patient survey

患者调查
  • 文章类型: Journal Article
    了解患者对正颌手术的动机和期望是围手术期评估的关键方面。因为这些因素已被证明会影响患者对手术结果的满意度.
    连续接受三级口腔颌面外科医生正颌手术的患者进行了两次结构化访谈,以探讨他们进行正颌手术的术前动机,他们对手术及其结果的术后反思。访谈被逐字转录,并使用主题分析进行分析。
    招募了18名患者,术后完成7次访谈。术前主题描述了患者对美学改善的希望,社会情感的改善,功能改善和减少疼痛,以及对手术风险的担忧,手术恢复和外观变化。术后主题描述了具有挑战性的恢复过程,缺乏遗憾和功能性,审美和社会情感的改善。
    正颌手术患者的动机可能是功能性的,手术前的审美和社会情感改善。
    UNASSIGNED: Understanding patient motivations and expectations of orthognathic surgery are critical aspects of the perioperative assessment, as these factors have been demonstrated to influence patient satisfaction with surgical outcomes.
    UNASSIGNED: Consecutive patients undergoing orthognathic surgery by a tertiary oral and maxillofacial surgeon underwent two structured interviews to explore their pre-operative motivations for orthognathic surgery, their post-operative reflections on the surgery and their outcomes. Interviews were transcribed verbatim and analysed using thematic analysis.
    UNASSIGNED: Eighteen patients were recruited and interviewed preoperatively, and seven completed interviews postoperatively. Pre-operative themes describe patient hopes for aesthetic improvements, socio-emotional improvements, functional improvements and reduced pain, as well as fears about surgical risks, surgical recovery and changing appearance. Post-operative themes describe the challenging recovery process, the absence of regrets and functional, aesthetic and socio-emotional improvements.
    UNASSIGNED: Orthognathic surgery patients may be motivated by functional, aesthetic and socio-emotional improvements before surgery.
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  • 文章类型: Journal Article
    背景:患者体验调查通过众多调查项目收集有关护理各个方面的信息。确定患者体验的最关键领域以优先考虑质量护理改进可能具有挑战性。这项研究的目的是确定哪些护理经验项目是影响患者癌症护理总体评级的驱动因素。
    方法:分析了来自瑞士癌症患者经验第二波研究的2750名成年癌症患者的数据。这项横断面调查于2021年9月至2022年2月在八家瑞士医院进行。逐步逻辑回归检查了总体护理评级与29个患者经验项目之间的关系,涵盖了以患者为中心的不同护理维度,同时针对社会人口统计学和健康变量进行了调整。
    结果:总体而言,患者对他们的癌症护理经验的评分为8.9/10.逐步回归确定了对整体护理评级有贡献的七个驱动因素。最强的车手是“专业人士合作得很好”(赔率比[OR],4.81)和“没有重复测试”(或,2.09)从协调和整合的维度来看,“为治疗期间的症状提供支持”(或,2.11)从物理舒适维度来看,其次是“医院工作人员确保可用的家庭支持”(或,1.99),“提出要去看卫生专业人员”(或者,1.91),“解释了治疗方案”(或,1.75),和“根据需要参与治疗决策”(或,1.68).
    结论:本研究使用综合工具评估了癌症患者的护理经验,该工具确定了与整体护理评级独立相关的七个关键因素。通过专注于这些领域,医院不仅可以改善患者护理体验,还可以有效地将资源分配到质量改进计划中。
    BACKGROUND: Patient experience surveys gather information on various aspects of care via numerous survey items. Identifying the most critical areas of patient experience to prioritize for quality care improvement can be challenging. The objective of this study was to determine which care experience items are the drivers influencing patients\' overall rating of cancer care.
    METHODS: Data from 2750 adult patients with cancer from the second wave of the Swiss Cancer Patient Experiences study were analyzed. This cross-sectional survey was conducted in eight Swiss hospitals from September 2021 to February 2022. Stepwise logistic regression examined the relationship between overall care rating and 29 patient experience items covering different patient-centered care dimensions while adjusting for sociodemographic and health variables.
    RESULTS: Overall, patients rated their cancer care experience at 8.9 out of 10. Stepwise regression identified seven drivers contributing to overall care rating. The strongest drivers were \"professionals worked well together\" (odds ratio [OR], 4.81) and \"tests were not repeated\" (OR, 2.09) from the coordination and integration dimension, \"offered support for symptoms during treatment\" (OR, 2.11) from the physical comfort dimension, followed by \"hospital staff ensured available home support\" (OR, 1.99), \"offered to see health professional for concerns\" (OR, 1.91), \"treatment options were explained\" (OR, 1.75), and \"involved in treatment decisions as desired\" (OR, 1.68).
