Community-based Participatory Research

基于社区的参与式研究
  • 文章类型: Journal Article
    包容性研究将受过学术训练的研究人员的专业知识与残疾人的生活经验相结合,以使结果更容易获得,负责任,对残疾人社区有意义。在这个案例研究中,患有智力和发育障碍(IDD)的成年人作为共同研究者参与了一系列关于智力障碍成年人心理健康的研究.研究模型,具体的参与战略,和经验教训分享。研究小组成员的反馈表明,将患有IDD的成年人作为共同研究人员使研究人员受益,与IDD的共同研究人员,和项目成果。我们的案例研究强调了研究合作伙伴对IDD的宝贵贡献,并提供了一个模型,研究人员可以调整和利用该模型来增强他们的实践。
    Inclusive research combines the expertise of academically trained researchers with the lived experience of individuals with disabilities to render results that are more accessible, accountable, and meaningful to the disability community. In this case study, adults with intellectual and developmental disabilities (IDD) contributed as co-researchers to a series of studies on mental health of adults with intellectual disability. The research model, specific engagement strategies, and lessons learned are shared. Feedback from members of the research team suggests that including adults with IDD as co-researchers benefited investigators, co-researchers with IDD, and project outcomes. Our case study emphasizes the valuable contributions of research partners with IDD and provides a model that may be adapted and utilized by researchers to enhance their practice.
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  • 文章类型: Journal Article
    数据知情决策是许多基于社区的公共卫生研究计划的关键目标。然而,社区合作伙伴在与数据交互时经常遇到挑战。社区参与数据科学(CEDS)模型提供了一个以目标为导向的、社区通过数据大使与研究数据科学家合作的迭代指南。作为健康社区研究(HCS)的一部分,本研究提供了CEDS应用于俄亥俄州18个县阿片类药物流行研究的案例研究。数据大使在授权社区联盟使用CEDS的关键步骤将数据转化为行动方面发挥了关键作用,这些步骤包括:数据景观识别社区中的可用数据;基于社区数据需求和数据差距的逻辑模型的数据行动计划;数据收集/共享协议;以及包括门户和仪表板在内的数据系统。在整个CEDS过程中,数据大使强调可持续的数据工作流程,支持HCS以外的持续数据参与。CEDS在俄亥俄州的实施强调了建立关系的重要性,实施时机,了解社区的数据偏好,与社区合作时的灵活性。研究人员应考虑实施CEDS,并在基于社区的研究中整合数据大使,以增强社区数据参与并推动数据知情干预措施,以改善公共卫生结果。
    Data-informed decision making is a critical goal for many community-based public health research initiatives. However, community partners often encounter challenges when interacting with data. The Community-Engaged Data Science (CEDS) model offers a goal-oriented, iterative guide for communities to collaborate with research data scientists through data ambassadors. This study presents a case study of CEDS applied to research on the opioid epidemic in 18 counties in Ohio as part of the HEALing Communities Study (HCS). Data ambassadors provided a pivotal role in empowering community coalitions to translate data into action using key steps of CEDS which included: data landscapes identifying available data in the community; data action plans from logic models based on community data needs and gaps of data; data collection/sharing agreements; and data systems including portals and dashboards. Throughout the CEDS process, data ambassadors emphasized sustainable data workflows, supporting continued data engagement beyond the HCS. The implementation of CEDS in Ohio underscored the importance of relationship building, timing of implementation, understanding communities\' data preferences, and flexibility when working with communities. Researchers should consider implementing CEDS and integrating a data ambassador in community-based research to enhance community data engagement and drive data-informed interventions to improve public health outcomes.
