service provision

服务提供
  • 文章类型: Journal Article
    背景:远程医疗的使用已经激增到成为医疗服务提供的一种常见且可接受的方法。由于远程医疗的快速实施,支持这种医疗保健方法的证据是滞后的,特别是当考虑到某些服务用户的独特性时,比如农村地区。这项研究旨在解决当前与成功向农村人口提供远程医疗至关重要的因素有关的知识差距。
    方法:本研究使用定性的描述性设计,从临床医生的角度探讨农村地区的远程医疗服务提供,并描述对农村地区有效提供远程医疗至关重要的因素。对从事儿童和家庭护理工作的专职健康和护理背景的临床医生进行了半结构化访谈,联合医疗服务,和心理健康服务。使用框架方法进行了明显的内容分析。
    结果:16名护理专业人员,临床心理学,和社会工作接受了采访。参与者大多为女性(88%),年龄在26至65岁之间,平均年龄为47岁。确定了三个总体主题:(1)导航远程医疗的作用,以支持农村医疗保健;(2)准备临床医生从事远程医疗服务的交付;(3)了解跨服务和环境实施远程医疗的复杂性。
    结论:这项研究表明,成功向农村人口提供远程医疗需要考虑提供远程医疗服务的背景,特别是在农村和偏远社区,在支持卫生专业人员的资源和培训方面存在挑战。农村人口,像所有社区一样,需要选择医疗服务交付和模式,以增加可访问性。准备和具体,对卫生专业人员进行关于如何过渡到和维持远程医疗服务的有意培训是向农村人口提供远程医疗的关键因素。未来的研究应进一步调查提供远程医疗服务所需的培训和支持,包括谁,何时以及什么培训将为卫生专业人员提供适当的技能,以提供农村远程医疗服务。
    BACKGROUND: The use of telehealth has proliferated to the point of being a common and accepted method of healthcare service delivery. Due to the rapidity of telehealth implementation, the evidence underpinning this approach to healthcare delivery is lagging, particularly when considering the uniqueness of some service users, such as those in rural areas. This research aimed to address the current gap in knowledge related to the factors critical for the successful delivery of telehealth to rural populations.
    METHODS: This research used a qualitative descriptive design to explore telehealth service provision in rural areas from the perspective of clinicians and describe factors critical to the effective delivery of telehealth in rural contexts. Semi-structured interviews were conducted with clinicians from allied health and nursing backgrounds working in child and family nursing, allied health services, and mental health services. A manifest content analysis was undertaken using the Framework approach.
    RESULTS: Sixteen health professionals from nursing, clinical psychology, and social work were interviewed. Participants mostly identified as female (88%) and ranged in age from 26 to 65 years with a mean age of 47 years. Three overarching themes were identified: (1) Navigating the role of telehealth to support rural healthcare; (2) Preparing clinicians to engage in telehealth service delivery; and (3) Appreciating the complexities of telehealth implementation across services and environments.
    CONCLUSIONS: This research suggests that successful delivery of telehealth to rural populations requires consideration of the context in which telehealth services are being delivered, particularly in rural and remote communities where there are challenges with resourcing and training to support health professionals. Rural populations, like all communities, need choice in healthcare service delivery and models to increase accessibility. Preparation and specific, intentional training for health professionals on how to transition to and maintain telehealth services is a critical factor for delivery of telehealth to rural populations. Future research should further investigate the training and supports required for telehealth service provision, including who, when and what training will equip health professionals with the appropriate skill set to deliver rural telehealth services.
