environmental barriers

  • 文章类型: Journal Article
    在英国,生活在弱势社区的人们比社会经济地位较高的人更不可能拥有健康的饮食。为了解决这种不平等,这是至关重要的科学家,从业者和政策制定者了解阻碍和帮助这些人选择健康食物的因素。在这次范围审查中,我们的目标是确定生活在英国的弱势群体中健康饮食的障碍和促进因素.此外,我们使用理论域框架(TDF)来综合结果,并为开发基于理论的行为改变干预措施提供指导。搜索了五个数据库,(CINAHL,Embase,MEDLINE,PsycINFO,和WebofScience)的文章评估了生活在英国的弱势成年人的健康饮食摄入量。这篇综述共包括50篇论文(34篇定量论文;16篇定性论文)。在所有研究中,我们确定了78个障碍和49个促进因素,它们阻碍和/或鼓励健康饮食。障碍和促进者更通常被归类为环境,上下文和资源TDF域,74%的研究评估了至少一个与该领域相关的因素。因此,结果表明,与环境相关的因素,如高成本和健康食品的可及性,而不是个人因素,例如缺乏健康生活方式的效率导致英国弱势群体的不健康饮食。我们讨论了当前干预措施中如何在很大程度上忽略了这些因素,并建议应更多地努力实施专门针对基础设施而不是个人的干预措施。
    In the UK people living in disadvantaged communities are less likely than those with higher socio-economic status to have a healthy diet. To address this inequality, it is crucial scientists, practitioners and policy makers understand the factors that hinder and assist healthy food choice in these individuals. In this scoping review, we aimed to identify barriers and facilitators to healthy eating among disadvantaged individuals living in the UK. Additionally, we used the Theoretical Domains Framework (TDF) to synthesise results and provide a guide for the development of theory-informed behaviour change interventions. Five databases were searched, (CINAHL, Embase, MEDLINE, PsycINFO, and Web of Science) for articles assessing healthy dietary intake of disadvantaged adults living in the UK. A total of 50 papers (34 quantitative; 16 qualitative) were included in this review. Across all studies we identified 78 barriers and 49 facilitators found to either impede and/or encourage healthy eating. Both barriers and facilitators were more commonly classified under the Environmental, Context and Resources TDF domain, with 74% of studies assessing at least one factor pertaining to this domain. Results thus indicate that context related factors such as high cost and accessibility of healthy food, rather than personal factors, such as lack of efficiency in healthy lifestyle drive unhealthy eating in disadvantaged individuals in the UK. We discuss how such factors are largely overlooked in current interventions and propose that more effort should be directed towards implementing interventions that specifically target infrastructures rather than individuals.
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  • 文章类型: Journal Article
    脊髓损伤(SCI)是一种改变生活的疾病,几乎总是导致残疾。目的是确定活动限制的时期流行率,参与限制,肯尼亚社区居住的创伤性脊髓损伤(TSCI)患者的环境障碍。
    对90名居住在TSCI中超过1年的社区成年人的横断面调查,从唯一的专业康复数据库中招募,在病人中,在肯尼亚的设施。使用的国际脊髓损伤社区调查(InSCI)的模块是人口统计学和损伤特征;活动和参与;和环境因素。
    总样本中最普遍的活动限制和参与限制是使用公共交通工具(90%),站立无支撑(83%),到达目的地(76%),(76%)。最大的环境障碍是资金不足(96%),公共场所无法进入(92%),以及长途运输问题(90%)。与截瘫患者相比,四肢瘫痪患者受活动限制和参与限制的影响更大。
    在肯尼亚患有TSCI的成年人中普遍存在功能问题和环境障碍。尽管这是医疗保健服务的最佳情况,个人以前接受过住院康复治疗,有必要审查康复的原则和模式,并探索初级保健/社区一级康复的价值主张,以进一步优化独立性和功能。
    肯尼亚脊髓损伤(SCI)患者的功能问题在本质上似乎是多种多样的,这要求对目前的康复服务和模式进行评估,目的是通过将循证干预措施纳入标准治疗方案来加强独立性和参与度。发现了高度的环境挑战,呼吁采取全政府的方法,以增强社会中与SCI人员的包容性。由于四肢瘫痪者的严重残疾经历和负面环境因素,似乎向他们分配了额外的资源或公平措施。
    UNASSIGNED: Spinal cord injury (SCI) is a life-changing condition, almost always leading to disability. The aim was to determine the period-prevalence of activity limitations, participation restrictions, and environmental barriers in community-dwelling persons with traumatic spinal cord injury (TSCI) in Kenya.
