co-production

联合生产
  • 文章类型: Journal Article
    目的:在发达国家,人们越来越重视医疗保健专业人员(HCPs)在管理心血管代谢危险因素以减少移民健康差距方面的作用。这项范围界定审查旨在分析有关HCP知识的证据,态度,以及管理发达国家东南亚(SEA)移民心脏代谢危险因素的实践(KAP)。
    方法:从开始到2023年7月17日的主要研究,来自四个数据库:PubMed/Medline,Embase,PsycINFO,包括CINAHL。这篇评论遵循了乔安娜·布里格斯研究所(JBI)的范围审查方法,并按照PRISMA-ScR进行了报告。
    结果:在619项确定的研究中,七个符合纳入标准。所有研究都讨论了HCPs的知识,六个探索的态度,和三个描述了特定于SEA移民的做法。提取的数据使用描述性定性内容分析进行分析,并分为障碍和促进因素。障碍包括文化不和谐和文化适应挑战(患者水平);文化理解上的差距,沟通和临床技能(医疗团队水平);有限的移民特定资源(组织水平);和资金限制(环境水平)。促进者包括社区和提供者支持(患者级别),意识和愿望,以提供移民特定的护理(医疗团队水平),文化上适当的服务的可用性(组织层面),以及多元文化议程和政策(环境层面)。
    结论:照顾患有心脏代谢综合征的SEA移民的HCP所面临的障碍和促进因素与其他移民群体有相似之处。未来的研究集中在涉及移民患者的联合制作上,他们的社区,和医疗服务设计中的HCP需要支持HCP提供文化上适当的护理和促进健康公平,无论种族,文化,或语言背景。
    OBJECTIVE: There is a growing emphasis on healthcare professionals\' (HCPs) role in managing cardiometabolic risk factors to reduce health disparity for immigrants in developed countries. This scoping review aimed to analyse evidence about HCPs\' knowledge, attitudes, and practices (KAP) of managing cardiometabolic risk factors among Southeast Asian (SEA) immigrants in developed countries.
    METHODS: Primary studies from inception to July 17, 2023, from four databases: PubMed/Medline, Embase, PsycINFO, and CINAHL were included. This review followed the Joanna Briggs Institute (JBI) scoping review methodology and reported in line with PRISMA-ScR.
    RESULTS: Of 619 identified studies, seven met the inclusion criteria. All studies discussed HCPs\' knowledge, six explored attitudes, and three described practices specific to SEA immigrants. The extracted data were analysed using descriptive qualitative content analysis and classified into barriers and facilitators. Barriers included cultural discordance and acculturation challenges (patient level); gaps in cultural understanding, communication and clinical skills (healthcare team level); limited immigrant-specific resources (organisation level); and funding constraints (environment level). Facilitators included community and provider support (patient level), awareness and desires to provide immigrant-specific care (healthcare team level), availability of culturally appropriate services (organisation level), and multicultural agendas and policies (environment level).