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  • 文章类型: Journal Article
    背景:2019年冠状病毒病(COVID-19)的爆发对世界各地的人们产生了深远的负面影响,特别是自闭症等残疾人士。然而,在了解COVID-19对该人群的影响以及所需支持的研究中存在空白。
    目的:探讨COVID-19大流行对自闭症儿童照顾者影响的现有证据。
    方法:采用使用Arksey和O\'Malley框架的范围审查方法。审查了2020年3月至2022年12月的五个电子数据库。检索到两千二百零六篇文章,其中包含主要搜索词:护理人员(人口),自闭症(诊断)和COVID-19(背景)。在标题筛选之后,摘要和文章,最终审查包括36篇文章。完成了专题和内容的定性分析。
    结果:系统评价和meta分析扩展范围评价(PRISMA-ScR)的首选报告项目指导了研究结果的报告。确定了三个主要主题:(1)护理人员的心理健康和福祉,(2)对远程医疗保健和支持的响应以及(3)护理人员的弹性。
    结论:大流行影响了自闭症儿童及其家庭,支持和情绪状态的困难。然而,对南非等中高收入国家的影响进行的研究很少。供稿:这次审查的结果具有超出大流行范围的实际意义,例如政治不稳定或自然灾害,可能给自闭症儿童及其家庭带来类似的压力。
    BACKGROUND:  The coronavirus disease 2019 (COVID-19) outbreak has had a profoundly negative impact on people all over the world, particularly those with disabilities such as autism. However, there are gaps in research understanding the impact of COVID-19 on this population and the support required.
    OBJECTIVE:  To explore the evidence available on the impact of the COVID-19 pandemic on caregivers of children with autism.
    METHODS:  A scoping review methodology using the Arksey and O\'Malley framework was employed. Five electronic databases from March 2020 to December 2022 were reviewed. Two thousand two hundred and six articles were retrieved with primary search terms: caregivers (population), autism (diagnosis) and COVID-19 (context). Following the screening of titles, abstracts and articles, 36 articles were included in the final review. Thematic and content qualitative analysis was completed.
    RESULTS:  Preferred reporting items for systematic reviews and meta-analyses extension for scoping reviews (PRISMA-ScR) guided the reporting of the findings. Three main themes were identified: (1) caregiver\'s mental health and wellbeing, (2) response to remote health care and support and (3) caregiver resilience.
    CONCLUSIONS:  The pandemic affected children with autism and their families regarding changes in routine, difficulties with support and emotional states. However, little research has been conducted on the impact in upper-middle-income countries such as South Africa.Contribution: The findings from this review carry practical implications that extend beyond the pandemic, such as political instability or natural disasters that may present similar stressors for children with autism and their families.
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  • 文章类型: Journal Article
    背景:言语和语言治疗(SLT)服务是沟通的基础,学术和社会发展。证据表明,对服务的需求正在增加,这可能会对护理质量产生不利影响。关于马耳他语音和语言服务的需求和质量的研究有限。
    目的:为了阐明语言病理学家(SLPs)的观点,服务经理和客户的父母关于人力资源开发(HRD)相关因素的影响,人力资源管理(HRM)和环境对马耳他西部儿童SLT服务质量的影响。此外,概述改善所提供服务质量的有益策略或建议。
    方法:采用混合方法研究。分析了语音和语言中心(SLC)提供的定量数据,以使用描述性统计数据确定随时间的需求。使用与管理人员定制的问卷进行一对一访谈的定性数据,SLP和父母被转录和分析。然后制定和评估了与服务质量有关的共同和独特主题。
    结果:定量结果突出显示,客户未接受所需数量的治疗疗程。总的来说,父母确定了与SLT服务质量有关的九个主题,SLP和经理。对影响服务质量的因素进行了概述,并细分为三个分支:人力资源开发,人力资源管理与环境。如果这些子组中的所有因素得到增强和改进,则有望提高所提供服务的质量。此外,结果表明,从管理者和SLP的角度来看,感知到的和提供的SLT服务之间存在差异;然而,父母没有感受到这一点。对于父母来说,主要关注的是所提供治疗疗程的可用性和频率.
