PDF(Pubmed)
Abstract：
Atopic dermatitis (AD) is a chronic and fluctuating disease. Optimal management of AD and related comorbidities requires seamless coordination across multiple layers of the healthcare system. The objective of this survey was to explore patients\' experiences with current management of AD. Out of 251 responders to this anonymous survey, 76% reported to have moderate or severe AD. Sixty-nine percent with moderate and 45% with severe AD were followed up at primary care level only. Use of advanced systemic treatment options was rare, and the majority experienced itch (97%), dry skin, rash, negative impact on self-esteem and comorbidities despite ongoing treatment. Only 36% received a treatment plan, more often in secondary (78.3%) than primary care (25.0%). Forty-three percent did not know who was responsible for their follow-up and 54% felt no one was responsible. Treatment options were commonly not known or understood. The survey results demonstrate undertreatment, lack of a holistic approach for management of AD. A national pathway including clear referral criteria and timelines can streamline management of AD across multiple levels of the healthcare system.
摘要：
特应性皮炎（AD）是一种慢性和波动性疾病。AD和相关合并症的最佳管理需要跨医疗保健系统的多个层的无缝协调。这项调查的目的是探讨患者目前管理AD的经验。在这个匿名调查的251名回应者中，76%报告患有中度或重度AD。仅在初级保健水平随访了69％的中度AD和45％的重度AD。使用先进的系统治疗方案很少，和大多数经历瘙痒（97％），皮肤干燥,皮疹,尽管正在进行治疗，但对自尊和合并症的负面影响。只有36%的人接受了治疗计划，二级保健(78.3%)比初级保健(25.0%)更常见。43%的人不知道谁负责他们的后续行动，54%的人认为没有人负责。通常不知道或不了解治疗选择。调查结果显示治疗不足,缺乏全面的AD管理方法。包括明确的转诊标准和时间表的国家途径可以简化医疗保健系统多个级别的AD管理。
