Transition

过渡
  • 文章类型: Journal Article
    目的:探讨新合格护士和助产士持续专业发展(CPD)的经验和与CPD参与相关的因素,如工作满意度和离职意向。
    背景:新合格的护士和助产士发现很难过渡到他们的第一个注册职位。在过渡期间,通过CPD提供专业支持对于建立能力和信心以及提高工作满意度和保留率至关重要。
    方法:横断面研究。
    方法:本研究于2021年9月至2022年10月进行。在线调查,由83个项目组成,包括:护士专业发展问卷(Q-PDN),麦克洛斯基/穆勒满意度量表,关于离开的三个问题和两个开放式问题。分析是结合三个欧洲国家的结果进行的。进行描述性和逻辑回归分析。参与者是来自爱尔兰的新合格护士和助产士,意大利和克罗地亚结果:共有476名新合格的护士和助产士完成了调查。其中,32%(n=152)对参加CPD活动的机会感到满意,54.8%(n=261)参加了正式的CPD计划。大多数新合格的护士和助产士(89.1%,n=424)同意他们愿意参加正式的CPD计划。几乎一半的参与者(46.4%,n=219)曾考虑过在过去的12个月中离开该行业。我们发现\'参加了支持新合格护士的计划(OR=0.29;p<.001),参加强制性CPD活动(OR=0.76;p=0.016)和在社区临床领域工作(OR=0.31;p<.001)或在产妇中工作(OR=0.46;p=0.040)与更好的工作满意度呈正相关。
    结论:在过渡期内参与支持计划有助于提高新合格护士和助产士的工作满意度。在过渡期间,新合格的护士和助产士需要机构经理的更多支持,在确保更好的学习环境方面,以及正式和非正式的支持。
    OBJECTIVE: To explore newly qualified nurses and midwives\' experience of continuing professional development (CPD) and factors associated with CPD participation during newly qualified nurses and midwives\' transition, such as job satisfaction and intention to leave.
    BACKGROUND: Newly qualified nurses and midwives find it difficult to make the transition to their first registered post. During the transition, professional support through CPD is essential to build competence and confidence and increase job satisfaction and retention.
    METHODS: A cross-sectional study.
    METHODS: This study was conducted from September 2021 to October 2022. The online survey, consisting of 83 items, included: the Questionnaire of Professional Development of Nurses (Q-PDN), the McCloskey/Mueller Satisfaction Scale, three questions about Intention to Leave and two open-ended questions. The analysis was conducted by combining the results from the three European countries. Descriptive and logistic regression analyses were performed. The participants were Newly qualified nurses and midwives from Ireland, Italy and Croatia RESULTS: A total of 476 Newly qualified nurses and midwives completed the survey. Of these, 32 % (n=152) were satisfied with opportunities to participate in CPD activities and 54.8 % (n=261) had participated in a formal CPD programme. Most newly qualified nurses and midwives (89.1 %, n=424) agreed that they would like to participate in a formal CPD programme. Almost half of the participants (46.4 %, n=219) had thought of leaving the profession in the previous 12 months. We found that \'having participated in a programme to support newly qualified nurses (OR=0.29; p<.001), \'participating in mandatory CPD activities\' (OR=0.76; p=0.016) and \'working in the clinical area of community\' (OR=0.31; p<.001) or in maternity (OR=0.46; p=0.040) were positively associated with better job satisfaction.
    CONCLUSIONS: Participation in support programs during the transition period contributes to increasing job satisfaction for newly qualified nurses and midwives. During their transition, newly qualified nurses and midwives need more support from their institution managers, in terms of ensuring a better learning environment, as well as formal and informal supports.
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  • 文章类型: Journal Article
    背景:医学生认为向职员教育的过渡是压力和挑战性的,并且在职员教育轮换期间将自己视为新手。因此,发展的观点很重要,因为向职员的过渡支持而不是阻碍了增长。因此,这项研究考察了医学生向职员的过渡及其发展特征。
    方法:对18名医学生或完成了医学生职务的毕业生进行了深入访谈。基于Straussian扎根理论,对收集到的数据进行了分析,分析了实习前和实习后教育的差异.
