Fund Raising

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  • 文章类型: Journal Article
    医疗众筹为缺乏财务资源的个人提供了获得所需医疗服务的机会。尽管医疗众筹很受欢迎,目前对医疗众筹活动成功的理解是分散和不足的。
    我们旨在全面调查哪些因素导致医疗众筹活动的成功。
    在PubMed中进行了搜索,PsycINFO,WebofScience,ACM数字图书馆,和2010年至2020年6月的ScienceDirect。包括与医疗众筹活动成功直接和间接相关的论文。两名审阅者独立提取了有关医疗众筹活动成功的信息。
    我们的搜索产生了441篇文章,其中13人符合纳入标准。医疗众筹越来越受到学术界的关注,大多数研究都利用文本分析作为他们的研究方法;然而,研究人员对医疗众筹的定义缺乏共识。确定了影响医疗众筹成功的四类因素:平台、raisers,捐助者,和竞选活动。
    尽管我们的系统综述存在一些局限性,我们的研究系统地捕获并绘制了医疗众筹活动成功的文献,可以作为今后研究该课题的基础。
    Medical crowdfunding provides opportunities for individuals who lack financial resources to access the health services that they need. Despite the popularity of medical crowdfunding, the current understanding of the success of medical crowdfunding campaigns is fragmented and inadequate.
    We aimed to comprehensively investigate which factors lead to the success of medical crowdfunding campaigns.
    A search was conducted in PubMed, PsycINFO, Web of Science, ACM Digital Library, and ScienceDirect from 2010 to June 2020. Papers directly and indirectly related to the success of medical crowdfunding campaigns were included. Two reviewers independently extracted information on the success of medical crowdfunding campaigns.
    Our search yielded 441 articles, of which 13 met the inclusion criteria. Medical crowdfunding is increasingly attracting academic attention, and most studies leverage text analysis as their research methods; however, there is a lack of consensus on the definition of medical crowdfunding among researchers. Four categories of factors that affect the success of medical crowdfunding were identified: platforms, raisers, donors, and campaigns.
    Although some limitations exist in our systematic review, our study captured and mapped literatures of the success of medical crowdfunding campaigns systematically, which can be used as the basis for future research on this topic.
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    文章类型: Journal Article
    Patient-advocacy organizations have proliferated because they can be an effective method to advance research and clinical care for those with the index condition, and can produce substantial benefits for the affected community, especially when the condition is uncommon. To clarify critical success factors in organizing a patient-advocacy organization and to provide a blueprint for others, including the respiratory-care advocacy community, this report examines features of one highly successful organization, the Alpha-1 Foundation, which is committed to helping those with the genetic condition alpha-1 antitrypsin deficiency. Features of the Alpha-1 Foundation that underlie its success include: consistently creating partnerships with key stakeholders, including the scientific and clinical communities, government, and pharmaceutical manufacturers; bringing passion to the cause (eg, by assuring that organizational leadership is provided by individuals affected by alpha-1 antitrypsin deficiency); and developing strategic business partnerships, as with a company that administers alpha-1 antitrypsin treatment (so-called intravenous augmentation therapy) and employs individuals with alpha-1 antitrypsin deficiency. Funds allocated by the company help to underwrite the foundation\'s research-funding commitment. The foundation also recruits and retains talent, including alpha-1 patients, to leadership roles (eg, on the board of directors) and has a voluntary group of committed scientists and clinicians. We believe that attention to these factors can help assure the success of patient-advocacy groups.
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    Always a winner, the report by The University of Texas, M.D. Anderson Cancer Center, Houston, takes first-place in this category, with second place going to Anne Arundel Medical Center, Annapolis, Md., and third to Integris Oncology Services, Oklahoma City, Okla.
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