    CONCLUSIONS: The barriers and facilitators faced by HCPs caring for SEA immigrants with cardiometabolic syndromes share similarities with other immigrant groups. Future research focused on co-production involving immigrant patients, their communities, and HCPs in healthcare service design is required to support HCPs in providing culturally appropriate care and promoting health equity regardless of ethnic, cultural, or linguistic backgrounds.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    背景:近年来,人们对卫生和社会护理部门共同生产的性质和程度的兴趣急剧增长。由于联合制作工作的激增,在实践中,共同生产的定义存在很大差异,在实践中理解和使用。
    方法:我们进行了叙述性回顾,并提供概述,已经开发了哪些健康和社会护理联合生产模式,在过去的几十年里得到了应用和批评。
    结果:73篇同行评审文章符合我们的纳入标准。在这组文章中,我们确定了三种广泛类型的模型:概念/理论;面向实践;并提出了类型学。我们发现以实践为导向的模型,主要来自卫生服务研究和质量改进文献,基本上没有借鉴公共行政与管理和社会学学科领域的概念/理论模型。特别是,他们在很大程度上忽视了关于合作生产工作中的关系、权力和代理的理论观点,以及服务主导逻辑和公共服务主导逻辑的概念,产生新价值的协作过程,特别是在使用服务的情况下。
    结论:我们的综述已经确定了不同的文献,这些文献贡献了各种健康和社会护理联合生产的模式。我们的发现强调了在健康和社会护理环境中值得更多关注的联合生产的未充分探索的维度。我们提供的联合生产模型概述旨在为在未来的健康和社会护理研究和实践中整合联合生产的不同观点提供一个有用的平台。
    Recent years have seen a dramatic growth in interest in the nature and extent of co-production in the health and social care sectors. Due to the proliferation of work on co-production, there is variation in practice in how co-production is defined, understood, and used in practice. We conducted a narrative review to explore, and provide an overview of, which models of health and social care co-production have been developed, applied, and critiqued over recent decades. Seventy-three peer-reviewed articles met our inclusion criteria. In this set of articles, we identified three broad types of models: conceptual/theoretical, practice-oriented, and presenting a typology. We found that practice-oriented models, predominantly from the Health Services Research and Quality Improvement literature, had largely not drawn on conceptual/theoretical models from the disciplinary fields of Public Administration & Management and Sociology. In particular, they have largely neglected theoretical perspectives on relationships and power and agency in co-production work. The concepts of Service-Dominant Logic and Public Service-Dominant Logic as ways to think about the joint, collaborative process of producing new value, particularly in the context of the use of a service, have also been neglected. Our review has identified distinct literatures which have contributed a variety of models of health and social care co-production. Our findings highlight under-explored dimensions of co-production that merit greater attention in the health and social care contexts. The overview of models of co-production we provide aims to offer a useful platform for the integration of different perspectives on co-production in future research and practice in health and social care.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    诊断后的支持是促进痴呆症诊断后个人康复的重要因素,但是访问通常不一致且不足。恢复学院提供同行主导,共同制作的课程,可以支持人们过上有意义的生活,并已被改编用于痴呆症。进行了现实主义者的审查,以了解康复学院痴呆症课程的应用和可持续性。
    迭代,五步过程将到2023年发表的文献与利益相关者的知识相结合,这些利益相关者具有与康复学院痴呆症课程相关的痴呆症的生活和专业经验(PROSPERO注册CRD42021293687)。
    使用了35个文件并与19个利益相关者进行了讨论,以建立由24个上下文机制结果配置组成的初始计划理论。重复出现的因素包括:参与联合制作和课程交付的各个方面,以确保它们促进包容性,并且不会受到组织压力的影响;污名如何影响获得课程机会;并在整个课程开发中嵌入个人康复原则,以与痴呆症患者和支持痴呆症的人相关。
    努力与痴呆症调和未来的人们需要实际和情感支持,才能获得康复学院痴呆症课程并从中受益。实现这一目标的方法将通过现实主义评估来探索。
    UNASSIGNED: Post-diagnostic support is a significant factor in facilitating personal recovery following a diagnosis of dementia, but access is often inconsistent and insufficient. Recovery Colleges offer peer-led, co-produced courses that can support people to have meaningful lives and have been adapted for use in the context of dementia. A realist review was conducted to understand the application and sustainability of Recovery College dementia courses.
    UNASSIGNED: An iterative, five-step process combined literature published to 2023 with knowledge from stakeholders with lived and professional experience of dementia involved with Recovery College dementia courses (PROSPERO registration CRD42021293687).
    UNASSIGNED: Thirty-five documents and discussions with 19 stakeholders were used to build the initial programme theory comprising of 24 context-mechanism-outcome configurations. Reoccurring factors included: attending to aspects of co-production and course delivery to ensure they promoted inclusion and were not compromised by organisational pressures; how stigma impacted access to course opportunities; and embedding personal recovery principles throughout course development to be relevant for people living with dementia and those who support them.
