Involvement

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  • 文章类型: Journal Article
    背景:在英国,由于越来越多的年轻人遇到心理健康方面的困难,年轻人(16-25岁)的心理健康问题在公众健康方面日益受到关注,许多人与心理健康服务没有联系。设计满足所有年轻人需求的服务,各种各样的年轻人必须参与心理健康研究,超越参与者。这项Delphi研究旨在识别不同类型的“参与”,并定义和描述年轻人参与心理健康研究的“代表性不足”。
    方法:27位青少年心理健康研究专家完成了一系列在线问卷调查。专家是学术研究人员,患者和公众参与(PPI)专业人员和年轻的“经验专家”。第1轮产生了小组成员\'对\'参与\'和\'代表性不足\'的看法。第2轮总结了第1轮小组成员的答复,并在9个问题领域寻求共识(至少70%同意)。第3轮验证了前几轮的调查结果。
    结果:在9个领域中的8个领域达成了共识,导致不同类型的年轻人参与心理健康研究的矩阵(有定义),从顾问到参与大使。调查结果产生了一个商定的代表性不足的定义,确定在研究过程中何时存在代表性不足以及代表性不足的年轻人的特征。专家们进一步商定了应收集的人口统计数据,以改善参与情况的报告。
    结论:通过专家共识,这项研究增加了我们对年轻人心理健康研究背景下的参与和代表性不足的理解。它为考虑让年轻人参与研究过程的研究人员提供了实用资源,并提出了应收集的数据,以改善有关年轻人多样性的报告。
    一个由五名年轻人组成的研究监督小组为这项研究提供了建议。他们在整个项目中做出了贡献-从认可研究问题到评论研究结果和传播。其中两个小组审查了所有参与者的材料,并试行了初始问卷。
    BACKGROUND: The mental health of young people (aged 16-25 years) is a growing public health concern in the United Kingdom due to the increasing numbers of young people experiencing mental health difficulties, with many not in contact with mental health services. To design services that meet the needs of all young people, a diversity of young people must be involved in mental health research, beyond being participants. This Delphi study aimed to identify different types of \'involvement\' and to define and describe \'under-representation\' in young people\'s involvement in mental health research.
    METHODS: Twenty-seven experts in young people\'s mental health research completed a series of online questionnaires. The experts were academic researchers, patient and public involvement (PPI) professionals and young \'experts by experience\'. Round 1 generated panellists\' views on \'involvement\' and \'under-representation\'. Round 2 summarised panellists\' responses from Round 1 and sought consensus (minimum 70% agreement) in nine question areas. Round 3 validated the findings of the previous rounds.
    RESULTS: Consensus was achieved in eight out of nine areas, resulting in a matrix (with definitions) of the different types of young people\'s involvement in mental health research, from being advisors to involvement ambassadors. The findings generated an agreed-upon definition of under-representation, an identification of when in the research process there is under-representation and the characteristics of the young people who are under-represented. Experts further agreed on demographic data that should be collected to improve reporting on involvement.
    CONCLUSIONS: This study adds to our understanding of involvement and under-representation in the context of young people\'s mental health research through expert consensus. It provides a practical resource for researchers considering involving young people in the research process and suggests the data that should be collected to improve reporting on the diversity of the young people involved.
    UNASSIGNED: A research oversight group of five young people advised on this study. They contributed throughout the project-from endorsing the research question to commenting on the findings and dissemination. Two of the group reviewed all participant materials and piloted the initial questionnaire.
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  • 文章类型: Journal Article
    背景:产科背景下的最新研究表明,患者参与住院患者安全具有附加价值。尽管有这些好处,产科最近的研究表明,患者参与对患者安全的四种不同的负面影响已经出现。然而,目前缺乏从患者参与患者安全的角度解决这些负面影响的方法.出于这个原因,本研究的目的是概述可以采取的措施,以减轻患者参与产科患者安全的负面影响.
