Community-based Participatory Research

基于社区的参与式研究
  • 文章类型: Journal Article
    本文提倡兽医学的定性研究,强调它对理解不同经验的重要性,从而为改善多样性提供了机会,股本,以及在该领域的包容性。它将定性与定量方法进行了对比,并解决了认知暴力的概念。强调以社区为基础,解放的方法,它敦促采用挑战传统研究方法的人性化和自由化研究框架,强调定性研究在促进公平方面的作用,同理心,和更深入的了解。
    This article advocates for qualitative research in veterinary medicine, highlighting its importance for understanding diverse experiences, and thus providing the opportunity for improving diversity, equity, and inclusion in the field. It contrasts qualitative with quantitative methods and addresses the concept of epistemic violence. Emphasizing community-based, emancipatory approaches, it urges adopting humanizing and liberatory research frameworks that challenge traditional research methods, underscoring qualitative research\'s role in fostering equity, empathy, and deeper understanding within the field.
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  • 文章类型: Journal Article
    背景:强化生活方式干预,包括适度减少每日热量摄入(即连续卡路里能量减少(CER)),由美国国家专业健康组织(例如美国心脏协会)推荐。然而,他们在黑人社区的效率较低。新兴的文献报道了间歇性禁食(IF)作为减肥的替代策略的前景。然而,IF研究主要是针对白人参与者进行的,并为参与者提供了在现实世界中不容易获得的资源。
    目的:为了确定IF的可行性(初始有效性,坚持,接受)在黑人社区。
    方法:进行整群随机对照试验研究。
    方法:从五个黑人教堂中招募了42名BMI≥25的黑人成年人(3个IF教堂,2个CER教堂),从2021年9月至2022年5月在纽约州西部。参与者没有可能禁忌参加减肥计划的医疗条件和其他可能影响减肥的因素。
    方法:社区卫生工作者交付了6个月,第十六届会议基于信仰的综合框架和CER干预措施。
    方法:主要结果是可行性,包括对体重的初始有效性(从基线到6个月随访的体重减轻百分比),坚持,和可接受性。
    方法:使用了说明教堂内聚类的描述性统计和线性混合模型。对应于结果变量的基线协变量包括在模型中。使用意向治疗分析。
    结果:两组均有统计学意义的体重减轻[IF:-3.5(-6,-0.9)];[CER:-2.9(-5.1,-0.8)kg],从基线到6个月的随访。与CER相比,IF导致每日能量摄入量[414.2(55.2,773.2)kcal]和脂肪摄入量[16.1(2.4,29.8)g]显著降低。与CER相比,IF可能导致水果和蔬菜摄入量[-103.2(-200.9,-5.5)g]和纤维摄入量-5.4(-8.7,-2)。与CER组(p=0.02)相比,IF组的参与者完成了3.8(1.4)多的自我监测手册。参与者报告对该计划的满意度很高。
    结论:针对黑人成年人开发的IF干预措施可以在黑人教堂中可行地实施。需要进行更大的研究,以确定在黑人社区中IF可以作为CER干预措施的可行减肥替代方案的程度。
    BACKGROUND: Intensive lifestyle interventions including modest reductions in daily caloric intake (i.e., continuous calorie energy reduction (CER)), are recommended by U.S. national professional health organizations (e.g. American Heart Association). However, they are less effective in Black communities. A burgeoning literature has reported the promise of intermittent fasting (IF) as an alternative strategy for weight loss. However, IF studies have been conducted with predominately White participants and provided participants resources not readily available in real-world situations.
    OBJECTIVE: Weight loss and weight-related outcomes of a scalable (able to be widely disseminated and implemented) IF intervention developed with and for Black adults were compared to a CER intervention for the purpose of determining IF\'s feasibility (initial effectiveness, adherence, acceptance) in a Black community.
    METHODS: A cluster randomized controlled pilot study was conducted.
    METHODS: A total of 42 Black adults with a BMI≥25 were recruited from five Black churches (3 IF churches, 2 CER churches) in Western New York State from September 2021 until May 2022. Participants were free of medical conditions that might have contraindicated participation in a weight reduction program and other factors that might affect weight loss.
