Involvement

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  • 文章类型: Journal Article
    目的:阐明通过主要和次要非正式照顾者的参与来解决养老院老年人孤独感和社会隔离问题的干预机制。
    方法:这项范围审查是由两名独立的审查人员进行的,涵盖2011年至2022年期间和MEDLINE数据库,CINAHL,PsycINFO和Scopus。它包括与(A)非正式护理人员有关的术语,(B)疗养院,(C)社会心理干预,(D)参与和(E)社会孤立或孤独。
    结果:33项研究符合纳入标准。尽管有各种定义和评估工具与社会孤立和孤独有关,这些研究在养老院居民中提到了这些概念的三个维度:社会交往的数量,对这些相遇的感知和社会关系的传记变化。大多数研究没有阐明这些干预措施的机制。审查揭示了干预机制的以下方面:增加社会接触的机会,创造有意义的相遇,保持与主要非正式护理人员的现有关系,并与次要非正式护理人员建立新的关系。
    结论:关于解决养老院居民孤独感和社会隔离的干预措施的研究报告需要澄清和详细说明其干预机制,以促进更有针对性的干预措施。此外,有必要对这一领域的大规模计划或护理理念进行进一步研究,并开发干预设计,它允许量身定制的干预格式,以回应个人对社会关系的看法。
    OBJECTIVE: To clarify the mechanisms of interventions addressing loneliness and social isolation in older adults living in nursing homes through the involvement of primary and secondary informal caregivers.
    METHODS: This scoping review was performed by two independent reviewers, covering the period between 2011 and 2022 and the databases MEDLINE, CINAHL, PsycINFO and Scopus. It included terms related to (A) informal caregivers, (B) nursing homes, (C) psychosocial interventions, (D) involvement and (E) social isolation or loneliness.
    RESULTS: Thirty-three studies met the inclusion criteria. Although there were various definitions and assessment tools related to social isolation and loneliness, the studies referred to three dimensions of these concepts in nursing home residents: the quantity of social interactions, the perception of these encounters and biographical changes in social relationships. Most studies did not explicate the mechanisms of these interventions. The review uncovered the following aspects of intervention mechanisms: increasing opportunities for social contact, creating meaningful encounters, maintaining existing relationships with primary informal caregivers and establishing new ones with secondary informal caregivers.
    CONCLUSIONS: Studies reporting on interventions addressing loneliness and social isolation in nursing home residents need to clarify and detail their intervention mechanisms in order to foster more targeted interventions. In addition, there is a need for further research on large-scale programs or care philosophies in this field and the development of intervention designs, which allow for tailored intervention formats in order to respond to the individual perception of social relationships.
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  • 文章类型: Journal Article
    流行病学估计表明,墨西哥约有12%的儿童和青少年处于心理障碍的临床范围内。需要心理支持的低收入家庭通常会遇到人手不足,有时甚至效率低下的公共卫生服务,因此,家庭通常是受精神健康障碍影响的个人的主要支持来源。墨西哥背景下的实证研究表明,积极的父母做法与儿童和青少年的积极发展成果和低水平的问题行为有关。这项研究旨在确定这些做法是否作为第四墨西哥306名学生的问题行为的保护因素,5th,和墨西哥城3所公立小学的6年级。发现产妇自主和沟通以及产妇温暖的做法显着减少了内化和外化问题行为,而父母的参与和沟通只会减少外部化的问题行为。研究结果对针对青年积极发展和支持性育儿的社会福利计划有影响。
    Epidemiological estimates indicate that approximately 12% of children and adolescents in Mexico are in clinical ranges for psychological disorders. Low-income families in need of psychological support generally encounter understaffed and sometimes inefficient public health services and thus, families frequently constitute the primary source of support for individuals affected by mental health disorders. Empirical studies in the Mexican context have demonstrated that positive parental practices are associated with positive developmental outcomes and low levels of problem behaviors for both children and adolescents. This study aims to identify if such practices act as protective factors for problem behaviors in 306 Mexican students in 4th, 5th, and 6th grades from 3 public elementary school s in Mexico City. Practices of maternal autonomy and communication as well as maternal warmth were found to significantly diminish internalizing and externalizing problem behaviors, while parental involvement and communication only reduced externalizing problem behaviors. Findings have implications for social welfare programs that target positive youth development and supportive parenting.