    CONCLUSIONS: This study evaluated the care experiences of patients with cancer with a comprehensive tool that identified seven key factors independently associated with overall care rating. By concentrating on these areas, hospitals can not only improve the patient care experience but also efficiently allocate resources to quality improvement initiatives.
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  • 文章类型: Journal Article
    背景:为了评估新的救援是否意味着“社区紧急护理人员”(Gemeindenotfallsanitäter[G-NFS])在低优先级紧急情况的护理中解除紧急医疗服务(EMS),作为创新基金项目的一部分,我们还在一份书面问卷中调查了全科医生和患者的观点.事实证明,参加这项研究的招聘很困难。这项研究的目的是评估为什么G-NFS决定不提供有关研究参与的信息,以及将来有必要采取哪些措施将更多的急诊患者纳入调查。
    方法:对2021年4月1日至2022年6月30日的分配方案进行回顾性分析。除了患者的特点,治疗数据,收集了对患者的干预措施和建议以及未参与患者调查的原因.
    结果:5,395G-NFS协议包含了非参与信息。患者的平均年龄为62.4岁(SD22.7),50.2%为女性。57.4%的病例被归类为非紧急,35.2%的病例需要额外的救护车报警。404(7.5%)患者多次使用EMS,1,120(20.8%)没有足够的语言技能,1,012名(18.8%)患者拒绝参与研究,根据G-NFS评估,2,975例(55.1%)患者无法参加。痴呆/神经认知障碍(35%),急性/紧急情况(26.5%),精神健康损害(10.3%),从G-NFS的角度来看,药物滥用(6.5%)是不参与的原因。
    结论:结果显示,超过一半的患者由于各种原因无法参加书面调查,即使不需要紧急护理。这可能是由于对护理的高需求和复杂的同意程序。此外,需要更多资源为这些患者提供基于需求的护理,以减轻紧急医疗护理的负担。超过一半的患者由于各种原因无法参加书面调查。需要进一步的研究来确定哪些同意程序适合于患者参与研究。
    BACKGROUND: In order to evaluate whether the new rescue means \"community emergency paramedics\" (Gemeindenotfallsanitäter [G-NFS]) relieves the emergency medical service (EMS) in the care of low-priority emergencies, the perspective of general practitioners and patients was also surveyed in a written questionnaire as part of an innovation fund project. Recruitment for participation in the study proved to be difficult. The aim of this study is to evaluate why the G-NFS decided against providing information on study participation and what measures would be necessary to include more emergency patients in surveys in the future.
    METHODS: Retrospective analysis of the assignment protocols from April 1, 2021 to June 30, 2022. In addition to patient characteristics, data on treatments, interventions and recommendations to patients as well as reasons for non-participation in the patient survey were collected.
    RESULTS: 5,395 G-NFS protocols that contained information on non-participation were included in the analysis. The average age of the patients was 62.4 years (SD 22.7), and 50.2% were female. 57.4% of the cases were categorised as non-urgent, and 35.2% of the cases required an additional ambulance to be alerted. 404 (7.5%) patients used the EMS more than once, 1,120 (20.8%) did not have sufficient language skills, 1,012 (18.8%) patients declined study participation, and 2,975 (55.1%) patients were not able to participate according to the G-NFS assessment. Dementia/neurocognitive impairment (35%), acute/emergency situation (26.5%), mental health impairment (10.3%), and substance abuse (6.5%) were given as reasons for non-participation from the G-NFS perspective.
    CONCLUSIONS: The results show that more than half of the patients were unable to take part in a written survey for various reasons, even though there was no need for urgent care. This could be due to a high demand for care and the complex consent procedure. In addition, further resources are required to provide needs-based care for these patients in order to relieve the burden on emergency medical care. Over half of the patients were unable to take part in a written survey for various reasons. Further research is needed to determine what consent procedures are appropriate to facilitate patients\' study participation.