    METHODS: Community health workers delivered the 6-month, 16-session faith-based IF and CER interventions.
    METHODS: The primary outcome was feasibility, consisting of initial effectiveness on body weight (percent body weight lost from baseline to 6-month follow-up), adherence, and acceptability.
    METHODS: Descriptive statistics and linear mixed models accounting for within-church clustering were used. A baseline covariate corresponding to the outcome variable was included in the model. Intent-to-treat analysis was used.
    RESULTS: There was statistically significant weight loss within both arms [IF: -3.5 (-6, -0.9)]; [CER: -2.9 (-5.1, -0.8) kg], from baseline to 6-month follow-up. Compared to CER, IF led to significantly lower daily energy intake [414.2 (55.2, 773.2) kcal] and fat intake [16.1 (2.4, 29.8) g]. IF may result in lower fruit and vegetable intake [-103.2 (-200.9, -5.5) g] and fiber intake -5.4 (-8.7, -2) compared to CER. Participants in the IF arm completed 3.8 (1.4) more self-monitoring booklets compared to those in the CER arm (p=0.02). Participants reported high levels of satisfaction with the program.
    CONCLUSIONS: An IF intervention developed with and for Black adults can be feasibly implemented in Black churches. Larger studies need to be conducted to ascertain the extent IF can serve as a viable weight loss alternative to CER interventions in Black communities.
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  • 文章类型: Journal Article
    背景:患者参与(PE)或参与研究是指将患者合作伙伴整合到团队和计划中(而不是研究参与者)。许多健康研究资助组织都有体育框架或规则,但我们不知道他们申请和报告自己的内部体育努力。我们描述了我们在加拿大健康研究院肌肉骨骼健康和关节炎研究所(CIHRIMHA)的工作,评估和了解其内部PE战略的影响。
    方法:使用了涉及患者伴侣的联合生产模型,一名体育专家和IMHA的工作人员。共同开发了一个逻辑模型,以指导实施和评估IMHA的体育战略。一些评估体育战略和理解其影响是公众和患者参与协作(麦克马斯特大学)和IMHA之间的合作。
    结果:IMHA召集了一个体育研究大使(PERA)小组,该小组在体育专家的支持下共同领导了这项工作。在这样做的时候,PERA自2020年以来举行了多次会议,设定了自己的优先事项,并共同制作了许多产出(视频,出版物,网络研讨会,博客和模块称为“研究中的PE操作指南”)。这项评估和衡量IMHA体育战略影响的工作显示出积极的结果,例如,在PERA成员上,研究所咨询委员会成员和工作人员,以及基于模块的吸收和使用的研究所之外。需要改进的领域主要与增加PERA的多样性和提高PE输出的可访问性(更多语言和格式)有关。
    结论:在CIHRIMHA中实施体育战略导致了一些体育活动和产出,并在研究所内外产生了影响。我们提供与这项工作相关的模板和输出,可以为其他健康研究资助组织的努力提供信息。我们鼓励健康研究资助者超越鼓励或要求PE在资助项目中通过实施和评估自己的PE策略来充分“走出去”。
    BACKGROUND: Patient engagement (PE) or involvement in research is when patient partners are integrated onto teams and initiatives (not participants in research). A number of health research funding organisations have PE frameworks or rubrics but we are unaware of them applying and reporting on their own internal PE efforts. We describe our work at the Canadian Institutes of Health Research\'s Institute of Musculoskeletal Health and Arthritis (CIHR IMHA) to implement, evaluate and understand the impact of its internal PE strategy.
    METHODS: A co-production model was used involving patient partners, a PE specialist and staff from IMHA. A logic model was co-developed to guide implementing and evaluating IMHA\'s PE strategy. Some of evaluating the PE strategy and understanding its impact was a collaboration between the Public and Patient Engagement Collaborative (McMaster University) and IMHA.
    RESULTS: IMHA convened a PE Research Ambassador (PERA) group which co-led this work with the support of a PE specialist. In doing so, PERA had a number of meetings since 2020, set its own priorities and co-produced a number of outputs (video, publications, webinars, blog and modules called the How-to Guide for PE in Research). This work to evaluate and measure impacts of IMHA\'s PE strategy revealed positive results, for example, on PERA members, Institute Advisory Board members and staff, as well as beyond the institute based on uptake and use of the modules. Areas for improvement are mainly related to increasing the diversity of PERA and to improving accessibility of the PE outputs (more languages and formats).