    方法:本研究在某三级学术中心的产科进行。一项探索性定性访谈研究包括对专业人士(N=8)和患者(N=8)的16次访谈。减轻患者参与患者安全的负面影响的行动,使用演绎方法进行了分析和分类。
    结果:发现18项措施减轻了患者参与产科患者安全的负面影响。这些行动分为五个主题:\'结构\',\'文化\',\'教育\',\'情感\',和“物理和技术”。这五个类别反映了当前改善患者安全的方法,主要是从专业人员而不是患者的角度来看。
    结论:大多数确定的行动与改变文化有关,以产生更多的以患者为中心的护理并改变当前的现实。这主要是从专业人士的角度来看,而从患者的角度来看太少。此外,建议的行动都不符合第六个预期类别,即,\'政治\'。未来的研究应该探索基于这些行动实施以患者为中心的护理方法的方法。通过这样做,空间,必须创造金钱和时间来阐述这些行动,并将它们整合到组织结构中,文化和实践。
    BACKGROUND: Recent research within the context of Obstetrics shows the added value of patient participation in in-hospital patient safety. Notwithstanding these benefits, recent research within an Obstetrics department shows that four different negative effects of patient participation in patient safety have emerged. However, the approach to addressing these negative effects within the perspective of patient participation in patient safety is currently lacking. For this reason, the aim of this study is to generate an overview of actions that could be taken to mitigate the negative effects of patient participation in patient safety within an Obstetrics department.
    METHODS: This study was conducted in the Obstetrics Department of a tertiary academic center. An explorative qualitative interview study included sixteen interviews with professionals (N = 8) and patients (N = 8). The actions to mitigate the negative effects of patient participation in patient safety, were analyzed and classified using a deductive approach.
    RESULTS: Eighteen actions were identified that mitigated the negative effects of patient participation in patient safety within an Obstetrics department. These actions were categorized into five themes: \'structure\', \'culture\', \'education\', \'emotional\', and \'physical and technology\'. These five categories reflect the current approach to improving patient safety which is primarily viewed from the perspective of professionals rather than of patients.
    CONCLUSIONS: Most of the identified actions are linked to changing the culture to generate more patient-centered care and change the current reality, which looks predominantly from the perspective of the professionals and too little from that of the patients. Furthermore, none of the suggested actions fit within a sixth anticipated category, namely, \'politics\'. Future research should explore ways to implement a patient-centered care approach based on these actions. By doing so, space, money and time have to be created to elaborate on these actions and integrate them into the organizations\' structure, culture and practices.
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  • 文章类型: Journal Article
    性健康和生殖健康权利(SRHR)是每个人享有可达到的最高身心健康标准的权利的组成部分,但是他们是最不发达和最不被理解的权利领域,尤其是在非洲,包括埃塞俄比亚。实施妇女的SRHR对于实现性别平等和促进妇女权利至关重要。丈夫的知识和参与在改善妇女的SRHR实践中起着重要作用。然而,关于埃塞俄比亚西北部丈夫的知识和参与程度的信息/数据有限,包括BahirDar市.因此,这项研究旨在评估丈夫的知识,参与,以及影响她们参与女性SRHR的因素。
    基于社区的横断面研究设计于2023年3月20日至4月5日在巴希尔达尔市进行,埃塞俄比亚西北部,391名丈夫。多阶段抽样和简单随机抽样技术用于选择kebeles和研究参与者,分别。使用结构化和预先测试的问卷对参与者进行了面对面的采访。二元logistic回归用于识别相关因素,p值<0.05是宣布有统计学意义的截止点。
    在这项研究中,50.6%(198/391)的丈夫对妻子的SRHR有很好的了解,44.2%(173/391)(95%CI,39.3-49.1%)的丈夫在妻子练习SRHR时参与其中。获得有关性健康的培训/教育[AOR=5.99;95%CI(2.7-13.2)],丈夫的高级教育水平[AOR=8.81;95%CI(2.04-38)],良好的SRHR知识[AOR=7.94;95%CI(4.3-14.4)],月收入低(<4,600比尔)[AOR=9.25;95%CI(4.2-20.5)],并与家人和朋友就SRHR进行了公开讨论[AOR=1.92;95%CI(1.01-3.6)],发现与丈夫的参与有显著关联.