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  • 文章类型: Clinical Trial
    背景:心房颤动(AF)的导管消融(CA)后的当日放电(SDD)已经在欧洲的某些设施中引入,但尚未成功实施。缺乏关于患者观点的数据。因此,我们进行了一项调查,以解决患者对SDD的信念,并确定与他们的评估相关的变量。
    结果:作为预期的一部分,单中心快速AFA试验,年龄≥20岁接受左心房CA治疗的房颤患者被要求参加由研究特定问卷组成的调查,房颤知识量表和预定义的PROM。根据SDD意愿对研究队列进行分层,并使用逻辑回归分析来确定患者评估的预测因素。2021年7月26日至2022年7月1日,376名接受筛查的患者中有256名同意参与研究,其中248名(平均年龄61.8岁,33.9%的女性)完成了SDD调查。其中,50.0%的人愿意将SDD概念整合到他们的临床过程中,增加患者的舒适度(27.5%)。更短的等待时间(14.6%)和具有成本效益的治疗(14.0%)是可以想象的好处。相比之下,表达的担忧包括投诉的不确定性(50.6%),以及对并发症的认识不足(47.8%)和治疗不足(48.9%)。基线时的EHRA等级和前一年的住院患者治疗是SDD意愿的预测因子,而共病负担或房颤知识则不是。
    结论:我们提供了详细的调查,表达了患者对左心房CA后SDD的信念。我们的发现可能有助于适当的患者选择,以改善未来在合适的队列中实施SDD计划。
    Same-day discharge (SDD) following catheter ablation (CA) of atrial fibrillation (AF) was already introduced in selected facilities in Europe, but a widespread implementation has not yet succeeded. Data on patients\' perspectives are lacking. Therefore, we conducted a survey to address patients\' beliefs towards SDD and identify variables that are associated with their evaluation.
    As part of the prospective, monocentric FAST AFA trial, patients aged ≥20 years undergoing left atrial CA for AF were asked to participate in the survey consisting of a study-specific questionnaire, the AF knowledge scale, and pre-defined patient-reported outcome measures. The study cohort was stratified based on SDD willingness, and a logistic regression analysis was used to identify predictors for patients\' valuation. Between 26 July 2021 and 01 July 2022, 256 of 376 screened patients consented to study participation of whom 248 (mean age 61.8 years, 33.9% female) completed the SDD survey. Of them, 50.0% were willing to have SDD concepts integrated into their clinical course with increased patient comfort (27.5%), shorter waiting times (14.6%), and a cost-efficient treatment (14.0%) being imaginable benefits. In contrast, expressed concerns included uncertainties with occurring complaints (50.6%), the insufficient recognition (47.8%), and treatment (48.9%) of complications. European Heart Rhythm Association class at baseline and inpatient treatments within the preceding year were predictors for SDD willingness whereas comorbidity burden or AF knowledge were not.
    We provide a detailed survey expressing patients\' beliefs towards SDD following left atrial CA. Our findings may facilitate adequate patient selection to improve the future implementation of SDD programs in suitable cohorts.
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  • 文章类型: Observational Study
    描述和表征治疗模式,满意,非处方药(OTC)Voltaren凝胶双氯芬酸(VGD)使用者的疼痛和功能障碍(与健康相关的生活质量[HRQoL])改善2.32%和1.16%。
    这项观察现实世界的德国研究具有前瞻性和回顾性组成部分。前瞻性数据是从购买VGD的成年人完成的电子调查中收集的,这些成年人在基线和基线后4和12周治疗他们的肌肉骨骼疼痛。回顾性数据来自特定德国药房使用的配药软件平台的12个月(2019年3月至2020年2月)抽象。
    对467名参与者(平均年龄60.8岁)的调查进行了分析。基线时的平均疼痛严重程度在11点数字评定量表上为6.0(0=无疼痛,10=最可能的疼痛),在第4周和第12周分别提高0.8和1.2分。在两个随访时间点,功能活动(日常/身体/社交活动和差事/杂务)的表现得到改善,并且至少受到中度干扰的参与者比例下降。回顾性分析显示,大多数接受VGD的患者(n=95,085)年龄≥65岁(67.9%),有一个分配管(70.8%)和没有切换到另一个局部治疗(包括其他NSAIDs)(77.3%),和共同处方至少一种心血管药物(74.3%)。
    这项研究首次提供了在德国使用OTCVGD的真实见解。使用VGD的参与者报告在治疗期间疼痛严重程度降低和HRQoL改善,以及对治疗的满意度。患者很少转换为替代局部疗法/NSAIDs。
    Describe and characterize treatment patterns, satisfaction, improvement in pain and functional impairment (health-related quality of life [HRQoL]) in users of over the counter (OTC) Voltaren gel diclofenac (VGD) 2.32% and 1.16% in a real-world setting.