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    文章类型: Journal Article
    社区参与的研究往往会带来挑战,因为正是这些品质使其成为可取的:它提供了一种新的研究模式,在许多方面与自上而下不同,大学主导,前瞻性设计的方法。虽然许多人讨论了进行社区参与研究的挑战,很少有人为如何克服这些挑战提供了精确和普遍的教训。在这里,我们讨论了在三个级别的社区参与项目中遇到的挑战:1)由学术和社区合作伙伴以及社区和学术研究助理组成的研究团队,2)研究团队在整个项目中与一个名为CBOP-CERB(基于社区的组织合作伙伴-社区道德研究委员会)的社区咨询委员会合作,3)研究涉及从一个对研究人员和研究历史不信任的地区招募社区参与者:弗林特密歇根州。我们还讨论了这种多层次的社区参与带来的行政挑战。最重要的是,我们提供实用的经验教训,以便未来社区参与研究,以避免或减轻许多这些挑战。
    Community-engaged research often poses challenges due to exactly those qualities that make it desirable: it provides a new model of research that differs in many ways from top-down, university-led, prospectively designed approaches. While many have discussed the challenges to conducting community-engaged research, few have provided precise and generalizable lessons for how to surmount these challenges. Here we discuss the challenges experienced in a project that was community-engaged at three levels: 1) a research team consisting of an academic and a community partner as well as a community and academic research assistant, 2) the research team engaged with a Community Advisory Board called the CBOP-CERB (Community Based Organization Partners-Community Ethics Research Board) throughout the project, and 3) the research involved recruiting community participants from an area with a historical distrust of researchers and research: Flint Michigan. We also discuss administrative challenges that this multilevel community-engagement posed. Most important, we provide practical lessons in order for future community-engaged research to avoid or mitigate many of these challenges.
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  • 文章类型: Journal Article
    社区卫生项目在改善健康问题方面发挥了至关重要的作用。倾听社区的声音和实现社区所有权对于开展有效的卫生项目至关重要。然而,关于收集框架的研究有限,聚合,并将社区偏好和价值观付诸实施。在这项研究中,我们选择了日本和柬埔寨的两个社区实地调查案例,讨论谁可以代表社区,并提出实现社区所有权的实用方法。这两个案件都涉及各种利益相关者。从这两个案例的见解来看,我们建议社区项目中的以下三个关键组成部分:社区代表,传播者,以及社区之外的研究所。值得注意的是,社区代表作为社区的直接声音的角色应该得到适当的承认和制度化,以建立社区所有权。我们提出以下社区代表资格的关键条款:他们应该能够代表社区的声音,应具有决定项目方向和管理项目的丰富经验,并且应该独立于外部行为者。我们对社区项目中不同利益相关者群体结构的理论模型将有助于加速社区能力的增强;此外,它可以帮助建立适当的社区机构和流程,包括多方利益相关者团体,以促进社区在卫生计划中的所有权。
    Community health projects have played a crucial role in improving health issues. Listening to communities\' voices and achieving community ownership are essential for conducting effective health projects. However, there are limited studies on the frameworks for collecting, aggregating, and operationalizing community preferences and values. In this study, we selected two cases of community field surveys from Japan and Cambodia to discuss who may represent a community and propose a practical approach to achieving community ownership. Both cases involved various stakeholders. From the insights of these two cases, we suggested the following three key components in the community project: the community representative, the communicator, and the institute outside the community. Notably, the community representative\'s role as the community\'s direct voice should be properly recognized and institutionalised to establish community ownership. We proposed the following key terms of the qualifications of community representatives: they should be able to represent voices from the community, should have extensive experience to decide the project direction and manage the project, and should be independent of outside actors. Our theoretical model of the structure of different stakeholder groups in community-based projects will be helpful to accelerate community capacity strengthening; moreover, it can help build the appropriate community institution and process, including multi-stakeholder groups to promote community ownership in health programs.
