关键词: Morocco Spinal cord injury disability environmental barriers health quality of life

Mesh : Humans Quality of Life / psychology Activities of Daily Living Cross-Sectional Studies Morocco Surveys and Questionnaires Spinal Cord Injuries / rehabilitation

来  源:   DOI:10.1080/09638288.2021.2003451

Abstract:
To report on the methodology, participant characteristics, and associations of four most frequent environmental barriers with health conditions, general health and quality of life (QoL) in the very first systematic data collection in people with spinal cord injury (SCI) in Morocco.
We obtained data from 385 participants of the cross-sectional Moroccan SCI community survey (MorSCI). We used descriptive statistics to describe participant characteristics and regression models to investigate associations of the five most frequently reported environmental barriers with health conditions (secondary conditions, pain intensity, mental health), general health and QoL.
The most frequently reported environmental barriers were \"lack of public services\" (92.5%), \"financial strain\" (93.0%), restricted access to \"public transportation\" (85.5%), \"public places\" (83.9%) and \"private places\" (84.7%). People who perceived those factors as barriers also reported more secondary conditions, higher pain intensity, lower mental health, lower general health, and lower QoL.
This study on Moroccans with SCI found that environmental barriers detract from health and QoL. Given that environmental barriers are potentially modifiable, policy interventions present powerful tools to reduce barriers and potentially increase health and QoL in this vulnerable population.IMPLICATIONS FOR REHABILITATIONPublic policy on the construction of transportation and public places is important to make the physical environment accessible for wheelchair users to support their participation in society.The provision of adequate rehabilitation services and specialized post-acute rehabilitation units for people with SCI in Morocco is urgently needed, not only to contribute to health and QoL but also to contribute to their abilities to overcome environmental barriers.Adequate state services including universal health coverage and access to rehabilitation services and assistive devices or adapted tools must be a priority on the policy level to facilitate activities of daily living and reduce barriers.Improving the skills and knowledge of health professionals in SCI rehabilitation and guide policy makers to promote patient education and self-advocacy in the meantime, may help reduce the gap between needs of people with SCI and available support.
摘要:
未经评估:要报告方法,参与者特征,以及四种最常见的环境障碍与健康状况的关联,摩洛哥脊髓损伤(SCI)患者的首次系统数据收集中的一般健康和生活质量(QoL)。
UNASSIGNED:我们从横断面摩洛哥SCI社区调查(MorSCI)的385名参与者那里获得了数据。我们使用描述性统计来描述参与者的特征和回归模型来调查五个最常报告的环境障碍与健康状况的关联(次要条件,疼痛强度,心理健康),一般健康状况和生活质量。
未经评估:最常报告的环境障碍是“缺乏公共服务”(92.5%),“财务压力”(93.0%),限制进入“公共交通”(85.5%),“公共场所”(83.9%)和“私人场所”(84.7%)。认为这些因素是障碍的人也报告了更多的次要疾病,更高的疼痛强度,较低的心理健康,一般健康状况较低,和较低的QoL。
UNASSIGNED:这项针对摩洛哥人的SCI研究发现,环境障碍会降低健康和生活质量。鉴于环境障碍可能是可修改的,政策干预提供了强大的工具来减少障碍,并有可能增加这一弱势群体的健康和生活质量。对康复的影响关于交通和公共场所建设的公共政策对于使轮椅使用者能够获得物理环境以支持他们参与社会非常重要。摩洛哥迫切需要为SCI患者提供足够的康复服务和专门的急性后康复单位,不仅有助于健康和生活质量,而且有助于他们克服环境障碍的能力。充分的国家服务,包括全民健康覆盖以及获得康复服务和辅助设备或适应工具的机会,必须是政策层面的优先事项,以促进日常生活活动并减少障碍。提高卫生专业人员在SCI康复中的技能和知识,同时指导政策制定者促进患者教育和自我宣传,可能有助于缩小SCI患者的需求与可用支持之间的差距。
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