    This observational real-world German study had prospective and retrospective components. The prospective data were collected from electronic surveys completed by adults who purchased VGD to treat their musculoskeletal pain at baseline and 4 and 12 weeks after baseline. Retrospective data were from a 12-month (March 2019 to February 2020) abstraction from dispensing software platforms used in select German pharmacies.
    Surveys from 467 participants (mean age 60.8 years) were analyzed. Average pain severity at baseline was 6.0 on an 11-point Numeric Rating Scale (0 = no pain, 10 = worst possible pain), improving by 0.8 and 1.2 points at Weeks 4 and 12, respectively. Performance of functional activities (daily/physical/social activities and errands/chores) improved and the proportion of participants with at least moderate interference decreased at both follow-up timepoints. Retrospective analyses indicated that majority of patients receiving VGD (n = 95,085) were ≥65 years old (67.9%), had one dispensed tube (70.8%) and did not switch to another topical treatment (including other NSAIDs) (77.3%), and were co-prescribed at least one cardiovascular medication (74.3%).
    This study provides the first real-world insights into OTC VGD use in Germany. The participants using VGD reported a decrease in pain severity and an improvement of HRQoL while under treatment, as well as resulting satisfaction with treatment. Patients infrequently switched to alternate topical therapies/NSAIDs.
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  • 文章类型: Observational Study
    背景:新出现的数据表明,患者满意度数据存在固有的偏见,对女医生产生负面影响。
    目的:在门诊妇科护理的多机构研究中,描述PressGaney患者满意度调查与医生性别之间的关联。
    方法:这是一个多站点,观察,基于人群的调查研究使用了PressGaney患者满意度调查的结果,该调查来自5个不相关的社区和学术医疗机构,在2020年1月至2022年4月期间进行了妇科门诊就诊.主要结果变量是推荐医生的可能性,个人调查反应作为分析单位。通过调查收集患者的人口统计数据,包括自我报告的年龄,性别,和种族/民族(归类为白人,亚洲人,或者在医学中代表性不足,将黑色组合在一起,西班牙裔/拉丁裔,美洲印第安人或阿拉斯加原住民,和夏威夷或太平洋岛民)。人口统计学之间的双变量比较(医生性别,患者和医生年龄四分位数,患者和医生种族)和推荐可能性使用由医生聚类的广义估计方程模型进行评估。赔率比,95%置信区间,报告了这些分析的p值,并且在p<0.05时认为结果具有统计学意义。使用SAS进行分析(版本9.4,SASInstituteInc.,凯里,NC)。
    结果:数据来自130名医生的15,184次调查,大多数是女性(n=95,73%)和白人(n=98,75%),患者也主要是白人(n=10,495,69%)。一半以上的访问是种族和谐的,这意味着患者和医生都报告了相同的种族(57%)。女医生不太可能获得topbox调查评分(74%vs77%),在多变量模型中,获得topbox评分的几率降低了19%(95%CI:0.69-0.95)。患者年龄与评分有统计学意义的关系,与年龄最小的患者相比,63岁及以上的患者提供topbox评分的几率增加了三倍以上(OR=3.10,95%CI=2.12-4.52)。调整后,患者和医生的种族/种族对推荐分数的可能性的可能性有相似的影响,与白人医师和患者相比,亚裔医师和亚裔患者推荐评分的可能性较低(OR=0.89,95%CI=0.81-0.98,OR=0.62,95%CI=0.48-0.79).医学医师和患者中代表性不足的患者显示出推荐得分的可能性(OR=1.27,95%CI=1.21-1.33和OR=1.03,95%CI=1.01-1.06)。医生年龄四分位数与推荐得分的可能性无关。
    结论:女性妇科医生获得最高患者满意度评分的可能性比男性低18%。使用新闻Ganey患者满意度调查结果进行基于人群的调查研究。这些问卷的结果应针对偏倚进行调整,因为它们提供了当前用于理解以患者为中心的护理的数据。
    Emerging data suggest that patient satisfaction data are subject to inherent biases that negatively affect women physicians.
    This study aimed to describe the association between the Press Ganey patient satisfaction survey and physician gender in a multi-institutional study of outpatient gynecologic care.
