背景:少数民族人口经历了巨大的健康和社会护理差距;尽管经历了更大的疾病负担,这些群体在健康和社会护理研究中的代表性不足。因此,相关研究可能不太适用于这些人群。REPRESENT研究旨在探索少数民族和其他人口的健康和社会护理经验,他们的研究兴趣和适当的研究实践。
方法:2022年5月至9月,对英格兰一些少数民族社区的成员进行了焦点小组和半结构化访谈。数据是音频记录的,使用NVivo12进行转录和主题编码。严谨是通过广泛取样确定的,迭代数据收集和分析。
结果:52名少数民族成员进行了集体访谈和一对一访谈。与会者包括以下小组的代表:非洲加勒比,东欧,吉普赛旅行者,女同性恋,同性恋,双性恋,变性人,酷儿,双性恋和无性系+,难民/寻求庇护者,索马里和南亚社区。还对少数民族医疗保健提供者和研究人员进行了采访。确定了三个总体类别:健康信息,医疗服务经验,健康和社会护理问题以及健康研究。卫生和社会护理服务挑战主要归因于歧视,延迟服务,文化相关性差,语言和文化障碍。最有影响力的信息来源是当地社区组织和口碑。主要的健康和社会护理问题是慢性长期健康状况,心理健康,孕产妇健康和儿童发育。研究建议涉及了解参与的动机,改善沟通和赋予社区权力。最重要的研究重点是长期的健康状况,健康促进和教育,早期护理干预和了解社区需求。
结论:健康和社会护理提供中的歧视和偏见对种族健康不平等的恶化具有严重影响。医疗保健委托当局和政策制定者可以利用少数族裔群体对药房服务和社区组织的偏好,以改善获得护理的机会。提高研究兴趣和参与度需要了解个人社区需求,社区敏感性,研究的相关性和文化适宜性。
■少数民族患者和公众参与和参与小组以及社区咨询委员会的成员支持REPRESENT研究设计,概念化和报告开发。
BACKGROUND: Ethnic minority populations experience significant health and social care disparities; despite experiencing a greater burden of diseases, these groups are underrepresented in health and social care research. Consequently, related research can be less applicable to these population groups. The REPRESENT study aims to explore the health and social care experiences of ethnic minorities and other minoritised populations, their research interests and appropriate research practices.
METHODS: Focus groups and semistructured interviews were conducted between May and September 2022 with members of a number of ethnic minority communities in England. Data were audio recorded, transcribed and thematically coded using NVivo 12. Rigour was determined through extensive sampling, iterative data collection and analysis.
RESULTS: Fifty-two ethnic minority members were engaged in group interviews and one-to-one interviews. Participants included representatives of the following groups: African Caribbean, Eastern European, Gypsy Travellers, Lesbian, Gay, Bisexual, Transgender, Queer, Intersex and Asexual+, Refugee/Asylum Seekers, Somali and South Asian communities. Interviews were also conducted with ethnic minority healthcare providers and researchers. Three overarching categories were identified: health information, medical service experiences, health and social care concerns and health research. Health and social care services challenges were mostly attributed to discrimination, delayed services, poor cultural relevance and language and cultural barriers. The most influential information sources were local community organisations and word-of-mouth. The main health and social care concerns were chronic long-term health conditions, mental health, maternal health and child development. Recommendations for research involved understanding the motivations for participation, improving communication and empowering communities. Top research priorities were long-term health conditions, health promotion and education, early care interventions and understanding community needs.
CONCLUSIONS: Discrimination and bias in health and social care provision have severe implications for worsening ethnic health inequalities. Healthcare commissioning authorities and policymakers can leverage the preference of ethnic minority groups for pharmacy services and community organisations to improve access to care. Improving research interest and engagement requires understanding individual community needs, community sensitivity, research relevance and cultural appropriateness.
UNASSIGNED: Members of ethnic minority Patient and Public Involvement and Engagement group and Community Advisory Board supported the REPRESENT study design, conceptualisation and report development.