    CONCLUSIONS: Implementing a PE strategy within CIHR IMHA resulted in several PE activities and outputs with impacts within and beyond the institute. We provide templates and outputs related to this work that may inform the efforts of other health research funding organisations. We encourage health research funders to move beyond encouraging or requiring PE in funded projects to fully \'walk the talk\' of PE by implementing and evaluating their own PE strategies.
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  • 文章类型: Journal Article
    虽然小,非洲移民人口是美国增长最快的移民人口之一。新兴研究表明,在该人群中,非传染性可预防的慢性疾病的患病率很高。像其他非洲裔美国人一样,非洲移民对医疗保健系统不信任,妨碍预防和干预研究的努力。
    为了描述我们在非洲移民社区进行两项研究的经验,讨论吸取的教训,并向有兴趣在类似人群中进行研究的研究人员提供建议。
    我们从本文中学到的2项已发表的研究是一项横断面研究和一项使用焦点小组访谈的定性研究。参加者包括在宗教节日和社区活动中招募的美国东部的津巴布韦移民。两项研究共招募了135名参与者。
    在第一项研究中,我们的招聘目标是120人,尽管付出了许多努力,我们只注册了98名。然而,在与社区顾问委员会(CAB)进行战略合作后,在第二项研究中,我们在4个月内达到了招聘目标。有了出租车,我们招募了更大比例的男性(38%对24%).没有CAB,350人同意参加,但只有98(28%)的人返回了问卷,而对于CAB,40同意参加,和37(93%)成功完成研究。
    在移民中进行与健康相关的研究需要与社区建立战略伙伴关系,以在研究团队与目标社区之间建立牢固的关系。通过培养这些关系,研究团队可以有效地接触到这一难以接触的人群,并实现高参与度。
    UNASSIGNED: Although small, the African immigrant population is one of the fastest growing immigrant populations in the United States. Emerging research indicates a high prevalence of noncommunicable preventable chronic conditions in this population. Like other African Americans, African immigrants are mistrustful of the health care system, hampering efforts for prevention and intervention research.
    UNASSIGNED: To describe our experiences conducting 2 studies in an African immigrant community, discuss the lessons learned, and provide advice to researchers interested in conducting research in similar populations.
    UNASSIGNED: The 2 published studies for which we derive lessons learned for this paper were a cross-sectional study and a qualitative study using focus group interviews. Participants included Zimbabwean immigrants in the Eastern United States recruited at religious festivals and community events. The 2 studies enrolled a total of 135 participants.
    UNASSIGNED: Of our recruitment goal of 120 in the first study, we enrolled only 98 despite numerous efforts. However, after strategically partnering with a community advisory board (CAB), in the second study, we met our recruitment goal within 4 months. With the CAB, we recruited a larger proportion of men (38% versus 24%). Without the CAB, 350 individuals agreed to participate, but only 98 (28%) returned the questionnaire, whereas with the CAB, 40 agreed to participate, and 37 (93%) successfully completed the study.
    UNASSIGNED: Conducting health-related research in immigrants requires strategic partnerships with the community to build strong relationships between the research team and the target community. By nurturing these relationships, research teams can effectively access this hard-to-reach population and achieve high participation.