    UNASSIGNED: A cross-sectional survey of 90 community-dwelling adult persons living with TSCI for more than 1 year, recruited from the database of the only specialised rehabilitation, in-patient, facility in Kenya. Modules of the International Spinal Cord Injury community survey (InSCI) used were demographic and injury characteristics; activity and participation; and environmental factors.
    UNASSIGNED: Most prevalent activity limitations and participation restrictions in the total sample were using public transportation (90%), standing unsupported (83%), getting to destination (76%), and toileting (76%). The top environmental barriers were inadequate finances (96%), inaccessibility of public places (92%), and problems with long distance transportation (90%). Participants with tetraplegia were more affected with activity limitations and participation restrictions than those with paraplegia.
    UNASSIGNED: Functioning problems and environmental barriers are prevalent among adults living with TSCI in Kenya. Although this is the best-case scenario with respect to healthcare services, where individuals received inpatient rehabilitation previously, a need exists to examine the principles and models of rehabilitation and explore the value proposition of primary care/community level rehabilitation to further optimise independence and functioning.
    The functioning problems of persons with spinal cord injury (SCI) in Kenya appear to be diverse in nature, which calls for the evaluation of current rehabilitation services and models with the aim of bolstering independence and participation by including evidence-based interventions to standard treatment packages.A high degree of experiencing environmental challenges was found, calling for a whole-of-government approach to enhance inclusivity of persons with SCIs in society.It appears that additional resources or equity measures are allocated to persons with tetraplegia due to their accentuated experience of disability and negative environmental factors.
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  • 文章类型: Journal Article
    宫颈癌(CC)是尼日利亚妇女癌症发病率和死亡率的第二大原因。尽管筛查是减轻其负担的具有成本效益的策略,摄取仍然次优。在Gwagwalada地区委员会的514名年龄≥25岁的性活跃女性中进行了描述性横断面研究,阿布贾,尼日利亚使用半结构化的面试官进行问卷调查。受访者的平均年龄为38.4±11.6岁。246人(46.9%)对CC筛查有良好的了解,而268人(51.2%)的知识较差。宗教(OR:1.8[95%CI:1.1-3.1]),位置(aOR:1.2[95%CI:1.2-3.4)和儿童数量(aOR:2.3[95%CI:1.3-3.9])是筛查的预测因子.进入卫生设施的路线不畅(aOR:0.5[95%CI:0.2-0.9]),筛查费用高(AOR:0.4[95%CI:0.2-0.9]),未意识到筛查中心(aOR:0.4[95%CI:0.2-0.9])和长时间等待(aOR:0.5[95%CI:0.2-0.9)是确定的环境预测因子.对阳性诊断/污名的恐惧(aOR:0.3[95%CI:0.1-0.9]),不可接受的触摸(AOR:0.2[95%CI:0.1-0.8),意识计划中的不足(AOR:0.3[95%CI:0.2-0.7]),并且不知道合适的筛查年龄(aOR:0.1[95%CI:0.1-0.4])被确定为心理社会预测因子.这项研究强调了加强启蒙计划的必要性,补贴筛查服务,鼓励社区筛查。
    Cervical cancer (CC) is the second leading cause of cancer morbidity and mortality among Nigerian women. Although screening is a cost-effective strategy for reducing its burden, uptake remains sub-optimal. A descriptive cross-sectional study was conducted among 514 sexually active women aged ≥25 years in Gwagwalada Area Council, Abuja, Nigeria using a semi-structured interviewer administered questionnaire. Mean age of respondents was 38.4±11.6years. 246(46.9%) had good knowledge of CC screening while 268(51.2%) had poor knowledge. Religion (aOR:1.8 [95% CI: 1.1 - 3.1]), location (aOR:1.2 [95% CI: 1.2 - 3.4) and number of children (aOR:2.3 [95% CI: 1.3 - 3.9]) were predictors for screening. Poor access routes to health facilities (aOR:0.5 [95% CI: 0.2 - 0.9]), high cost of screening (aOR:0.4 [95% CI: 0.2 - 0.9]), unaware of screening centers (aOR:0.4 [95% CI: 0.2 - 0.9]) and long waiting hours (aOR:0.5 [95% CI: 0.2 - 0.9) were identified environmental predictors. Fear of positive diagnosis/stigma (aOR:0.3 [95% CI: 0.1 - 0.9]), unacceptable touch (aOR:0.2 [95% CI: 0.1 - 0.8), deficiency in awareness programs (aOR:0.3 [95% CI: 0.2 - 0.7]), and not aware of appropriate screening age (aOR:0.1 [95% CI: 0.1 - 0.4]) were identified psychosocial predictors. This study highlights the need to intensify enlightenment programs, subsidize screening services, and encourage community screening.