    结论:来自SLP的见解,经理和客户的父母强调了SLT儿童服务质量的障碍和推动者。这些发现可用于改善马耳他和其他具有类似背景的国家的服务,主要是通过改变时间管理,减少需求,提高可用性。
    结论:关于SLT这一主题的已知知识已被证明可以提高儿童的沟通技巧。日益增长的治疗需求会影响所提供服务的质量,最终影响孩子的进步。关于马耳他儿童的言语和语言服务质量以及影响服务质量的因素的证据基础存在差距。这项研究增加了现有知识这是马耳他的第一项此类研究。它试图从三个不同的角度确定儿童SLT服务的质量:服务经理,SLP和父母。此外,这项研究调查了什么影响SLT服务质量的积极或消极。通过这项研究,阻碍因素分为三个域;HRD因素,人力资源管理因素和环境因素。所有三组参与者都提到了这些域,因为它们对服务产生了负面影响或正面影响。主要的负面方面包括糟糕的时间管理,高要求,可用性和可达性降低,虽然积极的方面包括改善支持,关系和环境。这项工作的实际和临床意义是什么?这项研究表明,减少对SLP的管理和行政要求,提高会话频率将提高服务质量。关于这三个领域,将提高服务质量的人力资源开发因素是:SLP和家长能力,增强SLP的积极特征,所有角色的积极态度和合作;对于人力资源管理资源,对质量重要的因素是战略和风险管理,劳动力和招聘;对于环境因素,自然环境和资源是重要的,因为它们根据其状况影响服务,也就是说,资源的改善导致服务的改善。由于减少了责任,此类变更将减少SLP的积极性和倦怠,在提高可访问性和可用性的同时,最终提高所提供服务的质量。
    BACKGROUND: Speech and language therapy (SLT) services are fundamental for communication, academic and social development. Evidence shows that demand for services is increasing, and this can adversely affect the quality of care. There are limited published studies in relation to the demand and quality of speech and language services in Malta.
    OBJECTIVE: To elucidate the perspectives of speech-language pathologists (SLPs), service managers and parents of clients about the impact of factors pertaining to human resource development (HRD), human resource management (HRM) and the environment on the quality of the children\'s SLT service in western Malta. Also, to outline the beneficial strategies or recommendations to improve the quality of the service provided.
    METHODS: A mixed-method study was used. Quantitative data provided by the Speech and Language Center (SLC) were analysed to determine demand over time using descriptive statistics. Qualitative data from one-to-one interviews using a bespoke questionnaire with managers, SLPs and parents were transcribed and analysed. Common and distinct themes in relation to the quality of services were then formulated and evaluated.
    RESULTS: Quantitative results highlighted that clients were not receiving the required number of the therapeutic sessions. In total, nine themes in relation to the quality of the SLT service were identified by parents, SLPs and managers. The factors affecting the service quality were outlined and subdivided under three branches: HRD, HRM and the environment. All factors within these subgroups are expected to enhance the quality of the service provided if they are enhanced and improved upon. Additionally, the results showed that a discrepancy between the perceived and offered SLT services was felt from the managers\' and SLPs\' perspectives; however, this was not felt by parents. For parents, the main concern was the availability and frequency of the therapeutic sessions provided.
    CONCLUSIONS: Insights from SLPs, managers and parents of clients highlighted the barriers and enablers of quality of service in SLT services for children. These findings can be used to improve services in Malta and other countries with similar contexts, mainly by altering time management, reducing demands and improving availability.
    CONCLUSIONS: What is already known on the subject SLT is proven to enhance a child\'s communication skills. Increasing demands for therapy can affect the quality of the service provided, ultimately affecting the child\'s progress. There is a gap in the evidence base regarding the quality of speech and language services for children in Malta and the factors which affect the quality of the service. What this study adds to the existing knowledge This is the first study of its kind in Malta. It seeks to identify the quality of SLT services for children from three different perspectives: service managers, SLPs and parents. In addition, this study investigated what affects the quality of SLT services positively or negatively. Through this study, the impeding factors were divided into three domains; HRD factors, HRM factors and environmental factors. These domains were mentioned by all three groups of participants because they affected the service negatively or positively. The main negative aspects included bad time management, high demands, and reduced availabilities and accessibilities, whilst positive aspects included improved support, relationships and the environment. What are the practical and clinical implications of this work? This study suggests reducing the managerial and administrational demands on SLPs and improving session frequency would enhance the quality of service. In relation to the three domains, the HRD factors that would enhance the quality of service are: SLPs\' and parental competencies, enhancing SLPs\' positive characteristics, positive attitudes and cooperation from all personas; for HRM resources the factors important for quality are strategic and risk management, workforce and recruitment; and for the environmental factors the physical environment and resources are important as they affect the service depending on their condition, that is, improved resources result in improved service. Such alterations would reduce the SLPs\' demotivation and burnout due to reduced responsibilities, whilst improving accessibility and availability, ultimately enhancing the quality of the service provided.