    This was a multisite, observational, population-based survey study using the results of Press Ganey patient satisfaction surveys from 5 unrelated community-based and academic medical institutions with outpatient gynecology visits between January 2020 and April 2022. The primary outcome variable was the likelihood to recommend a physician, and individual survey responses served as the unit of analysis. Patient demographic data were collected through the survey, including self-reported age, gender, and race and ethnicity (categorized as White, Asian, or Underrepresented in Medicine, which groups together Black, Hispanic or LatinX, American Indian or Alaskan Native, and Hawaiian or Pacific Islander). Bivariate comparisons between demographics (physician gender, patient and physician age quartile, patient and physician race) and likelihood to recommend were assessed using generalized estimating equation models clustered by physician. Odds ratios, 95% confidence intervals, and P values for these analyses are reported, and results were considered statistically significant at P<.05. Analysis was performed using SAS, version 9.4 (SAS Institute Inc., Cary, NC).
    Data were obtained from 15,184 surveys for 130 physicians. Most physicians were women (n=95 [73%]) and White (n=98 [75%]), and patients were also predominantly White (n=10,495 [69%]). A little over half of all visits were race-concordant, meaning that both patient and physician reported the same race (57%). Women physicians were less likely to receive a topbox survey score (74% vs 77%) and in the multivariate model had 19% lower odds of receiving a topbox score (95% confidence interval, 0.69-0.95). Patient age had a statistically significant relationship with score, with patients aged ≥63 years having >3-fold increase in odds of providing a topbox score (odds ratio, 3.10; 95% confidence interval, 2.12-4.52) compared with the youngest patients. After adjustment, patient and physician race and ethnicity showed similar effects on the odds of a topbox likelihood-to-recommend score, with Asian physicians and Asian patients having lower odds of a topbox likelihood-to-recommend score when compared with White physicians and patients (odds ratio: 0.89 [95% confidence interval, 0.81-0.98] and 0.62 [95% confidence interval, 0.48-0.79], respectively). Underrepresented in medicine physicians and patients showed significantly increased odds of a topbox likelihood-to-recommend score (odds ratio: 1.27 [95% confidence interval, 1.21-1.33] and 1.03 [95% confidence interval, 1.01-1.06], respectively). The physician age quartile was not significantly associated with odds of a topbox likelihood-to-recommend score.
    Women gynecologists were 18% less likely to receive top patient satisfaction scores compared with men in this multisite, population-based survey study using the results of Press Ganey patient satisfaction surveys. The results of these questionnaires should be adjusted for bias given that they provide data currently being used to understand patient-centered care.
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  • 文章类型: Journal Article
    背景:聊天机器人具有增强医疗保健互动的潜力,满意,和服务交付。然而,在不同患者人群中关于其接受度的数据有限.缺乏对慢性自身免疫性炎症性疾病患者接受聊天机器人的深入研究,尽管这些研究对于促进聊天机器人在风湿病护理中的有效整合至关重要。
    目的:我们旨在评估患者对设计用于自身免疫性炎症性风湿性疾病(AIIRD)的聊天机器人的看法和接受程度。
    方法:我们在顶级风湿病转诊中心的门诊进行了一项综合调查。目标队列包括与明确定制的聊天机器人进行交互以促进诊断并获得有关AIRD的信息的患者。在RE-AIM(到达,有效性,收养,实施和维护)框架,这项调查旨在衡量有效性,用户可接受性,和聊天机器人的实现。
    结果:在2022年6月至10月之间,我们收到了200名患者的调查回复,进行同等数量的100次初步磋商和100次后续(FU)访问。5分可接受性量表的平均得分范围为4.01(SD0.63)至4.41(SD0.54),表明在聊天机器人性能的不同方面一直都有很高的评价。多变量回归分析表明,FU访问与重复使用聊天机器人进行症状确定的更大意愿显着相关(P=0.01)。Further,与医生会面后,患者对chatbot诊断的舒适度显着增加(P<.001)。我们观察到,根据性别,聊天机器人的接受度没有显着差异,教育水平,或诊断类别。
    结论:这项研究强调了为AIRD量身定制的聊天机器人具有良好的接受度。FU患者与聊天机器人接触的倾向表明过去的临床接触和医生肯定对其使用的可能影响。尽管需要进一步探索以完善它们的集成,普遍的积极看法表明,聊天机器人有可能加强患者和医疗保健提供者之间的桥梁,从而增强风湿病护理对各种队列的交付。
    BACKGROUND: Chatbots have the potential to enhance health care interaction, satisfaction, and service delivery. However, data regarding their acceptance across diverse patient populations are limited. In-depth studies on the reception of chatbots by patients with chronic autoimmune inflammatory diseases are lacking, although such studies are vital for facilitating the effective integration of chatbots in rheumatology care.