    结果:我们的数据分析揭示了过渡过程的五个阶段:“预期和焦虑,\"\"现实检查,\"\"寻求解决方案,“\”实际应用,\"和\"过渡和稳定。“核心类别,也就是说,“从学生成长为学生医生,“是由患者驱动的,他们认为参与者是学生医生。同时,与会者认识到,有一个同事同意的解决方案比知道正确的答案更重要。正在过渡到职员职位的参与者显示出发展特征,分为三类:个人,社会,和专业。具体来说,他们试图通过个人发展来平衡职员和生活,学会了在医院四处导航,并通过社会发展减少了紧张,并通过专业发展发展注重效率的临床能力。
    结论:本研究探讨了学生过渡到职务教育的过程以及在此期间出现的发展特征。学生的动机是患者认为他们是学生医生。通过过渡,他们保持了工作与生活的平衡,适应了医院,但通过注重效率的临床能力培养,形成了过度以医生为中心的态度。把他们发展成医疗专业人士,协助他们过渡并培养以病人为中心的态度至关重要。
    BACKGROUND: Medical students perceive the transition to clerkship education as stressful and challenging and view themselves as novices during their rotation in clerkship education. The developmental perspective is thus important because the transition to clerkship supports rather than hinders growth. Accordingly, this study examines medical students\' transition to clerkship and their developmental features.
    METHODS: In-depth interviews were conducted with 18 medical students or graduates who had completed clerkships as medical students. Based on Straussian grounded theory, the collected data were analyzed in terms of the differences between pre- and post-clerkship education.
    RESULTS: Our data analysis revealed five stages of the transition process: \"anticipation and anxiety,\" \"reality check,\" \"seeking solutions,\" \"practical application,\" and \"transition and stability.\" The core category, that is, \"growing up from being students to being student doctors,\" was driven by patients who perceived the participants as student doctors. Meanwhile, the participants recognized that having a solution that is agreed upon by colleagues was more important than knowing the correct answer. The participants undergoing the transition to clerkship showed developmental features divided into three categories: personal, social, and professional. Specifically, they attempted to balance clerkship and life through personal development, learned to navigate around the hospital and reduced tension through social development, and developed clinical competencies focused on efficiency through professional development.
    CONCLUSIONS: This study explores the process of students\' transition to clerkship education and the developmental features that emerge during this period. The students were motivated by patients who perceived them as student doctors. Through the transition, they maintained a work-life balance and adapted to hospitals but developed an overly doctor-centered attitude by cultivating clinical competencies with a focus on efficiency. To develop them into medical professionals, it is essential to assist their transition and cultivate a patient-centered attitude.
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  • 文章类型: Journal Article
    目的:这项研究的主要目的是根据肿瘤科医生和护士的说法,确定青少年和年轻人(AYAs)癌症患者从儿童护理向成人护理过渡的促进者和障碍。次要目标是(1)探索医疗保健专业人员(HCP)对这一过渡的观点,以及(2)发现HCP的需求以及他们在AYAs及其父母中所感知的需求。方法:对19名HCP进行了半结构化访谈,以了解他们在儿科到成人护理过渡方面的经验。随后进行了专题分析。结果:参与者报告说,过渡是一个复杂的过程,受到众多障碍和促进者的影响,可以分为四个主题:(1)平衡过渡过程中涉及的三个参与者的需求和关系,(2)使HCP能够确定过渡的理想时间的因素,(3)挑战HCP的机构和组织障碍和促进者,(4)HCPs对定义和改进过渡过程的思考。结论:除了缺乏人力和财力外,这阻碍了过渡的结构,我们的研究结果表明需要进行范式转换.也就是说,在过渡之前,在儿科中给予AYAs的位置需要发展,以便它们逐渐位于与HCP关系的中心,因此,是护理和过渡过程的重点。这将使他们获得技能,知识,和自主权需要成功过渡到成人护理。
    Purpose: The main objective of this study was to identify the facilitators of and barriers to the transition from pediatric to adult care for adolescents and young adults (AYAs) with cancer according to physicians and nurses working in oncology. The secondary objectives were (1) to explore the viewpoints of health care professionals (HCPs) on this transition and (2) to discover HCP\'s needs and the needs they perceive among AYAs and their parents. Methods: Semistructured interviews were conducted with 19 HCPs to discover their experiences with pediatric to adult care transitions. Thematic analysis was then conducted. Results: Participants reported that transitioning is a complex process influenced by numerous barriers and facilitators, which can be classified into four themes: (1) balancing the needs and relationships of the three actors involved in the transition process, (2) factors that enable HCPs to determine the ideal time for transitions, (3) institutional and organizational barriers and facilitators that challenge HCPs, and (4) HCPs\' reflections on defining and improving the transition process. Conclusion: Beyond the lack of human and financial resources, which hinders the structuring of transitions, our results suggest the need for a paradigm shift. That is, the position given to AYAs in pediatrics before the transition needs to evolve so that they are gradually positioned at the center of the relationship with HCPs and, therefore, are the focus of care and the transition process. This will enable them to acquire the skills, knowledge, and autonomy needed for a successful transition to adult care.
