assistive technology

辅助技术
  • 文章类型: Journal Article
    UNAV是一种基于计算机视觉的定位和导航辅助工具,可在室内和室外环境中提供分步路线指示,以在没有任何基础设施的情况下到达选定的目的地。尽管最初的文献强调了UNAV的潜力,临床疗效尚未得到严格评估.在这里,我们使用非劣效性设计,在生态有效的环境中,针对失明或低视力(PBLV)患者,对照标准当面行驶路线(SIPTD)评估UNAV.招募了20名BLV受试者(年龄=38±8.4;9名女性),并要求他们导航到各种目的地,短距离(<200米),在陌生的空间,使用UNAV或SIPTD。导航性能用九个因变量进行评估,以评估旅行信心,以及空间和时间表现,包括路径效率,总时间,错误的转弯。结果表明,UNAV不仅不劣于寻路护理标准(SIPTD),而且在9个指标中的8个指标上也更优越,与SIPTD相比。这项研究强调了基于计算机视觉的辅助工具在短距离导航中为PBLV提供的一系列好处,并提供了用户如何从这种系统形式的计算机辅助指导中受益的关键见解。展示教育成就的变革承诺,有酬就业,和娱乐参与。
    UNav is a computer-vision-based localization and navigation aid that provides step-by-step route instructions to reach selected destinations without any infrastructure in both indoor and outdoor environments. Despite the initial literature highlighting UNav\'s potential, clinical efficacy has not yet been rigorously evaluated. Herein, we assess UNav against standard in-person travel directions (SIPTD) for persons with blindness or low vision (PBLV) in an ecologically valid environment using a non-inferiority design. Twenty BLV subjects (age = 38 ± 8.4; nine females) were recruited and asked to navigate to a variety of destinations, over short-range distances (<200 m), in unfamiliar spaces, using either UNav or SIPTD. Navigation performance was assessed with nine dependent variables to assess travel confidence, as well as spatial and temporal performances, including path efficiency, total time, and wrong turns. The results suggest that UNav is not only non-inferior to the standard-of-care in wayfinding (SIPTD) but also superior on 8 out of 9 metrics, as compared to SIPTD. This study highlights the range of benefits computer vision-based aids provide to PBLV in short-range navigation and provides key insights into how users benefit from this systematic form of computer-aided guidance, demonstrating transformative promise for educational attainment, gainful employment, and recreational participation.
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  • 文章类型: Journal Article
    背景:患有发育协调障碍(DCD)的儿童在学习和执行动作方面存在困难,通常需要增加反馈。技术对于递送增强的反馈可能是有用的。开发治疗干预措施的共同设计方法已在医疗保健中流行,包括康复技术。然而,关于如何在医疗保健中使用共同设计方法的指南有限。方法:我们应用了三个关键原则,(1)理解,(2)探索,和(3)物化,通知共同设计过程。最终用户参与者包括儿科临床医生,年轻的学习者,他们的照顾者,和研究小组,他们分享了他们的专业知识和生活经验,为创造一个新颖的系统提供了信息。结果:一组最终用户设计并开发了一个增强现实干预原型,用于使用生成协同设计过程来练习针对DCD儿童的运动技能。从理解未满足的需求,我们探索并实现了一系列使用定制技术解决方案的游戏。结论:使用共同设计过程有利于使最终用户成为他们在创建针对DCD儿童的新型增强现实干预原型方面的经验的专家。共同设计过程成功地促进了满足消费者需求的原型,并确保所有最终用户的声音都被听到。
    Background: Children with developmental coordination disorder (DCD) have difficulty learning and performing movements, often requiring increased feedback. Technology may be useful for delivering augmented feedback. Co-design methodology for developing therapeutic interventions has become popular in healthcare, including for technology in rehabilitation. However, there are limited guidelines on how to use co-design methodology in healthcare. Methods: We applied three key principles, (1) Understanding, (2) Exploring, and (3) Materialising, to inform a co-design process. End-user participants included paediatric clinicians, young learners, their caregivers, and the research team, who shared their expertise and lived experience to inform the creation of a novel system. Results: A team of end-users designed and developed an augmented reality intervention prototype for practicing motor skills aimed at children with DCD using a generative co-design process. From understanding the unmet needs, we explored and then materialised a series of games using bespoke technology solutions. Conclusion: The use of a co-design process was beneficial in engaging end-users as the experts of their experience in the creation of a novel augmented reality intervention prototype aimed for children with DCD. The co-design process was successful in facilitating a prototype that meets consumer needs, and ensured all end-user voices were heard.
