背景:患者可能会使用众筹来募集捐款,通常来自使用基于互联网的手段的多个小捐赠者,来抵消癌症治疗的财务毒性。
目的:描述妇科癌症患者的众筹活动,并比较宫颈癌患者之间的活动特征和需求,子宫,和卵巢癌。
方法:我们向公众众筹论坛GoFundMe.com查询“宫颈癌,子宫癌,“和”卵巢癌。“分析了美国境内每种癌症类型筹款的前200个连续帖子。有关活动目标和所表达需求的数据是手动提取的。进行描述性统计和双变量分析。
结果:在600个筹款页面中,竞选目标中位数为$10,000[IQR$5000-$23,000]。广告系列的目标中位数为28.6%,只有8.7%的广告系列在在线54天后达到了目标。平均而言,卵巢癌运动有更高的货币目标,更多的捐助者,和更大的捐赠金额比宫颈癌运动和筹集更多的钱比宫颈癌和子宫癌运动。竞选活动是筹款以支持医疗费用(80-85%),其次是工资损失(36-56%)或生活费用(27-41%)。与子宫癌或卵巢癌运动相比,宫颈癌运动报告的非医疗费用需求更高。没有扩大医疗补助计划的州(占全国人口的31%)在宫颈癌和子宫癌中的比例过高,但不是卵巢癌运动。
结论:众筹页面显示,患者为数千美元的自付费用和基于癌症类型的各种未满足的财务需求筹款。
Patients may use crowdfunding to solicit donations, typically from multiple small donors using internet-based means, to offset the financial toxicity of cancer care.
To describe crowdfunding campaigns by gynecologic cancer patients and to compare campaign characteristics and needs expressed between patients with cervical, uterine, and ovarian cancer.
We queried the public crowdfunding forum GoFundMe.com for \"cervical cancer,\" \"uterine cancer,\" and \"ovarian cancer.\" The first 200 consecutive posts for each cancer type fundraising within the United States were analyzed. Data on campaign goals and needs expressed were manually extracted. Descriptive statistics and bivariate analyses were performed.
Among the 600 fundraising pages, the median campaign goal was $10,000 [IQR $5000-$23,000]. Campaigns raised a median of 28.6% of their goal with only 8.7% of campaigns reaching their goal after a median of 54 days online. On average, ovarian cancer campaigns had higher monetary goals, more donors, and larger donation amounts than cervical cancer campaigns and raised more money than both cervical and uterine cancer campaigns. Campaigns were fundraising to support medical costs (80-85%) followed by lost wages (36-56%) or living expenses (27-41%). Cervical cancer campaigns reported need for non-medical costs more frequently than uterine or ovarian cancer campaigns. States without Medicaid expansions (31% of the national population) were over-represented among cervical cancer and uterine cancer, but not ovarian cancer campaigns.
Crowdfunding pages reveal patients fundraising for out-of-pocket costs in the thousands of dollars and a wide range of unmet financial needs based on cancer type.