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  • 文章类型: Journal Article
    伙伴关系成功的测量方法(MAPS)研究小组有效地使用了基于社区的参与式研究(CBPR)方法,招募了55个长期的CBPR伙伴关系,以参与在线问卷调查,以评估与伙伴关系成功相关的因素。我们的招聘以相互关联的合作价值观为指导,透明度,并建立关系,以在整个过程中保持对CBPR原则的忠诚。我们将这些价值观实施为一系列战略,以招募伙伴关系并维持其参与,包括建立主要的联系点,提供完成激励措施,个性化招聘材料,在我们的方法中练习灵活性。我们的目标是向公共卫生研究人员通报使我们的团队能够实现100%的研究招募目标的策略。我们的建议可以被其他人应用,以加强他们的招募工作,并达到他们未来公共卫生研究的数据收集目标。
    The Measurement Approaches to Partnership Success (MAPS) study team effectively used a community-based participatory research (CBPR) approach to recruit 55 long-standing CBPR partnerships to participate in an online questionnaire to assess factors associated with partnership success. Our recruitment was guided by interconnected values of collaboration, transparency, and relationship-building to maintain fidelity to CBPR principles throughout the process. We operationalized these values into a series of strategies to recruit partnerships and sustain their involvement, including establishing primary points of contact, offering incentives for completion, personalizing recruitment materials, and practicing flexibility in our approach. We aim to inform public health researchers on the strategies that enabled our team to achieve 100% of our study recruitment goal, with the intent that our recommendations can be applied by others to enhance their recruitment efforts and reach their data collection goals for future public health research.
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    文章类型: Journal Article
    卡纳卡(夏威夷原住民),夏威夷土著人民,具有强调成为pono的重要性的健康世界观(即,正确和公正),并与我们所有的关系保持平衡。然而,夏威夷原住民的健康文献通常集中在影响夏威夷原住民社区的不成比例的健康差异上。本文的目的是提出两个案例研究,将土著研究方法与,for,和Kānaka\'iwi,超越基于社区的参与式研究(CBPR)方法,以应对确定的健康需求,for,和夏威夷原住民社区。第一个案例研究,通过Aquaponics(MALAMA),MiniAhupua\'a用于生活方式和Mea\'ai,关于后院水产养殖过程和结果的报告,开始于,for,以及Waimānalo社区,并扩展到包括其他夏威夷原住民社区。第二个案例研究,KeOlaOKa\'āina,关于\'ina连通性量表的开发和试点发现的报告,开发,for,和夏威夷原住民社区。从这些案例的过程中产生的共同主题包括建立关系的重要性,协议,和pono研究的程序,确定以社区为基础的健康优先事项和解决方案,以解决健康差距,和“走在多个世界”,以解决多个利益相关者的优先事项。公共卫生建议和影响,包括可能反对土著研究方法的经验教训和学术政策,进一步描述。
    Kānaka \'Ōiwi (Native Hawaiians), the Indigenous Peoples of Hawai\'i, have worldviews of health that emphasize the importance of being pono (ie, right and just) and maintaining balance with all our relations. Yet, the literature of health for Native Hawaiians often focuses on the disproportionate health disparities that affect the Native Hawaiian community. The purpose of this paper is to present 2 case studies that integrate Indigenous research methodologies with, for, and by Kānaka \'Ōiwi, moving beyond Community-Based Participatory Research (CBPR) approaches to respond to the health needs identified with, for, and by Native Hawaiian communities. The first case study, Mini Ahupua\'a for Lifestyle and Mea\'ai through Aquaponics (MALAMA), reports on the processes and outcomes for backyard aquaponics, which started with, for, and by the Waimānalo community and extended to include other Native Hawaiian communities. The second case study, Ke Ola O Ka \'Āina, reports on the development and pilot findings of the \'Āina Connectedness Scale, developed with, for, and by Native Hawaiian communities. Common themes resulting from the processes of these case examples include the importance of establishing relationships, protocols, and procedures for pono research, identifying community-based health priorities and solutions to address health disparities, and \"walking in multiple worlds\" to address the priorities of multiple stakeholders. Public health recommendations and implications, including lessons learned and academic policies that may counter Indigenous research methodologies, are further described.