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  • 文章类型: Journal Article
    使用质量实施框架(QIF)开发了三级培训干预措施,以增加康复技术向市场的技术转让。32个团队完成了1级,14个完成了2级,6个完成了3级。经过验证的技术转移准备评估工具(TTRAT)测量了团队的技术转移进展和培训计划的有效性。完成至少两个培训级别的团队展示了更高的技术转让准备。其他团队成果包括获得其他联邦奖项,FDA名称,并产生销售。未来的工作包括衡量团队相对于参与者人口统计的进展,并根据技术转让准备方面的差距开发额外的培训内容。多层次培训计划表明,它是对研究人员和有抱负的企业家进行技术转让和随后的技术转让成果培训的有希望的基础。
    A three-level training intervention was developed using the Quality Implementation Framework (QIF) to increase technology transfer of rehabilitation technologies to market. Thirty-two teams completed Level 1, 14 completed Level 2, and 6 completed Level 3. The validated Technology Transfer Readiness Assessment Tool (TTRAT) measured teams\' technology transfer progress and the effectiveness of the training program. Teams that completed at least two training levels demonstrated increased technology transfer readiness. Additional team outcomes include receiving other federal awards, FDA designations, and generating sales. Future work includes measuring teams\' progress relative to participant demographics and developing additional training content based on gaps in technology transfer readiness. The multi-level training initiative shows it is a promising foundation for training researchers and aspiring entrepreneurs on technology transfer and subsequent technology transfer outcomes.
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  • 文章类型: Journal Article
    辅助技术(AT)有可能提高老年人的生活质量和独立生活,进一步,减轻正式和非正式照顾者和亲属的负担。过去几十年的技术发展导致了可用AT的增加。然而,关于在现实世界中应用ATs的好处和满意度的证据仍然很少。
    这个前景,真实世界,试点研究测试了在现实环境中对不同ATS的感知效益和满意度。
    居住在社区的65岁以上的成年人及其亲属在日常生活中对具有简化界面的平板电脑或具有可编程紧急联系人的智能手表进行了8周的测试。所有老年人及其亲属在干预前后使用不同的评估工具评估对ATs的感知益处和满意度。成果衡量标准包括技术使用情况清单,魁北克用户对辅助技术2.0和加拿大职业绩效评估的满意度。
    共有17名老年人(平板电脑:n=8,47%和智能手表:n=9,53%)和16名亲属(平板电脑:n=7,44%和智能手表:n=9,56%)被纳入研究。在智能手表组中,虚弱(根据临床虚弱量表)和接受护理的参与者人数高于平板电脑组。智能手表组的老年人报告的技术接受度(技术使用清单)和满意度(魁北克用户对辅助技术的满意度评估2.0)得分高于平板电脑组,虽然差异不显著(P>0.05)。在平板电脑组中,亲属对使用项目意向的评分明显高于老年人(t12.3=3.3,P=.006).与加拿大职业绩效措施有关的日常问题包括平板电脑的联系/沟通和娱乐/信息,在紧急情况下为智能手表提供安全和帮助,以及两种设备的AT的可用性。虽然这些领域的性能(t8=3.5,P=.008)和满意度(t8=3.2,P=.01)在智能手表组中得到了显着改善,平板电脑组的变化不一致(均P>.05).
    这项研究强调了在老年人及其亲属的日常生活中广泛有效地应用ATs的剩余障碍。虽然结果没有提供关于沟通缺陷的积极影响的证据,感知到的好处可以显示在安全领域。未来的研究和技术发展不仅需要考虑偏好,问题,以及老年人及其亲属和护理人员的目标,以提高AT的可接受性和有效性。
    UNASSIGNED: Assistive technologies (ATs) have the potential to promote the quality of life and independent living of older adults and, further, to relieve the burden of formal and informal caregivers and relatives. Technological developments over the last decades have led to a boost of available ATs. However, evidence on the benefits and satisfaction with ATs in real-world applications remains scarce.