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  • 文章类型: Journal Article
    背景:对于许多年轻人来说,从儿童到成人心理健康服务的过渡是与治疗脱离和疾病进展相关的脆弱时期。为青年提供服务信息和选择,吸引他们,在此期间,根据他们的需求进行调整可以帮助克服成功过渡的系统性障碍。我们对如何利用基于短信的干预措施来支持动机,信息性,以及这段时间年轻人的行为需求。确定青少年对SMS文本消息服务的内容和功能的偏好可以为原型开发提供信息。
    目的:本研究调查了青少年对重要内容的共识偏好,技术特点,和参与支持通知以过渡为重点的SMS文本消息服务。
    方法:使用改进的e-Delphi调查设计来收集人口统计信息,目前的技术使用水平,对邮件内容的重要性评级,首选技术特征,以及在过去5年内获得精神卫生服务的加拿大16-26岁青年参与的障碍和促进因素。根据信息-动机-行为技能(IMB)模型对内容的调查项目进行分类。根据说服系统设计(PSD)模型对技术特征的调查项目进行了分类。使用预定义的共识评级矩阵和描述性统计来表征样品。高共识阈值为70%。
    结果:共有100名参与者,主要是非白人(n=47,47%),20-26岁(n=59,59%),首次获得精神卫生服务的年龄在13至19岁之间(n=60,60%),被选中。大多数(n=90,90%)被确定为每日短信用户。根据IMB模型,在45%(9/20)的内容项目中报告了对重要性评级的高度共识。与行为领域项目(3/3,100%)相关的重要性等级的共识水平高于信息领域项目(4/9,44%)或动机领域项目(2/8,25%)。根据PSD模型,仅在19%(4/21)的特征和功能项目中报告了对重要性等级的高度共识。在PSD模型类别中,在8%(1/12)的主要任务支持领域项目和100%(3/3)的系统可信度支持领域项目中,对重要性评级有高度共识。对话支持和社会支持领域项目均未达到共识门槛。总的来说,27%(27/100)的年轻人表示,参与以过渡为重点的SMS文本消息干预的最重要推动者是文本消息的个性化。
    结论:为该人群开发下一代SMS短信干预措施的科学家需要考虑对不同特征的共识水平如何影响可行性和个性化努力。青年可以(而且应该)在制定这些干预措施中发挥不可或缺的作用。
    BACKGROUND: For many young people, the transition from child to adult mental health services is a vulnerable time associated with treatment disengagement and illness progression. Providing service information and options to youth, appealing to them, and tailoring to their needs during this period could help overcome systematic barriers to a successful transition. We know little about how SMS text message-based interventions might be leveraged to support the motivational, informational, and behavioral needs of youth during this time. Ascertaining youth preferences for the content and functionality of an SMS text message service could inform prototype development.
    OBJECTIVE: This study investigated consensus preferences among youth on important content, technology features, and engagement supports to inform a transition-focused SMS text message service.
    METHODS: A modified e-Delphi survey design was used to collect demographics, current levels of technology use, importance ratings on message content, preferred technical features, and barriers and enablers to engagement for youth in Canada aged 16-26 years who have accessed mental health services within the past 5 years. Survey items on content were categorized according to the information-motivation-behavioral skills (IMB) model. Survey items on technical features were categorized according to the persuasive system design (PSD) model. A predefined consensus rating matrix and descriptive statistics were used to characterize the sample. The high consensus threshold was 70%.
    RESULTS: A total of 100 participants, predominantly non-White (n=47, 47%), aged 20-26 years (n=59, 59%), and who had first accessed mental health services between the ages of 13 and 19 years (n=60, 60%), were selected. The majority (n=90, 90%) identified as daily SMS text message users. A high level of consensus on importance ratings was reported in 45% (9/20) of content items based on the IMB model. There were higher levels of consensus on importance ratings related to behavior domain items (3/3, 100%) than information domain items (4/9, 44%) or motivation domain items (2/8, 25%). A high level of consensus on importance ratings was reported in only 19% (4/21) of feature and functionality items based on the PSD model. Among PSD model categories, there was a high level of consensus on importance ratings in 8% (1/12) of the primary task support domain items and 100% (3/3) of the system credibility support domain items. None of the dialogue-support and social-support domain items met the high level of consensus thresholds. In total, 27% (27/100) of youth indicated that the most significant enabler for engaging with a transition-focused SMS text message intervention was the personalization of text messages.