    UNASSIGNED: People struggling to reconcile their future alongside dementia need practical and emotional support to access and benefit from Recovery College dementia courses, ways to achieve this will be explored through a realist evaluation.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    调查包括代表性不足的语言病理学家(SLP)作为研究参与者的研究特征。
    使用变革性研究范式的原理进行了范围审查,这促进了边缘化群体的有意义的参与和赋权。促进了与少数SLP的联合生产。搜索策略在六个数据库中运行,以及用于分析的变革性检查表。
    包括20项研究。双语和男性SLP是最常见的被纳入代表不足的SLP。大多数研究在美国进行(n=16),并使用调查方法。这些研究为代表性不足的SLP的经验和做法提供了宝贵的见解,并产生了切实可行的解决方案,以促进该行业的包容性和多样性。大多数研究显示出了变革的潜力,但很少有代表性不足的SLP参与者积极参与研究周期.
    本评论呼吁在包括代表性不足的SLP参与者时如何以及为什么进行研究的方式发生转变。通过变革性研究范式的视角,我们可以重新思考研究的更广泛目标以及研究人员和参与者的作用。利用研究作为提供能见度的平台,声音,对少数群体的代理可以刺激行业的变革和公平。
    UNASSIGNED: To investigate the characteristics of studies that included underrepresented speech-language pathologists (SLPs) as research participants.
    UNASSIGNED: A scoping review was conducted using the principles of the transformative research paradigm, which promotes the meaningful involvement and empowerment of marginalised groups. Co-production with minority SLPs was facilitated. The search strategy was run in six databases, and the transformative checklist used for analysis.
    UNASSIGNED: Twenty studies were included. Bilingual and male SLPs were among the most commonly included underrepresented SLPs. Most studies were conducted in the USA (n = 16), and used survey methods. The studies provided valuable insights into the experiences and practices of underrepresented SLPs, and yielded practical solutions to foster inclusion and diversity in the profession. Most studies demonstrated a transformative potential, but the active engagement of underrepresented SLP participants in the research cycle was rarely demonstrated.
    UNASSIGNED: This review calls for a shift in how and why research is conducted when including underrepresented SLP participants. Through the lens of the transformative research paradigm, we can rethink the broader aim of research and the role of researchers and participants. Using research as a platform to give visibility, voice, and agency to minority groups can stimulate change and equity in the profession.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    智能手机应用程序(apps)被广泛认为是改善获得精神保健的有前途的工具。然而,一个关键挑战是开发最终用户可以接受的数字干预措施。与供应商和利益相关者的联合制作越来越成为提高吸收率的黄金标准,订婚,和医疗保健结果。然而,缺乏围绕联合生产过程的明确指导。本次审查的目的是:(i)概述了设计时联合生产的方法和方法,生产,并评估数字心理健康干预措施;(ii)探索在这种情况下影响联合生产的障碍和促进因素。
    根据系统评价和荟萃分析指南的首选报告项目完成预注册(CRD42023414007)系统评价。搜索了5个数据库。根据经验,与专家一起开发了共同生产的定制质量评估工具,以评估共同生产方法和方法的质量。进行了叙事综合。
    24项数字心理健康干预措施的26项研究符合纳入标准。在设计的所有阶段,应用程序干预很少与最终用户共同制作,发展,和评价。通过创造文化敏感和可接受的干预措施,共同生产数字心理健康干预措施增加了价值。报告的挑战包括干预的数字性质加剧了资源问题,利益相关者建议之间的可变性,利益相关者和研究人员之间的权力失衡。
    联合制作数字心理健康干预措施的方法差异显而易见,涉及的利益相关者群体之间的不一致,参与阶段,利益相关者的角色和采用的方法。
    UNASSIGNED: Smartphone apps (apps) are widely recognised as promising tools for improving access to mental healthcare. However, a key challenge is the development of digital interventions that are acceptable to end users. Co-production with providers and stakeholders is increasingly positioned as the gold standard for improving uptake, engagement, and healthcare outcomes. Nevertheless, clear guidance around the process of co-production is lacking. The objectives of this review were to: (i) present an overview of the methods and approaches to co-production when designing, producing, and evaluating digital mental health interventions; and (ii) explore the barriers and facilitators affecting co-production in this context.