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  • 文章类型: Journal Article
    背景:在英国,由于越来越多的年轻人遇到心理健康方面的困难,年轻人(16-25岁)的心理健康问题在公众健康方面日益受到关注,许多人与心理健康服务没有联系。设计满足所有年轻人需求的服务,各种各样的年轻人必须参与心理健康研究,超越参与者。这项Delphi研究旨在识别不同类型的“参与”,并定义和描述年轻人参与心理健康研究的“代表性不足”。
    方法:27位青少年心理健康研究专家完成了一系列在线问卷调查。专家是学术研究人员,患者和公众参与(PPI)专业人员和年轻的“经验专家”。第1轮产生了小组成员\'对\'参与\'和\'代表性不足\'的看法。第2轮总结了第1轮小组成员的答复,并在9个问题领域寻求共识(至少70%同意)。第3轮验证了前几轮的调查结果。
    结果:在9个领域中的8个领域达成了共识,导致不同类型的年轻人参与心理健康研究的矩阵(有定义),从顾问到参与大使。调查结果产生了一个商定的代表性不足的定义,确定在研究过程中何时存在代表性不足以及代表性不足的年轻人的特征。专家们进一步商定了应收集的人口统计数据,以改善参与情况的报告。
    结论:通过专家共识,这项研究增加了我们对年轻人心理健康研究背景下的参与和代表性不足的理解。它为考虑让年轻人参与研究过程的研究人员提供了实用资源,并提出了应收集的数据,以改善有关年轻人多样性的报告。
    一个由五名年轻人组成的研究监督小组为这项研究提供了建议。他们在整个项目中做出了贡献-从认可研究问题到评论研究结果和传播。其中两个小组审查了所有参与者的材料,并试行了初始问卷。
    BACKGROUND: The mental health of young people (aged 16-25 years) is a growing public health concern in the United Kingdom due to the increasing numbers of young people experiencing mental health difficulties, with many not in contact with mental health services. To design services that meet the needs of all young people, a diversity of young people must be involved in mental health research, beyond being participants. This Delphi study aimed to identify different types of \'involvement\' and to define and describe \'under-representation\' in young people\'s involvement in mental health research.
    METHODS: Twenty-seven experts in young people\'s mental health research completed a series of online questionnaires. The experts were academic researchers, patient and public involvement (PPI) professionals and young \'experts by experience\'. Round 1 generated panellists\' views on \'involvement\' and \'under-representation\'. Round 2 summarised panellists\' responses from Round 1 and sought consensus (minimum 70% agreement) in nine question areas. Round 3 validated the findings of the previous rounds.
    RESULTS: Consensus was achieved in eight out of nine areas, resulting in a matrix (with definitions) of the different types of young people\'s involvement in mental health research, from being advisors to involvement ambassadors. The findings generated an agreed-upon definition of under-representation, an identification of when in the research process there is under-representation and the characteristics of the young people who are under-represented. Experts further agreed on demographic data that should be collected to improve reporting on involvement.
    CONCLUSIONS: This study adds to our understanding of involvement and under-representation in the context of young people\'s mental health research through expert consensus. It provides a practical resource for researchers considering involving young people in the research process and suggests the data that should be collected to improve reporting on the diversity of the young people involved.
    UNASSIGNED: A research oversight group of five young people advised on this study. They contributed throughout the project-from endorsing the research question to commenting on the findings and dissemination. Two of the group reviewed all participant materials and piloted the initial questionnaire.