    CONCLUSIONS: Scientists developing next-generation SMS text messaging interventions for this population need to consider how levels of consensus on different features may impact feasibility and personalization efforts. Youth can (and should) play an integral role in the development of these interventions.
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  • 文章类型: Journal Article
    目的:在儿童时期开始肾脏替代治疗(KRT)并达到18岁生日的年轻人(即儿童KRT的成年幸存者)构成了治疗成人的肾脏病学家感兴趣的挑战性人群,因为在此期间将过渡到成人肾脏中心。尽管如此,很少有研究关注该组中KRT的流行病学。我们旨在提供这些患者特征的最新信息,治疗史,移植和患者生存,报告他们的5年预后,和预期的剩余寿命。
    方法:收集了来自21个欧洲国家/地区的KRT患者在2008-2019年达到18岁生日的数据,向欧洲肾脏协会(ERA)注册提供了个体患者数据。在18岁之前和之后检查患者特征和治疗轨迹。Kaplan-Meier和Cox比例风险回归用于患者和移植物存活分析。
    结果:总计,纳入2944例患者。在很小的年龄(0-4岁)开始KRT的成年幸存者比例,接受抢先肾移植的人数增加。未调整的5年患者生存率为96.9%(95%CI:96.2-97.5)。透析患者的死亡风险高于肾移植受者(调整后的风险比5.44(95%CI:3.34-8.86))。年龄在18到23岁之间,约21%的成年幸存者失去了肾脏移植,34%的透析患者继续这种治疗。与普通人群相比,18岁的肾移植和透析患者的预期寿命分别缩短了17岁和40岁,分别。
    结论:18岁肾移植受者的预期寿命低于一般人群。然而,在18岁时进行功能正常的肾移植比接受透析治疗的结果更好.然而,年龄在18到23岁之间,约五分之一的肾移植失败,三分之一的患者仍在透析。
    OBJECTIVE: Young adults starting kidney replacement therapy (KRT) during childhood and reaching their 18th birthday (i.e. adult survivors of childhood KRT) form a challenging population of interest to nephrologists treating adults, as during this period there will be a transition to adult renal centres. Nonetheless, few studies have focused on the epidemiology of KRT in this group. We aimed to provide an update on these patients\' characteristics, treatment history, graft and patient survival, to report their 5-year prognosis, and expected remaining lifetime.
    METHODS: Data on KRT patients reaching their 18th birthday in 2008-2019 were collected from 21 European countries/regions providing individual patient data to the European Renal Association (ERA) Registry. Patient characteristics and treatment trajectories were examined before and after turning 18 years. Kaplan-Meier and Cox proportional hazards regression were used for patient and graft survival analyses.
    RESULTS: In total, 2944 patients were included. The proportion of adult survivors initiating KRT at a very young age (0-4 years), and undergoing pre-emptive kidney transplantation increased. Unadjusted 5-year patient survival was 96.9% (95% CI: 96.2-97.5). Dialysis patients had a higher risk of death than kidney transplant recipients (adjusted hazard ratio 5.44 (95% CI: 3.34-8.86)). Between ages 18 and 23 years, about 21% of the adult survivors lost their kidney transplant and 34% of the dialysis patients continued this treatment. Compared with the general population, life expectancy for eighteen-year-old kidney transplant and dialysis patients was 17 and 40 years shorter, respectively.
    CONCLUSIONS: Life expectancy of 18-year-old kidney transplant recipients was lower compared with the general population. Yet, having a functioning kidney graft at age 18 years resulted in better outcomes than being on dialysis. Nevertheless, between ages 18 and 23 years, about one-fifth of the kidney grafts failed and one-third of the patients remained on dialysis.