    UNASSIGNED: A pre-registered (CRD42023414007) systematic review was completed in accordance with The Preferred Reporting Items for Systematic reviews and Meta-Analyses guidelines. Five databases were searched. A co-produced bespoke quality appraisal tool was developed with an expert by experience to assess the quality of the co-production methods and approaches. A narrative synthesis was conducted.
    UNASSIGNED: Twenty-six studies across 24 digital mental health interventions met inclusion criteria. App interventions were rarely co-produced with end users throughout all stages of design, development, and evaluation. Co-producing digital mental health interventions added value by creating culturally sensitive and acceptable interventions. Reported challenges included resource issues exacerbated by the digital nature of the intervention, variability across stakeholder suggestions, and power imbalances between stakeholders and researchers.
    UNASSIGNED: Variation in approaches to co-producing digital mental health interventions is evident, with inconsistencies between stakeholder groups involved, stage of involvement, stakeholders\' roles and methods employed.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    越来越多的证据表明,在设计中共同设计和与学生合作的价值,发展,和提供卫生专业教育(HPE)。然而,学生参与共同设计HPE的方式在很大程度上仍未探索,关于如何嵌入和加强与学生的伙伴关系的指导很少。使用范围审查方法,我们确定并汇总了研究报告研究,在这些研究中,学生是共同设计HPE正式课程的积极合作伙伴。在搜索了五个数据库并根据纳入标准筛选了12,656篇文章之后,确定了21项研究。我们发现,大多数研究都是基于西方背景下的医疗项目(n=15)。研究主要是描述性病例报告(n=10),只有三项研究利用参与式/行动研究设计。共同设计的产出主要是基于课堂的学习,以具有挑战性的HPE主题,例如,伦理,健康不平等,种族和性别偏见,全球健康,土著健康。总体上缺乏对师生伙伴关系和基础方法的详细描述。为了优化协同设计方法,HPE和研究需要更深入地参与关键研究和教学方法,并对过程进行更强大的评估,共同设计的输出和结果。在教学实践中,这需要具有挑战性的体制结构,教学和学习文化和关系元素,例如通过为学生创造正式的角色和机会,作为积极的共同设计合作伙伴,并在HPE中培养更公平的师生定位。
    There is growing evidence of the value of co-design and partnering with students in the design, development, and delivery of health professions education (HPE). However, the way in which students participate in co-designing HPE remains largely unexplored and there is little guidance on how to embed and strengthen partnerships with students. Using scoping review methodology, we identified and aggregated research reporting studies in which students were active partners in co-designing formal curricula in HPE. After searching five databases and screening 12,656 articles against inclusion criteria, 21 studies were identified. We found that most of the research was based in medical programs (n = 15) across Western contexts. Studies were mostly descriptive case reports (n = 10), with only three studies utilising participatory/action research designs. The co-designed outputs were mostly classroom-based learning on challenging HPE topics, for example, ethics, health inequities, racial and sexual bias, global health, and Indigenous health. Detailed descriptions of student-faculty partnerships and underpinning approaches were lacking overall. To optimise co-design methods, HPE and research require deeper engagement with critical research and pedagogical approaches and more robust evaluations of the processes, outputs and outcomes of co-design. In pedagogical practices, this necessitates challenging institutional structures, teaching and learning cultures and relational elements, such as through creating formal roles and opportunities for students as active co-design partners and fostering more equitable student-faculty positioning in HPE.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

