psychosocial support systems

社会心理支持系统
  • 文章类型: Journal Article
    背景:遭受基于性别的暴力(GBV)在难民中很常见。压迫系统的交叉会增加GBV的风险和遭受有害后果的风险,同时为有意义的支持制造障碍。尽管如此,有GBV生活经验的难民很少参与发展,服务和政策的规划和调整。
    方法:本文报告了一个形成性研究过程,旨在让公共贡献者(难民受害者-性别暴力幸存者)和相关利益相关者共同设计一个旨在改善瑞典社会心理支持的服务模型。在公共贡献者和学术研究人员的伙伴关系的领导下,研究过程包括共同设计研讨会的迭代循环,辅以现有文献的范围界定。
    结果:共同设计过程导致了对社会心理服务系统需求的表征,正如幸存者合作研究人员和利益相关者所认为的那样,以及两级授权和支持服务模式。该模型包括(i)基于社区的干预措施,以促进寻求帮助,以及(ii)在专科诊所提供的社会心理团体支持。该项目的成果包括对相关人员的感知收益,以服务为主导的直接变更和获取资金,以继续研究共同设计的模型。
    结论:改善对受性别暴力影响的瑞典难民的社会心理支持需要安全的空间与同龄人联系并熟悉可用的服务,社会中的法律和权利。Further,为了满足各种需求,必须加强跨部门的合作。共同设计讲习班是一种有效的方式,可以改变为受性别暴力影响的瑞典难民提供社会心理支持的服务提供模式。
    这是对参与性过程的参与性反映。幸存者的共同研究人员为设计和实施PPI过程做出了贡献,并共同撰写了这份手稿。
    BACKGROUND: Experiencing gender-based violence (GBV) is common among refugees. Intersecting systems of oppression can increase the risk of GBV and of suffering detrimental consequences, while concurrently creating barriers to meaningful support. Despite this, refugees with lived experience of GBV are rarely involved in the development, planning and adaptation of services and policies.
    METHODS: This article reports on a formative research process that aimed to involve public contributors (refugee victim-survivors of GBV) and relevant stakeholders in co-designing a service model aimed at improving psychosocial support in Sweden. Led by a partnership of public contributors and academic researchers, the research process consisted of iterative cycles of co-design workshops, complemented by scoping of existing literature.
    RESULTS: The co-design process resulted in a characterisation of the psychosocial service system needs, as perceived by the survivor co-researchers and stakeholders, and a two-level empowerment and support service model. The model included (i) a community-based intervention to promote help-seeking and (ii) psychosocial group support delivered in specialist clinics. Outcomes of the project included perceived benefits for those involved, service-led direct changes and acquisition of funding for continued research on the co-designed model.
    CONCLUSIONS: Improving psychosocial support for refugees in Sweden affected by GBV requires safe spaces to connect with peers and familiarise with available services, laws and rights in the society. Further, strengthened collaborations across sectors are necessary to meet the variety of needs. Co-design workshops were an effective way to initiate changes in the service delivery model for psychosocial support for refugees in Sweden affected by GBV.
    UNASSIGNED: This is a participatory reflection on a participatory process. The survivor co-researchers contributed to designing and carrying out the PPI process and have co-authored this manuscript.