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  • 文章类型: Journal Article
    在小学度过大部分生活的孩子会遭受各种危害,例如身体伤害,感染,营养和情绪问题。学龄是身心快速发展的时期。儿童需要健康的环境进行适当的调整,以最大程度地受益于教育系统。建立了学校卫生服务以确保学校社区成员的健康。教师在促进和成功实施方案方面发挥着重要作用。这项研究检查了知识,公立小学教师对学校卫生服务的态度和参与度。
    这是在Isi-ala-NgwaLGA的24所公立小学中进行的横断面描述性研究,阿比亚州。研究了LGA中的所有公立小学教师(264)。使用预先测试的自我管理的半结构化问卷收集数据。使用SPSS版本26对数据进行了分析,并在频率表中显示。使用卡方检验分类变量之间的关联。P<0.05为有统计学意义。
    参与者的年龄呈正态分布,中位数,模式和标准偏差分别为35.7,35.5,35.5和8.87。从调查结果来看,169名(64%)受访者有良好的知识,120人(38.6%)对学校卫生服务持积极态度,72人(27.3%)参与良好。除教师资格,知识和态度外,社会人口学特征与学校卫生服务知识和对学校卫生服务的态度之间存在统计学上的显着差异。除教师居住区外,社会人口统计学特征和卫生服务参与之间存在统计学上的显着差异。
    受访者对学校卫生服务的知识很好,但态度和参与度较差。
    UNASSIGNED: Children who spend large part of their lives in primary schools are exposed to varieties of hazards like physical injuries, infections, nutritional and emotional problems. School age is a period of rapid physical and mental developments. Children require healthy environments for appropriate adjustments to benefit maximally from educational systems. School Health Services were established to ensure healthy members of school community. Teachers play major roles in promotion and successful implementation of programmes. This study examined the knowledge, attitude and involvement of public primary school teachers on school health services.
    UNASSIGNED: This was cross-sectional descriptive study conducted in 24 public primary schools in Isi-ala-Ngwa LGA, Abia State. All the public primary school teachers (264) in the LGA were studied. Data were collected using pre-tested self-administered semi-structured questionnaire. Data were analysed using SPSS version 26 and presented in frequency tables. Chi-square was used to test association between categorical variables. P<0.05 was taken as statistically significant.
    UNASSIGNED: Ages of participants were normally distributed with mean, median, mode and standard deviation being 35.7, 35.5, 35.5 and 8.87 respectively. From the findings, 169 (64%) respondents had good knowledge, 120 (38.6%) had positive attitude to school health services while 72 (27.3%) had good involvement. There was statistically significant difference between socio-demographic characteristics and knowledge of school health services and attitude towards school health services except for qualification of teachers and knowledge of and attitude. There was statistically significant difference between socio-demographic characteristics and involvement of health services except for teachers\' residential area.
    UNASSIGNED: The respondents had good knowledge but poor attitude and involvement to school health services.
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  • 文章类型: Journal Article
    背景:产科背景下的最新研究表明,患者参与住院患者安全具有附加价值。尽管有这些好处,产科最近的研究表明,患者参与对患者安全的四种不同的负面影响已经出现。然而,目前缺乏从患者参与患者安全的角度解决这些负面影响的方法.出于这个原因,本研究的目的是概述可以采取的措施,以减轻患者参与产科患者安全的负面影响.
    方法:本研究在某三级学术中心的产科进行。一项探索性定性访谈研究包括对专业人士(N=8)和患者(N=8)的16次访谈。减轻患者参与患者安全的负面影响的行动,使用演绎方法进行了分析和分类。
    结果:发现18项措施减轻了患者参与产科患者安全的负面影响。这些行动分为五个主题:\'结构\',\'文化\',\'教育\',\'情感\',和“物理和技术”。这五个类别反映了当前改善患者安全的方法,主要是从专业人员而不是患者的角度来看。
    结论:大多数确定的行动与改变文化有关,以产生更多的以患者为中心的护理并改变当前的现实。这主要是从专业人士的角度来看,而从患者的角度来看太少。此外,建议的行动都不符合第六个预期类别,即,\'政治\'。未来的研究应该探索基于这些行动实施以患者为中心的护理方法的方法。通过这样做,空间,必须创造金钱和时间来阐述这些行动,并将它们整合到组织结构中,文化和实践。
    BACKGROUND: Recent research within the context of Obstetrics shows the added value of patient participation in in-hospital patient safety. Notwithstanding these benefits, recent research within an Obstetrics department shows that four different negative effects of patient participation in patient safety have emerged. However, the approach to addressing these negative effects within the perspective of patient participation in patient safety is currently lacking. For this reason, the aim of this study is to generate an overview of actions that could be taken to mitigate the negative effects of patient participation in patient safety within an Obstetrics department.