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  • 文章类型: Journal Article
    尽管小儿炎症性肠病(PIBD)的发病率持续上升,没有共识的过渡准则或标准化做法。
    我们旨在研究:(1)成功转移的决定因素,(2)转移与过渡对病程和患者依从性的影响,(3)PIBD患者独有的特点,在成人护理中需要特别注意。
    纵向,后续行动,2001年至2022年进行的对照研究,回顾性数据收集至2018年,因此具有前瞻性。
    三百五十一名PIBD患者参加了这项研究,其中152人被转移到成人护理,平均转移后随访时间为3年。73名患者参与了结构性转变,而79人自行转移到成人护理。主要结局指标是疾病活动(由PCDAI定义,PUCAI,CDAI,和梅奥分数)和课程,住院治疗,手术,IBD相关并发症,包括人体测量和骨密度,患者依从性,药物依从性,继续医疗。
    经历结构性转变的患者在缓解中花费的时间明显更多(83.6%±28.5%对77.5%±29.7%,p=0.0339),并且对药物的依从性更好(31.9%对16.4%的不依从率,p=0.0455)在成人护理中,自我转移的患者停止医疗护理的风险增加了1.59倍,复发的风险增加了1.88倍。转移后患者的依从性恶化(38.5%对29%,p=0.0002),在医疗保健系统之间的变化期间,失访率最高(12.7%),其中女性是危险因素(p=0.010)。PIBD患者在到达成人护理时经历过IBD相关并发症(23.4%)和以前的手术(15%),营养不良率高,增长减值,骨骼健康状况不佳。
    结构转变在确保PIBD患者的最佳病程和降低失访率方面起着关键作用。
    结构转变在确保PIBD患者的最佳疾病结局中起着关键作用,在我们的研究中,它与较低的疾病活动性有关,更少的复发,更好的药物依从性,与自我转移相比,失访率较低。
    UNASSIGNED: Despite the continuously rising rate of pediatric-onset inflammatory bowel diseases (PIBD), there are no consensus transitional guidelines or standardized practices.
    UNASSIGNED: We aimed to examine: (1) the determinants of a successful transfer, (2) the effects of the transfer versus transition on the disease course and patient compliance, (3) the unique characteristics of PIBD patients, that need special attention in adult care.
    UNASSIGNED: Longitudinal, follow-up, controlled study conducted between 2001 and 2022, with retrospective data collection until 2018, thence prospective.
    UNASSIGNED: Three hundred fifty-one PIBD patients enrolled in the study, of whom 152 were moved to adult care, with a mean post-transfer follow-up time of 3 years. Seventy-three patients took part in structured transition, whereas 79 self-transferred to adult care. The main outcome measures were disease activity (defined by PCDAI, PUCAI, CDAI, and Mayo-scores) and course, hospitalizations, surgeries, IBD-related complications, including anthropometry and bone density, patient compliance, medication adherence, and continuation of medical care.
    UNASSIGNED: Patients who underwent structured transition spent significantly more time in remission (83.6% ± 28.5% versus 77.5% ± 29.7%, p = 0.0339) and had better adherence to their medications (31.9% versus 16.4% non-adherence rate, p = 0.0455) in adult care, with self-transferred patients having a 1.59-fold increased risk of discontinuing their medical care and a 1.88-fold increased risk of experiencing a relapse. Post-transfer the compliance of patients deteriorated (38.5% versus 29%, p = 0.0002), with the highest lost-to-follow-up rate during the changing period between the healthcare systems (12.7%), in which female gender was a risk factor (p = 0.010). PIBD patients had experienced IBD-related complications (23.4%) and former surgeries (15%) upon arriving at adult care, with high rates of malnutrition, growth impairment, and poor bone health.
    UNASSIGNED: Structured transition plays a key role in ensuring the best disease course and lowering the lost-to-follow-up rate among PIBD patients.
    UNASSIGNED: Structured transition plays a key role in ensuring the best disease outcome among PIBD patients, as in our study it was associated with lower disease activity, fewer relapses, better medication adherence, and lower lost-to-follow-up rate as opposed to self-transfer.
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  • 文章类型: Journal Article
    从儿科到成人护理的过渡对于患有脊柱裂(SB)的患者和家庭来说是具有挑战性的。终身护理关系产生于通常更大的新护理环境,不那么个人化,少参与SB护理的细微差别。由于独立于疾病或慢性医学复杂性的因素,青春期和成年期通常具有个人和心理压力。调查表明,转型与不确定性有关,焦虑,以及许多SB患者的不良事件风险升高。为了帮助缓解这种情况,作者制定了一项针对青少年SB患者和本科生/医学生的试验指导计划.本研究分析并介绍了该计划的初步结果。
    作者创建了Join,团结,激励,并准备(JUMP)计划,以提高过渡过程的准备程度。受试者目标人群是在作者的SB诊所接受治疗的13-19岁患者。导师是经过筛选/批准的本科生/医学生,他们自愿参加并成功完成了在线指导培训。注册后,每个患者设置一个组合的临床,自我,以及使用个性化过渡计划的父母/监护人目标。这些目标与导师分享,学员,父母/监护人,和医生。为了监控成功,SB项目主任定期与每位导师会面,讨论取得的进展和增长领域。其中包括连续的定量和定性目标设定以及需要为每个议程解决的失败。
    在9个月内创建了13个导师-导师匹配。在13场比赛中,6在初次会议后进行了5次以上的交流,还有一场导师-导师比赛今天仍在联系。众所周知,该计划的成功是通过受训者获得就业,申请奖学金,开始上大学,并与经历类似情况的其他人建立联系。由于在初次办公室访问后未能采取后续行动,出现了挑战,使用虚拟平台的风险,以及导师和受训者在整个作者州的广泛地理分散。
    对于患有SB的青少年,从儿科到成人护理的过渡已被证明是一个很大的障碍。通过深思熟虑来缓解这个过程,交互过程有可能提高准备程度,增加患者的自主性,并提供与成人医疗保健社区的接触。然而,导师模式,在SB设置中,还没有被证明是补救措施。
    The transition from pediatric to adult care is challenging for patients and families with spina bifida (SB). Lifelong care relationships yield to new care environments that are typically larger, less personal, and less engaged with the nuances of SB care. Adolescence and young adulthood are often characterized by personal and psychological stresses due to factors independent of illness or chronic medical complexity. Surveys have demonstrated that transition is associated with uncertainty, anxiety, and elevated risk of adverse events for many SB patients. To help mitigate this, the authors developed a trial mentorship program between teen patients with SB and undergraduate/medical students. This study analyzes and presents the initial outcomes from this program.
