Abstract：
BACKGROUND: Digitally assisted health care services and technologies are gaining popularity. They assist patients in managing their conditions, thereby reducing the burden on health care staff. Digital health care enables individuals to receive care that is more tailored to their needs and preferences. When implemented properly, it can promote equity by considering each person\'s opportunities and limitations in the context of health care needs, preferences, values, and capabilities.
OBJECTIVE: This study aims to understand the needs, values, and preferences of individuals with chronic obstructive pulmonary disease (COPD) who are provided with a 24/7 digital health care service. Furthermore, we aim to understand the dynamics of the communities to which they belong and how these communities intersect. This will provide us with the essential knowledge to establish new methods of providing education, including the development of educational activities for health professionals to engage, train, and empower people living with COPD.
METHODS: The study included 7 informants diagnosed with COPD who received 24/7 digital health care service support from a regional project in Region Zealand, Denmark. The informants were visited 4 times during 2 months, including a \"Hello\" visit, a day with a semistructured interview, and 2 days with field observations. The informants participated in a semistructured interview, following participant observation and an ethnographic approach. The interview content was analyzed using an inductive methodology to categorize the empirical data.
RESULTS: Using the inductive approach, we identified 3 main categories related to the informants\' needs, values, and preferences: (1) Health, (2) Value Creation, and (3) Resources. These 3 main categories were based on 9 subcategories: (1) health and barriers, (2) self-monitoring, (3) medication, (4) behavior, (5) motivation, (6) hobbies, (7) social networks, (8) health professionals, and (9) technology. These findings revealed that the informants placed value on maintaining their daily activities and preserving their sense of identity before the onset of COPD. Furthermore, they expressed a desire not to be defined by their COPD, as conversations about COPD often shifted away from the topic.
CONCLUSIONS: Digital health solutions and the health care professionals who offer them should prioritize the individuals they serve, considering their needs, values, and preferences rather than solely focusing on the medical condition. This approach ensures the highest level of daily living and empowerment for those living with long-term health conditions. The communities surrounding individuals must engage in constant interaction and collaboration. They should work together to incorporate people\'s needs, values, and preferences into future digital health services, thereby promoting empowerment and self-management. New educational programs aimed at developing the digital health service competencies of registered nurses should facilitate collaboration between the 2 communities. This collaboration is essential for supporting patients with long-term health conditions in their daily activities.
OBJECTIVE: This study aims to understand the needs, values, and preferences of individuals with chronic obstructive pulmonary disease (COPD) who are provided with a 24/7 digital health care service. Furthermore, we aim to understand the dynamics of the communities to which they belong and how these communities intersect. This will provide us with the essential knowledge to establish new methods of providing education, including the development of educational activities for health professionals to engage, train, and empower people living with COPD.
METHODS: The study included 7 informants diagnosed with COPD who received 24/7 digital health care service support from a regional project in Region Zealand, Denmark. The informants were visited 4 times during 2 months, including a \"Hello\" visit, a day with a semistructured interview, and 2 days with field observations. The informants participated in a semistructured interview, following participant observation and an ethnographic approach. The interview content was analyzed using an inductive methodology to categorize the empirical data.
RESULTS: Using the inductive approach, we identified 3 main categories related to the informants\' needs, values, and preferences: (1) Health, (2) Value Creation, and (3) Resources. These 3 main categories were based on 9 subcategories: (1) health and barriers, (2) self-monitoring, (3) medication, (4) behavior, (5) motivation, (6) hobbies, (7) social networks, (8) health professionals, and (9) technology. These findings revealed that the informants placed value on maintaining their daily activities and preserving their sense of identity before the onset of COPD. Furthermore, they expressed a desire not to be defined by their COPD, as conversations about COPD often shifted away from the topic.
CONCLUSIONS: Digital health solutions and the health care professionals who offer them should prioritize the individuals they serve, considering their needs, values, and preferences rather than solely focusing on the medical condition. This approach ensures the highest level of daily living and empowerment for those living with long-term health conditions. The communities surrounding individuals must engage in constant interaction and collaboration. They should work together to incorporate people\'s needs, values, and preferences into future digital health services, thereby promoting empowerment and self-management. New educational programs aimed at developing the digital health service competencies of registered nurses should facilitate collaboration between the 2 communities. This collaboration is essential for supporting patients with long-term health conditions in their daily activities.
