背景:感觉异常痛(NP)是一种神经性瘙痒,其特征是背部中部复发性瘙痒。关于NP的大部分仍不清楚,尤其是病人的经验。
目标:神经性瘙痒患者调查(NIRVE)是一项全球性的,从患者的角度进行在线调查,以更好地表征神经性瘙痒的症状负担。
患者和方法:本报告侧重于自我报告诊断为NP的NIRVE参与者亚群的症状负担(N=91)。受访者报告说,在接受NP的准确诊断之前,他们的症状平均访问了2个医疗保健提供者(HCP)。
结果:最常见的皮肤症状是瘙痒/瘙痒,敏感皮肤,疼痛或生皮肤,麻木,还有刺痛.大多数受访者目前报告的症状包括瘙痒/瘙痒,麻木,疼痛或生皮肤,刺痛,和灼热的感觉。在目前出现症状的患者中,麻木和瘙痒/瘙痒被列为最严重的,接着是刺痛,灼热或热的感觉,然后是疼痛或生的皮肤。大多数患者在接受病情诊断之前会咨询多个医疗保健提供者(HCP)。
结论:瘙痒是该病最普遍的症状,尽管有一半的患者报告也经历了敏感的皮肤,疼痛或生皮肤,麻木,或刺痛。
Background: Notalgia paresthetica (NP) is a form of neuropathic itch characterized by recurrent itch in the mid back. Much about NP remains unclear, especially the patient experience.
Objectives: The Neuropathic Itch Patient Survey (NIRVE) was a global, online survey conducted to better characterize the symptom burden of neuropathic itch from the patient perspective.
Patients and methods: This report focuses on the symptom burden of the subpopulation of NIRVE participants with a self-reported diagnosis of NP (N = 91). Respondents reported visiting a median of 2 healthcare providers (HCPs) for their symptoms before receiving an accurate diagnosis of NP.
Results: The most common cutaneous symptoms ever experienced were itch/pruritus, sensitive skin, painful or raw skin, numbness, and tingling. The symptoms reported by the most respondents as currently being experienced included itch/pruritus, numbness, painful or raw skin, tingling, and burning or hot sensation. Of patients currently experiencing symptoms, numbness and itch/pruritus were ranked as the most intense, followed by tingling, burning or hot sensation, and then painful or raw skin. Most patients consult multiple healthcare providers (HCPs) before receiving a diagnosis for their condition.
Conclusion: Itch is overwhelmingly the most prevalent symptom of the condition, although half of patients also report experiencing sensitive skin, painful or raw skin, numbness, or tingling.