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  • 文章类型: Journal Article
    2019年冠状病毒病(COVID-19)差异的根本原因包括经济发展和医疗服务方面长期存在的系统性种族偏见,歧视,缺乏访问,和健康的社会决定因素。为了解决这些原因,研究机构和医疗保健系统必须将其视角从只关注服务不足和脆弱人群中改变行为的视角转移到面向内部的视角。
    我们与一个社区咨询委员会和一个非洲裔美国人教会合作了十多年的研究,以确定社区规范,需要,以及建立COVID-19检测社区-学术伙伴关系所需的关键资源。参与者有目的地从3个群体中抽取相同的代表:(1)教会成员和领导人,(2)具有社区参与研究经验的学术或组织研究人员,(3)有参与社区参与研究经验的社区成员。作为市政厅式会议的一部分,参与者在教堂地下室进行了动手练习。
    积极的讨论导致在服务不足的巴尔的摩社区中确定了对COVID-19测试重要的商业模式组件,主要由非洲裔美国人组成。我们的讨论确定了关键合作伙伴,活动,资源,成本,价值主张,社区关系,社区团体,沟通渠道,以及社区购买的产出。
    发展相互信任的商业案例,为未来的流行病和公共卫生危机做好准备,可能会促进更可持续的社区-学术伙伴关系。使用业务模型画布,我们描绘了主要的组成部分,活动,以及实现真正的社区-学术伙伴关系以促进健康公平所需的价值主张。
    UNASSIGNED: The root causes of coronavirus disease 2019 (COVID-19) disparities include longstanding systemic racial bias in economic advancement and care delivery, discrimination, lack of access, and social determinants of health. To address these causes, research institutions and health care systems must shift their lens from one that focuses solely on changing behaviors among underserved and vulnerable populations to one that is inward facing.
    UNASSIGNED: We worked with a community advisory board and an African American church that has partnered on research for more than a decade to identify community norms, needs, and key resources needed for establishing community-academic partnerships for COVID-19 testing. Participants were purposefully sampled with equal representation from 3 groups: (1) church members and leaders, (2) academic or organization researchers with experience in community-engaged research, and (3) community members with experience participating in community-engaged research. Participants engaged in a hands-on exercise in the church basement as part of a town hall-style meeting.
    UNASSIGNED: Active discussion led to the identification of business model components salient to COVID-19 testing in an underserved Baltimore community, predominantly made up of African Americans. Our discussion identified key partners, activities, resources, costs, value propositions, community relationships, community groups, communication channels, and outputs for community buy-in.
    UNASSIGNED: Developing the business case for mutual trustworthiness to be better prepared for future pandemics and public health crises may foster more sustainable community-academic partnerships. Using a Business Model Canvas, we delineate the major components, activities, and value propositions that are needed to achieve authentic community-academic partnerships to advance health equity.
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  • 文章类型: Journal Article
    背景:为有智力和发育障碍的青少年量身定制性教育是至关重要的,但未被满足,需要,因为这一人群尤其面临性虐待和受害的风险。然而,没有基于证据的干预措施来具体满足这一需求.本文提出了一个干预框架的发展,以解决性教育的公平性,并支持智力和发育障碍的青少年理解和提供性同意,性教育和性健康的基础方面。
    方法:性健康公平项目团队使用基于社区的参与式研究方法,为患有智力和发育障碍的青少年开发了四模块性同意干预措施。我们利用了多样化的,中西部郊区学区的跨学科团队,并使用后向设计来创建目标和评估,这些目标和评估源于特殊教育教师的定性数据。
    结果:由此产生的性同意干预,问我第一个选择,由四个模块组成,涵盖的主题包括性同意的定义;决策策略和实践;传达同意和拒绝,确定同意和不同意的情况;以及围绕同意的法律问题。每个模块分为五个部分用于内容交付:(1)介绍,(2)讲座,(3)补充活动,(4)评估,(5)结论。我们详细说明了干预的独特方面,强调我们使用通用设计学习原则来支持教师教学和学生学习的领域。
    结论:我们创建性同意干预措施的努力直接解决了性教育公平问题。我们对我们的设计过程和决策提供评论,以及对希望在类似情况下为智力和发育障碍学生开发性健康干预措施的未来群体的建议。下一步包括进一步测试和确认性同意干预措施,以建立智力和发育障碍青少年性教育的证据基础。
    BACKGROUND: Tailored sexuality education for adolescents with intellectual and developmental disabilities is a crucial, yet unmet, need as this population is particularly at risk for sexual abuse and victimisation. However, there are no evidence-based interventions to specifically address this need. This paper presents the development of an intervention framework to address equity in sexuality education and support adolescents with intellectual and developmental disabilities to understand and provide sexual consent, a foundational aspect of sexuality education and sexual health.