    OBJECTIVE: We aim to assess patient perceptions and acceptance of a chatbot designed for autoimmune inflammatory rheumatic diseases (AIIRDs).
    METHODS: We administered a comprehensive survey in an outpatient setting at a top-tier rheumatology referral center. The target cohort included patients who interacted with a chatbot explicitly tailored to facilitate diagnosis and obtain information on AIIRDs. Following the RE-AIM (Reach, Effectiveness, Adoption, Implementation and Maintenance) framework, the survey was designed to gauge the effectiveness, user acceptability, and implementation of the chatbot.
    RESULTS: Between June and October 2022, we received survey responses from 200 patients, with an equal number of 100 initial consultations and 100 follow-up (FU) visits. The mean scores on a 5-point acceptability scale ranged from 4.01 (SD 0.63) to 4.41 (SD 0.54), indicating consistently high ratings across the different aspects of chatbot performance. Multivariate regression analysis indicated that having a FU visit was significantly associated with a greater willingness to reuse the chatbot for symptom determination (P=.01). Further, patients\' comfort with chatbot diagnosis increased significantly after meeting physicians (P<.001). We observed no significant differences in chatbot acceptance according to sex, education level, or diagnosis category.
    CONCLUSIONS: This study underscores that chatbots tailored to AIIRDs have a favorable reception. The inclination of FU patients to engage with the chatbot signifies the possible influence of past clinical encounters and physician affirmation on its use. Although further exploration is required to refine their integration, the prevalent positive perceptions suggest that chatbots have the potential to strengthen the bridge between patients and health care providers, thus enhancing the delivery of rheumatology care to various cohorts.
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  • 文章类型: Journal Article
    ATLASASMA从患者的角度描述了哮喘对患者的社会心理影响“日常生活”(就受损的个人和亲密关系而言,睡眠质量,休闲时间,日常活动,和其他人)在西班牙。次要目标包括自诊断以来的时间描述,期望,以及患者对疾病的满意度,得到的治疗和医疗援助,坚持治疗,对哮喘的感知控制,和健康相关的生活质量。
    这是一个横截面,观察性研究,基于一项针对成人(≥18岁)哮喘患者的自我在线调查。连续纳入通过网络链接自愿参与调查的任何类型和严重程度的哮喘诊断患者。在目前的手稿中,仅包括成人患者数据。
    共纳入132名患有哮喘的成年人。中度/重度哮喘占患者的59.1%(女性71.2%)。总的来说,受哮喘影响的最相关领域是休闲活动(67.0%)和睡眠质量/数量(52.3%)。中度/重度患者感觉到一定程度的工作障碍,学校,或在家中因哮喘较轻度患者更频繁(55.2%vs10.9%)。有41例(70.7%)和10例(21.7%)中度/重度和轻度患者(p<0.000)报告哮喘控制不佳(ACT≤19),分别。轻度患者获得的Mini-AQLQ平均(SD)评分高于中度/重度哮喘患者(5.6[1.0]vs4.3[1.1],p<0.000),同样,每个维度的显著结果也更高。大多数患者对紧张努力的限制很小(20.5%)。一半的患者提到需要更多关于哮喘的信息。那些患者喜欢有更多信息的话题是可能有的困难和法律话题(78.6%),哮喘演变(78.6%),次要影响或与治疗相关的问题(61.9%)和法律主题(61.9%)。
    该研究报告了哮喘对患者日常生活的心理社会影响的重要见解,以及哮喘相关健康结局的健康决定因素,社会人口统计学和心理社会因素。
    UNASSIGNED: ATLAS ASMA described the psychosocial impact of asthma on patients\' daily life from patients\' perspectives (in terms of impaired personal and intimate relationships, sleep quality, leisure time, daily activities, and others) in Spain. Secondary objective includes description of time since diagnosis, expectations, and satisfaction of patients about disease, treatment and medical assistance received, adherence to treatment, perceived control of asthma, and health-related quality of life.
    UNASSIGNED: This was a cross-sectional, observational study, based on a self-administered online survey for adult patients (≥18 years) with asthma. Patients with asthma diagnosis of any type and severity who voluntarily participated in the survey through a web link were included consecutively. In the present manuscript, only adult patients\' data are included.