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  • 文章类型: Journal Article
    未经评估:自闭症成年人的体力活动(PA)水平低于非自闭症同龄人,超过60%的人不符合国家PA指南。此外,自闭症成年人在参与PA方面面临无数障碍,这可能使访问活动具有挑战性。为了支持将自闭症成年人纳入PA,这项研究试图从自闭症成人的角度探索参与PA的第一手建议。
    UNASSIGNED:我们采访了23名年龄在18至75岁之间的自闭症成年人,了解他们一生中的PA经历,包括询问参与者在PA中支持自闭症成年人的建议。具有建构主义视角的定性描述性设计指导了主题分析。
    UNASSIGNED:分析得出了两个总体主题:(1)有人在那里支持是有帮助的;(2)这是感官上的东西,总是如此。每个主题都包括参与者提供的建议,以指导PA领域的专业人员。
    未经授权:自闭症成人的声音,长期缺席关于PA的谈话,是了解如何改善该人群的PA体验的有价值且需要的补充。这项研究的建议包括(1)听取自闭症成年人的观点和见解,(2)在规划PA参与时考虑感官刺激,(3)鼓励和提供参与巴勒斯坦权力机构的社会支持。
    未经调查:为什么要进行这项研究?:自闭症成年人有许多健康问题,例如焦虑,抑郁症,和肥胖。身体活动可以改善这些健康问题。然而,专业人士缺乏如何为自闭症患者提供最佳体育活动体验的知识。很少有研究让自闭症成年人直接询问他们关于自己身体活动需求的建议。这项研究的目的是什么?:这项研究希望自闭症成年人就如何使身体活动更容易获得和愉快提出建议。通过这样做,作者希望在体育活动研究中增加自闭症成年人的声音。研究人员做了什么?:研究人员询问了23名自闭症成年人关于如何改善体育锻炼体验的建议。研究的结果是什么?:参与者的反应分为两类:(1)有人在那里支持是有帮助的;(2)这是感官上的事情,总是如此。第一个主题突出了许多自闭症成年人认为他们需要成功的社会支持。支持包括自闭症成年人密切社交圈内的个人,比如父母,朋友,和其他亲密的人。他们还可以包括专业人士,如教师或运动教练。第二个主题强调需要在活动发生之前解决个体的感官敏感性;如果环境或活动不是“感官友好的”或不适应,那么自闭症成年人不太可能参与。这些发现对已经知道的内容有什么补充?自闭症成年人在参加体育锻炼方面面临许多障碍。这些发现提供了自闭症成年人关于如何改善他们的身体活动体验的第一手资料。这些结果还提供了有关如何增加自闭症患者体育锻炼参与度的想法。其他研究集中在改善自闭症患者的体育锻炼上,但是这项研究很少从自闭症个体的角度进行。这项研究是极少数这样做的研究之一,并且是第一个要求自闭症成年人提供体育活动参与建议的研究。这项研究的潜在弱点是什么?:这项研究只采访了喜欢口头交流的自闭症成年人,因此,研究样本并不能代表所有自闭症成年人。样本中的许多参与者来自美国,和其他国家的自闭症成年人可能对体育活动的参与有不同的看法。最后,研究人员可能招募了对体育活动感兴趣的个体--对体育活动不感兴趣或不喜欢的自闭症成年人可能有不同的建议.这些发现将如何帮助现在或将来的自闭症成年人?:这项研究将帮助专业人士为自闭症成年人提供更合适的身体活动体验。此外,这项研究可以帮助从业者和研究人员使自闭症成年人的体育活动空间更受欢迎和愉快。
    UNASSIGNED: Autistic adults engage in lower levels of physical activity (PA) than their nonautistic peers, and over 60% do not meet national guidelines for PA. In addition, autistic adults face myriad barriers to PA participation that can make accessing activities challenging. To support the inclusion of autistic adults in PA, this study sought to explore first-hand recommendations for PA participation from autistic adults\' perspective.