    METHODS: The Sexual Health Equity Project team used a Community-Based Participatory Research approach to develop a four-module sexual consent intervention for adolescents with intellectual and developmental disabilities. We leveraged a diverse, interdisciplinary team in a suburban Midwestern school district, and used Backward Design to create objectives and assessments which were rooted in findings from qualitative data by special education teachers.
    RESULTS: The resulting sexual consent intervention, Ask Me First-Choices, is comprised of four modules covering topics including definition of sexual consent; decision-making strategies and practice; communicating consent and refusal, identifying situations of consent and non-consent; and legal issues surrounding consent. Each module is divided into five components for content delivery: (1) introduction, (2) lecture, (3) supplemental activity, (4) assessment, and (5) conclusion. We detail the intervention\'s unique aspects, emphasising areas where we used Universal Design for Learning principles to support teachers\' instruction and students\' learning.
    CONCLUSIONS: Our efforts to create a sexual consent intervention directly address sexuality education equity issues. We offer commentary on our design process and decisions, as well as recommendations for future groups who want to develop sexual health interventions in similar contexts for students with intellectual and developmental disabilities. Next steps include further testing and validation of the sexual consent intervention to build the evidence-base of sexuality education for adolescents with intellectual and developmental disabilities.
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  • 文章类型: Journal Article
    背景:协作方法的概念涉及社区居民参与联合决策过程,以维持或增强其物质和社会条件。在COVID-19期间,公共服务部门看到了与社区积极合作并让居民参与决策过程的好处。由于社区拥有资源和资产,他们处于有利地位,可以为发展当地的健康和福祉举措做出贡献。跨学科和国家资助的三阶段研究方案,“动员社区资产解决健康不平等问题”,是为了利用当地的,文化,和自然资产来支持健康和福祉。本研究旨在综合研究小组在该计划第一阶段获得资助所收集的证据,包括学术和非学术,健康和社会护理,自愿和社区合作伙伴。
    方法:与来自英国各地的研究团队进行了十个在线焦点小组,探索合作的成功和挑战,以社区为基础的研究合作方法来解决健康不平等问题。八个焦点小组问题分为伙伴关系工作和健康不平等。
    结果:主题和内容分析产生了185个子主题,从中确定了12个主题。代表编码答复数量高于平均水平的主要主题是研究证据;资金;与合作伙伴的关系;健康不平等和剥夺;社区参与;以及卫生服务和综合护理系统。次要主题是将工人与社会处方联系起来;培训和支持;基于地点的因素;计划的寿命;建立和扩大计划;和心理健康。
    结论:成功包括采用基于实践和基于艺术的方法,作为通常不参与研究的人的研究项目的一部分,民主分享资金,建立在已建立的关系上,以及当地资产在社区参与中发挥的重要作用。挑战包括缺乏可持续的财政支持,资金的短期性质,在帮助最贫穷的人方面的不一致,获得正确的研究证据,取得足够的研究进展,与已经负担过重的医护人员建立关系,并纠正有利于社区的权力平衡。尽管面临挑战,参与者主要乐观地认为,集体方法和有意义的联合制作将为未来与社区的研究伙伴关系创造机会。
    BACKGROUND: The concept of collaborative approaches involves community residents in joint decision-making processes to maintain or enhance their material and social conditions. During COVID-19, public services saw the benefits of actively collaborating with communities and involving residents in decision-making processes. As communities have resources and assets, they are well-placed to contribute to developing local health and wellbeing initiatives. An interdisciplinary and nationally funded three-phase research programme, \"Mobilising community assets to tackle health inequalities\", was established with the objective of utilising local, cultural, and natural assets to support health and wellbeing. The current study aimed to synthesise evidence collected by research teams awarded funding in phase one of the programme, comprising academic and non-academic, health and social care, voluntary and community partners.
    METHODS: Ten online focus groups were conducted with research teams from across the UK exploring the successes and challenges of partnership working to tackle health inequalities using collaborative approaches to community-based research. Eight focus group questions were split between partnership working and health inequalities.
    RESULTS: Thematic and content analysis produced 185 subthemes from which 12 themes were identified. Major themes representing an above average number of coded responses were research evidence; funding; relationships with partners; health inequalities and deprivation; community involvement; and health service and integrated care systems. Minor themes were link workers and social prescribing; training and support; place-based factors; longevity of programmes; setting up and scaling up programmes; and mental health.