    METHODS: This study was conducted in the Obstetrics Department of a tertiary academic center. An explorative qualitative interview study included sixteen interviews with professionals (N = 8) and patients (N = 8). The actions to mitigate the negative effects of patient participation in patient safety, were analyzed and classified using a deductive approach.
    RESULTS: Eighteen actions were identified that mitigated the negative effects of patient participation in patient safety within an Obstetrics department. These actions were categorized into five themes: \'structure\', \'culture\', \'education\', \'emotional\', and \'physical and technology\'. These five categories reflect the current approach to improving patient safety which is primarily viewed from the perspective of professionals rather than of patients.
    CONCLUSIONS: Most of the identified actions are linked to changing the culture to generate more patient-centered care and change the current reality, which looks predominantly from the perspective of the professionals and too little from that of the patients. Furthermore, none of the suggested actions fit within a sixth anticipated category, namely, \'politics\'. Future research should explore ways to implement a patient-centered care approach based on these actions. By doing so, space, money and time have to be created to elaborate on these actions and integrate them into the organizations\' structure, culture and practices.
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  • 文章类型: Journal Article
    护士提供全球90%的医疗保健,然而,人们对中低收入国家(LMICs)护士和助产士在政策制定方面的经验知之甚少。
    要识别,评估和综合关于护士和助产士参与政策制定的定性证据。
    使用改进的乔安娜·布里格斯研究所(JBI)方法的定性系统综述。
    中低收入国家。
    参与政策制定的护士和助产士,实施,和/或评估。
    在9个数据库中进行了系统搜索,以检索从开始到2021年4月之间以英文发表的研究。筛选,批判性评估,数据提取由两名独立审查员进行。
    十篇文章符合纳入标准。所有研究均在2000年至2021年之间发表,来自各种LMIC。这些研究是中等质量到高质量的(70-100%关键评估分数)。确定了与政策制定有关的四个主要主题:1)护士的边际代表性;2)护士参与的决定因素(包括个人,组织,和系统水平);3)领导力作为参与途径;4)促进护士参与。
    所有研究表明,护士和护士助产士继续最低限度地参与政策制定。研究结果揭示了护士参与有限的原因以及促进护士持续参与LMIC政策制定的策略。为了加强他们对低收入国家政策制定的参与,需要在多个层面进行变革。需要重建系统的权力关系,以促进与护士共同领导和共同制定医疗保健政策的跨学科合作实践。
    UNASSIGNED: Nurses provide 90% of health care worldwide, yet little is known of the experiences of nurses and midwives in policy development in low- and middle-income countries (LMICs).
    UNASSIGNED: To identify, appraise and synthesize the qualitative evidence on the experiences of nurses\' and midwives\' involvement in policy development LMICs.
    UNASSIGNED: A qualitative systematic review using modified Joanna Briggs Institute (JBI) methodology.
    UNASSIGNED: Low and middle-income countries.
    UNASSIGNED: Nurses\' and midwives\' involved in policy development, implementation, and/or evaluation.
    UNASSIGNED: A systematic search was undertaken across nine databases to retrieve published studies in English between inception and April of 2021. Screening, critical appraisal, and data extraction was undertaken by two independent reviewers.
    UNASSIGNED: Ten articles met inclusion criteria. All studies were published between 2000 to 2021 from a variety of LMICs. The studies were medium to high quality (70-100% critical appraisal scores). Four major themes were identified related to policy development: 1) Marginal representation of nurses; 2) Determinants of nurses\' involvement (including at the individual, organization, and systematic level); 3) Leadership as a pathway to involvement; 4) Promoting nurses\' involvement.
    UNASSIGNED: All studies demonstrated that nurses and nurse midwives continue to be minimally involved in policy development. Findings reveal reasons for nurses\' limited involvement and strategies to foster sustained engagement of nurses in policy development in LMICs. To enhance their involvement in policy development in LMICs, change is needed at multiple levels. Systemic power relations need to be reconstructed to facilitate more collaborative interdisciplinary practices with nurses co-leading and co-developing health care policies.