    UNASSIGNED: We interviewed 23 autistic adults aged 18 to 75 years about their PA experiences across their lifespan, including querying the participants\' recommendations for supporting autistic adults in PA. A qualitative descriptive design with a constructivist lens guided the thematic analysis.
    UNASSIGNED: The analysis resulted in two overarching themes: (1) It\'s helpful to have someone there to support; and (2) It\'s that sensory thing, it always is. Each theme includes participant-provided recommendations to guide professionals in the field of PA.
    UNASSIGNED: The autistic adult voice, long absent from conversations about PA, is a valuable and needed addition to understand how to improve PA experiences for this population. Recommendations from this study include (1) listening to the perspectives and insight of autistic adults, (2) consideration of sensory stimulus when planning for PA participation, and (3) encouraging and providing social supports for PA participation.
    UNASSIGNED: Why was this study done?: Autistic adults have many health concerns such as anxiety, depression, and obesity. Physical activity can improve these health concerns. Yet, professionals lack knowledge about how to provide optimal physical activity experiences for autistic individuals. Very little research has engaged autistic adults to directly ask their recommendations about their own physical activity needs.What was the purpose of this study?: This study wanted recommendations from autistic adults on how to make physical activity more accessible and enjoyable. By doing this, the authors hope to increase the voices of autistic adults in physical activity research.What did the researchers do?: The researchers asked 23 autistic adults for their recommendations on how to improve physical activity experiences.What were the results of the study?: Participants\' responses were grouped into two categories: (1) It\'s helpful to have someone there to support and (2) It\'s that sensory thing, it always is. The first theme highlights the social supports that many autistic adults feel they need to be successful. Supports include individuals within the close social circles of the autistic adults, such as parents, friends, and other close people. They can also include professionals, such as teachers or exercise trainers. The second theme highlights the need to address the sensory sensitivities of the individual before activity can take place; if an environment or activity is not \"sensory friendly\" or is not accommodating, then autistic adults are less likely to engage.What do these findings add to what was already known?: Autistic adults face many barriers to physical activity participation. These findings offer first-hand accounts by autistic adults about how to improve their physical activity experiences. These results also offer ideas on how to increase physical activity engagement for autistic individuals. Other research has focused on improving physical activity in those who are autistic, but this research is rarely from the perspective of the autistic individual. This study is one of a very small number of studies that has done this and is the first to ask autistic adults to give recommendations for physical activity participation.What are potential weaknesses in the study?: This study only interviewed autistic adults who prefer to communicate verbally, and so the study sample is not representative of all autistic adults. Many participants in the sample were from the United States, and autistic adults in other countries may have different opinions about physical activity participation. Finally, the researchers may have recruited individuals with an interest in physical activity-autistic adults who are not interested or dislike physical activity may have different recommendations.How will these findings help autistic adults now or in the future?: This study will help professionals provide more appropriate physical activity experiences to autistic adults. Also, this research could help practitioners and researcher make physical activity spaces more welcoming and enjoyable for autistic adults.
