目的:儿童癌症的晚期给儿童带来了深刻的身心挑战,同时影响父母,使他们特别容易受到心理社会问题的影响。
方法:这篇综述包括探索以下两种经验的研究:(1)18岁以下的儿科晚期肿瘤患者,(2)有孩子的父母正在接受姑息治疗,或(3)有孩子的父母接受过姑息治疗并死亡。英语语言,任何护理环境的定性期刊研究或灰色文献,包括地理位置和出版年份。探索(1)儿科晚期肿瘤学未接受合格医疗保健专业人员姑息治疗的经验的研究,(3)非亲生父母或非亲生父母家庭成员,被排除在外。
方法:共纳入22项研究,在2000年1月至2023年12月之间发布。72名儿童(年龄在5至18岁之间)和236名父母(年龄在24至57岁之间)参加了所有研究。姑息治疗机构主要包括肿瘤中心,医院和家庭。
结果:从22项纳入的研究中确定了两个主题:(1)在波涛汹涌的水域中航行,忍受艰辛,和(2)在迫在眉睫的死亡威胁中为生命终结做准备。
结论:这篇综述强调了在整体上整合姑息性儿童癌症护理的重要性,特定年龄,以家庭为中心,以人为本,及时。
结论:儿科肿瘤科护士应关注儿童和父母的身体和心理社会需求,促进家庭和社会关系,同时认识到文化和精神需求。未来的研究可能会招募不同年龄的参与者,性别,和文化。
OBJECTIVE: The terminal phase of childhood cancer poses profound physical and mental challenges for children, simultaneously influencing parents and rendering them particularly susceptible to psychosocial issues.
METHODS: This review included studies exploring the experiences of either: (1) paediatric terminal oncology patients aged under 18 years, (2) parents with a child facing terminal cancer undergoing palliative care, or (3) parents with a child who had undergone palliative care and died. English language, qualitative journal studies or grey literature of any care settings, geographical locations and publication years were included. Studies exploring the experiences of (1) paediatric terminal oncology not receiving palliative care from qualified healthcare professionals, and (3) non-biological parents or non-parental family members, were excluded.
METHODS: A total of 22 studies were included, published between January 2000 and December 2023. Seventy-two children (aged between 5 and 18 years old) and 236 parents (aged between 24 and 57 years old) participated across all studies. Palliative care settings mostly comprised oncology centres, hospitals and homes.
RESULTS: Two themes were identified from the 22 included studies: (1) Navigating rough waters and enduring hardships, and (2) Preparing for end-of-life amidst the looming threat of death.
CONCLUSIONS: This review underscored the importance of integrating palliative childhood cancer care in a holistic, age-specific, family-centred, person-centred and timely manner.
CONCLUSIONS: Paediatric oncology nurses should attend to physical and psychosocial needs of children and parents, fostering familial and social ties while recognising cultural and spiritual needs. Future research could recruit participants of varying ages, genders, and cultures.