    UNASSIGNED: This prospective, real-world, pilot study tested the perceived benefit and satisfaction with different ATs in the real-world environment.
    UNASSIGNED: Community-dwelling adults aged ≥65 and their relatives tested a tablet computer with a simplified interface or a smartwatch with programmable emergency contacts for 8 weeks in their everyday life. Perceived benefits and satisfaction with ATs were assessed by all older adults and their relatives using different assessment tools before and after the intervention. Outcome measures included the Technology Usage Inventory, Quebec User Evaluation of Satisfaction with Assistive Technology 2.0, and Canadian Occupational Performance Measure.
    UNASSIGNED: A total of 17 older adults (tablet computer: n=8, 47% and smartwatch: n=9, 53%) and 16 relatives (tablet computer: n=7, 44% and smartwatch: n=9, 56%) were included in the study. The number of participants that were frail (according to the Clinical Frailty Scale) and received care was higher in the smartwatch group than in the tablet computer group. Older adults of the smartwatch group reported higher technology acceptance (Technology Usage Inventory) and satisfaction (Quebec User Evaluation of Satisfaction with Assistive Technology 2.0) scores than those of the tablet computer group, although the differences were not significant (all P>.05). In the tablet computer group, relatives had significantly higher ratings on the item intention to use than older adults (t12.3=3.3, P=.006). Identified everyday issues with the Canadian Occupational Performance Measure included contact/communication and entertainment/information for the tablet computer, safety and getting help in emergency situations for the smartwatch, and the usability of the AT for both devices. While the performance (t8=3.5, P=.008) and satisfaction (t8=3.2, P=.01) in these domains significantly improved in the smartwatch group, changes in the tablet computer group were inconsistent (all P>.05).
    UNASSIGNED: This study highlights the remaining obstacles for the widespread and effective application of ATs in the everyday life of older adults and their relatives. While the results do not provide evidence for a positive effect regarding communication deficits, perceived benefits could be shown for the area of safety. Future research and technical developments need to consider not only the preferences, problems, and goals of older adults but also their relatives and caregivers to improve the acceptability and effectiveness of ATs.
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  • 文章类型: Journal Article
    有智力障碍的人往往无法学习复杂的任务。改进的目标管理培训(mGMT)或无错误学习与辅助技术(App+EL)相结合可以提供帮助。目标是证明mGMT和/或App+EL在学习复杂任务中的有效性。我们采用随机对照交叉设计。一组以MGMT(N=16)开始,和其他与App+EL(N=15)。我们将它们的表现与被动对照组(N=15)进行了比较。培训包括六个课程,每个课程30分钟。使用目标达成量表(GAS)分析成功。在每个干预期之前和之后评估三个不同的任务:“练习”,“非练习”,或“以前练习过”。通过神经心理学测试评估泛化。结果表明,与“非实践”任务和对照组相比,两种干预措施均显着改善了“实践”任务。通过干预不会干扰“以前练习”任务的稳定表现。然而,从降低MGMT开始,但并没有消除,穿越后App+EL的功效,但是对于反向序列没有观察到这种模式。只有伦敦塔任务记录了与干预措施相关的改进。总之,MGMT和App+EL在学习复杂任务和学习第二个任务后保持表现方面有效。试验注册:德国临床试验注册标识符:DRKS00021674。
    Individuals with intellectual disabilities often fail to learn complex tasks. Modified Goal Management Training (mGMT) or Errorless Learning combined with assistive technology (App + EL) can help. The goal is to demonstrate the effectiveness of mGMT and/or App + EL in learning complex tasks. We employed a randomized controlled crossover design. One group started with mGMT (N = 16), and the other with App + EL (N = 15). We compared their performance with that of a passive control group (N = 15). The training consisted of six sessions of 30 minutes each. Success was analyzed using the Goal Attainment Scale (GAS). Three different tasks were assessed before and after each intervention period: \"Practiced\", \"Non-Practiced\", or \"Previously Practiced\". Generalization was evaluated through neuropsychological tests. Results indicated that both interventions significantly improved \"Practiced\" tasks compared with \"Non-Practiced\" tasks and the control group. Crossing the intervention did not interfere with the stable performance on the \"Previously Practiced\" task. However, starting with mGMT reduced, but did not eliminate, the efficacy of App + EL after crossing, but this pattern was not observed for the reverse sequence. Only the Tower of London task documented improvements related to interventions. In conclusion, the mGMT and App + EL were effective in learning complex tasks and retaining performance after learning a second task.Trial registration: German Clinical Trials Register identifier: DRKS00021674.