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  • 文章类型: Journal Article
    环境因素是精神分裂症患者残疾的关键决定因素。使用2014-2018年残疾和护理需求认证数据集的数据,我们确定了3882名成年患者(女性占46.78%;年龄,51.01±13.9岁)伴精神分裂症。我们发现,重度精神分裂症患者的能力和表现低于中度精神分裂症患者。中度精神分裂症患者和重度精神分裂症患者获得环境第1章(e1)产品和技术的机会分别为29.5%和37.8%,分别。Logistic回归分析表明,性能得分与e1中描述的类别中的可访问性障碍有关,并且e110类别中的模型适合个人消费,E115用于日常生活活动中的个人使用,和e120个人户外和室内移动和运输。此外,在e110,e115和e120类别中有可及性障碍的中度精神分裂症患者中,容量-性能差异高于无可及性障碍的中度精神分裂症患者.然而,e120类障碍的严重精神分裂症患者容易出现较低的差异,机构护理是一个潜在的下降因素。总之,提供e1无障碍环境对于精神分裂症患者减少残疾是必要的。
    Environmental factors are crucial determinants of disability in schizophrenic patients. Using data from the 2014-2018 Certification of Disability and Care Needs dataset, we identified 3882 adult patients (46.78% females; age, 51.01 ± 13.9 years) with schizophrenia. We found that patients with severe schizophrenia had lower capacity and performance than those with moderate schizophrenia. The chances of having an access barrier to environmental chapter 1 (e1) products and technology in moderate schizophrenic patients and in severe schizophrenic patients were 29.5% and 37.8%, respectively. Logistic regression analyses demonstrated that the performance score was related to accessibility barriers in the categories described in e1, with adequate fitness of models in category e110 for personal consumption, e115 for personal usage in daily living activities, and e120 for personal outdoor and indoor mobility and transportation. Furthermore, the capacity-performance discrepancy was higher in moderate schizophrenic patients with accessibility barriers in the e110, e115, and e120 categories than that in moderate schizophrenic patients without accessibility barriers. However, severe schizophrenic patients with category e120 accessibility barriers were prone to a lower discrepancy, with institutional care a potentially decreasing factor. In conclusion, providing an e1 barrier-free environment is necessary for patients with schizophrenia to decrease their disability.
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  • 文章类型: Journal Article
    未经评估:要报告方法,参与者特征,以及四种最常见的环境障碍与健康状况的关联,摩洛哥脊髓损伤(SCI)患者的首次系统数据收集中的一般健康和生活质量(QoL)。
    UNASSIGNED:我们从横断面摩洛哥SCI社区调查(MorSCI)的385名参与者那里获得了数据。我们使用描述性统计来描述参与者的特征和回归模型来调查五个最常报告的环境障碍与健康状况的关联(次要条件,疼痛强度,心理健康),一般健康状况和生活质量。
    未经评估:最常报告的环境障碍是“缺乏公共服务”(92.5%),“财务压力”(93.0%),限制进入“公共交通”(85.5%),“公共场所”(83.9%)和“私人场所”(84.7%)。认为这些因素是障碍的人也报告了更多的次要疾病,更高的疼痛强度,较低的心理健康,一般健康状况较低,和较低的QoL。
    UNASSIGNED:这项针对摩洛哥人的SCI研究发现,环境障碍会降低健康和生活质量。鉴于环境障碍可能是可修改的,政策干预提供了强大的工具来减少障碍,并有可能增加这一弱势群体的健康和生活质量。对康复的影响关于交通和公共场所建设的公共政策对于使轮椅使用者能够获得物理环境以支持他们参与社会非常重要。摩洛哥迫切需要为SCI患者提供足够的康复服务和专门的急性后康复单位,不仅有助于健康和生活质量,而且有助于他们克服环境障碍的能力。充分的国家服务,包括全民健康覆盖以及获得康复服务和辅助设备或适应工具的机会,必须是政策层面的优先事项,以促进日常生活活动并减少障碍。提高卫生专业人员在SCI康复中的技能和知识,同时指导政策制定者促进患者教育和自我宣传,可能有助于缩小SCI患者的需求与可用支持之间的差距。
    To report on the methodology, participant characteristics, and associations of four most frequent environmental barriers with health conditions, general health and quality of life (QoL) in the very first systematic data collection in people with spinal cord injury (SCI) in Morocco.
    We obtained data from 385 participants of the cross-sectional Moroccan SCI community survey (MorSCI). We used descriptive statistics to describe participant characteristics and regression models to investigate associations of the five most frequently reported environmental barriers with health conditions (secondary conditions, pain intensity, mental health), general health and QoL.
    The most frequently reported environmental barriers were \"lack of public services\" (92.5%), \"financial strain\" (93.0%), restricted access to \"public transportation\" (85.5%), \"public places\" (83.9%) and \"private places\" (84.7%). People who perceived those factors as barriers also reported more secondary conditions, higher pain intensity, lower mental health, lower general health, and lower QoL.
