合作对于支持长期健康状况患者的日常活动至关重要。
    BACKGROUND: Digitally assisted health care services and technologies are gaining popularity. They assist patients in managing their conditions, thereby reducing the burden on health care staff. Digital health care enables individuals to receive care that is more tailored to their needs and preferences. When implemented properly, it can promote equity by considering each person\'s opportunities and limitations in the context of health care needs, preferences, values, and capabilities.
    OBJECTIVE: This study aims to understand the needs, values, and preferences of individuals with chronic obstructive pulmonary disease (COPD) who are provided with a 24/7 digital health care service. Furthermore, we aim to understand the dynamics of the communities to which they belong and how these communities intersect. This will provide us with the essential knowledge to establish new methods of providing education, including the development of educational activities for health professionals to engage, train, and empower people living with COPD.
    METHODS: The study included 7 informants diagnosed with COPD who received 24/7 digital health care service support from a regional project in Region Zealand, Denmark. The informants were visited 4 times during 2 months, including a \"Hello\" visit, a day with a semistructured interview, and 2 days with field observations. The informants participated in a semistructured interview, following participant observation and an ethnographic approach. The interview content was analyzed using an inductive methodology to categorize the empirical data.
    RESULTS: Using the inductive approach, we identified 3 main categories related to the informants\' needs, values, and preferences: (1) Health, (2) Value Creation, and (3) Resources. These 3 main categories were based on 9 subcategories: (1) health and barriers, (2) self-monitoring, (3) medication, (4) behavior, (5) motivation, (6) hobbies, (7) social networks, (8) health professionals, and (9) technology. These findings revealed that the informants placed value on maintaining their daily activities and preserving their sense of identity before the onset of COPD. Furthermore, they expressed a desire not to be defined by their COPD, as conversations about COPD often shifted away from the topic.
    CONCLUSIONS: Digital health solutions and the health care professionals who offer them should prioritize the individuals they serve, considering their needs, values, and preferences rather than solely focusing on the medical condition. This approach ensures the highest level of daily living and empowerment for those living with long-term health conditions. The communities surrounding individuals must engage in constant interaction and collaboration. They should work together to incorporate people\'s needs, values, and preferences into future digital health services, thereby promoting empowerment and self-management. New educational programs aimed at developing the digital health service competencies of registered nurses should facilitate collaboration between the 2 communities. This collaboration is essential for supporting patients with long-term health conditions in their daily activities.
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  • 文章类型: Journal Article
    目的:确定英国长期COVID(LC)患者的需求。
    方法:定性研究使用框架分析来分析焦点小组讨论。
    方法:25名19-76岁的LC成年人,包括17名男性和8名女性。平均病程为80.1周。
    方法:2023年4月,在利兹大学(UoL)在线和面对面进行了八个焦点小组,英国。招聘路线包括通过利兹社区医疗保健服务发布广告,英国国家歌剧院呼吸节目和UoL。
    结果:确定了三个关键主题/需求。(主题1)支持系统,包括社区团体,残疾福利,临床服务和就业支持应该是可获得的,并适合LC患者的需求。(主题2)研究应该调查症状的生理学,新的临床试验和治疗干预措施,以提高临床对病情和症状管理的认识。(主题3)应通过地方和国家倡议来提高社会意识,以教育公众了解这种状况并减少污名。
    结论:参与者经历了由于LC对日常生活的各种挑战。政府需要承认LC为残疾,以确保患有LC的人能够获得残疾支持和法律保护。政策制定应以患者为导向,并承认LC患者的个人需求,以提高他们的生活质量。
    OBJECTIVE: To identify the needs of people with long COVID (LC) in the UK.
    METHODS: Qualitative study using the Framework Analysis to analyse focus group discussions.
    METHODS: 25 adults with LC aged 19-76 years including 17 men and 8 women. Average disease duration was 80.1 weeks.
    METHODS: Eight focus groups were conducted in April 2023 online and in-person at the University of Leeds (UoL), UK. Recruitment routes included advertisement via Leeds Community Healthcare services, the English National Opera Breathe Programme and within the UoL.
    RESULTS: Three key themes/needs were identified. (Theme 1) Support systems including community groups, disability benefits, clinical services and employment support should be accessible and tailored to the needs of people with LC. (Theme 2) Research should investigate the physiology of symptoms, new clinical tests and treatment interventions to improve clinical understanding of the condition and symptom management. (Theme 3) Societal awareness should be promoted via local and national initiatives to educate the public about the condition and reduce stigma.
    CONCLUSIONS: Participants experienced varied and individual challenges to daily life due to LC. There is a need for government acknowledgement of LC as a disability to ensure people with LC have access to disability support and legal protection. Policy development should be patient-driven and acknowledge the individual needs of people with LC in order to improve their quality of life.
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