Abstract：
BACKGROUND: In 2017, the European Association of Neuro-Oncology (EANO) published the guideline for palliative care in adults with glioma. The Italian Society of Neurology (SIN), the Italian Society for Palliative Care (SICP), and the Italian Association for Neuro-Oncology (AINO) joined forces to update the guideline, and adapt it to the Italian context.
OBJECTIVE: We involved patients, caregivers, and (herein presented) healthcare professionals (HPs) in the formulation of the guideline clinical questions.
METHODS: Online survey of Italian HPs experienced in the care of patients with glioma. Participants rated the importance of 14 pre-specified intervention topics on a 0/10 scale and gave their free comments.
RESULTS: Of 244 participants, 149 (61%) were palliative medicine (PM) HPs and 95 Neuro HPs. Their mean age was 48.9 years, 63% were women, and 48% had over 12 years of experience in the care of glioma patients. Physicians were 68%, followed by nurses (28%), psychologists (7%), therapists (3%), and social workers (2%). Most HPs rated the pre-specified topics as important (score ≥ 7) or critical (score ≥ 9), with some differences between PM and Neuro HP groups. There were 58 free comments: 46 (78%) on nine pre-specified topics, and 13 on four new topics, three of which were guideline-pertinent (\"caregiver\'s support and education\"; \"family physician\'s training in neuro-oncology\"; and \"PM HPs\' training in neuro-oncology\").
CONCLUSIONS: Participation in the survey was high and information-rich, between-group rating differences reflecting HP background. Participants endorsed the 14 intervention topics devised by the guideline panel and identified three additional topics.
OBJECTIVE: We involved patients, caregivers, and (herein presented) healthcare professionals (HPs) in the formulation of the guideline clinical questions.
METHODS: Online survey of Italian HPs experienced in the care of patients with glioma. Participants rated the importance of 14 pre-specified intervention topics on a 0/10 scale and gave their free comments.
RESULTS: Of 244 participants, 149 (61%) were palliative medicine (PM) HPs and 95 Neuro HPs. Their mean age was 48.9 years, 63% were women, and 48% had over 12 years of experience in the care of glioma patients. Physicians were 68%, followed by nurses (28%), psychologists (7%), therapists (3%), and social workers (2%). Most HPs rated the pre-specified topics as important (score ≥ 7) or critical (score ≥ 9), with some differences between PM and Neuro HP groups. There were 58 free comments: 46 (78%) on nine pre-specified topics, and 13 on four new topics, three of which were guideline-pertinent (\"caregiver\'s support and education\"; \"family physician\'s training in neuro-oncology\"; and \"PM HPs\' training in neuro-oncology\").
CONCLUSIONS: Participation in the survey was high and information-rich, between-group rating differences reflecting HP background. Participants endorsed the 14 intervention topics devised by the guideline panel and identified three additional topics.
摘要：
背景：2017年，欧洲神经肿瘤学协会（EANO）发布了成人神经胶质瘤姑息治疗指南。意大利神经病学会（SIN），意大利姑息治疗协会(SICP)，和意大利神经肿瘤协会（AINO）联手更新指南，并使其适应意大利的环境。
目的：我们涉及患者，看护者,和（本文提出的）医疗保健专业人员（HP）在制定指南临床问题时。
方法：对意大利HP在神经胶质瘤患者护理中的经验进行在线调查。参与者以0/10量表对14个预先指定的干预主题的重要性进行了评分，并发表了免费评论。
结果：在244名参与者中，149例（61%）为姑息药物（PM）HP和95例神经HP。他们的平均年龄是48.9岁,63%是女性，48%有超过12年的神经胶质瘤患者护理经验.医生占68%，其次是护士(28%)，心理学家（7%）治疗师(3%)，和社会工作者(2%)。大多数HP将预先指定的主题评为重要（分数≥7）或关键（分数≥9），PM和NeuroHP组之间存在一些差异。有58条免费评论：对9个预先指定的主题进行了46条（78％），和13关于四个新主题，其中三项与指南相关（\“护理人员的支持和教育\”；\“家庭医生的神经肿瘤学培训\”；和\“PMHP的神经肿瘤学培训\”）。
结论：调查参与率高，信息丰富，反映HP背景的组间评级差异。与会者认可了指南小组设计的14个干预主题，并确定了另外三个主题。
目的：我们涉及患者，看护者,和（本文提出的）医疗保健专业人员（HP）在制定指南临床问题时。
方法：对意大利HP在神经胶质瘤患者护理中的经验进行在线调查。参与者以0/10量表对14个预先指定的干预主题的重要性进行了评分，并发表了免费评论。
结果：在244名参与者中，149例（61%）为姑息药物（PM）HP和95例神经HP。他们的平均年龄是48.9岁,63%是女性，48%有超过12年的神经胶质瘤患者护理经验.医生占68%，其次是护士(28%)，心理学家（7%）治疗师(3%)，和社会工作者(2%)。大多数HP将预先指定的主题评为重要（分数≥7）或关键（分数≥9），PM和NeuroHP组之间存在一些差异。有58条免费评论：对9个预先指定的主题进行了46条（78％），和13关于四个新主题，其中三项与指南相关（\“护理人员的支持和教育\”；\“家庭医生的神经肿瘤学培训\”；和\“PMHP的神经肿瘤学培训\”）。
结论：调查参与率高，信息丰富，反映HP背景的组间评级差异。与会者认可了指南小组设计的14个干预主题，并确定了另外三个主题。