    丈夫对女性SRHR及其参与的知识水平仍然很低。因此,负责任的有关机构需要制定有助于提高男性参与度和知识的战略,并解决上述影响他们参与的因素。
    Sexual and reproductive health rights (SRHRs) are integral elements of the rights of everyone to the highest attainable standard of physical and mental health, but they are the most underdeveloped and least understood sphere of rights, especially in Africa, including the country of Ethiopia. The implementation of women\'s SRHRs is essential for achieving gender equality and promoting women\'s rights. Husbands\' knowledge and involvement play a significant role in improving women\'s practice of their SRHRs. However, there is limited information/data about the level of husbands\' knowledge and involvement in Northwest Ethiopia, including Bahir Dar City. Therefore, this study aimed to assess husbands\' knowledge, involvement, and factors influencing their involvement in women\'s SRHRs.
    Community-based cross-sectional study design was conducted from March 20 to April 5, 2023, in Bahir Dar City, Northwest Ethiopia, among 391 husbands. Multi-stage sampling and simple random sampling technique were applied to select kebeles and study participants, respectively. Participants were interviewed face-to-face using structured and pretested questionnaire. Binary logistic regression was applied to identify associated factors, and a p-value of <0.05 was a cutoff point to declare statistical significance.
    In this study, 50.6% (198/391) of the husbands had good knowledge about their wives\' SRHRs and 44.2% (173/391) (95% CI, 39.3-49.1%) of the husbands were involved when their wives practiced their SRHRs. Access training/education about sexual health [AOR = 5.99; 95% CI (2.7-13.2)], husbands\' advance educational level [AOR = 8.81; 95% CI (2.04-38)], good knowledge about SRHRs [AOR = 7.94; 95% CI (4.3-14.4)], low monthly income (<4,600 birr) [AOR = 9.25; 95% CI (4.2-20.5)], and had open discussion with family members and friends about SRHRs [AOR = 1.92; 95% CI (1.01-3.6)] were found to have significant association with husbands\' involvement.
    Husbands\' level of knowledge on SRHRs of women and their involvement remain low. Therefore, responsible concerned bodies need to work on the strategies that help to improve men involvement and knowledge, and tackle the above-mentioned factors influencing their involvement.
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  • 文章类型: Journal Article
    背景:腰背痛仍然是导致残疾和社会负担的主要原因,2020年全球流行病例为6.19亿。大多数国家/地区都制定了临床指南,以支持医疗保健专业人员进行有关下腰痛的循证护理。然而,几项研究发现,指南的吸收相对较差。有人认为,为促进实施准则而制定的量身定制的战略可以增加吸收。这项研究旨在制定根据上下文量身定制的实施计划,以增强丹麦理疗师和初级保健脊医的循证下腰痛护理。
    方法:使用行为变化轮进行了理论驱动的实施方案开发研究,具有高度的医疗保健专业参与。数据收集包括四个讲习班,有来自初级保健诊所的七名物理治疗师和六名脊医。发展过程包括[1]建立理论框架,[2]涉及参与者,[3]了解行为,[4]设计实施方案,和[5]最终实施方案。
    结果:为实施计划选择的目标行为(指南建议)是(i)筛查心理社会危险因素和(ii)提供患者教育。描述了选定行为的障碍和促进者,并将其与干预功能和行为技术联系起来。最后,实施方案包括五项战略:网络研讨会,电子学习视频,交流练习,同伴学习,和小组对话会议。此外,该方案包括实施支持:冠军,物理材料文件夹,每周的电子邮件提醒,专门设计的网站和实施顾问的访问。总体方案的一个基本要素是,它被设计为一个逐步实施的过程,包括在16周内分发16小时的教育和培训。
    结论:根据行为改变理论和四个由医疗保健专业人员参与的共同设计研讨会,制定了实施腰背痛指南建议的计划,以克服上下文确定的障碍。涉及医疗保健专业人员的理论驱动方法对于确定相关目标行为和调整计划以考虑背景障碍和实施促进者很有用。最终实施方案的有效性将在项目的下一阶段进行评估。
    背景:丹麦中部地区,2021年11月11日注册,第号法案。1-16-02-93-19.