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  • 文章类型: Journal Article
    目标:-加拿大关于联邦惩教机构和监狱生活的文献表明,缺乏足够和可用的医疗保健服务来满足监狱人口的需求,尽管囚犯的健康挑战率较高(例如心理健康,上瘾,艾滋病毒/艾滋病)与普通人群相比。随着资源的减少,对交货产生担忧,数量,以及刑事医疗服务的质量。因此,作者考察了前囚犯的经历,与政府报告相比,等待时间,以及医疗保健服务的请求流程,以及访问问题,与医疗保健专业人员的互动质量以及管理医疗保健供应的法规和政策。本文旨在讨论这些问题。
    方法:-作者比较了从56名前联邦囚犯的访谈中收集的数据与加拿大惩教服务局公开提供的医疗保健报告,工作人员-囚犯互动,方案和服务,以及整体身心健康,以确定政府和前囚犯对刑事医疗保健的理解之间的一致性和不一致。
    结果:-囚犯报告的医疗保健提供经验和政府报告之间存在差异。囚犯对在更安全的设施中提供医疗保健不满意,或者当他们觉得他们的医疗保健需求没有得到满足,但在不那么安全的机构中或当他们的需求最终得到满足时,他们会感到更加满意。
    结论:-行政控制理论框架分析,包括假释经历与加拿大惩教署报告之间的差异。强调了改善医疗保健提供的政策建议。
    OBJECTIVE: - Canadian literature on federal correctional institutions and prison living indicate a shortage inadequate and available healthcare services to meet the needs of the prison population, despite prisoners higher rates of health challenges (e.g. mental health, addictions, HIV/AIDS) in comparison to the general population. With fewer resources, concerns arise about the delivery, quantity, and quality of penal healthcare provision. Thus, the authors examines former prisoners\' experiences of, in comparison to government reports on, wait-times, and request processes for healthcare services, as well as issues of access, quality of interactions with healthcare professionals and the regulations and policies governing healthcare provision. The paper aims to discuss these issues.
    METHODS: - The authors compare data gathered from interviews with 56 former-federal prisoners with publicly available Correctional Services Canada reports on healthcare delivery, staff-prisoner interactions, programmes and services, and overall physical and mental health to identify consistencies and inconsistencies between the government\'s and former prisoners\' understandings of penal healthcare.
    RESULTS: - Discrepancies exist between prisoners reported experiences of healthcare provision and government reports. Prisoners are dissatisfied with healthcare provision in more secure facilities or when they feel their healthcare needs are not met yet become more satisfied in less secure institutions or when their needs are eventually met.
    CONCLUSIONS: - Theories of administrative control frame the analyses, including discrepancies between parolee experiences and Correctional Service Canada reports. Policy recommendations to improve healthcare provision are highlighted.
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  • 文章类型: Journal Article
    目的:在实施数字/电子卫生干预措施方面已经有一段时间了。数字/电子健康干预措施在增加个人赋权方面具有明显的功效,为患有精神疾病的人提供及时的心理干预措施,并改善使用这些措施的人的结果。这项研究旨在确定数字/电子健康干预措施对被拘留在监狱中的精神病患者的有效性。
    方法:对五个学术数据库的系统搜索-CINAHL,ASSIA,PsycINFO,Embase和Medline-于2020年12月完成,并于2022年2月更新。审查以Whittemore和Knafl(2005)综合审查框架为指导。总共返回了6,255项研究,并通过标题和摘要进行了筛选。对9项(n=9)研究进行了全文筛选。
    结果:没有一项研究符合监狱环境中数字/电子健康干预措施临床疗效的纳入标准。随后,对进入全文审查阶段的文献进行了审查,并确定了文献中的空白来为政策提供信息,实践和未来的研究。
    结论:据作者所知,这是对数字/电子健康干预措施对监狱环境中精神疾病健康的有效性进行的首次综合审查。
    OBJECTIVE: There has been a move towards the implementation of digital/e-health interventions for some time. Digital/e-health interventions have demonstrable efficacy in increasing individual empowerment, providing timely access to psychological interventions for those experiencing mental ill-health and improving outcomes for those using them. This study aims to determine the efficacy of digital/e-health interventions for individuals detained in prison who experience mental ill-health.