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  • 文章类型: Journal Article
    目标:患有癌症的青少年和年轻成年人(AYAs)是具有独特姑息治疗和支持治疗需求的高危人群。癌症患者的社会支持与更好的应对有关,生活质量,和社会心理健康。这里,我们扩展了现有的研究,以检查AYAs对晚期癌症的支持来源和类型。
    方法:AYAs参与了半结构化,1:1关于沟通和社会心理支持需求的访谈。本分析集中于患有晚期癌症的AYAs的社会支持经验。使用定向内容分析来开发码本。既定的社会支持结构提供了一个编码框架。我们将定性结果作为代码频率报告,其中包含所有“支持源”和“支持类型”代码的量化频率计数。我们为每个AYA分配了一个全局的“支持代码的充分性”。
    结果:我们采访了32位患有晚期癌症的AYAs(Mage=18,SDage=3.2,41%为女性)。大多数AYA确定的家庭(即,照顾者)作为他们的主要支持来源,并指出家庭普遍提供所有类型的支持:情感,信息性,器乐,和社会友谊。他们得到了临床医生的信息和情感支持,并得到健康同龄人的情感支持和社会陪伴,癌症同行,和他们现有的社区。三分之一的参与者被编码为“混合支持”,并描述了某些领域缺乏支持。
    结论:AYAs晚期癌症患者将照顾者描述为他们普遍的支持来源,以及其他支持来源为特定需求提供支持。未来的研究应继续评估社会支持需求以及基于家庭的姑息和支持性护理干预措施,以增强该高危人群的社会支持资源。
    OBJECTIVE: Adolescents and Young Adults (AYAs) with cancer are an at-risk group with unique palliative and supportive care needs. Social support in AYAs with cancer is associated with better coping, quality of life, and psychosocial well-being. Here, we extend existing research to examine the sources and types of support received by AYAs with advanced cancer.
    METHODS: AYAs participated in a semi-structured, 1:1 interview on communication and psychosocial support needs. The present analysis focused on social support experiences for AYAs with advanced cancer. Directed content analysis was used to develop the codebook. Established social support constructs provided a coding framework. We presented our qualitative findings as a code frequency report with quantified frequency counts of all \"source of support\" and \"type of support\" codes. We assigned a global \"sufficiency of support code\" to each AYA.
    RESULTS: We interviewed 32 AYAs with advanced cancer (Mage = 18, SDage = 3.2, 41% female). Most AYAs identified family (namely, caregivers) as their primary source of support and stated that family universally provided all types of support: emotional, informational, instrumental, and social companionship. They received informational and emotional support from clinicians, and received emotional support and social companionship from healthy peers, cancer peers, and their existing community. One-third of participants were coded as having \"mixed support\" and described a lack of support in some domains.
    CONCLUSIONS: AYAs with advanced cancer described caregivers as their universal source of support, and that other support sources provided support for specific needs. Future research should continue to evaluate social support needs and family-based palliative and supportive care interventions to bolster social support resources in this high-risk group.
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  • 文章类型: Journal Article
    本文提供了一个独特的数据集,包括419,135个智力评估结果。该研究在自然条件下进行的个别诊断过程中利用了波兰对Stanford-Binet智能表5的改编。这项研究包括3岁的儿童;0-18岁;两种性别中有11人被转介到支助机构(心理教育咨询中心,医院后诊所,医院部门)由幼儿园或学校,或自愿要求的父母与他们的同意。从2018年到2023年,数据收集范围遍及整个波兰。除了综合情报评估结果,数据集包含有价值的人口统计信息,进行深入分析。数据集的独特性在于其令人印象深刻的样本量,包括超过四十万个观察,以及在模拟现实世界的环境中利用耗时和彻底的情报评估程序。此外,研究的背景值得注意,因为参与者是受益于公开可用的波兰心理支持系统的个人。
    This article presents a unique dataset comprising 419,135 intelligence assessment results. The study utilised the Polish adaptation of the Stanford-Binet Intelligence Scale 5 during individual diagnostic sessions conducted under natural conditions. The research included children aged 3;0-18;11 of both genders who had been referred to support institutions (psychological-educational counselling centres, post-hospital clinics, hospital departments) by preschools or schools, or voluntarily requested by parents with their consent. The data collection spanned the entire country of Poland from 2018 to 2023. In addition to comprehensive intelligence assessment results, the dataset contains valuable demographic information, enabling in-depth analyses. The dataset\'s uniqueness lies in its impressive sample size, encompassing over four hundred thousand observations as well as the utilisation of time-consuming and thorough intelligence assessment procedures in settings that mimic the real world. Moreover, the context of the study is noteworthy, as the participants are individuals benefiting from the publicly - available Polish psychological support system.