    BACKGROUND: Low back pain is still the leading cause of disability and societal burden, with 619 million prevalent cases worldwide in 2020. Most countries produce clinical guidelines to support healthcare professionals in evidence-based care regarding low back pain. However, several studies have identified relatively poor uptake of guidelines. Tailored strategies to facilitate the implementation of guidelines have been argued to increase uptake. This study aimed to develop a contextually tailored implementation programme to enhance evidence-based low back pain care among Danish physiotherapists and chiropractors in primary care.
    METHODS: A theory-driven implementation programme development study was conducted using the Behaviour Change Wheel, with high healthcare professional involvement. Data collection included four workshops with seven physiotherapists and six chiropractors from primary care clinics. The development process consisted of [1] establishing a theoretical frame, [2] involving participants, [3] understanding the behaviour, [4] designing the implementation programme, and [5] final implementation programme.
    RESULTS: The target behaviours selected (guideline recommendations) for the implementation programme were (i) screening of psychosocial risk factors and (ii) offering patient education. The barriers and facilitators for the selected behaviours were described and linked to intervention functions and behavioural techniques. Finally, the implementation programme comprised five strategies: webinars, e-learning videos, communication exercises, peer learning, and group dialogue meetings. In addition, the programme consisted of implementation support: champions, a physical material folder, a weekly email reminder, a specially designed website and a visit from an implementation consultant. An essential element of the overall programme was that it was designed as a step-by-step implementation process consisting of 16 h of education and training distributed over 16 weeks.
    CONCLUSIONS: A programme for implementing low back pain guideline recommendations was developed based on behaviour change theory and four co-design workshops involving healthcare professionals to overcome the contextually identified barriers. A theory-driven approach involving healthcare professionals was useful in identifying relevant target behaviours and tailoring the programme to consider contextual barriers and facilitators for implementation. The effectiveness of the final implementation programme will be evaluated in the project\'s next phase.
    BACKGROUND: Central Denmark Region, Registered November 11, 2021, act no. 1-16-02-93-19.
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  • 文章类型: Journal Article
    男性伴侣参与产前护理(ANC)是改善母婴健康结果的有效方法。它还提高了产妇保健的利用率,因为在包括埃塞俄比亚在内的大多数发展中国家,男性在保健利用方面占主导地位。尽管男性伴侣参与的重要性得到公认,研究区域没有研究数据。因此,这项研究的目的是评估男性伴侣在产前护理中的参与状况和相关因素,在埃塞俄比亚南部地区发现。
    该研究于2022年4月1日至30日在ChenchaTown的560名男性伴侣中采用了基于社区的横截面设计。为了收集数据,我们使用结构化的,预先测试和面试官管理的问卷。使用简单随机抽样方法选择研究参与者。使用社会科学统计软件包(SPSS)第25版进行数据分析。描述性统计,包括平均值,频率,和百分比用于总结研究参与者的相关特征.进行了双变量和多变量逻辑回归分析,以检测自变量和结果变量之间的关联。在最终模型中,统计学意义设定为P<0.05。
    该研究发现,有57%(95%CI:53%-61%)的男性伴侣参与了产前护理。年龄20至29岁(AOR=2.60,95CI:1.26,5.37),高于中等教育水平(AOR=2.04,95CI:1.08,3.88),作为政府工作人员(AOR=2.03,95CI:1.12,3.67),在产前护理期间暴露于男性参与的信息(AOR=4.37,95CI:2.77,6.91),男性对妊娠危险体征的知识(AOR=2.55,95CI:1.62,4.02)是与男性伴侣参与产前护理呈正相关的因素。
    男性伴侣参与产前护理的患病率相对较高,但仍需改进以达到可接受的水平。这种参与在20-29岁的人群中蓬勃发展,他们接触过男性参与产前护理的信息,有更高的教育水平,政府雇员,并意识到怀孕的危险迹象。这些因素可用于针对旨在增加男性参与产前护理的干预措施,这有助于改善母亲和儿童的健康。
    UNASSIGNED: Involvement of male partners in antenatal care (ANC) is an effective approach to improve maternal and child health outcomes. It also enhances maternal healthcare utilization as males prevails decision-making regarding healthcare utilization in most developing countries including Ethiopia. Despite the acknowledged importance of male partners involvement, there is no research data in the study area. Therefore, the purpose of this study is to assess the status of male partners\' involvement in antenatal care and associated factors in Chencha town, which is found in southern region of Ethiopia.