    CONCLUSIONS: Successes included employing practice-based and arts-based methods, being part of a research project for those not normally involved in research, sharing funding democratically, building on established relationships, and the vital role that local assets play in involving communities. Challenges involved a lack of sustainable financial support, the short-term nature of funding, inconsistencies in reaching the poorest people, obtaining the right sort of research evidence, making sufficient research progress, building relationships with already over-burdened health care staff, and redressing the balance of power in favour of communities. Despite the challenges, participants were mainly optimistic that collective approaches and meaningful co-production would create opportunities for future research partnerships with communities.
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  • 文章类型: Journal Article
    背景:印度对疟疾负担的贡献在2021年东南亚区域最高,占估计疟疾病例的79%和疟疾相关死亡的83%。全球防治艾滋病基金支持的强化疟疾控制方案,结核病和疟疾已经采取了关键的干预措施,以减轻印度疟疾的总体负担。在印度的11个疟疾高流行州,正在评估社区对疟疾消除干预措施的利用情况以及对医疗保健系统的评估。卫生系统为消除疟疾做好准备,物流,以及诊断试剂盒和抗疟疾药物的供应链管理,医护人员的态度和做法也在评估中。
    方法:该研究正在11个疟疾流行州进行,疟疾的年寄生虫发病率各不相同。总的来说,将采访和评估涵盖37976户家庭的47个地区(疟疾控制行动的行政单位)。我们在此介绍协议,该协议应印度卫生和家庭福利部的要求和批准进行研究。
    背景:没有患者参与研究。研究结果将及时与新德里国家疟疾研究所(NIMR)的机构伦理委员会分享,全面,准确,没有偏见,明确和透明的方式,并向国家媒介传播疾病(疟疾)控制方案官员和参加的社区公众。重要的调查结果将通过卫生系统中现有的社区外展会议进行传达。结果将通过地区疟疾官员监督的当地实地考察通知研究参与者。研究结果也将发表在基于印度医学研究理事会(ICMR)出版政策的知名期刊上。ICMR-NIMR伦理委员会通过第1号信函批准了这项研究。NIMR/ECM/2023/Feb/14,日期为2023年4月24日,版本5。将遵循所有标准的道德规范。
    BACKGROUND: India\'s contribution to the malaria burden was highest in South-East Asia Region in 2021, accounting for 79% of the estimated malaria cases and 83% of malaria-related deaths. Intensified Malaria Control Programme supported by Global Funds to Fight against AIDS, Tuberculosis and Malaria has deployed crucial interventions to reduce the overall burden of malaria in India. Evaluation of utilisation of malaria elimination interventions by the community and assessment of the healthcare system is underway in eleven high malaria endemic states in India. Health system preparedness for malaria elimination, logistics, and supply chain management of diagnostic kits and anti-malarial drugs in addition to the knowledge, attitude and practice of the healthcare workers is also being assessed.
    METHODS: The study is being undertaken in 11 malaria endemic states with a variable annual parasite incidence of malaria. In total, 47 districts (administrative unit of malaria control operations) covering 37 976 households are to be interviewed and assessed. We present here the protocol following which the study is being undertaken at the behest and approval of Ministry of Health and Family Welfare in India.
    BACKGROUND: No patients were involved in the study. Study findings will be shared with Institutional ethics board of National Institute for Malaria Research New Delhi (NIMR) in a timely, comprehensive, accurate, unbiased, unambiguous and transparent manner and to the National Vector-borne Disease (Malaria) Control Programme officers and the Community public who participated. Important findings will be communicated through community outreach meetings which are existing in the Health system. Results will be informed to study participants via local fieldwork supervised by District Malaria Officers. Also findings will be published in reputed journals based on Indian Council of Medical Research (ICMR) publication policy.The ICMR-NIMR ethics committee approved the study via letter No. NIMR/ECM/2023/Feb/14 dated 24 April 2023 for version 5. All standard ethical practices will be followed.