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  • 文章类型: Journal Article
    背景:支持干预通常同时解决自我护理和应对问题。使用不同的方法来促进自我护理和应对,因此明确干预效果可以指导临床医生和研究人员提供有益的干预措施。
    目的:比较两种模型,以确定自我护理改善应对还是应对改善自我护理。
    方法:我们使用了在纳入一项随机对照试验时获得的248名护理人员的横断面数据,测试了支持干预的有效性。衡量护理人员需求的量表的因子得分,自我照顾,应对,压力评估,和心理健康来自探索性因素分析。使用因子得分作为每个构建体的估计值来分析结构方程模型。为了控制可能的虚假影响护理人员的年龄,性别,与病人的关系,收入充足性包括在内。
    结果:两种模型都与数据兼容,但是自我护理模式比应对模式强。该模型具有不显著的卡方和很好的数据拟合,χ2(4,N=248)=2.64,p=0.62。自我护理模型解释的心理健康差异百分比为54%,42%用于压力评估,10%用于回避应对,6%为积极应对。在应对模型中,压力评估的解释方差下降到33%,回避应对下降到0%,积极应对下降到3%。
    结论:自我护理模式最强,说明自我护理可以减轻压力,促进应对,改善心理健康。这些结果表明,与旨在改善应对的干预措施相比,促进自我护理在改善心理健康方面可能更有效。
    BACKGROUND: Support interventions often address both self-care and coping. Different approaches are used to promote self-care and coping so clarifying the intervention effect can guide clinicians and researchers to provide interventions that achieve benefit.
    OBJECTIVE: To compare two models to determine whether self-care improves coping or coping improves self-care.
    METHODS: We used cross-sectional data from 248 caregivers obtained at enrollment into a randomized controlled trial testing the efficacy of a support intervention. Factor scores for scales measuring caregiver demand, self-care, coping, stress appraisal, and mental health were derived from exploratory factor analysis. Structural equation models were analyzed using the factor scores as estimates of each construct. To control possible spurious effects caregiver age, gender, relationship with the patient, and income adequacy were included.
    RESULTS: Both models were compatible with the data, but the self-care model was stronger than the coping model. That model had a non-significant chi square and an excellent fit to the data, χ2(4, N = 248) = 2.64, p = .62. The percentage of variance explained by the self-care model was 54 % for mental health, 42 % for stress appraisal, 10 % for avoidance coping, and 6 % for active coping. In the coping model the explained variance of stress appraisal dropped to 33 %, avoidance coping dropped to 0 %, and active coping dropped to 3 %.
    CONCLUSIONS: The self-care model was strongest, illustrating that self-care decreases stress, promotes coping, and improves mental health. These results suggest that promoting self-care may be more effective in improving mental health than interventions aimed at improving coping.
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  • 文章类型: Journal Article
    目的:目的:通过在社区中发展社会心理服务提供的综合模式,证实在战争期间和之后为乌克兰人发展社会心理支持系统的可能性,这促进了跨部门互动,并扩大了整合和扩大多层次精神卫生干预措施的可能性。
    方法:材料和方法:本文基于对有关战争期间心理健康和心理健康主题的科学著作的文献语义分析。
    结论:结论:强调在建立全面的社会心理支持系统时,有必要:确保有需要的人获得服务;将服务纳入一般卫生和社会保护系统;使用多部门方法,涉及各种组织,培训专业人员在战争条件下工作;制定和实施心理教育和心理支持方案;监测和评估方案的有效性。特别注意心理教育作为一种技术,可以由心理健康专业人员和参与社区提供社会服务的其他专家在不同级别的心理干预中使用。心理教育计划的影响的传播将有助于在战争引发的社会和心理风险面前发展社区的复原力。扩大心理健康和社会心理支持技术工作组(MHPSSTWG)能力的机制,一个由领先的国际和乌克兰非政府组织组成的专门从事精神卫生的协会,在世界卫生组织和乌克兰卫生部的支持下在乌克兰成立,是提议的。在社区中建立复原力中心网络的想法得到了证实,目的是在州和社区一级形成全面的社会心理支持系统。
    OBJECTIVE: Aim: To substantiate the possibilities of developing a comprehensive system of psychosocial support for Ukrainians during and after the war through thedevelopment of an integrated model of psychosocial service provision in the community, which promotes cross-sectoral interaction and expands the possibilities of integrating and scaling up multiple levels of mental health interventions.