    UNASSIGNED: The study adopted a community-based cross-sectional design from April 1-30, 2022, among 560 male partners in Chencha Town. To collect data, we use a structured, pretested and interviewer-administered questionnaire. The study participants were selected using a simple random sampling method. Analysis of data was performed using the statistical package for social sciences (SPSS) version 25. Descriptive statistics including mean, frequency, and percentage were used to summarize pertinent characteristics of study participants. Both bivariable and multivariable logistic regression analyses were carried out to detect the association between the independent and outcome variables. The statistical significance was set at P < 0.05 in the final model.
    UNASSIGNED: The study found that 57% (95% CI: 53%-61%) of male partners were involved in antenatal care. Age 20 to 29 (AOR = 2.60, 95%CI:1.26, 5.37), more than secondary educational level (AOR = 2.04, 95%CI:1.08, 3.88), being government workers (AOR = 2.03, 95%CI:1.12, 3.67), exposure to information on male involvement during antenatal care (AOR = 4.37, 95%CI: 2.77, 6.91), and males\' knowledge about pregnancy danger sign (AOR = 2.55, 95%CI: 1.62, 4.02) were factors positively associated with male partner involvement in antenatal care.
    UNASSIGNED: The prevalence of male partner involvement in antenatal care was relatively high, but it still needs to be improved to reach acceptable level. The involvement thrives among those aged 20-29 years, who have been exposed to information on male involvement in antenatal care, have higher education levels, government employees, and are aware of pregnancy danger signs. These factors can be used to target interventions that aim to increase male involvement in antenatal care, which helps to improve the health of both mothers and children.
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  • 文章类型: Journal Article
    这项混合方法研究的目的是研究照顾者策略在支持残疾儿童和青年以及处于危险中的社区参与中的作用,从照顾者的角度来看。对于定量阶段,我们测试了以参与为中心的照顾者策略对参与相关结构与社区参与出勤和参与之间关系的假设正效应.对于定性阶段,我们征求了护理人员的观点来解释定量结果。
    使用了解释性的顺序混合方法设计(QUAN>qual)。对于定量阶段,我们对纵向队列研究的第二个随访阶段收集的数据进行了二次分析,包括260个残疾儿童和青少年家庭(平均年龄:13.5岁),[即,120个患有颅面微症(CFM)的儿童和青年家庭;140个患有其他类型的儿童发病残疾的儿童和青年家庭]。数据是通过参与和环境措施收集的-儿童和青年,儿科生活质量量表,和儿童行为检查表,并使用结构方程模型进行分析。对于定性阶段,我们对八名残疾儿童和青年以及有风险的儿童和青年的照顾者进行了半结构化访谈(即,有CFM的儿童和青年的三名照顾者;有其他儿童发病残疾的儿童和青年的五名照顾者)。访谈进行逐字转录和归纳内容分析。
    我们的模型达到了可接受的紧密模型拟合[CFI=0.952;RMSEA=0.068(90%CI=0.054-0.082);SRMR=0.055;TLI=0.936],揭示以参与为重点的照顾者策略的数量对参与相关结构之间的关系没有显著影响(例如,活动能力,环境/背景)和社区参与方面的参与。定性发现揭示了护理人员如何解释这些定量结果的三个主要类别:(1)护理人员的工作量和实施战略所需的支持;(2)护理人员仔细的战略质量评估;(3)社区设置特征阻碍了战略的成功实施。
    研究结果表明,照顾者策略数量的不显著影响可能是由于需要照顾者的努力和支持,以制定和实施响应社区环境特征的质量策略。
    UNASSIGNED: The purpose of this mixed-methods study is to examine the role of caregiver strategies to support community participation among children and youth with disabilities and those at risk, from the caregiver perspective. For the quantitative phase, we tested the hypothesized positive effect of participation-focused caregiver strategies on the relationship(s) between participation-related constructs and community participation attendance and involvement. For the qualitative phase, we solicited caregiver perspectives to explain the quantitative findings.