    METHODS: A systematic search of five academic databases - CINAHL, ASSIA, PsycINFO, Embase and Medline - was completed in December 2020 and updated in February 2022. The review was guided by the Whittemore and Knafl (2005) framework for integrative reviews. A total of 6,255 studies were returned and screened by title and abstract. A full-text screening of nine (n = 9) studies was conducted.
    RESULTS: No study met the inclusion criteria for the clinical efficacy of digital/e-health interventions in a prison setting. Subsequently, a review of the literature that made it to the full-text review stage was conducted, and gaps in the literature were identified to inform policy, practice and future research.
    CONCLUSIONS: To the best of the authors\' knowledge, this is the first integrative review conducted on the efficacy of digital/e-health interventions for mental ill-health in prison settings.
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  • 文章类型: Journal Article
    获得性脑损伤(ABI)可能对儿童及其家庭造成毁灭性影响。生活在农村社区的家庭在接受和协调复杂医疗需求方面遇到独特的障碍,但是很少有研究对患有ABIs的农村青年的这些障碍进行研究。
    这项定性研究通过与六名看护人的访谈,探索了农村成年人照顾患有ABI的儿童的经验,三名学校工作人员,和三名医疗专业人员治疗过至少一名患有ABI的儿童。
    其帐户中的主题包括导航复杂情况的困难,小社区的支持,孤立和孤独,需要更多关于ABI的专业教育,和希望的感觉。优质护理协调的障碍包括驾驭复杂的情况,交通便利,以及缺乏来自医疗机构的沟通和教育。农村护理协调的促进者包括来自小型社区的支持和机构间沟通。
    结果支持需要在参与ABI护理的农村机构之间进行更全面的协调。改善护理的建议包括由于交通障碍而提供灵活性,利用一个小而有爱心的社区的好处,并为医疗保健和教育专业人员提供有关ABI干预措施的更多教育。
    从业者应实施量身定制的支持系统,其中包括促进农村医疗机构和学校之间直接沟通的举措。扩大护理协调员的作用,以弥合医疗保健之间的差距,教育,和社区服务可以加强农村地区获得性脑损伤儿童的护理协调。农村地区的学校应根据患有轻度获得性脑损伤的儿童的需要制定正式的重返社会计划,利用现有的运动协议对非运动相关伤害。学校之间的合作,医疗队,和社区机构可以提供针对农村背景的全面教育计划。在农村地区特别有利的是发展网上的后续预约选择,交通障碍更为明显。
    UNASSIGNED: Acquired brain injuries (ABIs) can have devastating effects on children and their families. Families living in rural communities experience unique barriers to receiving and coordinating care for complex medical needs, but little research has examined those barriers for rural youth with ABIs.
    UNASSIGNED: This qualitative study explored the experiences of rural adults caring for children with ABIs through interviews with six caregivers, three school staff members, and three medical professionals who had treated at least one child with an ABI.
    UNASSIGNED: Themes in their accounts include difficulty navigating complex situations, support from small communities, isolation and loneliness, the need for more professional education about ABI, and feelings of hope. Barriers to quality care coordination include navigating complex situations, access to transportation, and a lack of communication and education from healthcare agencies. Facilitators of rural care coordination include support from small communities and interagency communication.
    UNASSIGNED: The results support the need for more comprehensive coordination among rural agencies involved in ABI care. Suggestions for care improvement include providing flexibility due to transportation barriers, capitalizing on the benefits of a small and caring community, and providing healthcare and education professionals with more education about ABI interventions.