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  • 文章类型: Journal Article
    背景:自闭症谱系障碍(ASD)是一种导致社交技能缺陷的终身神经系统疾病,沟通困难,以及限制性和重复性行为。与养育ASD儿童相关的困难已经得到了广泛的研究,主要从母亲的角度来看。父亲参与抚养自闭症儿童的程度受到了有限的学术关注,特别是在非西方国家,如阿拉伯联合酋长国。
    目的:这项研究要求母亲评估父亲参与ASD儿童发育的情况。
    方法:总之,240名母亲完成了父亲参与发展和康复量表,设计基于对参与结构的文献回顾,即态度,参与培训,并支持域名。数据经过平均分数的计算,多变量方差分析,分层回归,和适度分析。
    结果:结果表明,父亲持有积极的态度,并为患有ASD的孩子提供了实质性的支持。然而,母亲对父亲参与支持子女发展的培训持矛盾态度。根据婚姻状况,参与者之间也观察到差异,location,儿童性别,和ASD严重性。
    结论:讨论了对父亲进行针对性培训的建议和其他研究意义。
    BACKGROUND: Autism spectrum disorder (ASD) is a lifelong neurological condition which results in social skill deficits, communication difficulties, and restrictive and repetitive behaviour. The difficulties associated with parenting children with ASD have been studied extensively, mainly from the perspectives of mothers. The extent of involvement of fathers in the raising of children with ASD has received limited scholarly attention, especially in non-Western contexts such as the United Arab Emirates.
    OBJECTIVE: This study asked mothers to evaluate the involvement of fathers in the development of children with ASD.
    METHODS: In all, 240 mothers completed the Fathers\' Involvement in Development and Rehabilitation Scale, designed based on a review of literature on the construct of involvement, namely attitude, participation in training, and support domains. The data were subjected to computation of mean scores, multivariate analysis of variance, hierarchical regression, and moderation analyses.
    RESULTS: The results suggested that fathers held positive attitudes and provided substantial support to their children with ASD. However, mothers were ambivalent regarding the participation of fathers in training to support the development of their children. Differences were also observed between participants according to marital status, location, child gender, and ASD severity.
    CONCLUSIONS: Recommendations for targeted training for fathers and other study implications are discussed.
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  • 文章类型: Journal Article
    性健康和生殖健康权利(SRHR)是每个人享有可达到的最高身心健康标准的权利的组成部分,但是他们是最不发达和最不被理解的权利领域,尤其是在非洲,包括埃塞俄比亚。实施妇女的SRHR对于实现性别平等和促进妇女权利至关重要。丈夫的知识和参与在改善妇女的SRHR实践中起着重要作用。然而,关于埃塞俄比亚西北部丈夫的知识和参与程度的信息/数据有限,包括BahirDar市.因此,这项研究旨在评估丈夫的知识,参与,以及影响她们参与女性SRHR的因素。
    基于社区的横断面研究设计于2023年3月20日至4月5日在巴希尔达尔市进行,埃塞俄比亚西北部,391名丈夫。多阶段抽样和简单随机抽样技术用于选择kebeles和研究参与者,分别。使用结构化和预先测试的问卷对参与者进行了面对面的采访。二元logistic回归用于识别相关因素,p值<0.05是宣布有统计学意义的截止点。
    在这项研究中,50.6%(198/391)的丈夫对妻子的SRHR有很好的了解,44.2%(173/391)(95%CI,39.3-49.1%)的丈夫在妻子练习SRHR时参与其中。获得有关性健康的培训/教育[AOR=5.99;95%CI(2.7-13.2)],丈夫的高级教育水平[AOR=8.81;95%CI(2.04-38)],良好的SRHR知识[AOR=7.94;95%CI(4.3-14.4)],月收入低(<4,600比尔)[AOR=9.25;95%CI(4.2-20.5)],并与家人和朋友就SRHR进行了公开讨论[AOR=1.92;95%CI(1.01-3.6)],发现与丈夫的参与有显著关联.