    UNASSIGNED: An explanatory sequential mixed-methods design (QUAN > qual) was used. For the quantitative phase, we conducted secondary analyses of data collected during a second follow-up phase of a longitudinal cohort study, including 260 families of children and youth (mean age: 13.5 years) with disabilities and those at risk [i.e., 120 families of children and youth with craniofacial microsomia (CFM); 140 families of children and youth with other types of childhood-onset disabilities]. Data were collected through the Participation and Environment Measure-Children and Youth, the Pediatric Quality of Life Inventory, and the Child Behavior Checklist and analyzed using structural equation modeling. For the qualitative phase, we conducted semi-structured interviews with eight caregivers of children and youth with disabilities and those at risk (i.e., three caregivers of children and youth with CFM; five caregivers of children and youth with other childhood-onset disabilities). Interviews were transcribed verbatim and inductively content-analyzed.
    UNASSIGNED: Our model reached acceptable to close model fit [CFI = 0.952; RMSEA = 0.068 (90% CI = 0.054-0.082); SRMR = 0.055; TLI = 0.936], revealing no significant effect of the number of participation-focused caregiver strategies on the relationships between participation-related constructs (e.g., activity competence, environment/context) and community participation in terms of attendance and involvement. The qualitative findings revealed three main categories for how caregivers explained these quantitative results: (1) caregiver workload and supports needed for implementing strategies; (2) caregivers careful strategy quality appraisal; and (3) community setting characteristics hindering successful strategy implementation.
    UNASSIGNED: The findings suggest that the insignificant effect of the number of caregiver strategies may be explained by the intensified need for caregiver effort and support to develop and implement quality strategies that are responsive to community setting characteristics.
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  • 文章类型: Journal Article
    我们调查了刚果民主共和国北基伍省和伊图里省社区成员参与应对埃博拉病毒病(EVD)流行的情况。这项横断面研究,使用混合的数据收集方法进行,包括统一结构的问卷调查,随机选择800名成年人(年龄≥18岁)。Further,我们使用了定性工具的调查-焦点小组讨论(FGD)和深度访谈(IDI)-来指导调查中收集的信息的背景.社区领袖,宗教领袖,使用IDI指南采访了埃博拉幸存者,而年轻人(≤30岁),年轻女性(≤30岁),成年社区男性(<30岁),和成年社区女性(<30岁)参加了单独的FGD会议。结果显示,城市地区受疫情影响最大(79.2%),而农村地区为20.8%。χ2为18.183(P<0.001)。社区成员对这两个省的EVD流行表现出不同程度的参与。社区成员大多从事信息传播。然而,他们相信,如果他们充分参与,他们本可以做出更多贡献。这些发现来自定性数据。该研究有助于证明社区参与如何帮助应对全球公共卫生事件,因此,本研究为未来的公共卫生干预措施和应对措施提供了有价值的见解.
    We investigated the involvement of community members in response to the Ebola Virus Disease (EVD) epidemic in the North Kivu and Ituri provinces of the Democratic Republic of Congo. This cross-sectional study, conducted using mixed methods of data collection, included a uniformly structured questionnaire survey, which was administered to 800 randomly selected adults (aged ≥ 18 years). Further, we used qualitative tools of inquiry-focus group discussions (FGD) and in-depth interviews (IDI)-to guide the context of the information collected in the survey. Community leaders, religious leaders, and Ebola survivors were interviewed using the IDI guide, while young men (≤ 30 years), young women (≤30 years), adult community males (<30 years), and adult community females (<30 years) were in separate FGD sessions. The results revealed that the urban area was the most affected by the epidemic (79.2%) compared to 20.8% in rural areas. The χ2 calculated was 18.183 (P<0.001). Community members exhibited varying degrees of involvement in response to the EVD epidemic in the two provinces. Community members were mostly engaged in information dissemination. However, they believe they could have contributed more if they had been fully engaged. These findings were derived from the qualitative data. The study contributes to evidence on how community involvement could help response to public health events globally, hence this study provides valuable insights for future public health interventions and response.
