Abstract：
UNASSIGNED: Cardiac inherited diseases can have considerable psychosocial effects, including lifestyle limitations, anxiety and depression. Most research to date on patient experiences of CID has been conducted with people from Western cultures, yet culture can shape patient views and experiences of health. The aim of this research was to explore the experiences and perspectives of Māori and Pasifika living with a cardiac inherited disease (CID).
UNASSIGNED: Semi-structured interviews were conducted with 14 Māori and 14 Pasifika patients living with a cardiac inherited disease and seven of their family members, using Talanoa and Kaupapa Māori methodologies. Themes from the interviews were identified using interpretative phenomenological analysis.
UNASSIGNED: Three common themes were identified as important in shaping participants\' perceptions and experiences of CID: (1) difficulty in understanding the disease as separate from symptoms, (2) considering ancestors and future generations and (3) the role of spirituality and religion.
UNASSIGNED: This study highlights a gap between indigenous patients\' understanding of CID and the western biomedical approach. Patients\' understanding and treatment behaviours depend on symptoms, familial ties and spirituality. The findings support the need for transparency and culturally appropriate practices in healthcare. Considering these aspects may help to reduce health inequities for these populations.
UNASSIGNED: Semi-structured interviews were conducted with 14 Māori and 14 Pasifika patients living with a cardiac inherited disease and seven of their family members, using Talanoa and Kaupapa Māori methodologies. Themes from the interviews were identified using interpretative phenomenological analysis.
UNASSIGNED: Three common themes were identified as important in shaping participants\' perceptions and experiences of CID: (1) difficulty in understanding the disease as separate from symptoms, (2) considering ancestors and future generations and (3) the role of spirituality and religion.
UNASSIGNED: This study highlights a gap between indigenous patients\' understanding of CID and the western biomedical approach. Patients\' understanding and treatment behaviours depend on symptoms, familial ties and spirituality. The findings support the need for transparency and culturally appropriate practices in healthcare. Considering these aspects may help to reduce health inequities for these populations.
摘要：
■心脏遗传性疾病会产生相当大的社会心理影响，包括生活方式的限制，焦虑和抑郁。迄今为止，大多数关于CID患者经历的研究都是针对来自西方文化的人进行的，然而，文化可以塑造病人对健康的看法和体验。这项研究的目的是探索毛利人和Pasifika患有心脏病（CID）的经验和观点。
■对14名患有心脏遗传性疾病的毛利人和14名Pasifika患者及其7名家庭成员进行了半结构化访谈，使用Talanoa和Kaupapa毛利人方法。使用解释性现象学分析确定了访谈中的主题。
■确定了三个共同的主题对于塑造参与者对CID的看法和经验很重要：（1）难以将疾病与症状分开理解，（2）考虑祖先和后代；（3）灵性和宗教的作用。
■这项研究强调了土著患者对CID的理解与西方生物医学方法之间的差距。患者的理解和治疗行为取决于症状，家庭关系和灵性。调查结果支持医疗保健透明度和文化上适当的做法的必要性。考虑这些方面可能有助于减少这些人群的健康不平等。
■对14名患有心脏遗传性疾病的毛利人和14名Pasifika患者及其7名家庭成员进行了半结构化访谈，使用Talanoa和Kaupapa毛利人方法。使用解释性现象学分析确定了访谈中的主题。
■确定了三个共同的主题对于塑造参与者对CID的看法和经验很重要：（1）难以将疾病与症状分开理解，（2）考虑祖先和后代；（3）灵性和宗教的作用。
■这项研究强调了土著患者对CID的理解与西方生物医学方法之间的差距。患者的理解和治疗行为取决于症状，家庭关系和灵性。调查结果支持医疗保健透明度和文化上适当的做法的必要性。考虑这些方面可能有助于减少这些人群的健康不平等。