    丈夫对女性SRHR及其参与的知识水平仍然很低。因此,负责任的有关机构需要制定有助于提高男性参与度和知识的战略,并解决上述影响他们参与的因素。
    Sexual and reproductive health rights (SRHRs) are integral elements of the rights of everyone to the highest attainable standard of physical and mental health, but they are the most underdeveloped and least understood sphere of rights, especially in Africa, including the country of Ethiopia. The implementation of women\'s SRHRs is essential for achieving gender equality and promoting women\'s rights. Husbands\' knowledge and involvement play a significant role in improving women\'s practice of their SRHRs. However, there is limited information/data about the level of husbands\' knowledge and involvement in Northwest Ethiopia, including Bahir Dar City. Therefore, this study aimed to assess husbands\' knowledge, involvement, and factors influencing their involvement in women\'s SRHRs.
    Community-based cross-sectional study design was conducted from March 20 to April 5, 2023, in Bahir Dar City, Northwest Ethiopia, among 391 husbands. Multi-stage sampling and simple random sampling technique were applied to select kebeles and study participants, respectively. Participants were interviewed face-to-face using structured and pretested questionnaire. Binary logistic regression was applied to identify associated factors, and a p-value of <0.05 was a cutoff point to declare statistical significance.
    In this study, 50.6% (198/391) of the husbands had good knowledge about their wives\' SRHRs and 44.2% (173/391) (95% CI, 39.3-49.1%) of the husbands were involved when their wives practiced their SRHRs. Access training/education about sexual health [AOR = 5.99; 95% CI (2.7-13.2)], husbands\' advance educational level [AOR = 8.81; 95% CI (2.04-38)], good knowledge about SRHRs [AOR = 7.94; 95% CI (4.3-14.4)], low monthly income (<4,600 birr) [AOR = 9.25; 95% CI (4.2-20.5)], and had open discussion with family members and friends about SRHRs [AOR = 1.92; 95% CI (1.01-3.6)] were found to have significant association with husbands\' involvement.
    Husbands\' level of knowledge on SRHRs of women and their involvement remain low. Therefore, responsible concerned bodies need to work on the strategies that help to improve men involvement and knowledge, and tackle the above-mentioned factors influencing their involvement.
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  • 文章类型: Journal Article
    智能手机应用程序(apps)被广泛认为是改善获得精神保健的有前途的工具。然而,一个关键挑战是开发最终用户可以接受的数字干预措施。与供应商和利益相关者的联合制作越来越成为提高吸收率的黄金标准,订婚,和医疗保健结果。然而,缺乏围绕联合生产过程的明确指导。本次审查的目的是:(i)概述了设计时联合生产的方法和方法,生产,并评估数字心理健康干预措施;(ii)探索在这种情况下影响联合生产的障碍和促进因素。
    根据系统评价和荟萃分析指南的首选报告项目完成预注册(CRD42023414007)系统评价。搜索了5个数据库。根据经验,与专家一起开发了共同生产的定制质量评估工具,以评估共同生产方法和方法的质量。进行了叙事综合。
    24项数字心理健康干预措施的26项研究符合纳入标准。在设计的所有阶段,应用程序干预很少与最终用户共同制作,发展,和评价。通过创造文化敏感和可接受的干预措施,共同生产数字心理健康干预措施增加了价值。报告的挑战包括干预的数字性质加剧了资源问题,利益相关者建议之间的可变性,利益相关者和研究人员之间的权力失衡。
    联合制作数字心理健康干预措施的方法差异显而易见,涉及的利益相关者群体之间的不一致,参与阶段,利益相关者的角色和采用的方法。
    UNASSIGNED: Smartphone apps (apps) are widely recognised as promising tools for improving access to mental healthcare. However, a key challenge is the development of digital interventions that are acceptable to end users. Co-production with providers and stakeholders is increasingly positioned as the gold standard for improving uptake, engagement, and healthcare outcomes. Nevertheless, clear guidance around the process of co-production is lacking. The objectives of this review were to: (i) present an overview of the methods and approaches to co-production when designing, producing, and evaluating digital mental health interventions; and (ii) explore the barriers and facilitators affecting co-production in this context.