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  • 文章类型: Journal Article
    为了满足轻度中风患者的需求,多学科,以人为本,国际上建议跨部门康复。然而,康复过程中似乎存在差距。这项研究的目的是调查职业治疗师和物理治疗师在轻度中风患者的跨部门康复工作中的经验。
    数据是通过采访在四种不同的丹麦康复机构工作的职业治疗师和物理治疗师而产生的。进行了四次小组访谈和两次个人访谈,共19名参与者。Ricoeur的解释理论用于解释和讨论数据。
    确定了四个主题:忽视症状的风险:安全性优于遗憾;轻度中风患者的不同程度受累;亲属的自发受累;以及康复过程中连贯性的背景挑战。
    由于需求评估的时机和背景挑战,治疗师在跨部门协调康复方面遇到了挑战。他们使用了一种预防性策略,即发送计划或转诊以供以后重新评估。治疗师在不同程度上涉及轻度中风的人。他们自发地涉及亲戚。为了成功康复,正在进行的评估,识别协作因素和相关参与是至关重要的。
    在整个康复过程中不断评估需求并建立目标至关重要。认识到轻度中风患者与专业人士合作的能力和资源是上下文的,关系上,个人决定是很重要的。从制度层面到个人层面,应在多个层面加强亲属的参与。
    UNASSIGNED: To meet the needs of people with mild stroke, multidisciplinary, person-centred, cross-sectoral rehabilitation is internationally recommended. However, there seem to be gaps in the rehabilitation process. The aim of this study was to investigate how occupational therapists and physiotherapists experience working in cross-sectoral rehabilitation for people with mild stroke.
    UNASSIGNED: Data were generated through interviews with occupational therapists and physiotherapists working in four different Danish rehabilitation settings. Four group interviews and two individual interviews with a total of 19 participants were conducted. Ricoeur\'s theory of interpretation was used to interpret and discuss the data.
    UNASSIGNED: Four themes were identified: the risk of overlooking symptoms: better safe than sorry; varying degrees of involvement of people with mild stroke; spontaneous involvement of relatives; and contextual challenges for coherence in the rehabilitation process.
    UNASSIGNED: The therapists experienced challenges in coordinating rehabilitation across sectors due to the timing of the needs assessment and contextual challenges. They used a preventive strategy of sending a plan or referral for later re-assessment. The therapists involved people with mild stroke to varying degrees. They involved relatives spontaneously. For successful rehabilitation, ongoing assessment, recognition of collaboration factors and relative involvement are essential.
    It is crucial to continuously evaluate needs and establish goals throughout the entirety of the rehabilitation process.Recognizing that the capacity and resources of people with mild strokes to collaborate with professionals are contextually, relationally, and individually determined is important.Involvement of relatives should be strengthened on many levels from the institutional level to the personal level.
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  • 文章类型: Journal Article
    背景:患者参与医疗决策是以患者为中心的护理的关键,这是一个不断受到政治关注的领域。然而,以患者为中心的护理和患者参与在急诊科(ED)环境中实施是具有挑战性的,由于ED倾向于关注结构,进程,和结果。这项研究探讨了护士对ED设置中患者参与的看法。
    方法:本研究采用探索性设计并进行焦点小组访谈以生成数据;选择归纳推理作为分析方法。2021年2月举行了两个焦点小组,每个小组包括六名ED护士。
    结果:产生了四个主题:患者参与的概念,重要因素,ED文化,和管理。护士认为患者参与是一种可选的附加功能,在某种程度上,这是害怕抱怨和不良媒体报道的经理们提出的象征性问题。患者参与向患者提供信息的形式被认为是重要的,但不如挽救生命和技术任务重要。
    结论:ED护士对患者参与的看法尤其受到ED中技术和救命文化的影响。信息提供被认为是患者的参与,由护士决定和管理。
    BACKGROUND: Patient involvement in healthcare decisions is key to patient-centred care, and it is an area subject to continuous political focus. However, patient-centred care and patient involvement are challenging to implement in an emergency department (ED) setting, as EDs tend to focus on structures, processes, and outcomes. This study explored nurses\' perspectives on patient involvement in an ED setting.