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  • 文章类型: Journal Article
    背景:踝足矫形器(AFO)通常由脑瘫(CP)儿童使用,但是传统的解决方案无法解决CP儿童之间的异质性和不断变化的需求。一个关键的限制在于当前无源器件无法定制扭矩-角度关系,这对于使支持适应特定的个人需求至关重要。供电的替代品可以提供定制的行为,但经常面临可靠性的挑战,体重,和成本。总的来说,临床医生发现某些障碍阻碍他们的处方。在最近的工作中,开发了可变刚度矫形器(VSO),使刚度定制无需电机或复杂的控制。
    方法:这项工作通过研究其对CP患儿步行表现的影响及其作为评估可变僵硬对病理性步态的影响的潜力来评估VSO(inGAIT-VSO)的儿科版本。收集了三个典型的发育中(TD)儿童和六个患有CP的儿科参与者的数据,这些参与者在两个疗程中涉及步行/平衡任务和问卷。
    结果:inGAIT-VSO的传感器提供了有用的信息,以评估设备的影响。增加inGAIT-VSO的刚度显着降低了参与者的背屈和pi屈。尽管运动范围缩小,峰值恢复扭矩随刚度的增加而增加。总的来说,参与者的步态模式通过减少蹲下步态来改变,防止跌足和支撑体重。与正常情况(仅自己的AFO或鞋子)相比,使用inGAIT-VSO行走时,CP的参与者表现出明显更低的(p<0.05)生理成本。一般来说,与正常情况相比,该装置并未损害参与者的行走和平衡.根据问卷调查结果,inGAIT-VSO易于使用,参与者报告了积极的经历。
    结论:inGAIT-VSO刚度显着影响参与者的前屈和背屈,并产生了有关病理性步态中步行表现的客观数据(例如,施加扭矩和恢复的辅助能量)。这些影响是由集成在设备中的传感器捕获的,而无需使用外部设备。inGAIT-VSO显示了定制AFO刚度并帮助临床医生基于客观指标选择个性化刚度的前景。
    BACKGROUND: Ankle-foot orthoses (AFOs) are commonly used by children with cerebral palsy (CP), but traditional solutions are unable to address the heterogeneity and evolving needs amongst children with CP. One key limitation lies in the inability of current passive devices to customize the torque-angle relationship, which is essential to adapt the support to the specific individual needs. Powered alternatives can provide customized behavior, but often face challenges with reliability, weight, and cost. Overall, clinicians find certain barriers that hinder their prescription. In recent work, the Variable Stiffness Orthosis (VSO) was developed, enabling stiffness customization without the need for motors or sophisticated control.
    METHODS: This work evaluates a pediatric version of the VSO (inGAIT-VSO) by investigating its impact on the walking performance of children with CP and its potential to be used as a tool for assessing the effect of variable stiffness on pathological gait. Data was collected for three typical developing (TD) children and six pediatric participants with CP over two sessions involving walking/balance tasks and questionnaires.
    RESULTS: The sensors of the inGAIT-VSO provided useful information to assess the impact of the device. Increasing the stiffness of the inGAIT-VSO significantly reduced participants\' dorsiflexion and plantarflexion. Despite reduced range of motion, the peak restoring torque increased with stiffness. Overall the participants\' gait pattern was altered by reducing crouch gait, preventing drop-foot and supporting body weight. Participants with CP exhibited significantly lower (p < 0.05) physiological cost when walking with the inGAIT-VSO compared to normal condition (own AFO or shoes only). Generally, the device did not impair walking and balance of the participants compared to normal conditions. According to the questionnaire results, the inGAIT-VSO was easy to use and participants reported positive experiences.