    Practitioners should implement tailored support systems that include initiatives to facilitate direct communication between rural medical agencies and schools.Expanding the role of care coordinators to bridge gaps across healthcare, education, and community services could enhance care coordination for children with acquired brain injuries in rural areas.Schools in rural areas should develop formal reintegration programs tailored to the needs of children with mild acquired brain injuries, leveraging existing sports protocols for non-sports-related injuries.Collaborative efforts between schools, medical teams, and community agencies can provide comprehensive education programs tailored to the rural context.The development of online options for follow-up appointments would be particularly beneficial in rural areas, where transportation barriers are more pronounced.
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  • 文章类型: Journal Article
    了解服务处置途径对于更深入地了解为什么人口中的某些亚组面临反复儿童保护服务(CPS)参与的风险至关重要,并且可能突出不同群体或地理区域之间的差异。以决策生态学框架为视角,本研究考察了服务处置途径是否受风险评估的影响,安全问题,儿童年龄,虐待类型,以前的CPS参与,和/或县级结构脆弱性。我们链接了新墨西哥州儿童部的行政数据,青年和家庭(DCYF)来自美国社区调查的数据。研究病例(N=12,960)和县(N=33)特征之间关联的多水平模型显示,这两个病例(年龄,虐待类型,风险/安全评估,以前的CPS参与)和县级因素(交通和住房)与服务处置相关。此外,我们观察到县级服务的提供以及风险评估与服务提供之间的关系存在很大差异。通过将儿童福利案件决策过程的不同因素与干预策略联系起来,分析显示,对风险的感知可能因地理环境而异,从而导致具有相似风险但不同县级脆弱性的家庭的结果不同.
    Understanding service disposition pathways is critical to provide deeper insight into why certain subgroups of the population are at risk for recurrent Child Protective Services (CPS) involvement and may highlight disparities across groups or geographic areas. Using the Decision-Making Ecology Framework as a lens, the present study examines whether service disposition pathways are influenced by risk assessment, safety concerns, child age, maltreatment type, previous CPS involvement, and/or county-level structural vulnerability. We linked administrative data from New Mexico\'s Department of Children, Youth and Families (DCYF) to data from the American Community Survey. Multilevel models examining associations between case (N = 12,960) and county (N = 33) characteristics revealed that both case (age, maltreatment type, risk/safety assessments, previous CPS involvement) and county-level factors (transportation and housing) were associated with service disposition. Additionally, we observed considerable variation at the county level in both the provision of services and the relationship between risk assessment and service provision. By linking different factors of the decision-making process in child welfare cases to intervention strategies, the analysis reveals that the perception of risk can vary based on geographical context resulting in different outcomes for families who have similar risks but different county-level vulnerabilities.
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  • 文章类型: Editorial
    暂无摘要。
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  • 文章类型: Journal Article
    背景:终生无麸质(GF)饮食来管理乳糜泻被认为是具有挑战性的。本文包括两项研究:一项研究旨在报告患有乳糜泻的成年人对综述提供的看法,并探讨影响饮食依从性的因素。研究二旨在报告患有乳糜泻的成年人的饮食供应。
    方法:一项横断面在线调查由722名患有乳糜泻的成年人完成,包括经过验证的饮食依从性,健康素养和生活质量问卷。英国的88个饮食部门完成了一项旨在捕获向患有乳糜泻的成年人提供饮食服务的在线和纸质调查。
    结果:只有26%的乳糜泻成人接受了年度审查。相比之下,85%的人认为评论很重要,62%的人更喜欢饮食供应。那些认为评论重要的人的健康素养较低,更大的饮食负担,与那些不认为评论重要的人相比,GF饮食依从性较差,GF食物知识较低(所有p<0.05)。GF饮食依从性与健康素养相关,自我调节行为,饮食负担和GF食品知识;53%同意“GF食品的成本限制我吃什么”;与不同意的人相比,他们的GF饮食依从性较差(p<0.001)。超过72%的饮食乳糜泻审查规定提供了改善获取GF食品和外出就餐的内容。
    结论:乳糜泻成人亚群更需要支持和指导,这支持这样的观点,即有限的资源应该针对最需要支持的患者,以实现成功的疾病管理。
    BACKGROUND: A lifelong gluten-free (GF) diet to manage coeliac disease is recognised to be challenging. This paper comprises two studies: study one aimed to report the opinions of adults with coeliac disease on review provision and explore factors influencing dietary adherence. Study two aimed to report dietetic provision for adults with coeliac disease.