  • 文章类型: Journal Article
    要求医疗保健系统和服务与使用和提供综合护理的人在公平的基础上工作。作为回应,在服务的设计和转型中,合作制作已成为必不可少的。全球范围内,已经实施了一系列方法来实现这一点。这篇独特的评论探讨了使用特殊方法组合的综合护理中联合生产的多背景和多方法示例。
    为了审查和综合研究如何与服务用户共同制作的证据,无偿护理人员和工作人员可能会影响综合护理服务的设计和转变。
    使用来自患者和公众参与(PPI)联合制作咨询小组的输入进行系统评价。元人种学可以通过解释不同背景下研究之间的模式来产生理论。搜索了9个学术数据库和4个灰色文献数据库,以获取2012-2022年之间的出版物。数据被提取,分析,使用元人种学和PPI的七个阶段进行翻译和解释。
    总共确定了2,097项研究。10符合纳入标准。研究表明,针对不同人群的各种综合护理规定。合作制作通过以人为本的设计最成功,创新规划,和合作。对服务转型的主要影响是结构变化,可访问性,和服务交付的可接受性。应用的方法有机地引出了新的解释,即在综合护理中应用的新的循环框架。
    有效的联合生产需要一个具有明确焦点的过程。实施共同交付,在同行支持下,促进服务用户参与嵌入到“联合制作的阶梯”的更高层次上。提出了阶梯上的另一个步骤;循环共同交付框架。这种创新和业务发展具有潜力,可以更好地持续提供以人为本的综合护理服务。
    UNASSIGNED: There is a requirement for health and care systems and services to work on an equitable basis with people who use and provide integrated care. In response, co-production has become essential in the design and transformation of services. Globally, an array of approaches have been implemented to achieve this. This unique review explores multi-context and multi-method examples of co-production in integrated care using an exceptional combination of methods.
    UNASSIGNED: To review and synthesise evidence that examines how co-production with service users, unpaid carers and members of staff can affect the design and transformation of integrated care services.
    UNASSIGNED: Systematic review using meta-ethnography with input from a patient and public involvement (PPI) co-production advisory group. Meta-ethnography can generate theories by interpreting patterns between studies set in different contexts. Nine academic and four grey literature databases were searched for publications between 2012-2022. Data were extracted, analysed, translated and interpreted using the seven phases of meta-ethnography and PPI.
    UNASSIGNED: A total of 2,097 studies were identified. 10 met the inclusion criteria. Studies demonstrated a variety of integrated care provisions for diverse populations. Co-production was most successful through person-centred design, innovative planning, and collaboration. Key impacts on service transformation were structural changes, accessibility, and acceptability of service delivery. The methods applied organically drew out new interpretations, namely a novel cyclic framework for application within integrated care.
    UNASSIGNED: Effective co-production requires a process with a well-defined focus. Implementing co-delivery, with peer support, facilitates service user involvement to be embedded at a higher level on the \'ladder of co-production\'. An additional step on the ladder is proposed; a cyclic co-delivery framework. This innovative and operational development has potential to enable better-sustained person-centred integrated care services.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    背景:术语“有护理经验”是指目前正在接受护理或在其生命的任何阶段一直接受护理的任何人。复杂的因素相互作用导致有护理经验的儿童和年轻人(CECYP)的口腔健康状况和获得牙科护理的机会比同龄人差。对与弱势儿童和年轻人(CYP)共同生产的健康和社会护理研究进行了快速审查,以了解共同生产的研究项目的开发,该项目探索了口腔健康行为和获得CECYP的牙科服务。这里,“联合制作”是指CYP参与规划或开展具有明确作用的研究,在这些研究中,他们产生想法,证据和研究成果。