    METHODS: Materials and Methods: The article is based on the use of bibliosemantic analysis of scientific works on the topic of mental health and mental health during the war.
    CONCLUSIONS: Conclusions: It is emphasised that in developing a comprehensive system of psychosocial support, it is necessary to: ensure accessibility of services for those in need; integrate services into the general health and social protection system; use a multisectoral approach, involving various organisations, institutions and professionals; train professionals to work in war conditions; develop and implement psychoeducation and psychological support programmes; monitor and evaluate the effectiveness of programmes. Particular attention is paid to psychoeducation as a technology that can be used at different levels of psychological intervention by both mental health professionals and other specialists involved in the provision of social services in communities. The spread of the impact of psychoeducational programmes will contribute to the development of community resilience in the face of social and psychological risks provoked by the war. A mechanism for scaling up the capabilities of the Technical Working Group on Mental Health and Psychosocial Support (MHPSS TWG), an association of leading international and Ukrainian NGOs specialising in mental health, established in Ukraine with the support of the WHO and the Ministry of Health of Ukraine, is proposed. The idea of creating a network of Resilience Centres in communities with the aim of forming a comprehensive system of psychosocial support at the state and community levels is substantiated.
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  • 文章类型: Journal Article
    多年来,止吐药的进展改善了化疗引起的恶心和呕吐(CINV)控制.然而,尽管有止吐药治疗,在相关数量的成人患者中(~30%),CINV仍然持续存在,导致几个并发症,如电解质不平衡,厌食症,并停止治疗。支持性护理干预在癌症护理中获得了可信度,帮助改善患者的心理身体状况,生活质量,控制症状,包括CINV。体育锻炼和量身定制的营养咨询已证明在减少恶心和呕吐的严重程度方面有益处。心理干预被认为是控制预期性恶心/呕吐的关键方法,以及针灸/穴位按摩已被证明可以减少化疗后的恶心和呕吐。在当前的审查中,我们的目标是提供有关CINV的现行预防性和延迟性止吐指南的临床更新,并概述在癌症患者中用于缓解CINV的非药物干预措施.
    Over the years, advancements in antiemetic drugs have improved chemotherapy-induced nausea and vomiting (CINV) control. However, despite the antiemetics therapies, in a relevant number of adult patients (∼30 %), CINV is still persistent, leading to several complications, such as electrolyte imbalances, anorexia, and treatment discontinuation. Supportive care interventions have gained credibility in cancer care, helping to improve patients\' psycho-physical condition, quality of life, and managing symptoms, including CINV. Physical exercise and tailored nutritional counseling have demonstrated benefits in reducing the severity of nausea and vomiting. Psychological intervention has been postulated as a key approach in controlling anticipatory nausea/vomiting, as well as acupuncture/acupressure has been shown to decrease nausea and vomiting after chemotherapy treatments. In the current review, we aim to provide a clinical update on current prophylactic and delayed antiemetic guidelines for CINV and an overview of the non-pharmacological interventions tested for alleviating CINV in patients with cancer.