    METHODS: This study applied an explorative design and conducted focus group interviews to generate data; abductive reasoning was chosen as the analytical method. Two focus groups were held in February 2021, each including six ED nurses.
    RESULTS: Four themes were generated: notions of patient involvement, significant factors, ED culture, and management. Nurses considered patient involvement an optional add-on and, to some extent, a matter of tokenism carried forward by managers who are afraid of complaints and bad media coverage. Patient involvement in the form of providing information to patients was considered important yet less critical than life-saving and technical tasks.
    CONCLUSIONS: ED nurses\' perspectives on patient involvement are particularly influenced by the technical and life-saving culture in an ED. Information provision is considered patient involvement and is decided and administered by nurses.
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  • 文章类型: Journal Article
    目的:调查丹麦肾衰竭患者的决策需求,亲戚,和卫生专业人员在规划临终护理时。
    方法:定性访谈研究。
    方法:对肾衰竭患者进行个人半结构化访谈,2021年11月至2022年6月的亲属和卫生专业人员。Malterud的系统文本浓缩用于分析转录本。
    结果:共有13例患者,10亲戚,和12名卫生专业人员接受了采访。总的来说,达成了四个概念:(1)谈论生命的终结是困难的,(2)患者和亲属需要更多的知识和信息,(3)卫生专业人员需要更多的工具和培训,以及(4)将忙碌作为谈论生命终结的障碍。
    结论:肾衰竭患者,亲戚,和卫生专业人员共享某些决策需求,同时也有一些不同的决策需求关于临终关怀。为了满足这些不同的需求,临终对话应根据患者的需求和愿望进行系统和组织。
    结论:非系统的临终关怀决策过程限制了患者的参与。病人和亲属需要更多关于临终关怀的知识,卫生专业人员需要更多的能力和时间来讨论决策需求。将为肾衰竭患者制定临终关怀决策时的共享决策干预措施。
    这项实证定性研究是根据报告定性研究的综合标准(COREQ)清单报告的。
    患者,亲戚,作为研究团队和咨询委员会的一部分,卫生专业人员参与了整个研究过程。患者是肾衰竭患者,亲属是肾衰竭患者的亲属。对于这项研究,顾问委员会特别为确认参与邀请函做出了贡献,采访指南和手稿的准备。
    OBJECTIVE: To investigate the decisional needs in Denmark of people with kidney failure, relatives, and health professionals when planning end-of-life care.
    METHODS: A qualitative interview study.
    METHODS: Individual semi-structured interviews were carried out with people with kidney failure, relatives and health professionals from November 2021 to June 2022. Malterud\'s systematic text condensation was used to analyse transcripts.
    RESULTS: A total of 13 patients, 10 relatives, and 12 health professionals were interviewed. Overall, four concepts were agreed on: (1) Talking about end of life is difficult, (2) Patients and relatives need more knowledge and information, (3) Health professionals need more tools and training, and (4) Experiencing busyness as a barrier to conversations about end of life.
    CONCLUSIONS: People with kidney failure, relatives, and health professionals shared certain decisional needs while also having some different decisional needs about end-of-life care. To meet these various needs, end-of-life conversations should be systematic and organized according to the patients\' needs and wishes.
    CONCLUSIONS: Non-systematic end-of-life care decision-making processes limit patients\' involvement. Patients and relatives need more knowledge about end-of-life care, and health professionals need more competences and time to discuss decisional needs. A shared decision-making intervention for people with kidney failure when making end-of-life care decisions will be developed.
    UNASSIGNED: This empirical qualitative research is reported according to the Consolidated Criteria for Reporting Qualitative Research (COREQ) checklist.
    UNASSIGNED: Patients, relatives, and health professionals have been involved throughout the research process as part of the research team and advisory board. The patients are people with kidney failure and the relatives are relatives of a person with kidney failure. For this study, the advisory board has particularly contributed to the validation of the invitation letter for participation, the interview guides and the preparation of the manuscript.
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