    The authors created the Join, Unite, Motivate, and Prepare (JUMP) program to improve readiness for the transition process. The mentee target population was patients aged 13-19 years receiving care at the authors\' SB clinic. Mentors were screened/approved undergraduate/medical students who volunteered to participate and successfully completed online training in mentorship. Upon enrollment, each patient set a combination of clinical, self, and parent/guardian goals using the individualized transition plan. These goals were shared with the mentor, mentee, parent/guardian, and physician. To monitor success, the SB program director routinely met with each mentor to discuss progress made and areas of growth. These included continuous quantitative and qualitative goal setting and failures that needed to be addressed for each agenda.
    Thirteen mentor-mentee matches were created over 9 months. Of the 13 matches, 6 had more than 5 communications after the initial meeting, and 1 mentor-mentee match is still in contact today. Noted success in the program has been through mentees gaining employment, applying for scholarships, starting college, and connecting with others who are going through similar circumstances. Challenges have arisen through failure to follow-up after the initial office visit, risk with using the virtual platform, and wide geographic dispersion of both mentors and mentees across the authors\' state.
    Transition from pediatric to adult care for adolescents with SB has proven to be a large hurdle. Easing this process through well-thought-out, interactive processes has the potential to improve readiness, increase patient autonomy, and provide exposure to the adult healthcare community. However, the mentorship model, in the SB setting, has not proven to be the remedy.
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  • 文章类型: Journal Article
    目的:患有慢性风湿性疾病的青少年在从儿童护理过渡到成人护理时,必须越来越多地承担父母对疾病管理的责任。然而,通知和支持父母过渡的资源有限。这里,我们评估过渡工具包的影响,面向父母和青少年,关于过渡准备,并探讨父母与青少年沟通的潜在影响。
    方法:对14-18岁青少年及其父母进行前瞻性队列研究。参与者的人口统计,疾病特征,过渡准备分数(Transition-Q,最大100),和父母与青少年的沟通得分(PACS,最大100)是在登记时收集的(当与青少年及其父母共享过渡工具包时.广义估计方程(GEE)分析确定了工具包对过渡准备的影响,并探讨了父母与青少年沟通质量的作用。按性别进行亚组分析。
    结果:共纳入21例患者;19例完成1例干预后Transition-Q,16例完成2例。Transition-Q分数随着时间的推移而增加,并且在共享工具包后增加了一倍(分别为β=7.8,p<0.05和β=15.5,p<0.05)。
    结论:每次随访的过渡准备都得到了改善,最大的增长是在共享工具包后看到的。父母与青少年的沟通质量似乎并未影响过渡准备的变化。
    OBJECTIVE: Adolescents with chronic rheumatic disease must increasingly take on more responsibility for disease management from parents as they transition from pediatric to adult care. Yet, there are limited resources to inform and support parents about transition. Here, we evaluate the impact of a Transition Toolkit, geared towards parents and adolescents, on transition readiness, and explore the potential impact of parent-adolescent communication.
    METHODS: A prospective cohort study of youths aged 14-18 years old and their parents was performed. Participant demographics, disease characteristics, transition readiness scores (Transition-Q, max 100), and parent-adolescent communication scores (PACS, max 100) were collected at enrollment (when the Transition Toolkit was shared with adolescents and their parents. Generalized estimating equation (GEE) analyses determined the influence of the Toolkit on transition readiness and explored the role of parent-adolescent communication quality. Subgroup analyses were conducted by sex.
