Abstract：
BACKGROUND: Understanding consumers\' health information needs across all stages of the pregnancy trajectory is crucial to the development of mechanisms that allow them to retrieve high-quality, customized, and layperson-friendly health information.
OBJECTIVE: The objective of this study was to identify research gaps in pregnancy-related consumer information needs and available information from different sources.
METHODS: We conducted a systematic review of CINAHL, Cochrane, PubMed, and Web of Science for relevant articles that were published from 2009 to 2019. The quality of the included articles was assessed using the Critical Appraisal Skills Program. A descriptive data analysis was performed on these articles. Based on the review result, we developed the Pregnancy Information Needs Ontology (PINO) and made it publicly available in GitHub and BioPortal.
RESULTS: A total of 33 articles from 9 countries met the inclusion criteria for this review, of which the majority were published no earlier than 2016. Most studies were either descriptive (9/33, 27%), interviews (7/33, 21%), or surveys/questionnaires (7/33, 21%); 20 articles mentioned consumers\' pregnancy-related information needs. Half (9/18, 50%) of the human-subject studies were conducted in the United States. More than a third (13/33, 39%) of all studies focused on during-pregnancy stage; only one study (1/33, 3%) was about all stages of pregnancy. The most frequent consumer information needs were related to labor delivery (9/20, 45%), medication in pregnancy (6/20, 30%), newborn care (5/20, 25%), and lab tests (6/20, 30%). The most frequently available source of information was the internet (15/24, 63%). PINO consists of 267 classes, 555 axioms, and 271 subclass relationships.
CONCLUSIONS: Only a few articles assessed the barriers to access to pregnancy-related information and the quality of each source of information; further work is needed. Future work is also needed to address the gaps between the information needed and the information available.
OBJECTIVE: The objective of this study was to identify research gaps in pregnancy-related consumer information needs and available information from different sources.
METHODS: We conducted a systematic review of CINAHL, Cochrane, PubMed, and Web of Science for relevant articles that were published from 2009 to 2019. The quality of the included articles was assessed using the Critical Appraisal Skills Program. A descriptive data analysis was performed on these articles. Based on the review result, we developed the Pregnancy Information Needs Ontology (PINO) and made it publicly available in GitHub and BioPortal.
RESULTS: A total of 33 articles from 9 countries met the inclusion criteria for this review, of which the majority were published no earlier than 2016. Most studies were either descriptive (9/33, 27%), interviews (7/33, 21%), or surveys/questionnaires (7/33, 21%); 20 articles mentioned consumers\' pregnancy-related information needs. Half (9/18, 50%) of the human-subject studies were conducted in the United States. More than a third (13/33, 39%) of all studies focused on during-pregnancy stage; only one study (1/33, 3%) was about all stages of pregnancy. The most frequent consumer information needs were related to labor delivery (9/20, 45%), medication in pregnancy (6/20, 30%), newborn care (5/20, 25%), and lab tests (6/20, 30%). The most frequently available source of information was the internet (15/24, 63%). PINO consists of 267 classes, 555 axioms, and 271 subclass relationships.
CONCLUSIONS: Only a few articles assessed the barriers to access to pregnancy-related information and the quality of each source of information; further work is needed. Future work is also needed to address the gaps between the information needed and the information available.
摘要：
背景：了解消费者在怀孕轨迹的所有阶段的健康信息需求对于发展使他们能够获取高质量的健康信息的机制至关重要，定制,和外行人友好的健康信息。
目的：本研究的目的是确定妊娠相关消费者信息需求和来自不同来源的可用信息的研究差距。
方法：我们对CINAHL进行了系统评价，科克伦,PubMed,和WebofScience获取2009年至2019年发表的相关文章。使用关键评估技能计划评估了所包含文章的质量。对这些文章进行了描述性数据分析。根据审查结果，我们开发了妊娠信息需求本体论(PINO),并在GitHub和BioPortal中公开发布.
结果：来自9个国家的总共33篇文章符合本综述的纳入标准，其中大多数发布时间不早于2016年。大多数研究要么是描述性的(9/33，27%)，面试（7/33，21%），或调查/问卷(7/33，21%)；20篇文章提到消费者“怀孕相关信息需求”。一半(9/18,50%)的人类受试者研究在美国进行。超过三分之一（13/33，39％）的所有研究集中在怀孕期间阶段;只有一项研究（1/33，3％）是关于怀孕的所有阶段。最常见的消费者信息需求与人工交付有关(9/20，45%)，孕期用药（6/20，30%），新生儿护理（5/20，25%），和实验室测试（6/20，30%）。最常见的信息来源是互联网（15/24，63%）。PINO由267个类组成，555公理，和271个子类关系。
结论：只有少数文章评估了获取妊娠相关信息的障碍和每个信息来源的质量；需要进一步的工作。还需要今后的工作来解决所需信息与现有信息之间的差距。
目的：本研究的目的是确定妊娠相关消费者信息需求和来自不同来源的可用信息的研究差距。
方法：我们对CINAHL进行了系统评价，科克伦,PubMed,和WebofScience获取2009年至2019年发表的相关文章。使用关键评估技能计划评估了所包含文章的质量。对这些文章进行了描述性数据分析。根据审查结果，我们开发了妊娠信息需求本体论(PINO),并在GitHub和BioPortal中公开发布.
结果：来自9个国家的总共33篇文章符合本综述的纳入标准，其中大多数发布时间不早于2016年。大多数研究要么是描述性的(9/33，27%)，面试（7/33，21%），或调查/问卷(7/33，21%)；20篇文章提到消费者“怀孕相关信息需求”。一半(9/18,50%)的人类受试者研究在美国进行。超过三分之一（13/33，39％）的所有研究集中在怀孕期间阶段;只有一项研究（1/33，3％）是关于怀孕的所有阶段。最常见的消费者信息需求与人工交付有关(9/20，45%)，孕期用药（6/20，30%），新生儿护理（5/20，25%），和实验室测试（6/20，30%）。最常见的信息来源是互联网（15/24，63%）。PINO由267个类组成，555公理，和271个子类关系。
结论：只有少数文章评估了获取妊娠相关信息的障碍和每个信息来源的质量；需要进一步的工作。还需要今后的工作来解决所需信息与现有信息之间的差距。