    CONCLUSIONS: The inGAIT-VSO stiffnesses significantly affected participants\' plantarflexion and dorsiflexion and yielded objective data regarding walking performance in pathological gait (e.g. ankle angle, exerted torque and restored assistive energy). These effects were captured by the sensors integrated in the device without using external equipment. The inGAIT-VSO shows promise for customizing AFO stiffness and aiding clinicians in selecting a personalized stiffness based on objective metrics.
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  • 文章类型: Journal Article
    随着照顾者劳动力的减少以及从护理院到家庭护理的过渡,痴呆症患者(PwD)越来越依赖非正式护理人员(IC)和辅助技术(AT).越来越多的证据表明,家庭环境中的ATs可以减少正规护理人员(FC)和IC的工作量,降低护理成本,并且可以对PwD及其护理人员的生活质量(QoL)产生积极影响。在实践中,使用多个AT仍然经常意味着使用不同的分离点解决方案和应用程序。然而,积分,结合使用各种应用程序生成的数据可以潜在地增强对PwD的健康和福祉状况的了解,并可以为护理人员提供决策支持.当前研究的目的是通过小规模的现场研究评估将多个AT集成到一个仪表板中的DSS的使用。
    当前的研究提出了连接到多个AT的决策支持系统(DSS)的形成性评估。该DSS是在一个国际项目中通过共同创作开发的。DSS提供了对PwD的物理和认知状态的洞察,以及对睡眠活动和一般健康的洞察力。在三个国家/地区举行了半结构化面试会议(荷兰,意大利,和台湾)与41名参与者一起深入了解ATs和DSSAlpha原型仪表板的正式和非正式护理人员和PwD的经验。
    结果表明,使用DSS的参与者感到满意,并感受到了附加值,并且符合PwD的某些护理要求。总的来说,IC和FC对PwD在家中独立生活的状况了解有限,在这些时刻,DSS仪表板和AT捆绑包可以提供有价值的见解。参与者体验了DSS仪表板,井井有条,易于导航。仪表板中显示的数据的准确性很重要,上下文,和(感知的)隐私问题应该根据所有用户来解决。此外,基于在评估过程中获得的见解,组成了一组设计改进,可用于进一步改进Beta评估的DSS。
    本论文评估了针对AT过度使用的可能解决方案,以及将多个AT集成到一个单一技术中的DSS的使用如何支持护理人员为PwD提供护理。形成性评估审查了开发的DSS和组成的AT束在不同文化背景下的整合。来自多中心观察的见解揭示了用户体验,包括整体可用性,导航功效,以及对系统的态度。FC和IC对DSS仪表板的设计和功能表示积极,强调其在远程监控中的实用性,跟踪人的能力变化,管理紧急情况。需要个性化的解决方案,这些发现有助于对DSS和AT集成有细微的理解,为未来DSS领域的发展和研究提供见解,以保护PwD。
    UNASSIGNED: With a decreasing workforce of carers and a transition from care homes to home care, people with dementia (PwD) increasingly rely on informal caregivers (ICs) and assistive technologies (ATs). There is growing evidence that ATs in the home environment can reduce workload for formal carers (FCs) and ICs, reduce care costs, and can have a positive influence on quality of life (QoL) for PwD and their caregivers. In practice, using multiple ATs still often implies using different separate point solutions and applications. However, the integral, combined use of the data generated using various applications can potentially enhance the insight into the health and wellbeing status of PwD and can provide decision support for carers. The purpose of the current study was to evaluate the use of a DSS that integrated multiple ATs into one dashboard through a small-scale field study.
    UNASSIGNED: The current study presents the formative evaluation of a Decision Support System (DSS) connected to multiple ATs. This DSS has been developed by means of co-creation during an international project. The DSS provides an insight into the physical and cognitive status of a PwD, as well as an insight into sleep activity and general wellbeing. Semi-structured interview sessions were held in three countries (Netherlands, Italy, and Taiwan) with 41 participants to gain insight into the experiences of formal and informal carers and PwD with both the ATs and the DSS Alpha prototype dashboard.
