OBJECTIVE: We involved patients, caregivers, and (herein presented) healthcare professionals (HPs) in the formulation of the guideline clinical questions.
METHODS: Online survey of Italian HPs experienced in the care of patients with glioma. Participants rated the importance of 14 pre-specified intervention topics on a 0/10 scale and gave their free comments.
RESULTS: Of 244 participants, 149 (61%) were palliative medicine (PM) HPs and 95 Neuro HPs. Their mean age was 48.9 years, 63% were women, and 48% had over 12 years of experience in the care of glioma patients. Physicians were 68%, followed by nurses (28%), psychologists (7%), therapists (3%), and social workers (2%). Most HPs rated the pre-specified topics as important (score ≥ 7) or critical (score ≥ 9), with some differences between PM and Neuro HP groups. There were 58 free comments: 46 (78%) on nine pre-specified topics, and 13 on four new topics, three of which were guideline-pertinent (\"caregiver\'s support and education\"; \"family physician\'s training in neuro-oncology\"; and \"PM HPs\' training in neuro-oncology\").
CONCLUSIONS: Participation in the survey was high and information-rich, between-group rating differences reflecting HP background. Participants endorsed the 14 intervention topics devised by the guideline panel and identified three additional topics.
目的:我们涉及患者,看护者,和(本文提出的)医疗保健专业人员(HP)在制定指南临床问题时。
方法:对意大利HP在神经胶质瘤患者护理中的经验进行在线调查。参与者以0/10量表对14个预先指定的干预主题的重要性进行了评分,并发表了免费评论。
结果:在244名参与者中,149例(61%)为姑息药物(PM)HP和95例神经HP。他们的平均年龄是48.9岁,63%是女性,48%有超过12年的神经胶质瘤患者护理经验.医生占68%,其次是护士(28%),心理学家(7%)治疗师(3%),和社会工作者(2%)。大多数HP将预先指定的主题评为重要(分数≥7)或关键(分数≥9),PM和NeuroHP组之间存在一些差异。有58条免费评论:对9个预先指定的主题进行了46条(78%),和13关于四个新主题,其中三项与指南相关(\“护理人员的支持和教育\”;\“家庭医生的神经肿瘤学培训\”;和\“PMHP的神经肿瘤学培训\”)。
结论:调查参与率高,信息丰富,反映HP背景的组间评级差异。与会者认可了指南小组设计的14个干预主题,并确定了另外三个主题。