关键词: Traumatic brain injury care coordination children rural service provision

来  源:   DOI:10.1080/09638288.2024.2374487

Abstract:
UNASSIGNED: Acquired brain injuries (ABIs) can have devastating effects on children and their families. Families living in rural communities experience unique barriers to receiving and coordinating care for complex medical needs, but little research has examined those barriers for rural youth with ABIs.
UNASSIGNED: This qualitative study explored the experiences of rural adults caring for children with ABIs through interviews with six caregivers, three school staff members, and three medical professionals who had treated at least one child with an ABI.
UNASSIGNED: Themes in their accounts include difficulty navigating complex situations, support from small communities, isolation and loneliness, the need for more professional education about ABI, and feelings of hope. Barriers to quality care coordination include navigating complex situations, access to transportation, and a lack of communication and education from healthcare agencies. Facilitators of rural care coordination include support from small communities and interagency communication.
UNASSIGNED: The results support the need for more comprehensive coordination among rural agencies involved in ABI care. Suggestions for care improvement include providing flexibility due to transportation barriers, capitalizing on the benefits of a small and caring community, and providing healthcare and education professionals with more education about ABI interventions.
Practitioners should implement tailored support systems that include initiatives to facilitate direct communication between rural medical agencies and schools.Expanding the role of care coordinators to bridge gaps across healthcare, education, and community services could enhance care coordination for children with acquired brain injuries in rural areas.Schools in rural areas should develop formal reintegration programs tailored to the needs of children with mild acquired brain injuries, leveraging existing sports protocols for non-sports-related injuries.Collaborative efforts between schools, medical teams, and community agencies can provide comprehensive education programs tailored to the rural context.The development of online options for follow-up appointments would be particularly beneficial in rural areas, where transportation barriers are more pronounced.
摘要:
获得性脑损伤(ABI)可能对儿童及其家庭造成毁灭性影响。生活在农村社区的家庭在接受和协调复杂医疗需求方面遇到独特的障碍,但是很少有研究对患有ABIs的农村青年的这些障碍进行研究。
这项定性研究通过与六名看护人的访谈,探索了农村成年人照顾患有ABI的儿童的经验,三名学校工作人员,和三名医疗专业人员治疗过至少一名患有ABI的儿童。
其帐户中的主题包括导航复杂情况的困难,小社区的支持,孤立和孤独,需要更多关于ABI的专业教育,和希望的感觉。优质护理协调的障碍包括驾驭复杂的情况,交通便利,以及缺乏来自医疗机构的沟通和教育。农村护理协调的促进者包括来自小型社区的支持和机构间沟通。
结果支持需要在参与ABI护理的农村机构之间进行更全面的协调。改善护理的建议包括由于交通障碍而提供灵活性,利用一个小而有爱心的社区的好处,并为医疗保健和教育专业人员提供有关ABI干预措施的更多教育。
从业者应实施量身定制的支持系统,其中包括促进农村医疗机构和学校之间直接沟通的举措。扩大护理协调员的作用,以弥合医疗保健之间的差距,教育,和社区服务可以加强农村地区获得性脑损伤儿童的护理协调。农村地区的学校应根据患有轻度获得性脑损伤的儿童的需要制定正式的重返社会计划,利用现有的运动协议对非运动相关伤害。学校之间的合作,医疗队,和社区机构可以提供针对农村背景的全面教育计划。在农村地区特别有利的是发展网上的后续预约选择,交通障碍更为明显。
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