■本系统综述涉及以下主题:(1)用于评估MS患者身份/自我的心理测量;(2)MS对患者身份/自我的影响;(3)身份/自我与MS调整之间的关系。
■搜索了截至2024年4月发表的所有同行评审的实证研究的五个电子数据库(PROSPEROCRD42023485972)。如果研究包括MS患者,并通过定量检查身份/自我,定性,或混合方法研究设计。使用MMAT(混合方法评估工具)检查表评估纳入研究的质量。在进行叙事综合(定量研究)和主题综合(定性研究)之后,融合是按照融合的隔离方法进行的。
■纳入了43项研究(13项定量研究,26定性,和四种混合方法)。研究使用“自我”来指代特定领域,以及“身份”,以突出个人随着时间的推移经验的独特性和连续性。MS导致自我各方面的损失(身体,工作,家庭,和社会自我)和身份不连续性。保持积极的自我概念并将MS融入一个人的身份与更好地适应MS相关。
■临床医生应考虑身份重新定义的中心性,以促进MS患者对疾病的调整。
多样化,无法控制,多发性硬化症(MS)的通常看不见的症状会导致个人的自我意识和认同感发生深刻的变化。基于症状管理和/或其他特定方面的MS患者心理支持干预措施应放在更广泛的框架中,考虑到重新定义身份的问题,因为它对疾病的调整很重要。医疗保健专业人员应为MS患者提供量身定制的心理干预措施,以促进MS融入其全球自我形象并确保其个人身份的连续性。医疗保健专业人员应该帮助MS患者重新定义他们的家庭,专业,和社会角色来促进他们身份的重新定义。
UNASSIGNED: This systematic
review addressed the following topics: (1) psychometric measures used to evaluate the
identity/self in MS patients; (2) impact of MS on the
identity/self of patients; (3) relationships between the
identity/self and the adjustment to MS.
UNASSIGNED: Five electronic databases were searched for all peer-reviewed empirical studies published up to April 2024 (PROSPERO CRD42023485972). Studies were eligible if they included MS patients and examined identity/self through quantitative, qualitative, or mixed-method study design. MMAT (Mixed Method Appraisal Tool) checklist was used to assess the quality of included studies. After conducting narrative synthesis (quantitative studies) and thematic synthesis (qualitative studies), an integration was undertaken following a convergent segregated approach.
UNASSIGNED: Forty-three studies were included (13 quantitative, 26 qualitative, and four mixed methods). Studies used measures of \"self\" to refer to specific domains, and of \"
identity\" to highlight the individual\'s uniqueness and continuity of experience over time. MS causes a loss of various aspects of self (physical, working, family, and social self) and
identity discontinuity. Maintaining a positive self-concept and integrating MS into one\'s identity are associated with better adjustment to MS.
UNASSIGNED: Clinicians should consider the centrality of identity redefinition for the promotion of MS patients\' adjustment to the illness.
The diverse, uncontrollable, and often invisible symptoms of multiple sclerosis (MS) lead to profound changes in the individual’s sense of self and identity.Psychological support interventions for MS patients based on symptom management and/or other specific aspects should be placed in a broader framework that takes into account the issue of redefining identity given its importance for the adjustment to the illness.Healthcare professionals should provide tailored psychological interventions for MS patients that promote the integration of MS into their global self-image and ensure the continuity of their personal identity.Healthcare professionals should help MS patients to redefine their family, professional, and social roles to promote the redefinition of their identity.