    This study on Moroccans with SCI found that environmental barriers detract from health and QoL. Given that environmental barriers are potentially modifiable, policy interventions present powerful tools to reduce barriers and potentially increase health and QoL in this vulnerable population.IMPLICATIONS FOR REHABILITATIONPublic policy on the construction of transportation and public places is important to make the physical environment accessible for wheelchair users to support their participation in society.The provision of adequate rehabilitation services and specialized post-acute rehabilitation units for people with SCI in Morocco is urgently needed, not only to contribute to health and QoL but also to contribute to their abilities to overcome environmental barriers.Adequate state services including universal health coverage and access to rehabilitation services and assistive devices or adapted tools must be a priority on the policy level to facilitate activities of daily living and reduce barriers.Improving the skills and knowledge of health professionals in SCI rehabilitation and guide policy makers to promote patient education and self-advocacy in the meantime, may help reduce the gap between needs of people with SCI and available support.
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  • 文章类型: Journal Article
    UASSIGNED:(1)描述来自中国的脊髓损伤(SCI)患者所经历的环境障碍和参与限制,(2)检查病变特征和参与限制之间的关联,考虑到环境障碍的中介作用,(3)确定对参与影响最大的环境障碍。
    未经评估:横断面研究。这项研究是国际脊髓损伤调查(InSCI)的一部分。
    未经批准:社区,江苏省和四川省,中国。
    未经批准:SCI1355人。
    UNASSIGNED:不适用。
    UNASSIGNED:参与限制是根据模型残疾调查中的项目进行测量的,环境壁垒是用Nottwil环境因素清单简表测量的。
    UNASSIGNED:参与者经历了五个(IQR1-9)环境障碍和五个(IQR0-9)参与限制的中位数。报告的环境障碍主要与气候有关,资源和可访问性不足,参与限制主要发生在使用公共交通工具上,照顾别人,和到达的地方。在调整后的零膨胀泊松模型中,严重损伤患者报告了更多的环境障碍(完全损伤:IRR=1.31,95CI=[1.24,1.38])和参与限制(四肢瘫痪:IRR=1.15,95CI=[1.10,1.21];完全损伤:IRR=1.25,95CI=[1.18,1.31]).此外,环境障碍(IRR=1.07,95CI=[1.06,1.08])是参与限制的重要预测因子,部分介导了病变完整性与参与限制的关联.与公共场所无障碍相关的障碍(IRR=1.47,95CI=[1.33,1.62]),访问房屋(IRR=1.32,95CI=[1.21,1.44]),长途运输(IRR=1.11,95CI=[1.04,1.20]),通信设备(IRR=1.07,95CI=[1.01,1.15])和国家服务(IRR=1.10,95CI=[1.02,1.19])对参与的负面影响最大。
    未经评估:在中国,SCI患者的社会参与受到严重限制。消除环境障碍将是解决这一问题的计划的重要组成部分。
    (1) to describe environmental barriers and participation restrictions experienced by people with spinal cord injury (SCI) from China, (2) to examine associations between lesion characteristics and participation restrictions, considering a mediating role of environmental barriers, (3) to identify those environmental barriers that have the largest influence on participation.
    Cross-sectional study. This study is part of the International Spinal Cord Injury Survey (InSCI).
    Community, Jiangsu and Sichuan Province, China.
    1355 persons with SCI.
    Not applicable.
    Participation restrictions were measured with items from the Model Disability Survey, Environmental Barriers were measured with the Nottwil Environmental Factors Inventory-Short Form.
    Participants experienced a median of five (IQR 1-9) environmental barriers and five (IQR 0-9) participation restrictions. Environmental barriers were mainly reported in relation to climate, insufficient resources and accessibility, and participation restrictions mainly occurred in using public transportation, taking care of others, and getting to places. In an adjusted zero-inflated Poisson model, people with more severe injuries reported a greater number of environmental barriers (complete injury: IRR = 1.31, 95%CI = [1.24,1.38]) and participation restrictions (tetraplegia: IRR = 1.15, 95%CI = [1.10,1.21]; complete injury: IRR = 1.25, 95%CI = [1.18,1.31]). Moreover, environmental barriers (IRR = 1.07, 95%CI = [1.06,1.08]) were a significant predictor of participation restrictions and partially mediated the association of lesion completeness with participation restrictions. Barriers related to accessibility of public places (IRR = 1.47, 95%CI = [1.33,1.62]), accessing homes (IRR = 1.32, 95%CI = [1.21,1.44]), long distance transportation (IRR = 1.11, 95%CI = [1.04,1.20]), communication devices (IRR = 1.07, 95%CI = [1.01,1.15]) and state services (IRR = 1.10, 95%CI = [1.02,1.19]) had the greatest negative impact on participation.