    目的:学习如何有意义地让脆弱的CYP参与健康和社会科学研究的联合生产。
    目的:确定:促进脆弱的CYP参与健康和社会科学研究的共同生产的不同方法;在这些方法中开展的不同活动,使脆弱的CYP参与健康和社会科学研究的共同生产的挑战,以及克服这些挑战的方法以及与脆弱的CYP进行研究共同生产的最佳实践领域。
    方法:在六个数据库(MEDLINE,Embase,Socindex,CINAHL,PsycINFO和WebofScience)和灰色文献,以确定将脆弱的CYP参与健康和社会研究的共同方法的研究。
    结果:在搜索中确定的1394个文档中,40人被纳入并分析。研究中使用了许多不同的联合生产方法。CYP参与了一系列活动,主要是数据收集工具的开发,数据收集和传播。CYP和研究人员的个人挑战,实践和制度因素以及道德考虑影响了联合制作的成功。
    结论:与脆弱的CYP共同生产健康和社会科学给研究人员和CYP带来了挑战,要求所有人表现出反身性和对偏见的认识,优势和局限性。使用得当,联合生产为研究人员和CYP提供了好处,并且可以为反映脆弱CYP需求的研究做出贡献。坚持包容性的关键原则,保障,尊重和福祉有助于这种方法。
    我们的患者和公众参与以及利益相关者团体的成员对审查结果的解释做出了贡献。这份手稿是和一个年轻的照顾者一起写的,斯凯·博斯韦尔,谁是作者之一。她为手稿的编写做出了贡献,回顾研究结果及其解释。
    BACKGROUND: The term \'care-experienced\' refers to anyone who is currently in care or has been in care at any stage in their life. A complex interplay of factors leads to care-experienced children and young people (CECYP) experiencing poorer oral health and access to dental care than their peers. A rapid review of the co-production of health and social care research with vulnerable children and young people (CYP) was carried out to inform the development of a co-produced research project exploring the oral health behaviours and access to dental services of CECYP. Here, \'co-production\' refers to the involvement of CYP in the planning or conduct of research with explicit roles in which they generate ideas, evidence and research outputs.
    OBJECTIVE: To learn how to meaningfully involve vulnerable CYP in the co-production of health and social science research.
    OBJECTIVE: To identify: Different approaches to facilitating the engagement of vulnerable CYP in co-production of health and social science research; different activities carried out in such approaches, challenges to engaging vulnerable CYP in co-production of health and social science research and ways to overcome them and areas of best practice in relation to research co-production with vulnerable CYP.
    METHODS: A rapid review of peer-reviewed articles was conducted in six databases (MEDLINE, Embase, SocINDEX, CINAHL, PsycINFO and Web of Science) and grey literature to identify studies that engaged vulnerable CYP in co-approaches to health and social research.
    RESULTS: Of 1394 documents identified in the search, 40 were included and analysed. A number of different approaches to co-production were used in the studies. The CYP was involved in a range of activities, chiefly the development of data collection tools, data collection and dissemination. Individual challenges for CYP and researchers, practical and institutional factors and ethical considerations impacted the success of co-production.
    CONCLUSIONS: Co-production of health and social science with vulnerable CYP presents challenges to researchers and CYP calling for all to demonstrate reflexivity and awareness of biases, strengths and limitations. Used appropriately and well, co-production offers benefits to researchers and CYP and can contribute to research that reflects the needs of vulnerable CYP. Adherence to the key principles of inclusion, safeguarding, respect and well-being facilitates this approach.