    UNASSIGNED: A total of 132 adults with asthma were included. Moderate/severe asthma constituted 59.1% of the patients (females 71.2%). Overall, most relevant areas affected due to asthma were leisure activities (67.0%) and the quality/quantity of sleep (52.3%). Moderate/severe patients perceived some degree of impairment in work, school, or at home due asthma more frequently vs mild patients (55.2% vs 10.9%). Poorly controlled asthma (ACT≤19) was reported in 41 (70.7%) and 10 (21.7%) moderate/severe and mild patients (p<0.000), respectively. Mild patients obtained higher mean (SD) Mini-AQLQ score than moderate/severe asthma patients (5.6 [1.0] vs 4.3 [1.1], p<0.000), likewise higher significant results for every individual dimension. Most patients cited little limitation to intense efforts (20.5%). Half of the patients mentioned needing more information about asthma. Topics those patients like to have more information were difficulties that may can have and legal topics (78.6%), asthma evolution (78.6%), secondary effects or issues related to the treatment (61.9%) and legal topics (61.9%).
    UNASSIGNED: The study reported important insights on psychosocial impact of asthma on patients\' daily life from patients\' perspectives along with health determinants in asthma-related health outcomes, sociodemographic and psychosocial factors.
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  • 文章类型: Journal Article
    背景:放射治疗几乎完全由放射治疗师/放射治疗师(RTT)提供。患者对RTT的看法会影响行业的信任和信心水平,并可能对整体放疗体验产生重大影响。该研究报告了患者接受放疗的经验对RTT的看法。四个合作伙伴在这项研究中合作,包括马耳他,波兰,葡萄牙,和英国(牵头网站)。
    方法:进行了一项调查,以收集接受放疗或在过去24个月内接受过放疗的患者的信息。参与者将他们对与以人为本的护理有关的23项陈述的回答按1(强烈不同意)到5(强烈同意)的5分制进行排名。Mann-Whitney或KruskalWallis测试用于测试对包括性别在内的患者特征的5个关键陈述的反应差异。年龄组,诊断,国家,RTT花费的时间和完成测量时剩余的分数。
    结果:包括三百四十七个调查。患者报告对RTT有积极的看法(95.4%同意“我感到被照顾”)。性别之间的回答存在统计学上的显着差异,诊断,国家,RTT花费的时间和剩余的放疗分数。有更多时间使用RTT并在放疗期间完成调查的患者对RTT有更积极的看法。
    结论:这项研究表明,充分的RTT治疗时间是确保患者积极的放疗体验的关键。RTT很专心,理解,和信息最能预测积极的整体患者体验。调查完成的时间会影响回应。
    结论:RTT教育计划应纳入各级以人为中心的护理培训。需要对RTT的患者体验进行进一步研究。
    Radiotherapy is delivered almost exclusively by therapeutic radiographers/radiation therapist (RTTs). Patient\'s perspectives of RTTs affect levels of trust and confidence in the profession and can have a significant impact on overall radiotherapy experience. The study reports patients\' perspectives of RTTs from their experience of undergoing radiotherapy. Four partner sites collaborated in this research and included Malta, Poland, Portugal, and the UK (lead site).
    A survey was developed to gather information from patients receiving radiotherapy or who had had radiotherapy within the previous 24 months. Participants ranked their responses to 23 statements relating to person-centred care on a 5-point scale of 1 (strongly disagree) to 5 (strongly agree). Mann-Whitney or Kruskal Wallis tests were applied to test differences in responses to 5 key statements for patient characteristics including gender, age group, diagnosis, country, time spent with RTTs and number of fractions remaining at survey completion.
    Three hundred and forty-seven surveys are included. Patients report a positive perception of RTTs (95.4% agree with \'I feel cared for\'). Statistically significant differences in responses were found between gender, diagnosis, country, time spent with RTTs and fractions of radiotherapy remaining. Patients who had more time with RTTs and completed their surveys during radiotherapy had a more positive perception of RTTs.
    This study suggests that sufficient time with RTTs is key to ensuring a positive radiotherapy patient experience. RTTs being attentive, understanding, and informative are most predictive of a positive overall patient experience. Timing of survey completion can influence responses.
    RTT education programmes should incorporate training on person-centred care at all levels. Further research into patient experience of RTTs is warranted.
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