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  • 文章类型: Journal Article
    全球范围内,土著儿童与政府儿童保护服务有着历史和当代的联系,这对他们的长期健康和福祉造成了重大损害。创新,需要提供文化安全和以恢复为重点的服务。本文介绍了由土著长老领导的土著研究人员设计的研究协议,探索澳大利亚家庭外护理机构的文化安全护理计划和服务提供。采用参与式行动研究方法,我们将使用各种论坛收集数据,包括焦点小组和半结构化访谈。这些数据将探讨家庭外护理机构在提供文化上安全的护理计划方面的挑战,文化活动和资源,并探索解决方案,以解决影响健康的因素,并可以帮助纠正土著儿童的社会不平等。我们的目标是招募大约100名参与者进行定性研究,并招募40名参与者进行定量调查。研究参与者最初将使用目的抽样招募,随着研究的进展,将使用目的性和便利性采样技术的混合进行招募。这项研究预计将产生丰富的数据,将介绍如何收集有关土著儿童的文化信息,以及如何提供有利于土著儿童和家庭的文化联系和活动,以及广泛的社会服务。
    Globally, Indigenous children have historical and contemporary connections with government child protection services that have caused significant harm to their long-term health and wellbeing. Innovative, culturally secure and recovery focussed service provision is required. This paper describes a research protocol that has been designed by Indigenous researchers led by Indigenous Elders, to explore culturally secure care planning and service delivery in out-of-home care agencies in Australia. Using participatory action research methods, we will collect data using a variety of forums, including focus groups and semi-structured interviews. These data will explore the challenges for out-of-home care agencies in providing culturally secure care-planning, cultural activity and resources, and explore solutions to address factors that influence health and can assist to redress social inequities for Indigenous children. We aim to recruit approximately 100 participants for the qualitative study and 40 participants for the quantitative survey. Study participants will initially be recruited using purposive sampling, and as the study progresses will be recruited using a mixture of purposive and convenience sampling techniques. The rich data that this study is expected to yield, will inform ways to collect cultural information about Indigenous children and ways to provide cultural connections and activities that will have benefit to Indigenous children and families, and a broad range of social services.
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  • 文章类型: Journal Article
    数据知情决策是许多基于社区的公共卫生研究计划的关键目标。然而,社区合作伙伴在与数据交互时经常遇到挑战。社区参与数据科学(CEDS)模型提供了一个以目标为导向的、社区通过数据大使与研究数据科学家合作的迭代指南。作为健康社区研究(HCS)的一部分,本研究提供了CEDS应用于俄亥俄州18个县阿片类药物流行研究的案例研究。数据大使在授权社区联盟使用CEDS的关键步骤将数据转化为行动方面发挥了关键作用,这些步骤包括:数据景观识别社区中的可用数据;基于社区数据需求和数据差距的逻辑模型的数据行动计划;数据收集/共享协议;以及包括门户和仪表板在内的数据系统。在整个CEDS过程中,数据大使强调可持续的数据工作流程,支持HCS以外的持续数据参与。CEDS在俄亥俄州的实施强调了建立关系的重要性,实施时机,了解社区的数据偏好,与社区合作时的灵活性。研究人员应考虑实施CEDS,并在基于社区的研究中整合数据大使,以增强社区数据参与并推动数据知情干预措施,以改善公共卫生结果。
    Data-informed decision making is a critical goal for many community-based public health research initiatives. However, community partners often encounter challenges when interacting with data. The Community-Engaged Data Science (CEDS) model offers a goal-oriented, iterative guide for communities to collaborate with research data scientists through data ambassadors. This study presents a case study of CEDS applied to research on the opioid epidemic in 18 counties in Ohio as part of the HEALing Communities Study (HCS). Data ambassadors provided a pivotal role in empowering community coalitions to translate data into action using key steps of CEDS which included: data landscapes identifying available data in the community; data action plans from logic models based on community data needs and gaps of data; data collection/sharing agreements; and data systems including portals and dashboards. Throughout the CEDS process, data ambassadors emphasized sustainable data workflows, supporting continued data engagement beyond the HCS. The implementation of CEDS in Ohio underscored the importance of relationship building, timing of implementation, understanding communities\' data preferences, and flexibility when working with communities. Researchers should consider implementing CEDS and integrating a data ambassador in community-based research to enhance community data engagement and drive data-informed interventions to improve public health outcomes.
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