摘要：
背景：数字辅助医疗服务和技术越来越受欢迎。他们帮助病人管理他们的病情，从而减轻医护人员的负担。数字医疗保健使个人能够获得更适合其需求和偏好的护理。如果实施得当，它可以通过在医疗保健需求的背景下考虑每个人的机会和局限性来促进公平，preferences,值,和能力。
目的：本研究旨在了解需求，值,以及获得24/7数字医疗服务的慢性阻塞性肺疾病（COPD）患者的偏好。此外，我们的目标是了解他们所属社区的动态，以及这些社区如何相交。这将为我们提供必要的知识，以建立提供教育的新方法，包括为卫生专业人员开展教育活动，火车,并赋予COPD患者权力。
方法：该研究包括7名被诊断为COPD的线人，他们接受了来自新西兰地区一个区域项目的24/7数字医疗服务支持，丹麦。在两个月的时间里，线人被访问了4次，包括“你好”访问，半结构化面试的一天，和2天的实地观察。线人参加了半结构化的采访，遵循参与者观察和人种学方法。使用归纳方法对访谈内容进行了分析，以对经验数据进行分类。
结果：使用归纳法，我们确定了与线人需求相关的3个主要类别，值,和偏好：(1)健康，（2）价值创造，（3）资源。这三个主要类别基于9个子类别：(1)健康和障碍，（2）自我监控，（3）药物治疗，（4）行为，（5）动机，(6)爱好,（7）社交网络，（8）卫生专业人员，（9）技术。这些发现表明，线人重视在COPD发作之前保持日常活动和保持认同感。此外，他们表达了不被COPD定义的愿望，因为关于COPD的讨论经常偏离话题。
结论：数字健康解决方案和为其提供服务的医疗保健专业人员应优先考虑他们所服务的个人，考虑到他们的需要,值,和偏好，而不是仅仅关注医疗状况。这种方法确保了生活在长期健康状况下的人的最高水平的日常生活和赋权。围绕个人的社区必须进行持续的互动和协作。他们应该共同努力，融入人们的需求，值,以及对未来数字医疗服务的偏好，从而促进赋权和自我管理。旨在发展注册护士数字医疗服务能力的新教育计划应促进两个社区之间的合作。这种合作对于支持长期健康状况患者的日常活动至关重要。
目的：本研究旨在了解需求，值,以及获得24/7数字医疗服务的慢性阻塞性肺疾病（COPD）患者的偏好。此外，我们的目标是了解他们所属社区的动态，以及这些社区如何相交。这将为我们提供必要的知识，以建立提供教育的新方法，包括为卫生专业人员开展教育活动，火车,并赋予COPD患者权力。
方法：该研究包括7名被诊断为COPD的线人，他们接受了来自新西兰地区一个区域项目的24/7数字医疗服务支持，丹麦。在两个月的时间里，线人被访问了4次，包括“你好”访问，半结构化面试的一天，和2天的实地观察。线人参加了半结构化的采访，遵循参与者观察和人种学方法。使用归纳方法对访谈内容进行了分析，以对经验数据进行分类。
结果：使用归纳法，我们确定了与线人需求相关的3个主要类别，值,和偏好：(1)健康，（2）价值创造，（3）资源。这三个主要类别基于9个子类别：(1)健康和障碍，（2）自我监控，（3）药物治疗，（4）行为，（5）动机，(6)爱好,（7）社交网络，（8）卫生专业人员，（9）技术。这些发现表明，线人重视在COPD发作之前保持日常活动和保持认同感。此外，他们表达了不被COPD定义的愿望，因为关于COPD的讨论经常偏离话题。
结论：数字健康解决方案和为其提供服务的医疗保健专业人员应优先考虑他们所服务的个人，考虑到他们的需要,值,和偏好，而不是仅仅关注医疗状况。这种方法确保了生活在长期健康状况下的人的最高水平的日常生活和赋权。围绕个人的社区必须进行持续的互动和协作。他们应该共同努力，融入人们的需求，值,以及对未来数字医疗服务的偏好，从而促进赋权和自我管理。旨在发展注册护士数字医疗服务能力的新教育计划应促进两个社区之间的合作。这种合作对于支持长期健康状况患者的日常活动至关重要。
