Abstract：
OBJECTIVE: The aim of this study was to explore factors that helped when a child with cancer transitioned to end of life care in a hospital setting.
METHODS: Qualitative exploratory design using reflexive thematic analysis.
METHODS: In-depth, semi-structured interviews were carried out with 7 sets of bereaved parents and 10 health professionals from one specialist paediatric oncology centre. Results were shared with professionals to help shape services in a new children\'s hospital.
RESULTS: Three themes were identified: \'change and facing the unknown\', \'the comfort of feeling normal\' and \'knowing and being known\'. Bereaved parents described a gradual awareness of the deterioration of their child\'s condition and the need for trust in health professionals. Professionals described the process as challenging but were guided by the needs of children and parents. Supportive and trusting relationships with professionals helped parents to cope with the transition.
CONCLUSIONS: We identified practices that helped create a culture that supported parents and professionals involved in caring for children facing death from cancer. These were rooted in feeling supported and working to provide the best end of life care for children.
CONCLUSIONS: Given that the death of a child is a uniquely challenging event, this study indicates that the clinical setting can assist via the promotion of familiarity (supporting families over time) and normality (allowing family-focused activities). These were helpful to parents and to professionals. However, professionals need emotional support when working with these families.
UNASSIGNED: The study adhered to the Consolidated Criteria for Reporting Qualitative Research.
UNASSIGNED: The project steering group included one bereaved parent (who was not involved in the study), one consultant paediatric oncologist and one hospital chaplain.
METHODS: Qualitative exploratory design using reflexive thematic analysis.
METHODS: In-depth, semi-structured interviews were carried out with 7 sets of bereaved parents and 10 health professionals from one specialist paediatric oncology centre. Results were shared with professionals to help shape services in a new children\'s hospital.
RESULTS: Three themes were identified: \'change and facing the unknown\', \'the comfort of feeling normal\' and \'knowing and being known\'. Bereaved parents described a gradual awareness of the deterioration of their child\'s condition and the need for trust in health professionals. Professionals described the process as challenging but were guided by the needs of children and parents. Supportive and trusting relationships with professionals helped parents to cope with the transition.
CONCLUSIONS: We identified practices that helped create a culture that supported parents and professionals involved in caring for children facing death from cancer. These were rooted in feeling supported and working to provide the best end of life care for children.
CONCLUSIONS: Given that the death of a child is a uniquely challenging event, this study indicates that the clinical setting can assist via the promotion of familiarity (supporting families over time) and normality (allowing family-focused activities). These were helpful to parents and to professionals. However, professionals need emotional support when working with these families.
UNASSIGNED: The study adhered to the Consolidated Criteria for Reporting Qualitative Research.
UNASSIGNED: The project steering group included one bereaved parent (who was not involved in the study), one consultant paediatric oncologist and one hospital chaplain.
摘要：
目的：这项研究的目的是探索当癌症患儿在医院环境中过渡到临终关怀时的帮助因素。
方法：使用反身主题分析的定性探索设计。
方法：深入，对来自一个专科儿科肿瘤中心的7组失去亲人的父母和10名卫生专业人员进行了半结构化访谈。结果与专业人员分享，以帮助塑造新儿童医院的服务。
结果：确定了三个主题：\'改变和面对未知\'，“感觉正常的舒适”和“知道和被知道”。失去亲人的父母描述了对孩子病情恶化的逐渐认识，以及对卫生专业人员的信任。专业人士称这一过程具有挑战性，但以儿童和父母的需求为指导。与专业人士的支持和信任关系帮助父母应对过渡。
结论：我们确定的做法有助于创建一种文化，支持父母和专业人士参与照顾面临癌症死亡的儿童。这些植根于感觉得到支持，并努力为儿童提供最好的生命结束护理。
结论：鉴于儿童的死亡是一个独特的挑战性事件，这项研究表明,临床环境可以通过促进熟悉度(随着时间的推移支持家庭)和正常度(允许以家庭为中心的活动)来提供帮助.这些对父母和专业人士都有帮助。然而,与这些家庭合作时，专业人士需要情感支持。
■这项研究遵循了报告定性研究的综合标准。
■项目指导小组包括一位失去亲人的父母（未参与研究），一名儿科肿瘤学家和一名医院牧师。
方法：使用反身主题分析的定性探索设计。
方法：深入，对来自一个专科儿科肿瘤中心的7组失去亲人的父母和10名卫生专业人员进行了半结构化访谈。结果与专业人员分享，以帮助塑造新儿童医院的服务。
结果：确定了三个主题：\'改变和面对未知\'，“感觉正常的舒适”和“知道和被知道”。失去亲人的父母描述了对孩子病情恶化的逐渐认识，以及对卫生专业人员的信任。专业人士称这一过程具有挑战性，但以儿童和父母的需求为指导。与专业人士的支持和信任关系帮助父母应对过渡。
结论：我们确定的做法有助于创建一种文化，支持父母和专业人士参与照顾面临癌症死亡的儿童。这些植根于感觉得到支持，并努力为儿童提供最好的生命结束护理。
结论：鉴于儿童的死亡是一个独特的挑战性事件，这项研究表明,临床环境可以通过促进熟悉度(随着时间的推移支持家庭)和正常度(允许以家庭为中心的活动)来提供帮助.这些对父母和专业人士都有帮助。然而,与这些家庭合作时，专业人士需要情感支持。
■这项研究遵循了报告定性研究的综合标准。
■项目指导小组包括一位失去亲人的父母（未参与研究），一名儿科肿瘤学家和一名医院牧师。