    RESULTS: A total of 21 patients were included; 19 completed one post-intervention Transition-Q and 16 completed two. Transition-Q scores increased over time and the rate of increase doubled after the Toolkit was shared (β = 7.8, p < 0.05, and β = 15.5, p < 0.05, respectively).
    CONCLUSIONS: Transition readiness improved at each follow-up, the greatest increase was seen after the Toolkit was shared. Parent-adolescent communication quality did not appear to impact changes in transition readiness.
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  • 文章类型: Journal Article
    背景:慢性疼痛患者的疼痛严重程度轨迹存在差异。以前的研究已经通过聚类稀疏数据来探索疼痛轨迹;然而,为了了解日常疼痛的变化,需要使用每日疼痛数据识别每周轨迹的聚类.可以通过量化这些集群之间的周与周移动来探索周间变化性。我们建议未来的工作可以在短期预测模型中使用疼痛严重程度的聚类(例如,每日波动)和长期(例如,每周模式)可变性。具体来说,未来的工作可以使用每周轨迹的群集来预测群集之间的运动和群集内疼痛严重程度的变化。
    目的:本研究旨在了解常见的周模式集群,作为开发疼痛预测模型的第一阶段。
    方法:使用基于人群的移动健康研究的数据来编制每周疼痛轨迹(n=21,919),然后使用k-medoids算法进行聚类。敏感性分析检验了与数据的序数和纵向结构相关的假设的影响。研究了集群内人们的特征,并进行了过渡分析,以了解连续每周集群之间的人员移动。
    结果:确定了代表无疼痛或低疼痛轨迹的四个簇(1714/21,919,7.82%),轻度疼痛(8246/21,919,37.62%),中度疼痛(8376/21,919,38.21%),和严重疼痛(3583/21,919,16.35%)。敏感性分析证实了4簇解决方案,得到的聚类与主要分析中的聚类相似,至少85%的轨迹属于与主要分析中相同的聚类。男性参与者在无或低疼痛组中花费的时间比女性参与者(参与者平均6.5,95%bootstrapCI5.7%-7.3%)更长(参与者平均7.9%,95%bootstrapCI6%-9.9%)。与老年人(65-86岁;参与者平均9.8,95%bootstraapCI7.7%-12.3%)相比,年轻人(17-24岁)在严重疼痛组中花费的时间更长(参与者平均28.3%,95%bootstraapCI19.3%-38.5%)。纤维肌痛患者(参与者平均31.5,95%bootstraapCI28.5%-34.4%)和神经性疼痛患者(参与者平均31.1,95%bootstraapCI27.3%-34.9%)在严重疼痛群中的时间比其他疾病患者更长,与患有其他疾病的患者相比,患有类风湿性关节炎的患者在无疼痛或低疼痛组中花费的时间更长(参与者平均7.8,95%bootstrapCI6.1%-9.6%).连续12,267对过渡分析做出了贡献。连续几周在同一集群中剩余的经验百分比为65.96%(8091/12,267)。当集群之间发生移动时,运动百分比最高的是相邻的集群。
    结论:本研究中确定的疼痛严重程度集群提供了慢性疼痛患者每周经历的简约描述。这些集群可用于未来研究集群间运动和集群内变异性,以开发准确且利益相关者知情的疼痛预测工具。
    BACKGROUND: People with chronic pain experience variability in their trajectories of pain severity. Previous studies have explored pain trajectories by clustering sparse data; however, to understand daily pain variability, there is a need to identify clusters of weekly trajectories using daily pain data. Between-week variability can be explored by quantifying the week-to-week movement between these clusters. We propose that future work can use clusters of pain severity in a forecasting model for short-term (eg, daily fluctuations) and longer-term (eg, weekly patterns) variability. Specifically, future work can use clusters of weekly trajectories to predict between-cluster movement and within-cluster variability in pain severity.
    OBJECTIVE: This study aims to understand clusters of common weekly patterns as a first stage in developing a pain-forecasting model.
    METHODS: Data from a population-based mobile health study were used to compile weekly pain trajectories (n=21,919) that were then clustered using a k-medoids algorithm. Sensitivity analyses tested the impact of assumptions related to the ordinal and longitudinal structure of the data. The characteristics of people within clusters were examined, and a transition analysis was conducted to understand the movement of people between consecutive weekly clusters.