    UNASSIGNED: Members of our patient and public involvement and stakeholder groups contributed to the interpretation of the review findings. This manuscript was written together with a young care leaver, Skye Boswell, who is one of the authors. She contributed to the preparation of the manuscript, reviewing the findings and their interpretation.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Journal Article
    背景:当可以使用或受益于研究发现的人作为研究团队的合作伙伴时,结果的质量和影响更好。这些人可以包括患者/消费者和不确定为研究人员的临床医生。他们被称为“知识用户”。这种合作方法称为集成知识翻译(IKT)。我们对知识用户参与系统审查的情况知之甚少。我们旨在评估团队成员在更新Cochrane患者决策辅助审查时的有意义参与程度及其对使用IKT方法的看法。
    方法:我们进行了前后混合方法研究。我们在两个时间点调查了所有团队成员。在进行系统审查之前,所有参与的团队成员都表示了他们在系统审查过程的12个步骤中的每一个步骤中的参与程度,从“屏幕标题/摘要”到“提供对条款草案的反馈”。之后,他们使用患者参与研究量表(PEIRS-22),从100分(极有意义的参与)到0分(无有意义的参与)的7个领域,报告了他们对每个步骤的参与程度和有意义的参与程度的满意度.我们使用开放式问题征求了他们对IKT方法的经验。我们使用内容分析对定量数据进行了描述性分析,对定性数据进行了分析。我们在研究设计和解释的水平上对数据进行了三角测量。
    结果:在21名团队成员中,20人完成了基线调查(95.2%的应答率)和17/20(85.0%的应答率)的后续调查。有11名(55%)研究人员,3(15%)患者/消费者,5名(25%)临床医生-研究人员,和1名(5%)研究生。在基线,参与12个系统评价步骤的首选水平从n=3(15%)(搜索灰色文献来源)到n=20(100%)(提供系统评价文章的反馈)不等.在后续行动中,16名(94.1%)参与者对他们参与这些步骤的程度完全或非常满意。所有人(17,100%)都同意该过程是共同生产的。PEIRS-22总得分显示,大多数参与者报告的参与度非常(13,76.4%)或非常(2,11.8%)。三角数据显示,参与者表示参与了一个融合了不同观点的真实研究过程,产生更好和更相关的产出。报道的挑战是时间,资源,以及与大型集团合作的后勤。
    结论:在进行系统评价期间使用IKT方法后,团队成员报告了高水平的有意义的参与。这些结果有助于我们理解共同产生系统评价的方法。
    当能够使用或受益于研究结果的人作为研究团队的合作伙伴时,结果的质量和影响更好。这些人可以包括患者/消费者和不确定为研究人员的临床医生。这种合作方法称为集成知识翻译(IKT)。很少使用这种方法,并且很少有关于将其与系统评论一起使用的信息。系统评价是一种研究,通过结合所有现有研究的数据,提供关于给定主题的最佳可用证据。这项研究的目的是了解我们的团队成员在合作进行有关患者决策辅助的系统评价时的投入程度。21名团队成员中有20名参与了这项研究,包括11名研究人员,3名患者/消费者,5名临床医生-研究人员,和1名研究生。作为IKT研究过程的一部分,我们要求团队成员在两个时间点完成关于他们的经历的调查:开始研究之前和研究完成之后。大多数团队成员感到非常或非常参与这个过程。所有团队成员都觉得自己是合作伙伴。他们举例说明了如何实现这一目标。使用IKT方法的优势包括知识共享,包含更多不同的声音,更真实的研究过程,更好和更相关的结果,和个人利益(例如参与的享受)。使用这种方法的缺点是需要更多的时间和资源。三名团队成员说没有缺点。患者/消费者和临床医生可以与研究团队合作并参与进行系统评价。我们的发现可能有助于研究人员将知识用户作为研究团队的平等伙伴。
    BACKGROUND: When people who can use or benefit from research findings are engaged as partners on study teams, the quality and impact of findings are better. These people can include patients/consumers and clinicians who do not identify as researchers. They are referred to as \"knowledge users\". This partnered approach is called integrated knowledge translation (IKT). We know little about knowledge users\' involvement in the conduct of systematic reviews. We aimed to evaluate team members\' degree of meaningful engagement and their perceptions of having used an IKT approach when updating the Cochrane Review of Patient Decision Aids.
    METHODS: We conducted a pre-post mixed methods study. We surveyed all team members at two time points. Before systematic review conduct, all participating team members indicated their preferred level of involvement within each of the 12 steps of the systematic review process from \"Screen titles/abstracts\" to \"Provide feedback on draft article\". After, they reported on their degree of satisfaction with their achieved level of engagement across each step and the degree of meaningful engagement using the Patient Engagement In Research Scale (PEIRS-22) across 7 domains scored from 100 (extremely meaningful engagement) to 0 (no meaningful engagement). We solicited their experiences with the IKT approach using open-ended questions. We analyzed quantitative data descriptively and qualitative data using content analysis. We triangulated data at the level of study design and interpretation.