    Social participation of people with SCI is seriously restricted in China. Removing environmental barriers will be an important element of programs to address this problem.
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  • 文章类型: Journal Article
    OBJECTIVE: The German Spinal Cord Injury Survey is part of the International Spinal Cord Injury Survey, which aims to collect data about the life experience of persons with spinal cord injury worldwide. This paper reports on the perceived environmental barriers of the German study population and their associations with quality of life.
    METHODS: Cross-sectional explorative observational study using survey data.
    METHODS: A total of 1,479 persons with spinal cord injury aged 18 years and older.
    METHODS: After descriptive analyses, exploratory factor analysis was used to build groups of environmental barriers. Logistic regressions were performed to assess correlates of perceived environmental barriers. Spearman\'s correlations were used to analyse the association between perceived barriers and quality of life.
    RESULTS: Barriers regarding infrastructure had a relatively large impact. Barriers in relation to people\'s attitudes towards spinal cord injury and the equipment of people with spinal cord injury had a relatively small impact on the lives of people with spinal cord injury. Several subpopulations showed a higher risk in experiencing barriers. Quality of life decreased with increasing experience of barriers.
    CONCLUSIONS: The most life-hardening barriers were identified related to infrastructure, a category in which most barriers are modifiable, for example, buildings or transportation.
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  • 文章类型: Journal Article
    Purpose: To help enhance participation, the study aims to identify and document a comprehensive list of environmental barriers for people with SCI in the broad travel setting.Methods: Semi-structured interviews were conducted among four stakeholder groups: people with SCI (n= 39), caregivers and family members of people with SCI (n= 24), therapists who work with people with SCI (n= 9), and travel professionals specializing in accessible travel (n= 11).Results: Five major categories of travel barrier emerged from the interviews: Partial Accessibility, Systemic Ignorance, Travel Hassles, Poor Service Performance, and Lack of Support. Detailed barriers in each category are described. The analysis of multi-stakeholder perspectives indicates while respondents with SCI offered the most specific information about the barriers, family members/caregivers were most concerned about the impact of systemic ignorance on their loved ones. Therapists focused on offering their clients tools to overcome barriers, and travel agents emphasized their limitations of serving customers with disabilities.Conclusion: Results of the study should help not only health and travel professionals better assist individuals to reintegrate into society after SCI, but also travel and hospitality businesses to better meet the accessibility needs of people with SCI.Implications for rehabilitationTravel is important to full participation in society for people after SCI.The study has identified five categories of barriers to travel participation after SCI: partial accessibility, systemic ignorance, travel hassles, poor service performance and lack of support.While traveling is important for participation in society for people with SCI, rehabilitation professionals should work together with policy makers, travel and hospitality businesses and agencies to lower the found barriers.
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  • 文章类型: Journal Article
    Concerning psychosocial aproaches to disability, Romania is characterized by significant discrepancies between the Disability Rights legislation and reality, while the input of people with disabilities regarding the matter is largely overlooked. This study aims to explore perceptions regarding Romania\'s built and sociocultural environment, as they are expressed by bloggers with disabilities and users of disability-specific forums.
    Data were collected from four personal blogs and three discussion forums on the topic of physical disabilities. Thematic analysis was performed.
    Four major themes emerged from the analysis: the disabling built environment; the isolating sociocultural environment; blaming others and the past; self-empowerment and the movement towards independent living.
    The resistance of disabled people to negative perceptions of disability and their calls to action in this regard may foster positive changes in social attitudes towards disability.Implications for RehabilitationRomanians with physical disabilities perceive that the adaptation and implementation of inclusion and accessibility regulations are superficial.They promote a proactive defence of their rights, independence, and dignity, to resist against discrimination and stigma resulting from the medicalization of disability.Education regarding disability, its evaluation, and the development of inclusion policies should stop focusing on \"incapacity\" as an individual attribute and focus more on the disabling roles of environmental factors.Responsible authorities should understand and enforce the implementation of inclusion and accessibility regulations accordingly.
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