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  • 文章类型: Editorial
    精神障碍在世界范围内普遍存在,经常在各种生活领域造成严重的痛苦和损害。此外,他们可能会导致社会心理残疾,歧视,和社会排斥,阻碍充分的社会参与,并经常导致侵犯人权,剥夺受教育的机会,工作,高品质的健康,和生殖权利。因此,对心理健康的全面和协调的反应需要生物心理社会方法和整体促进的整合,预防,支持,care,和康复。有效的干预措施必须以恢复为重点,并应包括社会干预措施。这篇社论讨论了可用于解决严重精神障碍患者的心理社会残疾的社会干预措施。有必要制定创新战略,工具,数字解决方案,提供心理教育和护理人员支持,同时进行面向恢复的研究和提供者培训。此外,重点应该更多地放在优势上,而不是病理学上,以及培养促进心理健康的环境。这需要包容性的政策,加强宣传以减少污名和促进人权,将资金从长期住院的精神病院转用于社区服务,以及就业等不同部门之间的多部门合作,教育,健康,住房,社会,和司法部门在不同的生命阶段提供支持,促进获得人权,并获得平等的机会,帮助患有严重精神障碍的人充分发挥潜力,过上有意义的生活。
    Mental disorders are prevalent worldwide, often causing significant distress and impairment across various life domains. Furthermore, they may lead to psychosocial disabilities exacerbated by stigma, discrimination, and social exclusion that hinder full societal participation and frequently result in human rights violations denying access to education, work, high-quality health, and reproductive rights. Therefore, a comprehensive and coordinated response to mental health requires a biopsychosocial approach and the integration of holistic promotion, prevention, support, care, and rehabilitation. Effective interventions need to be recovery-focused and should include social interventions. This editorial discusses the social interventions that can be utilized to address psychosocial disabilities in individuals with severe mental disorders. There is a need for developing innovative strategies, tools, and digital solutions, the provision of psychoeducation and caregiver support, along with conducting recovery-oriented research and provider training. Furthermore, the focus should be more on strengths instead of pathology and on cultivating a mental health-promoting environment. This requires inclusive policies, increased advocacy to decrease stigma and promote human rights, redirecting funds to community-based services from long-stay mental hospitals, and a multisectoral collaboration between different sectors such as employment, education, health, housing, social, and judicial sectors to provide support across different life stages, facilitate access to human rights, and attain equal opportunities to help individuals with severe mental disorders reach their full potential and live a meaningful life.
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  • 文章类型: Journal Article
    阴茎癌是一种罕见的癌症,患者不仅需要应对癌症诊断的焦虑,还要管理治疗对他们自尊的影响,身体形象,和亲密关系。许多人感到尴尬,很难与家人和朋友交谈。由于这个原因,排尿的变化和治疗的其他身体影响,许多人也会退出社交活动。患者需要社会心理支持,需要做更多的工作来解决这种未满足的需求。临床中的整体和多学科方法,有了咨询,可以帮助患者适应新情况。
    Penile cancer is a rare cancer, where patients not only need to deal with the anxiety around a cancer diagnosis, but also manage the consequences of treatment on their self-esteem, body image, and intimate relationships. Many find it embarrassing and difficult to talk to family and friends. Due to this, changes in urination and other physical effects of treatment, many will withdraw from social activities too. Patients need psychosocial support and more needs to be done to address this unmet need. Holistic and multidisciplinary approaches in clinic, with access to counseling, may help patients adjust to their new situation.
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  • 文章类型: Journal Article
    照顾心力衰竭患者会在情感和身体上造成伤害。从事自我护理可以减轻压力并改善非正式护理人员的健康状况。我们进行了一项随机对照试验,测试虚拟健康教练干预的有效性,与健康信息相比,关于自我照顾,压力,应对,和心力衰竭护理人员的健康状况。
    我们招募了250名护理人员,每周至少提供8小时的护理,报告自理能力差,能够使用技术。所有人都收到了平板电脑设备,该设备编程有网站,提供有关心力衰竭和护理的审核信息。一半的人被随机分配,实际上在6个月内与健康教练一起接受了10次同步支持会议。关于自我护理的数据,压力,应对,在基线和3个月和6个月时收集健康状况.线性混合效应模型用于评估时间和治疗组之间的相互作用。
    样本以女性居多(85.2%),白色(62.2%),配偶(59.8%),55±13.6岁。许多人全职工作(41.8%)。他们每天照顾患者8小时,中位数为3.25年。在意向治疗分析中,在自我护理维持(5.05±1.99;P=0.01)和应激(-4.50±1.00;P<0.0001)的主要结局方面,接受健康教练干预的护理人员在6个月期间的统计学和临床改善均高于对照组.自我保健忽视显著下降(-0.65±0.32;P=0.04),但当对结果进行多重比较调整后,治疗组之间的差异消失了.心理健康状况在统计学上有所改善,但在临床上没有改善(3.35±1.61;P=0.04)。两组的积极应对均有改善,但干预组的积极应对效果不明显(P=0.10)。身体健康状况无变化(P=0.27)。
    这种虚拟健康教练干预措施有效地改善了心力衰竭护理人员的自我护理和压力。
    UNASSIGNED: Caring for someone with heart failure takes an emotional and physical toll. Engaging in self-care may decrease stress and improve the health of informal caregivers. We conducted a randomized controlled trial testing the efficacy of a virtual health coaching intervention, compared with health information alone, on the self-care, stress, coping, and health status of heart failure caregivers.