    RESULTS: Four clusters were identified representing trajectories of no or low pain (1714/21,919, 7.82%), mild pain (8246/21,919, 37.62%), moderate pain (8376/21,919, 38.21%), and severe pain (3583/21,919, 16.35%). Sensitivity analyses confirmed the 4-cluster solution, and the resulting clusters were similar to those in the main analysis, with at least 85% of the trajectories belonging to the same cluster as in the main analysis. Male participants spent longer (participant mean 7.9, 95% bootstrap CI 6%-9.9%) in the no or low pain cluster than female participants (participant mean 6.5, 95% bootstrap CI 5.7%-7.3%). Younger people (aged 17-24 y) spent longer (participant mean 28.3, 95% bootstrap CI 19.3%-38.5%) in the severe pain cluster than older people (aged 65-86 y; participant mean 9.8, 95% bootstrap CI 7.7%-12.3%). People with fibromyalgia (participant mean 31.5, 95% bootstrap CI 28.5%-34.4%) and neuropathic pain (participant mean 31.1, 95% bootstrap CI 27.3%-34.9%) spent longer in the severe pain cluster than those with other conditions, and people with rheumatoid arthritis spent longer (participant mean 7.8, 95% bootstrap CI 6.1%-9.6%) in the no or low pain cluster than those with other conditions. There were 12,267 pairs of consecutive weeks that contributed to the transition analysis. The empirical percentage remaining in the same cluster across consecutive weeks was 65.96% (8091/12,267). When movement between clusters occurred, the highest percentage of movement was to an adjacent cluster.
    CONCLUSIONS: The clusters of pain severity identified in this study provide a parsimonious description of the weekly experiences of people with chronic pain. These clusters could be used for future study of between-cluster movement and within-cluster variability to develop accurate and stakeholder-informed pain-forecasting tools.
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  • 文章类型: Journal Article
    目的:这项研究的目的是探索当癌症患儿在医院环境中过渡到临终关怀时的帮助因素。
    方法:使用反身主题分析的定性探索设计。
    方法:深入,对来自一个专科儿科肿瘤中心的7组失去亲人的父母和10名卫生专业人员进行了半结构化访谈。结果与专业人员分享,以帮助塑造新儿童医院的服务。
    结果:确定了三个主题:\'改变和面对未知\',“感觉正常的舒适”和“知道和被知道”。失去亲人的父母描述了对孩子病情恶化的逐渐认识,以及对卫生专业人员的信任。专业人士称这一过程具有挑战性,但以儿童和父母的需求为指导。与专业人士的支持和信任关系帮助父母应对过渡。
    结论:我们确定的做法有助于创建一种文化,支持父母和专业人士参与照顾面临癌症死亡的儿童。这些植根于感觉得到支持,并努力为儿童提供最好的生命结束护理。
    结论:鉴于儿童的死亡是一个独特的挑战性事件,这项研究表明,临床环境可以通过促进熟悉度(随着时间的推移支持家庭)和正常度(允许以家庭为中心的活动)来提供帮助.这些对父母和专业人士都有帮助。然而,与这些家庭合作时,专业人士需要情感支持。
    这项研究遵循了报告定性研究的综合标准。
    项目指导小组包括一位失去亲人的父母(未参与研究),一名儿科肿瘤学家和一名医院牧师。
    OBJECTIVE: The aim of this study was to explore factors that helped when a child with cancer transitioned to end of life care in a hospital setting.
    METHODS: Qualitative exploratory design using reflexive thematic analysis.
    METHODS: In-depth, semi-structured interviews were carried out with 7 sets of bereaved parents and 10 health professionals from one specialist paediatric oncology centre. Results were shared with professionals to help shape services in a new children\'s hospital.
    RESULTS: Three themes were identified: \'change and facing the unknown\', \'the comfort of feeling normal\' and \'knowing and being known\'. Bereaved parents described a gradual awareness of the deterioration of their child\'s condition and the need for trust in health professionals. Professionals described the process as challenging but were guided by the needs of children and parents. Supportive and trusting relationships with professionals helped parents to cope with the transition.
    CONCLUSIONS: We identified practices that helped create a culture that supported parents and professionals involved in caring for children facing death from cancer. These were rooted in feeling supported and working to provide the best end of life care for children.
    CONCLUSIONS: Given that the death of a child is a uniquely challenging event, this study indicates that the clinical setting can assist via the promotion of familiarity (supporting families over time) and normality (allowing family-focused activities). These were helpful to parents and to professionals. However, professionals need emotional support when working with these families.
    UNASSIGNED: The study adhered to the Consolidated Criteria for Reporting Qualitative Research.
    UNASSIGNED: The project steering group included one bereaved parent (who was not involved in the study), one consultant paediatric oncologist and one hospital chaplain.
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