    RESULTS: Of 21 team members, 20 completed the baseline survey (95.2% response rate) and 17/20 (85.0% response rate) the follow-up survey. There were 11 (55%) researchers, 3 (15%) patients/consumers, 5 (25%) clinician-researchers, and 1 (5%) graduate student. At baseline, preferred level of involvement in the 12 systematic review steps varied from n = 3 (15%) (search grey literature sources) to n = 20 (100%) (provide feedback on the systematic review article). At follow-up, 16 (94.1%) participants were totally or very satisfied with the extent to which they were involved in these steps. All (17, 100%) agreed that the process was co-production. Total PEIRS-22 scores revealed most participants reported extremely (13, 76.4%) or very (2, 11.8%) meaningful degree of engagement. Triangulated data revealed that participants indicated benefit to having been engaged in an authentic research process that incorporated diverse perspectives, resulting in better and more relevant outputs. Reported challenges were about time, resources, and the logistics of collaborating with a large group.
    CONCLUSIONS: Following the use of an IKT approach during the conduct of a systematic review, team members reported high levels of meaningful engagement. These results contribute to our understanding of ways to co-produce systematic reviews.
    When people who can use or benefit from research findings are engaged as partners on study teams, the quality and impact of findings are better. These people can include patients/consumers and clinicians who do not identify as researchers. This partnered approach is called integrated knowledge translation (IKT). This approach is rarely used and there is little information about using it with systematic reviews. A systematic review is a type of study that provides the best available evidence on a given topic by combining data from all existing studies. The aim of this study was to find out how engaged our team members felt when partnering on our systematic review about patient decision aids. Twenty of 21 team members participated in the study, including 11 researchers, 3 patients/consumers, 5 clinician-researchers, and 1 graduate student. We asked our team members to complete a survey about their experience as part of our IKT research process at two time points: before starting the study and after the study was done. Most team members felt extremely or very engaged in the process. All team members felt like partners. They gave examples of how this was achieved. Advantages to using the IKT approach included knowledge sharing, inclusion of more diverse voices, a more authentic research process, better and more relevant results, and personal benefits (e.g. enjoyment from being involved). Disadvantages to using this approach was that it took more time and resources. Three team members said there were no disadvantages. It is possible for patients/consumers and clinicians to partner and feel engaged with research teams doing systematic reviews. Our findings may help researchers engage knowledge users as equal partners on study teams.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

       PDF(Pubmed)

  • 文章类型: Systematic Review
    背景:在残疾研究中,归属感正在成为一个有前途的研究领域。包容性研究,基于生活经验的观点,很可能为智力残疾人生活中的归属感提供了突出的见解。
    方法:使用了智障领域的四个数据库和五个主要期刊的系统综述。对提取的数据进行了内容分析和演绎综合。
    结果:纳入研究的结果与更广泛的文献中确定的归属感的关键主题之间存在高度融合。除此之外,利用包容性研究方法的研究为智力残疾人的生活归属感做出了新的发现。
    结论:归属感的包容性研究方法可以提供创新和响应性的框架,以支持人们在自己和社区中发展一种联系和“在家”的感觉。
    BACKGROUND: In disability studies belonging is emerging as a promising area of study. Inclusive research, based as it is on lived experience perspectives, is likely to provide salient insights into belonging in the lives of people with intellectual disabilities.
    METHODS: A systematic review utilising four databases and five leading journals in the field of intellectual disabilities was used. Content analysis and a deductive synthesis of the extracted data was undertaken.
    RESULTS: A high level of confluence was found between the findings of the included studies and key themes of belonging identified in the wider literature. Beyond this, studies utilising inclusive research approaches have contributed novel findings about belonging in the lives of people with intellectual disabilities.
    CONCLUSIONS: Inclusive research approaches to belonging may provide innovative and responsive frameworks to support people to develop a sense of being connected and \"at home\" in themselves and in their communities.
    导出

    更多引用

    收藏

    翻译标题摘要

    我要上传

    求助全文

公众号