    UNASSIGNED: We enrolled 250 caregivers providing care at least 8 hours/week, reporting poor self-care, and able to use technology. All received a tablet device programmed with websites providing vetted information on heart failure and caregiving. Half were randomized to also receive 10 synchronous support sessions virtually with a health coach over 6 months. Data on self-care, stress, coping, and health status were collected at baseline and 3 and 6 months. Linear mixed-effects models were used to assess the interaction between time and treatment group.
    UNASSIGNED: The sample was majority female (85.2%), White (62.2%), spouses (59.8%), and aged 55±13.6 years. Many were employed full time (41.8%). They had been caring for the patient 8 hours/day for a median of 3.25 years. In the intention-to-treat analysis, caregivers who received the health coach intervention had statistically and clinically greater improvement across 6 months compared with the control group in the primary outcome of self-care maintenance (5.05±1.99; P=0.01) and stress (-4.50±1.00; P<0.0001). Self-care neglect declined significantly (-0.65±0.32; P=0.04), but the difference between the treatment arms disappeared when the results were adjusted for multiple comparisons. Mental health status improved statistically but not clinically (3.35±1.61; P=0.04). Active coping improved in both groups but not significantly more in the intervention group (P=0.10). Physical health status was unchanged (P=0.27).
    UNASSIGNED: This virtual health coaching intervention was effective in improving self-care and stress in heart failure caregivers.
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  • 文章类型: Journal Article
    目标:正在进行的俄罗斯-乌克兰战争与乌克兰普通人群的心理健康问题有关。迄今为止,然而,稀缺的研究已经检查了乌克兰的心理社会支持工作者(PSW)的心理健康,他们在持续冲突的背景下工作量繁重。这项研究旨在检查职业倦怠的患病率和相关性,创伤后应激障碍(PTSD),以及俄罗斯-乌克兰战争期间乌克兰PSW中的自杀意念(SI)。
    方法:乌克兰的一百七十八个PSW完成了一项评估战争暴露的调查,心理健康,和社会心理特征。
    结果:共有59.6%的PSW筛查出职业倦怠呈阳性,PTSD的38.2%,和当前SI的10.7%。较低的乐观情绪与较高的倦怠几率有关。目睹与战争有关的破坏而造成更大的痛苦,较低的乐观情绪,生活中的意义较低,和较低水平的密切社会关系与更大的职业倦怠的可能性相关。生活中意义的较低存在与SI的较高几率相关。
    结论:这项研究的结果突出了乌克兰在俄罗斯-乌克兰战争期间PSW面临的心理健康挑战。他们进一步建议,在这场持续的冲突中,促进生活意义和促进社会联系的干预措施可能会“帮助帮助者”。
    OBJECTIVE: The ongoing Russian-Ukrainian war has been linked to mental health problems in the Ukrainian general population. To date, however, scarce research has examined the mental health of psychosocial support workers (PSWs) in Ukraine who have a burdensome workload in the context of ongoing conflict. This study aimed to examine the prevalence and correlates of burnout, posttraumatic stress disorder (PTSD), and suicidal ideation (SI) in PSWs in Ukraine during the Russian-Ukrainian war.
    METHODS: One hundred seventy-eight PSWs in Ukraine completed a survey assessing war exposure, mental health, and psychosocial characteristics.
    RESULTS: A total 59.6% of PSWs screened positive for burnout, 38.2% for PTSD, and 10.7% for current SI. Lower optimism was associated with greater odds of burnout. Greater distress from witnessing war-related destruction, lower optimism, lower presence of meaning in life, and lower levels of close social relationships were associated with greater odds of burnout. Lower presence of meaning in life was associated with greater odds of SI.
    CONCLUSIONS: Results of this study highlight the mental health challenges faced by PSWs in Ukraine during the ongoing Russian-Ukrainian war. They further suggest that interventions to foster meaning in life and promote social connectedness may \"help the helpers\" during this ongoing conflict.
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