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  • 文章类型: Journal Article
    由于布朗克斯的杰罗姆大道走廊重新分区,纽约,杰罗姆大道公共卫生工作组于2018年12月由当地民选官员召集.在纽约市卫生和精神卫生部的协助下,该工作组由来自当地公民的15个致力于组织组成的核心小组组成,政府,healthcare,和社会服务机构,以及附近的居民。努力应对不同合作伙伴面临的共同挑战,专责小组实施了有意的策略,以实现透明的沟通并应对动力动态。从这个高效运作的联盟中吸取的最佳做法和经验教训可以作为今后致力于卫生和社区规划的多部门集体行动的典范。
    As a result of the Jerome Avenue Corridor re-zoning in Bronx, New York, the Jerome Avenue Public Health Task-force was convened by local elected officials in December 2018. Facilitated by the New York City Department of Health and Mental Hygiene, the taskforce consists of a core group of 15 committed organizations from local civic, government, healthcare, and social service agencies, as well as neighborhood residents. Striving to address common challenges faced by diverse partners, the taskforce implemented intentional strategies to enable transparent communication and tackle power dynamics. Best practices and lessons learned from this high-functioning coalition can serve as a model for future multi-sector collective action dedicated to health and community planning.
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  • 文章类型: Journal Article
    经济困难学生的数学成绩仍然很低,尽管研究取得了积极进展,教育学,和资金。在当前的论文中,我们专注于研究到实践的分歧,作为可能的罪魁祸首。我们的论点是,城市贫困学校缺乏部署可信赖的假设检验方法所必需的稳定性。因此,需要一种能够适应不稳定性的疗效方法.
    我们探索这种方法的细节,建立在已经存在的解放方法上。提出的基于解决方案的研究(SBR)的核心是对参与学生学习的承诺。这一承诺辅之以优势和劣势分析,以减少研究人员的偏见。并辅以对特殊因素的分析,以确定泛化性。作为概念的证明,我们尝试了SBR来测试课后数学课程的功效。
    我们发现SBR产生了关于学习机会和障碍的见解,否则将不知道。同时,我们发现假设检验在建立泛化方面仍然优越。
    我们的发现要求进一步研究如何在固有的不稳定环境中建立泛化性。
    UNASSIGNED: Math achievement for economically disadvantaged students remains low, despite positive developments in research, pedagogy, and funding. In the current paper, we focused on the research-to-practice divide as possible culprit. Our argument is that urban-poverty schools lack the stability that is necessary to deploy the trusted methodology of hypothesis-testing. Thus, a type of efficacy methodology is needed that could accommodate instability.
    UNASSIGNED: We explore the details of such a methodology, building on already existing emancipatory methodologies. Central to the proposed solution-based research (SBR) is a commitment to the learning of participating students. This commitment is supplemented with a strength-and-weaknesses analysis to curtail researcher bias. And it is supplemented with an analysis of idiosyncratic factors to determine generalizability. As proof of concept, we tried out SBR to test the efficacy of an afterschool math program.
    UNASSIGNED: We found the SBR produced insights about learning opportunities and barrier that would not be known otherwise. At the same time, we found that hypothesis-testing remains superior in establishing generalizability.
    UNASSIGNED: Our findings call for further work on how to establish generalizability in inherently unstable settings.
