背景:YouTube(YT)已发展成为全球最大的在线视频平台。众所周知,所有年龄段的用户都超过20亿,YT也是患者及其家人的重要教育工具和信息来源。YT视频有可能影响患者对其诊断和治疗决策的理解。
方法:使用关键字\"多发性硬化症,多发性硬化症治疗,“\”复发缓解型MS,YT搜索栏中的\"和\"中枢脱髓鞘障碍\"。对于每个搜索词,审查了前30个视频。视频由两个独立的评估者使用DISCERN和全球质量量表(GQS)评分系统分析。记录每个视频的定性和定量数据。
结果:共分析了99个视频。在75个可能的分数中,DISCERN的平均分数是43.44,全球质量量表(GQS)的平均得分为2.77分,共5分。在所有的视频中,14.1、29.3、15.2和29.3%被归类为非常差,可怜的,中度,不错,和优秀的,分别。包括定性特征的视频,如清晰的信息;与症状学相关的信息,病因学,诊断,治疗,治疗反应,和流行病学;图表和放射学图像的量表评分明显更高。包含动画的视频的观众参与度参数明显更高,治疗反应,和放射学图像。
结论:我们认为,可靠,对于那些寻求YT有关MS的信息的人,没有提供有用的内容。寻求有关MS的信息的每个人都应始终使用更可靠的信息源来验证YT视频中提供的信息。视频制作者应该优化他们的视频,以包含高质量和可靠的数据,并吸引更多的受众。
BACKGROUND: YouTube (YT) has grown into the largest online video platform across the world. Known to have more than two billion users of all ages, YT also serves as an important educational tool and
information source for patients and their families. YT videos have the potential to influence patients\' understanding of their diagnoses and treatment decision-making.
METHODS: Videos were identified using the keywords \"multiple sclerosis,\" \"multiple sclerosis treatment,\" \"relapsing remitting MS,\" and \"central demyelinating disorder\" in the YT search bar. For each search term, the top 30 videos were reviewed. The videos were analyzed by two independent raters using the DISCERN and Global Quality Scale (GQS) scoring systems. Qualitative and quantitative data were recorded for each video.
RESULTS: A total of 99 videos were analyzed. The mean DISCERN score was 43.44 out of 75 possible points, and the mean Global Quality Scale (GQS) score was 2.77 out of 5 possible points. Of all the videos, 14.1, 29.3, 15.2, and 29.3% were categorized as very poor, poor, moderate, good, and excellent, respectively. Videos that included qualitative features such as clear
information;
information related to symptomatology, etiology, diagnosis, treatment, treatment response, and epidemiology; and diagrams and radiological images had significantly higher scale scores. Audience engagement parameters were significantly higher for videos containing animation, treatment response, and radiological images.
CONCLUSIONS: We maintain that sufficient, reliable, and useful content is not provided for those seeking
information on YT about MS. Everyone seeking
information about MS should always verify
information provided in YT videos using more reliable sources of
information. Video producers should optimize their videos to contain high-quality and reliable data and to attract larger audiences.