    METHODS: A cross-sectional online survey was completed by 722 adults with coeliac disease, including validated dietary adherence, health literacy and quality-of-life questionnaires. An online and paper survey designed to capture the provision of dietetic services to adults with coeliac disease was completed by 88 dietetic departments within the United Kingdom.
    RESULTS: Only 26% of adults with coeliac disease were offered annual reviews. In contrast, 85% considered reviews important, with 62% preferring dietetic provision. Those who considered reviews important had lower health literacy, greater dietary burden, poorer GF dietary adherence and lower GF food knowledge (all p < 0.05) compared with those who did not consider reviews important. GF dietary adherence was associated with health literacy, self-regulatory behaviours, dietary burden and GF food knowledge; 53% agreed with the \'cost of GF food restricts what I eat\'; they had poorer GF dietary adherence compared with those who disagreed (p < 0.001). More than 72% of dietetic coeliac review provision provided content on improving access to GF foods and eating out of the home.
    CONCLUSIONS: A subpopulation of adults with coeliac disease have a greater need for support and guidance, which supports the viewpoint that limited resources should be targeted towards patients with the most need for support to enable successful disease management.
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  • 文章类型: Journal Article
    背景:癫痫患者出现多种合并症的风险增加,这些合并症可能会影响不良后果的风险,包括对生活质量和过早死亡的影响。这些危险因素包括与癫痫猝死(SUDEP)相关的潜在可改变的临床特征。对于应对风险的服务,目标癫痫人群的临床复杂性需要明确.虽然这已经得到了广泛的全面研究,经济发达国家对这些问题知之甚少,在经济发达国家,像马耳他(人口:50万)。
    方法:这是一项单中心研究,专门针对在马耳他戈佐综合医院(GGH)就诊的患者。使用STROBE报告横断面研究的指导来设计和报告研究。这是对所有参加GGH(2018-2021)的癫痫患者(18岁以上)的标准护理和SUDEP以及癫痫发作风险的回顾性审查。
    结果:审查确定有68人和92%的人符合他们的抗癫痫药物。五分之一(21%)患有智力障碍。尽管只有一个病人有精神病,19%服用抗精神病药物。只有18%的患者有特定的癫痫护理计划,6%的夜间监测,没有人收到SUDEP的建议。
    结论:随着个性化癫痫护理计划的增加,患者预后可能会得到改善。适当的夜间监测和减少抗精神病药物的处方,因为它与更高的死亡风险相关。污名和羞耻等问题似乎在小社区及其获得护理的机会中起着重要作用。
    BACKGROUND: People with epilepsy are at increased risk of multiple co-morbidities that may influence risk of adverse outcomes including impact on quality of life and premature mortality. These risk factors include potentially modifiable clinical characteristics associated with sudden unexpected death in epilepsy (SUDEP). For services to tackle risk, the clinical complexity of the target epilepsy population needs to be defined. While this has been comprehensively studied in large, economically developed countries little knowledge of these issues exist in small economically developed countries, like Malta (population: 500,000).
    METHODS: This was a single centre study focused exclusively on patients attending Gozo General Hospital (GGH) Malta. STROBE guidance for reporting cross sectional studies was used to design and report the study. This was a retrospective review of standard care and SUDEP and seizure risks provided to all adults (over 18 years) with epilepsy attending GGH (2018-2021).
    RESULTS: The review identified 68 people and 92% were compliant with their anti-seizure medication. A fifth (21%) had an intellectual disability. Despite only one patient having a psychotic illness, 19% were on antipsychotic medication. Only 18% of patients had a specific epilepsy care plan, 6% nocturnal surveillance and none had received advice on SUDEP.
    CONCLUSIONS: Patient outcomes may be improved with increasing rates of personalized epilepsy care plans, appropriate nocturnal surveillance and reducing the prescription of antipsychotic medication as it is associated with greater risk of mortality. Issues such as stigma and shame appear to play a significant role in small communities and their access to care.
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