    UNASSIGNED: The results showed that participants using the DSS were satisfied and perceived added value and a fit with certain care demands from the PwD. In general, ICs and FCs have limited insight into the status of PwD living independently at home, and in these moments, the DSS dashboard and AT bundle can provide valuable insights. Participants experienced the DSS dashboard as well-organized and easy to navigate. The accuracy of the data displayed in the dashboard is important, the context, and (perceived) privacy issues should be tackled according to all users. Furthermore, based in the insight gained during the evaluation a set of design improvements was composed which can be used to further improve the DSS for the Beta evaluation.
    UNASSIGNED: The current paper evaluates a possible solution for excess AT usage and how the use of a DSS which integrated multiple AT into one single technology could support caregivers in providing care for PwD. The formative evaluation scrutinized the integration of the developed DSS and the composed bundle of ATs across diverse cultural contexts. Insights from multi-center observations shed light on user experiences, encompassing overall usability, navigational efficacy, and attitudes toward the system. FCs and ICs expressed positivity toward the DSS dashboard\'s design and functionalities, highlighting its utility in remote monitoring, tracking changes in the person\'s abilities, and managing urgent situations. There is a need for personalized solutions and the findings contribute to a nuanced understanding of DSS and AT integration, providing insights for future developments and research in the field of DSS for the care of PwD.
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  • 文章类型: Journal Article
    下肢矫形器(LLOs)和辅助设备(AD)可以一起使用或单独使用,以在进行日常活动时提高机动性。这项研究的目的是检查全国成年LLO使用者样本中LLO和AD的使用情况。
    一项调查旨在询问参与者是否通常使用其LLO和/或AD进行20项日常活动。来自美国各地矫正诊所的LLO用户被邀请完成这项调查。使用描述性统计数据来检查利用率趋势。
    分析了1036个LLO用户的调查回复。至少80%的参与者使用LLO进行了基于社区的活动。在没有LLOs或AD的情况下,更经常进行涉及在家中短距离行走的活动。在四种最普遍的健康状况的参与者中,社区中LLO的使用在Charcot-Marie-Tooth疾病的参与者中最大。
    LLO经常用于各种社区活动。AD和LLO的同时使用对于LLO用户在家庭外执行活动时可能是最有益的。临床医生可以与患者讨论LLO和AD的使用,以优化其在家庭和社区的功能结果。
    UNASSIGNED: Lower limb orthoses (LLOs) and assistive devices (ADs) can be used together or separately to improve mobility when performing daily activities. The goal of this study was to examine utilization of LLOs and ADs in a national sample of adult LLO users.
    UNASSIGNED: A survey was designed to ask participants whether they typically use their LLOs and/or ADs to perform 20 daily activities. LLO users from orthotic clinics across the United States were invited to complete the survey. Descriptive statistics were used to examine utilization trends.
    UNASSIGNED: Survey responses from 1036 LLO users were analyzed. Community-based activities were performed with LLOs by at least 80% of participants. Activities that involved walking short distances in the home were more often performed without LLOs or ADs. Among participants with the four most prevalent health conditions, LLO use in the community was greatest among participants with Charcot-Marie-Tooth disease.
    UNASSIGNED: LLOs were frequently used for a wide range of community-based activities. Simultaneous use of ADs and LLOs may be most beneficial for LLO users when performing activities outside of the home. Clinicians can discuss LLO and AD use with patients to optimize their functional outcomes at home and in the community.
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  • 文章类型: Journal Article
    在这个观点中,我们提供的证据表明,在过去25年中,老年人对辅助技术(AT)的使用显著增加.我们还解释了这种用途的扩展方式,不仅是用户总数的增加,而且从1999年开始就超越了典型的使用范围,达到了新的用户类别。我们概述了我们对这种扩张背后的一些关键驱动力的意见,比如人口结构的变化,技术进步,以及推广AT作为使老年人实现独立生活的一种手段。以及我们对过去25年AT演变的回顾,我们还讨论了AT研究作为一个领域的未来以及AT研究中术语统一的必要性。最后,我们概述了我们在北诺福克(特别是英国最古老的依赖地区)的经验如何表明,共同创造可能不仅是AT领域成功研究试验的关键,而且是AT成功持续采用的关键。超出其原始使用范围。
    In this viewpoint, we present evidence of a marked increase in the use of assistive technology (AT) by older adults over the last 25 years. We also explain the way in which this use has expanded not only as an increase in terms of the total number of users but also by going beyond the typical scopes of use from its inception in 1999 to reach new categories of users. We outline our opinions on some of the key driving forces behind this expansion, such as population demographic changes, technological advances, and the promotion of AT as a means to enable older adults to achieve independent living. As well as our review of the evolution of AT over the past 25 years, we also discuss the future of AT research as a field and the need for harmonization of terminology in AT research. Finally, we outline how our experience in North Norfolk (notably the United Kingdom\'s most old age-dependent district) suggests that cocreation may be the key to not only successful research trials in the field of AT but also to the successful sustained adoption of AT beyond its original scope of use.