    UNASSIGNED: A pre-registered (CRD42023414007) systematic review was completed in accordance with The Preferred Reporting Items for Systematic reviews and Meta-Analyses guidelines. Five databases were searched. A co-produced bespoke quality appraisal tool was developed with an expert by experience to assess the quality of the co-production methods and approaches. A narrative synthesis was conducted.
    UNASSIGNED: Twenty-six studies across 24 digital mental health interventions met inclusion criteria. App interventions were rarely co-produced with end users throughout all stages of design, development, and evaluation. Co-producing digital mental health interventions added value by creating culturally sensitive and acceptable interventions. Reported challenges included resource issues exacerbated by the digital nature of the intervention, variability across stakeholder suggestions, and power imbalances between stakeholders and researchers.
    UNASSIGNED: Variation in approaches to co-producing digital mental health interventions is evident, with inconsistencies between stakeholder groups involved, stage of involvement, stakeholders\' roles and methods employed.
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  • 文章类型: Journal Article
    要检查(1)基准统一医疗语言系统(UMLS)资源中的参与程度,和(2)这种代表性在多大程度上反映了儿童和青年参与的定义和/或其相关结构,每个参与相关结构家庭框架。
    我们搜索并分析了与“参与”一词相关的UMLS概念。\“确定的UMLS概念是根据其参与情况进行评级的(即,出席,参与,两者)以及使用演绎内容分析的参与相关结构。
    确定了363个UMLS概念。其中,68至少有一个英文定义,产生了81个进一步分析的定义。结果显示,2个定义(2/81;3%;2/68UMLS概念)代表参与“出勤”,18个定义(18/81;22%;14/68UMLS概念)代表参与“参与”。\“没有UMLS概念定义同时代表出勤和参与(即,参与)。代表出席或参与的大多数定义(11/20;55%;9/16UMLS概念)也代表与参与相关的结构。
    UMLS内的参与代表性有限,与儿童和青年参与的当代定义不一致。需要扩大本体论资源以代表儿童和青年的参与,以实现更好的数据分析,以反映当代儿科康复实践。
    统一医疗语言系统(UMLS)中的参与代表性有限,与儿童和青年参与的当代定义不一致。从当代儿科康复的角度来看,使用当前的UMLS概念进行数据分析可能会导致对儿童和青少年参与的虚假陈述。需要在UMLS中扩展本体论资源,以完全和完全代表日常生活活动的参与维度(出勤和参与),以实现更好的数据分析,反映当代儿科康复实践。
    UNASSIGNED: To examine (1) how much participation is represented in the benchmark Unified Medical Language System (UMLS) resource, and (2) to what extent that representation reflects the definition of child and youth participation and/or its related constructs per the family of Participation-Related Constructs framework.
    UNASSIGNED: We searched and analysed UMLS concepts related to the term \"participation.\" Identified UMLS concepts were rated according to their representation of participation (i.e., attendance, involvement, both) as well as participation-related constructs using deductive content analysis.
    UNASSIGNED: 363 UMLS concepts were identified. Of those, 68 had at least one English definition, resulting in 81 definitions that were further analysed. Results revealed 2 definitions (2/81; 3%; 2/68 UMLS concepts) representing participation \"attendance\" and 18 definitions (18/81; 22%; 14/68 UMLS concepts) representing participation \"involvement.\" No UMLS concept definition represented both attendance and involvement (i.e., participation). Most of the definitions (11/20; 55%; 9/16 UMLS concepts) representing attendance or involvement also represent a participation-related construct.
    UNASSIGNED: The representation of participation within the UMLS is limited and poorly aligned with the contemporary definition of child and youth participation. Expanding ontological resources to represent child and youth participation is needed to enable better data analytics that reflect contemporary paediatric rehabilitation practice.
    The representation of participation within the Unified Medical Language System (UMLS) is limited and poorly aligned with the contemporary definition of child and youth participation.From a contemporary paediatric rehabilitation perspective, using the current UMLS concepts for data analytics might result in misrepresentation of child and youth participation.There is need to expand ontological resources within the UMLS to fully and exclusively represent participation dimensions (attendance and involvement) in daily life activities to enable better data analytics that reflect contemporary paediatric rehabilitation practice.
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