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  • 文章类型: Journal Article
    联合国评估:加拿大的土著社区对长期的粮食主权和在其人民中恢复与传统粮食有关的技能感到担忧。学习圈:当地食品到学校(LF2S)是一个创新的社区项目,致力于促进多部门伙伴关系,专注于食物。在主持人的指导下,学习圈(LC)将感兴趣的社区成员聚集在一起,计划和实施旨在加强与当地联系的活动,健康,和学校社区的传统食物。
    UNASSIGNED:本文描述了上下文,process,和与食物相关的结果在HaidaGwaii(HG)的LC,不列颠哥伦比亚省,加拿大并评估了对当地粮食系统过渡的看法,食品素养,以及与LC相关的社区能力。
    UNASSIGNED:2016年至2018年之间收集的资料来源包括对社区成员和学习圈协调员(LCC)的年度半定向采访(n=24)。流程报告(例如,reports,电话会议,食品采购和跟踪数据)(n=62个文件),和照片(n=75)。数据进行了主题分析。
    UNASSIGNED:HG拥有丰富的美食环境和充满活力的当地和传统饮食文化。在2013年LC启动之前,已经开展了各种与当地食品有关的活动,到2016年,该计划已牢固建立。在2016年至2019年之间,HG的活动集中在学校(例如,采购当地,健康食品和通过学校发展传统技能)和开拓当地食品储藏室。与会者重视增加获得当地和传统食品的机会,以及培养青年知识和技能的机会。值得注意的是,LC进程的成功包括过渡到海达领导和促进关系。
    UNASSIGNED:LC模型的固有灵活性意味着社区可以优先考虑感兴趣的活动。HG中LC模型的演变为其他致力于增强粮食主权的社区提供了灵感。
    UNASSIGNED: Indigenous communities in Canada are concerned about long-term food sovereignty and the reclamation of traditional food-related skills among their people. Learning Circles: Local Food to School (LF2S) was an innovative community-based project that worked to promote multisectoral partnerships, focused on food. Guided by a facilitator, the Learning Circle (LC) brought together interested community members to plan and implement activities aimed at enhancing access to local, healthy, and traditional foods for school communities.
    UNASSIGNED: The article describes the context, process, and food-related outcomes of the LC in Haida Gwaii (HG), British Columbia, Canada and evaluates perceptions of the transition in local food systems, food literacy, and community capacity associated with the LC.
    UNASSIGNED: The sources that were gathered between 2016 and 2018 included annual semidirected interviews with community members and the Learning Circle Coordinator (LCC) (n = 24), process reporting (e.g., reports, conference calls, food sourcing and tracking data) (n = 62 documents), and photographs (n = 75). Data were analyzed thematically.
    UNASSIGNED: HG has a rich food environment and a vibrant local and traditional food culture. A variety of local food-related activities had been taking place before the launch of the LC in 2013, and by 2016 the initiative was firmly established. Between 2016 and 2019, activities in HG focused on schools (e.g., sourcing local, healthy food and developing traditional skills through schools) and pioneering local food pantries. Participants valued increased access to local and traditional foods and opportunities to build youth knowledge and skills. Noted successes of the LC process included transitioning to Haida leadership and fostering relationships.
    UNASSIGNED: The inherent flexibility of the LC model means that communities can prioritize activities of interest. The evolution of the LC model in HG is an inspiration for other communities working to enhance food sovereignty.
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  • 文章类型: Journal Article
    在这篇文章中,我们分享了在美国三个地区实施的虚拟青年photovoice计划的定性案例研究的结果。该计划的目的是在以两次公共卫生危机为标志的前所未有的一年中,让青年参与与他们相关的社会问题的研究,COVID-19和反黑人种族暴力。对课程和档案计划材料的分析结果为青年参与的在线策略提供了支持,包括个性化支持和带有化身的在线视听演示。种族正义和基于创伤的适应旨在满足青年对灵活编程和安全空间的需求。在第一个在线青少年照片库中捕获的主题包括(1)心理健康工具,(2)有意义的联系,(3)社区宣传,关注结构性问题以及家庭和社区优势。研究结果表明,photovoice可以为青年研究人员进行深思熟虑的调整,并支持个人和团体讲故事,以应对集体创伤。
    In this article, we share findings from a qualitative case study of a virtual youth photovoice program implemented across three regions of the United States. The purpose of the program was to engage youth in research on a social issue relevant to them during an unprecedented year marked by two public health crises, COVID-19 and anti-Black racial violence. Results of an analysis of curriculum and archival program materials lend support for online strategies for youth engagement including individualized support and online audiovisual presentations with avatars. Racial justice and trauma-informed adaptations were designed to be responsive to youth needs for flexible programming and safe spaces. Themes captured in the first online gallery of youth photos include (1) tools for mental health, (2) meaningful connection, and (3) community advocacy, bringing attention to structural issues as well as family and community strengths. Findings suggest photovoice can be thoughtfully adapted for youth researchers and support individual and group storytelling in response to collective trauma.
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