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  • 文章类型: Journal Article
    背景:痴呆损害了痴呆患者自主和独立的能力。他们需要第三方的支持,理想情况下,他们应该尽可能尊重他们的自主权和独立性。支持痴呆症患者对护理人员来说可能是非常沉重的负担,患者数量增加,而潜在护理人员数量下降。直接支持患者或其护理人员的数字辅助技术(DAT)可能有助于弥合支持需求与可用资源之间日益扩大的差距。DAT有可能保持痴呆症患者的自主性和独立性,并提高他们的能力,如果它们在与未来用户的密切互动中设计得当。在我们的研究中,我们专注于道德问题,技术要求,和一般DAT的实施标准,特别是支持痴呆症患者的户外活动。
    方法:我们采用了定性方法,并进行了WorldCafé(2表,n=7)和一个有痴呆症患者的在线焦点小组(n=6),亲戚,医疗保健专业人员,科学家,伦理专家,和数字辅助医疗专家。我们使用内容分析方法对数据进行了描述性分析。
    结果:参与者报告了技术(例如,缺乏Wi-Fi),财务(例如,昂贵的设备或缺乏DAT预算),政治(例如,法律障碍,如欧洲医疗器械法或数据保护法规)以及与用户相关的障碍(例如,缺乏数字能力)在痴呆症护理中实施DAT。讨论的问题包括自治的重要性,独立性,安全,隐私,以及DAT使用中的决策能力问题。参与者确定了自学的机会和好处,了解情况的DAT,并希望建立对痴呆症友好的社区。他们强调个人互动的价值不应取代,而是由DAT支持。
    结论:结果揭示了使用DAT的多个障碍和伦理问题,并为设计和实施DAT提供了建议。需要进一步调查DAT对护理中个人互动的影响以及DAT在痴呆症友好社区中的作用。
    BACKGROUND: Dementia impairs the ability of people with dementia to be autonomous and independent. They need support from third parties, who should ideally respect their autonomy and independence as much as possible. Supporting people with dementia can be very burdensome for caregivers and numbers of patients increase while numbers of potential caregivers decline. Digital assistive technologies (DATs) that directly support patients or their caregivers may help bridging the increasing gap between need of support and available resources. DATs have the potential to preserve the autonomy and independence of people with dementia and promote their abilities, if they are properly designed in close interaction with future users. In our study, we focused on ethical concerns, technological requirements, and implementation criteria for DAT in general and specifically to support outdoor mobility of people with dementia.
    METHODS: We applied a qualitative approach and conducted a World Café (2 tables, n = 7) and an online focus group (n = 6) with people with dementia, relatives, healthcare professionals, scientists, ethics experts, and experts for digitally-assisted medical care. We descriptively analyzed the data using a content analysis approach.
    RESULTS: The participants reported technological (e.g., lack of Wi-Fi), financial (e.g., expensive devices or lack of budget for DATs), political (e.g., legal hurdles such as the European Medical Device Law or data protection regulations) as well as user-related hurdles (e.g., lack of digital competence) for the implementation of DAT in dementia care. Among the issues discussed were the importance of autonomy, independence, safety, privacy, and questions of decision making capacity in DAT\'s use. Participants identified opportunities and benefits in self-learning, situation-aware DATs and wished for dementia-friendly communities. They emphasized the value of personal interaction that should not be replaced, but rather supported by DAT.
    CONCLUSIONS: The results revealed multiple hurdles and ethical concerns for DAT use and provided recommendations for designing and implementing DATs. Further investigations are needed on the impact of DAT on personal interactions in caregiving and the role of DAT in dementia-friendly communities.
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